Development of a measure of caregiver burden in paediatric chronic kidney disease: the Paediatric Renal Caregiver Burden Scale
Journal article
Parham, R., Jacyna, N., Horthi, D., Marks, S., Holttum, S. and Camic, P. 2014. Development of a measure of caregiver burden in paediatric chronic kidney disease: the Paediatric Renal Caregiver Burden Scale. Journal of Health Psychology. https://doi.org/10.1177/1359105314524971
Authors | Parham, R., Jacyna, N., Horthi, D., Marks, S., Holttum, S. and Camic, P. |
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Abstract | To inform the development of a measure of caregiver burden for carers of children with chronic kidney disease, interviews were conducted with 16 caregivers and 10 renal healthcare professionals. A pool of 97 items generated from interviews was reduced to 60 items following review. A piloting exercise provided evidence for the usability, readability and relevance of items and informed further adaptations resulting in the 51-item Paediatric Renal Caregiver Burden Scale. Further to assessment of its psychometric properties, it is hoped that that the Paediatric Renal Caregiver Burden Scale will serve as a useful measure of caregiver burden in paediatric chronic kidney disease. |
Year | 2014 |
Journal | Journal of Health Psychology |
Publisher | SAGE |
ISSN | 1359-1053 |
Digital Object Identifier (DOI) | https://doi.org/10.1177/1359105314524971 |
Publication dates | |
18 Mar 2014 | |
Publication process dates | |
Deposited | 11 Nov 2015 |
Accepted | 2014 |
Accepted author manuscript | |
Output status | Published |
https://repository.canterbury.ac.uk/item/878vy/development-of-a-measure-of-caregiver-burden-in-paediatric-chronic-kidney-disease-the-paediatric-renal-caregiver-burden-scale
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Cheetham, J., Holttum, S., Springham, N. and Butt, K. 2017. ‘I can see it and I can feel it, but I can’t put my finger on it’: A Foucauldian discourse analysis of experiences of relating on psychiatric inpatient units. Psychology and Psychotherapy: Theory Research and Practice. 2017. https://doi.org/10.1111/papt.12162Understanding the structure, experiences and challenges of social support for older lesbian, gay and bisexual people: a systematic review
Hawthorne, O., Camic, P. and Rimes, K. 2018. Understanding the structure, experiences and challenges of social support for older lesbian, gay and bisexual people: a systematic review. Ageing & Society. https://doi.org/10.1017/S0144686X18000910The arts and dementia: emerging directions for theory, research and practice
Camic, P., Zeilig, H. and Crutch, S. 2018. The arts and dementia: emerging directions for theory, research and practice. Dementia: The International Journal for Social Research and Practice. 17 (3), pp. 641-644. https://doi.org/10.1177/1471301218772972Factors associated with informant-reported cognitive decline in older adults: a systemised literature review
Morrell, L., Camic, P. and Genis, M. 2018. Factors associated with informant-reported cognitive decline in older adults: a systemised literature review. Dementia: The International Journal for Social Research and Practice. https://doi.org/10.1177/1471301218759836Mindfulness practice following mindfulness-based cognitive therapy
Jones, F., Langdon, S., Hutton, J. and Holttum, S. 2017. Mindfulness practice following mindfulness-based cognitive therapy.Touchscreen interventions and the wellbeing of people with dementia and caregivers: a systematic review
Tyack, C. and Camic, P. 2017. Touchscreen interventions and the wellbeing of people with dementia and caregivers: a systematic review. International Psychogeriatrics. https://doi.org/10.1017/S1041610217000667Observing mentalizing art therapy groups for people diagnosed with borderline personality disorder
Springham, N. and Camic, P. 2017. Observing mentalizing art therapy groups for people diagnosed with borderline personality disorder. International Journal of Art Therapy. https://doi.org/10.1080/17454832.2017.1288753Processes of change in school-based art therapy with children: a systematic qualitative study
Deboys, R., Holttum, S. and Wright, K. 2016. Processes of change in school-based art therapy with children: a systematic qualitative study. International Journal of Art Therapy. 21 (3), pp. 1-14. https://doi.org/10.1080/17454832.2016.1262882Conceptualising what we mean by ‘wellbeing’ in the dementias
Strohmaier, S. and Camic, P. 2017. Conceptualising what we mean by ‘wellbeing’ in the dementias.Measuring physiological responses to the arts in people with dementia
Thomas, G., Crutch, S. and Camic, P. 2017. Measuring physiological responses to the arts in people with dementia. International Journal of Psychophysiology. https://doi.org/10.1016/j.ijpsycho.2017.11.008Effects of a museum-based social-prescription intervention on quantitative measures of psychological wellbeing in older adults
Lockyer, B., Thomson, L., Camic, P. and Chatterjee, H, 2017. Effects of a museum-based social-prescription intervention on quantitative measures of psychological wellbeing in older adults. Perspectives in Public Health. https://doi.org/10.1177/1757913917737563Exploring the relationship between suburban allotment gardening and wellbeing: An interpretative phenomenological analysis
Clatworthy, J., Hinds, J. and Camic, P. 2017. Exploring the relationship between suburban allotment gardening and wellbeing: An interpretative phenomenological analysis. Ecopsychology. 9 (3), pp. 121-129. https://doi.org/10.1089/eco.2016.0048Museum-based programs for socially isolated older adults: understanding what works
Todd, C., Camic, P., Lockyer, B., Thomson, L. and Chatterjee, H. 2017. Museum-based programs for socially isolated older adults: understanding what works. Health & Place. 48, pp. 47-55. https://doi.org/10.1016/j.healthplace.2017.08.005Non-clinical community interventions: a systematised review of social prescribing schemes
Chatterjee, H., Camic, P., Lockyer, B. and Thomson, L. 2017. Non-clinical community interventions: a systematised review of social prescribing schemes. Arts & Health: An International Journal for Research, Policy and Practice. https://doi.org/10.1080/17533015.2017.1334002Collaboration in museums and health research
Morse, N., Lockyer, B., Camic, P., Thomson, L. and Chatterjee, H. 2017. Collaboration in museums and health research. BMJ Open. 7 (Supp 2). https://doi.org/10.1136/bmjopen-2017-016492.24Museum object handling: a health promoting community-based activity for dementia care
Camic, P., Hulbert, S. and Kimmel, J. 2017. Museum object handling: a health promoting community-based activity for dementia care. Journal of Health Psychology. https://doi.org/10.1177/1359105316685899Social prescribing: a review of community referral schemes
Camic, P. 2016. Social prescribing: a review of community referral schemes.Arts, health & wellbeing: reflections on a national seminar series and building a UK research network
Stickley, T., Parr, H., Daykin, N., Clift, S., De Nora, T., Hacking, S., Camic, P., Joss, M., White, M. and Hogan, S. 2016. Arts, health & wellbeing: reflections on a national seminar series and building a UK research network. Arts & Health: An International Journal for Research, Policy and Practice. https://doi.org/10.1080/17533015.2016.1166142Art therapy-based groups for work-related stress with staff in health and social care: an exploratory study
Huet, V. and Holttum, S. 2016. Art therapy-based groups for work-related stress with staff in health and social care: an exploratory study. The Arts in Psychotherapy. 50, pp. 46-57. https://doi.org/10.1016/j.aip.2016.06.003Developing a public health placement in clinical psychology
Camic, P. 2016. Developing a public health placement in clinical psychology.