References | Alexander, H. A. (2003). Aesthetic inquiry in education: Community, transcendence and the meaning of pedagogy. Journal of Aesthetic Education, 37(2), 1–18. https://doi.org/10.2307/3527451 Allen, J. P. (2015). The ancient Egyptian pyramid texts, (2nd ed.). Society for Biblical Literature. translator. Alzheimer’s Society (2017). Turning up the volume: Unheard voices of people with dementia. Author. Andrews, T. (2012). What is social constructionism? Grounded Theory Review, 11(1), 39. http://groundedtheoryreview.com/ 2012/06/01/what-is-social-constructionism/ Austin, D., & Forinash, M. (2005). Arts-based inquiry. IN: Music therapy research (2nd ed., pp. 458–471). N. H. Gilsum: Barcelona Publishers. Ball, S., Leach, B., Bousfield, J., Smith, P., & Marjanovic, S. (2021). Arts-based approaches to public engagement with research. Rand. Bartlett, R. (2014a). The emergent modes of dementia activism. Ageing & Society, 34(4), 623–644. https://doi.org/10.1017/ S0144686X12001158 Bartlett, R. (2014b). Citizenship in action: The lived experiences of citizens with dementia who campaign for social change. Disability & Society, 29(8), 1291–1304. https://doi.org/10.1080/ 09687599.2014.924905 Beissinger, M. H. (2012). Oral poetry (pp. 978–981). The Princeton encyclopedia of poetry and poetics: Princeton University Press.Berger, P., & Luckmann, T. (1991). The social construction of reality. Penguin. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa Breton, A. (1948). Le cadavre exquis: Son exaltation par Andr´e Breton. Paris La Dragonne, Galerie Nina Dausset, (October 7– 30). British Psychological Society (2016). Psychological dimensions of dementia: Putting the person at the centre of care. author. Brotherhood, E. V., Stott, J., Windle, G., Barker, S., Culley, S., Harding, E., Camic, P. M., Caufield, M., Ezeofor, V., Hoare, Z., McKee-Jackson, R., Roberts, J., Sharp, R., Suarez-Gonzalez, A., Sullivan, M. P., Tudor Edwards, R.,Walton, J.,Waddington, C., Winrow, E., & Crutch, S. J. (2020). Protocol for the rare dementia support (RDS) impact study. International Journal of Geriatric Psychiatry, 35(8), 833–841. https://doi.org/10.1002/ gps.5253 Bryman, A. (2008). Of methods and methodology. Qualitative Research in Organisations and Management, 3(2), 159–168. https://doi.org/10.1108/17465640810900568 Camic, P. M. (2008). Playing in the mud: Health psychology, the arts, and creative approaches to health care. Journal of Health Psychology, 13(2), 287–298. https://doi.org/10.1177/1359105307086698 Camic, P. M (Ed.), (2021). (2nd ed.). Qualitative research in psychology: Expanding perspectives in methodology and design: American Psychological Association. Carey, J (2020). A little history of poetry. Yale University Press. https://doi.org/10.12987/9780300252521 Cartwright, A. V., Stoner, C. R., Pione, R. D., & Spector, A. (2021). The experiences of those affected by parental young onset dementia: A qualitative systematic literature review. Dementia, 20(7), 2618–2639. https://doi.org/10.1177/1471301220988231 Clemerson, G., Walsh, S., & Isaac, C. (2014). Towards living well with young onset dementia: An exploration of coping from the perspective of those diagnosed. Dementia, 13(4), 451–466. https://doi.org/10.1177/1471301212474149 York (2016). In S. Clift, & P. M Camic (Eds.), Oxford textbook of creative arts, health and wellbeing: International perspectives on practice, policy and research. Oxford University Press. Daykin, N., & Stickley, T. (2016). The role of qualitative research in arts and health. In S. Clift, & P. M. Camic (Eds.), Oxford textbook of creative arts, health and wellbeing: International perspectives on practice, policy and research. Oxford University Press. Department of Constitutional AffairsLondon (2007). The mental capacity act code of practice. TSO. https://www.gov.uk/ government/publications/mental-capacity-act-code-of-practice Dewing, J. (2008). Personhood and dementia care: Revisiting tom kitwood’s ideas. International Journal of Older People Nursing,3(1), 3–13. https://doi.org/10.1111/j.1748-3743.2007.00103.x Finley, S. (2007). Arts-based research. In G. Knowles, & A. L. Cole (Eds.), HandbookHandbook of the arts in qualitative research (pp. 71–82). Sage. Finnegan, R. (2012). Oral literature in Africa. Open Book Publishers. Fraser, K. D. (2011). Fatima al Sayah, FArts-based methods in health research: A systematic review of the literature. Arts & Health, 3(2), 110–145. https://doi.org/10.1080/17533015.2011.561357 Goodenough, B., Fleming, R., Young, M., Burns, K., Jones, C., & Forbes, F. (2017). Raising awareness of research evidence among health professionals delivering dementia care: Are knowledge translation workshops useful? Gerontology & Geriatrics Education, 38(4), 392–406. https://doi.org/10.1080/ 02701960.2016.1247064 Gregory, H. (2011). Using poetry to improve the quality of life and care for people with dementia: A qualitative analysis of the try to remember programme. Arts &; Health, 3(2), 160–172. https:// doi.org/10.1080/17533015.2011.584885 Guzm´an-Gar´cia, A., Hughes, J. C., James, I. A., & Rochester, L. (2013). Dancing as a psychosocial intervention in care homes: A systematic review of the literature. International Journal of Geriatric Psychiatry, 28(9), 914–924. https://doi.org/10.1002/ gps.3913 Hadas, R. (2011). Strange relation: A memoir of marriage, dementia and poetry. Paul Dry Books. Hammersley, M. (1992). What’s wrong with ethnography? Routledge. Hanauer, D. I. (2010). Poetry as research. John Benjamins. Harvey, R. J., Roques, P., Fox, N. C., & Rossor, M. N. (1996). Non- Alzheimer dementias in young-patients. British Journal of Psychiatry, 168, 384–385. https://doi.org/doi:10.1192/bjp.168. 3.384b Hendriks, S., Peetoom, K., Bakker, C., van der Flier, W. M., Papma, J. M., Koopmans, R., Verhey, F. R. J., de Vugt, M., K¨ohler, S., Withall, A., Parlevliet, J. L., Uysal-Bozkir, O¨ ., Gibson, R. C., Neita, S. M., Nielsen, T. R., Salem, L. C., Nyberg, J., Lopes, M. A., Dominguez, J. C., & Ruano, L. (2021). Young-onset dementia epidemiology study group global prevalence of young-onset dementia: A systematic review and meta-analysis. JAMA Neurology, 78(9), 1080–1090. https://doi.org/10.1001/ jamaneurol.2021.2161 Higgs, P., & Gilleard, C. (2016). Interrogating personhood and dementia. Aging & Mental Health, 20(8), 773–780. http://dx.doi. org/10.1080/13607863.2015.1118012 Kidd, L. L., Zauszniewski, J. A., & Morris, D. L (2011). Benefits of a poetry writing intervention for family caregivers of elders with dementia. Issues in Mental Health Nursing, 32(9), 598–604. https://doi.org/10.3109/01612840.2011.576801 Kit wood, T. M. (1997). Dementia reconsidered: The person comes first. Open University Press. Konishi, J (1984). A history of Japanese literature: The archaic and ancient ages. Princeton University Press. Kriss, A., & Mulligan (2013). Raising the exquisite corpse: Collaborative story-writing in inpatient group psychotherapy. The New School Psychology Bulletin, 10(1), 21–26. online ISSN: 1931-7948. https://doi.org/10.1037/e543732013-003 Lafrenière, D., & Cox, S. M. (2012). ‘If you can call it a poem’: Toward a framework for the assessment of arts-based works.Qualitative Research, 13(3), 318–336. https://doi.org/10.1177/ 1468794112446104 Lee, P. H. (2002). The Columbia anthology of traditional Korean poetry. Columbia University Press. Liu,W. C.,& Yucheng Lo, I. (Eds.) (1990). Sunflower splendor: Three thousand years of Chinese poetry: Indiana University Press. Living Words (2021). Bringing the inside out: Living Words Press.Folkestone Malterud, K., Siersma, V., & Guassora, A. D. (2016). Sample size in qualitative interview studies: Guided by information power. Qualitative Health Research, 26(13), 1753–1760. https://doi. org/10.1177/1049732315617444 Malterud, K., Siersma, V., & Guassora, A. D. (2021). Information power: Sample content and size in qualitative studies. In P. M. Camic (Ed.), Qualitative research in psychology: Expanding perspectives in methodology and design (2nd ed.): American Psychological Association. https://doi.org/10.1037/0000252- 004 McCulliss (2013). Poetic inquiry and multidisciplinary qualitative research. Journal of Poetry Therapy, 26(2), 83–114. https://doi. org/10.1080/08893675.2013.794536. McNiff, S. (2007). Arts-based research. In G. Knowles, & A. L. Cole (Eds.), Handbook of the arts in qualitative research (pp. 29–41). Sage. Mental Capacity Act (2005). Originally. https://www.legislation.gov. uk/ukpga/2005/9/contents Millenaar, J. K., Bakker, C., Koopmans, R. T., Verhey, F. R., Kurz, A.,& de Vugt,M. E. (2016). The care needs and experiences with the use of services of people with young-onset dementia and their caregivers: A systematic review. International Journal of Geriatric Psychiatry, 31(12), 1261–1276. https://doi.org/10.1002/gps.4502 Morse, J. M. (2015). All data are not equal. Qualitative Health Research, 25(9), 1169–1170. https://doi.org/10.1177/1049732315597655 Nyman, S. R., & Szymczynska, P. (2016). Meaningful activities for improving the wellbeing of people with dementia: Beyond mere pleasure to meeting fundamental psychological needs. Perspectives in Public Health, 136(2), 99–107. https://doi.org/10. 1177/1757913915626193 O’Brien, B. C., Harris, I. B., Beckman, T. J., Reed, D. A., & Cook, D. A. (2014). Standards for reporting qualitative research: A synthesis of recommendations. Academic Medicine, 89(9), 1245–1251. https://doi.org/10.1097/ACM.0000000000000388Petrescu, I., MacFarlane, K., & Ranzijn, R. (2014). Psychological effects of poetry workshops with people with early stage dementia: An exploratory study. Dementia, 13(2), 207–215. https://doi.org/10.1177/1471301212456279 Sinner, A., Leggo, C., Irwin, R. L., Gouzouasis, P., & Grauer, K. (2006). Arts-based educational research dissertations: Reviewing the practices of new scholars. Canadian Journal of Education, 29(4), 1223–1270. https://doi.org/10.2307/20054216 Sullivan, M. P., Camic, P. M., Grillo, A., & Harding, E. (2021). Situating rare dementia support: A multisite analysis. 50th annual conference of the British Gerontological Society. Lancaster University, 7-9. Swinnen, A. M. C. (2016). A study of poetry interventions in dementia care. Dementia, 15(6), 1377–1404. https://doi.org/10. 1177/1471301214560378. Healing words. Swinnen, A. M. C., & de Medeiros, K. (2018). “Play” and people living with dementia: A humanities-based inquiry of TimeSlips and the Alzheimer’s poetry project. The Gerontologist, 58(2), 261–269. https://doi.org/10.1093/geront/gnw196 TCPS (2018). Tri-council policy statement: Ethical conduct for research involving humans. https://ethics.gc.ca/eng/policy-politique_tcps2- eptc2_2018.html UK Dementia Research Institute (2021). Supporting people living with rare dementias: In conversation with Prof Nick Fox. https:// ukdri.ac.uk/news-and-events/supporting- WHO (2020). Dementia. https://www.who.int/news-room/fact-sheets/ detail/dementia Woolley, J. D., Khan, B. K., Murthy, N. K., Miller, B. L., & Rankin, K. P (2011). The diagnostic challenge of psychiatric symptoms in neurodegenerative disease, diagnostic challenge of psychiatric symptoms in neurodegenerative disease: Rates of and risk factors for prior psychiatric diagnosis in patients with early neurodegenerative disease. The Journal of Clinical Psychiatry, 72(2), 126–133. https://doi.org/10.4088/JCP.10m06382oli Zeilig, H., Killick, J., & Fox, C. (2014). Participative arts for people living with a dementia: A critical review. International Journal of Ageing and Later Life, 9(1), 7–34. https://doi.org/10.3384/ ijal.1652-8670.14238 Zeilig, H., West, J., & Williams, M. (2018). Co-creativity: Possibilities for using the arts with people with a dementia. Quality in Ageing and Older Adults, 19(2), 35–145. https://doi.org/10. 1108/QAOA-02-2018-0008 |
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