Development of a measure of caregiver burden in paediatric chronic kidney disease: the Paediatric Renal Caregiver Burden Scale
Journal article
Parham, R., Jacyna, N., Horthi, D., Marks, S., Holttum, S. and Camic, P. 2014. Development of a measure of caregiver burden in paediatric chronic kidney disease: the Paediatric Renal Caregiver Burden Scale. Journal of Health Psychology. https://doi.org/10.1177/1359105314524971
Authors | Parham, R., Jacyna, N., Horthi, D., Marks, S., Holttum, S. and Camic, P. |
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Abstract | To inform the development of a measure of caregiver burden for carers of children with chronic kidney disease, interviews were conducted with 16 caregivers and 10 renal healthcare professionals. A pool of 97 items generated from interviews was reduced to 60 items following review. A piloting exercise provided evidence for the usability, readability and relevance of items and informed further adaptations resulting in the 51-item Paediatric Renal Caregiver Burden Scale. Further to assessment of its psychometric properties, it is hoped that that the Paediatric Renal Caregiver Burden Scale will serve as a useful measure of caregiver burden in paediatric chronic kidney disease. |
Year | 2014 |
Journal | Journal of Health Psychology |
Publisher | SAGE |
ISSN | 1359-1053 |
Digital Object Identifier (DOI) | https://doi.org/10.1177/1359105314524971 |
Publication dates | |
18 Mar 2014 | |
Publication process dates | |
Deposited | 11 Nov 2015 |
Accepted | 2014 |
Accepted author manuscript | |
Output status | Published |
https://repository.canterbury.ac.uk/item/878vy/development-of-a-measure-of-caregiver-burden-in-paediatric-chronic-kidney-disease-the-paediatric-renal-caregiver-burden-scale
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