Development of a measure of caregiver burden in paediatric chronic kidney disease: the Paediatric Renal Caregiver Burden Scale

Journal article


Parham, R., Jacyna, N., Horthi, D., Marks, S., Holttum, S. and Camic, P. 2014. Development of a measure of caregiver burden in paediatric chronic kidney disease: the Paediatric Renal Caregiver Burden Scale. Journal of Health Psychology.
AuthorsParham, R., Jacyna, N., Horthi, D., Marks, S., Holttum, S. and Camic, P.
Abstract

To inform the development of a measure of caregiver burden for carers of children with chronic kidney disease, interviews were conducted with 16 caregivers and 10 renal healthcare professionals. A pool of 97 items generated from interviews was reduced to 60 items following review. A piloting exercise provided evidence for the usability, readability and relevance of items and informed further adaptations resulting in the 51-item Paediatric Renal Caregiver Burden Scale. Further to assessment of its psychometric properties, it is hoped that that the Paediatric Renal Caregiver Burden Scale will serve as a useful measure of caregiver burden in paediatric chronic kidney disease.

Year2014
JournalJournal of Health Psychology
PublisherSage
ISSN1359-1053
Digital Object Identifier (DOI)doi:10.1177/1359105314524971
Publication dates
Print18 Mar 2014
Publication process dates
Deposited11 Nov 2015
Accepted2014
Accepted author manuscript
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https://repository.canterbury.ac.uk/item/878vy/development-of-a-measure-of-caregiver-burden-in-paediatric-chronic-kidney-disease-the-paediatric-renal-caregiver-burden-scale

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Camic, P. 2007. Curiosity shops, alley pickings and assemblage: the psychological benefits of using found objects.
Service user and carer involvement in clinical psychology doctoral training: Training as a professional and remaining human
Holttum, S. 2009. Service user and carer involvement in clinical psychology doctoral training: Training as a professional and remaining human.
The art museum as a health promoting environment
Camic, P. and Springham, N. 2009. The art museum as a health promoting environment.
The clinical psychologist's role in the Osteo-Odonto Kerato Prosthesis Clinic(OOKP): A one year review
Camic, P., Busutill, A., Holt, C., Gomaa, A., Herold, J., Throp, S. and Liu, C. 2009. The clinical psychologist's role in the Osteo-Odonto Kerato Prosthesis Clinic(OOKP): A one year review.
Using photovoice within a community-based intergenerational intervention
Camic, P., Alcock, C. and Barker, C. 2009. Using photovoice within a community-based intergenerational intervention.
Gallery as laboratory: Experiments in new social practices
Camic, P., Roberts, S. and Colbert, S. 2009. Gallery as laboratory: Experiments in new social practices.
Creating an evidence base for using found objects in healthcare via art, art therapy and clinical psychology
Camic, P. 2009. Creating an evidence base for using found objects in healthcare via art, art therapy and clinical psychology.
University-trust collaborative research relationships: building a partnership
Camic, P., Meeten, F. and Williams, C. 2010. University-trust collaborative research relationships: building a partnership.
Does a 'singing together' group improve the quality of life of people with a dementia and their carers?: a pilot evaluation study
Camic, P., Williams, C., Clift, S. and Meeten, F. 2010. Does a 'singing together' group improve the quality of life of people with a dementia and their carers?: a pilot evaluation study.
Making research partnerships better than a blind date
Camic, P. 2010. Making research partnerships better than a blind date.
Research watch
Holttum, S. 2011. Research watch. Mental Health and Social Inclusion. 15 (1), pp. 7-11.
From student to service user to research lecturer on a clinical psychology programme: a personal view on why clinical psychology training needs service user involvement
Holttum, S. 2010. From student to service user to research lecturer on a clinical psychology programme: a personal view on why clinical psychology training needs service user involvement. Clinical Psychology Forum. 209, pp. 39-41.
The art gallery: a place for enhancing mental health
Camic, P. 2010. The art gallery: a place for enhancing mental health.
Small-scale placement-based research in clinical psychology training: the role of qualitative methods
Holttum, S. and Lavender, T. 2001. Small-scale placement-based research in clinical psychology training: the role of qualitative methods. Clinical Psychology. 5, pp. 27-31.
Express yourself? Research in brief
Holttum, S. 1998. Express yourself? Research in brief. The Psychologist. 11 (6), pp. 296-296.
Is abstinence from alcohol dangerous? Research in brief
Holttum, S. 1998. Is abstinence from alcohol dangerous? Research in brief. The Psychologist. 11 (4), p. 186.
The lives of adults over 30 living with sickle cell disorder
Caird, H., Camic, P. and Thomas, V. 2011. The lives of adults over 30 living with sickle cell disorder. British Journal of Health Psychology. 16 (3), pp. 542-558.
Intergenerational practice in the community: A focused ethnographic evaluation
Alcock, C., Camic, P., Barker, C., Haridi, C. and Raven, R. 2011. Intergenerational practice in the community: A focused ethnographic evaluation. Journal of Community & Applied Social Psychology. 21 (5), pp. 419-432.
Assemblage as Rorschach: empirical hermeneutic aesthetics and the art spectator
Camic, P. 2004. Assemblage as Rorschach: empirical hermeneutic aesthetics and the art spectator. in: Frois, J., Andrade, P. and Marques, J. (ed.) Art and Science Lisbon, Portugal Gulbenkian Foundation.
Gastrointestinal evaluation & treatment in psychology
Camic, P. and Gaugh, L. 2004. Gastrointestinal evaluation & treatment in psychology. in: Camic, P. and Knight, S. (ed.) Clinical Handbook of Health Psychology: A practical guide to effective interventions Cambridge, MA, USA Hogrefe & Huber.
Qualitative analysis of experience: grounded theory and case studies
Chamberlain, K., Camic, P. and Yardley, L. 2003. Qualitative analysis of experience: grounded theory and case studies. in: Marks, D. and Yardley, L. (ed.) Research Methods for Clinical and Health Psychology London, UK SAGE Publications Ltd. pp. 69-89
Creating images, sound, movement, enactment, word: the arts in clinical training
Camic, P. 2001. Creating images, sound, movement, enactment, word: the arts in clinical training. Bulletin of Psychology and the Arts. 2.
Building and blending: Creating places for the arts in psychotherapy
Camic, P. 2001. Building and blending: Creating places for the arts in psychotherapy. Bulletin of Psychology and the Arts. 2.
Incorporating the arts into graduate training programs in clinical psychology and medicine
Camic, P. 2000. Incorporating the arts into graduate training programs in clinical psychology and medicine.
An investigation of the impact of training social workers and their managers
Duffy, T., Holttum, S. and Keegan, M. 1998. An investigation of the impact of training social workers and their managers. Alcoholism. 34 (1-2), pp. 93-104.
Personality style, psychological adaptation and expectations of trainee clinical psychologists
Brooks, J., Holttum, S. and Lavender, T. 2002. Personality style, psychological adaptation and expectations of trainee clinical psychologists. Clinical Psychology & Psychotherapy. 9 (4), pp. 253-270.
Determinants of quality of life in black African women with HIV living in London
Onwumere, J., Holttum, S. and Hirst, F. 2002. Determinants of quality of life in black African women with HIV living in London. Psychology, Health and Medicine. 7 (1), pp. 61-74.
The relationship between acceptance and cognitive representations of pain in participants of a pain management programme
Rankin, H. and Holttum, S. 2003. The relationship between acceptance and cognitive representations of pain in participants of a pain management programme. Psychology, Health and Medicine. 8 (3), pp. 329-334.
Factors influencing levels of research activity in clinical psychologists: a new model
Holttum, S. and Goble, L. 2006. Factors influencing levels of research activity in clinical psychologists: a new model. Clinical Psychology & Psychotherapy. 13 (5), pp. 339-351.
Perceived improvements in service user involvement in two clinical psychology training courses
Holttum, S. and Hayward, M. 2010. Perceived improvements in service user involvement in two clinical psychology training courses. Psychology Learning & Teaching. 9 (1), pp. 16-24.
Expanding treatment possibilities for chronic pain through expressive arts therapies
Camic, P. 1999. Expanding treatment possibilities for chronic pain through expressive arts therapies. in: Malchioti, C. (ed.) Medical Art Therapy with Adults London, UK Jessica Kingsley Publishing Ltd. pp. 43-62
Clinical training and the arts
Camic, P. 1999. Clinical training and the arts. Psychology and The Arts.
WAIS III UK: an extension of the UK comparability study
Wycherley, R., Lavender, T., Holttum, S., Crawford, J. and Mockler, D. 2005. WAIS III UK: an extension of the UK comparability study. British Journal of Clinical Psychology. 44 (2), pp. 279-288.
Children's explanations of aggressive incidents at school within an attribution framework
Joscelyne, T. and Holttum, S. 2006. Children's explanations of aggressive incidents at school within an attribution framework. Child and Adolescent Mental Health. 11 (2), pp. 104-110.
More than words: making use of the arts in clinical and counseling psychology training
Camic, P. 2007. More than words: making use of the arts in clinical and counseling psychology training. in: Serlin, I. (ed.) Whole Person Healthcare: The Arts and Health London Praeger. pp. 259-282
Blending and bending paradigms in large scale multi-site educational research
Camic, P. and Rhodes, J. 2003. Blending and bending paradigms in large scale multi-site educational research.
How do women experience myocardial infarction? A qualitative exploration of illness perceptions, adjustment and coping
White, J., Hunter, M. and Holttum, S. 2007. How do women experience myocardial infarction? A qualitative exploration of illness perceptions, adjustment and coping. Psychology, Health and Medicine. 12 (3), pp. 278-288.
Clinical training in applied psychology and the Arts: New possibilities for evidence-based practice
Camic, P. 2007. Clinical training in applied psychology and the Arts: New possibilities for evidence-based practice. The California Psychologist. 40 (6), pp. 9-11.
Comparative clinical feasibility study of three tools for delivery of cognitive behavioural therapy for mild to moderate depression and anxiety, provided on a self-help basis
Pittaway, S., Cupitt, C., Palmer, D., Arowobusoye, N., Milne, R., Holttum, S., Pezet, R. and Patrik, H. 2009. Comparative clinical feasibility study of three tools for delivery of cognitive behavioural therapy for mild to moderate depression and anxiety, provided on a self-help basis. Mental Health in Family Medicine. 6 (3), pp. 145-154.
Referrers' views of a psychological therapies service
Binks, C., Jones, F. and Camic, P. 2009. Referrers' views of a psychological therapies service. Clincial Psychology Forum. 200, pp. 18-23.
How people with psychosis positively contribute to their family: a grounded theory analysis
Coldwell, J., Meddings, S. and Camic, P. 2011. How people with psychosis positively contribute to their family: a grounded theory analysis. Journal of Family Therapy. 33 (3), pp. 353-371.
Young offenders' experiences of traumatic life events: a qualitative investigation.
Paton, J., Crouch, W. and Camic, P. 2009. Young offenders' experiences of traumatic life events: a qualitative investigation. Clinical Child Psychology and Psychiatry. 14 (1), pp. 43-62.
Participant experiences of a mindfulness-based cognitive therapy group for cardiac rehabilitation
Griffiths, K., Camic, P. and Hutton, J. 2009. Participant experiences of a mindfulness-based cognitive therapy group for cardiac rehabilitation. Journal of Health Psychology. 14 (5), pp. 675-681.
Improving middle school climate through teacher-centered change
Rhodes, J., Camic, P., Milburn, M. and Lowe, S. 2009. Improving middle school climate through teacher-centered change. Journal of Community Psychology. 37 (6), pp. 711-724.
From trashed to treasured: a grounded theory analysis of the found object
Camic, P. 2010. From trashed to treasured: a grounded theory analysis of the found object. Psychology of Aesthetics, Creativity, and the Arts. 4 (2), pp. 81-92.
The use of singing-in-a-group as a response to adverse life events
Von Lob, G., Camic, P. and Clift, S. 2010. The use of singing-in-a-group as a response to adverse life events. International Journal of Mental Health Promotion. 12 (3), pp. 45-53.
The arts and global health inequities
Clift, S., Camic, P. and Daykin, N. 2010. The arts and global health inequities. Arts & Health. 2 (1), pp. 3-7.
Coming of age for arts and health: what we hope to achieve
Camic, P., Clift, S. and Daykin, N. 2009. Coming of age for arts and health: what we hope to achieve. Arts & Health. 1 (1), pp. 3-5.
Reflections on involving service users and carers in clinical psychology training
Holttum, S. 2008. Reflections on involving service users and carers in clinical psychology training. The Higher Education Academy Psychology Network Newsletter. 48, pp. 2-3.
Supportive adult relationships and the academic engagement of Latin American immigrant youth
Green, G., Rhodes, J., Hirsch, A., Suarez-Orozco, C. and Camic, P. 2008. Supportive adult relationships and the academic engagement of Latin American immigrant youth. Journal of School Psychology. 46 (4), pp. 393-412.
Perceived changes associated with autogenic training for anxiety: a grounded theory study
Yurdakul, L., Holttum, S. and Bowden, A. 2009. Perceived changes associated with autogenic training for anxiety: a grounded theory study. Psychology and Psychotherapy: Theory Research and Practice. 82 (4), pp. 403-419.
The state of arts and health in England
Clift, S., Camic, P., Chapman, B., Clayton, G., Daykin, N., Eades, G., Parkinson, C., Secker, J., Stickley, T. and White, M. 2009. The state of arts and health in England. Arts & Health. 1 (1), pp. 6-35.
Playing in the mud: Health psychology, the arts and creative approaches to health care
Camic, P. 2008. Playing in the mud: Health psychology, the arts and creative approaches to health care. Journal of Health Psychology. 13 (2), pp. 287-298.
Middle school climate examined and altered by teacher-directed intervention assessed through qualitative and quantitative methodologies
Cafasso, L., Camic, P. and Rhodes, J. 2002. Middle school climate examined and altered by teacher-directed intervention assessed through qualitative and quantitative methodologies. Research in Middle level Education. 25 (2), pp. 1-17.
Building bridges between universities and middle schools: A teacher-centred collaboration
Camic, P. 2006. Building bridges between universities and middle schools: A teacher-centred collaboration. Educational and Child Psychology. 23 (1), pp. 42-51.
Naming the stars: integrating qualitative methods into psychological research
Camic, P., Rhodes, J. and Yardley, L. 2003. Naming the stars: integrating qualitative methods into psychological research. in: Camic, P., Rhodes, J. and Yardley, L. (ed.) Qualitative Research in Psychology: Expanding Perspectives in Methodology and Design Washington American Psychological Association.