A scoping review of gaps and priorities in dementia care in Europe

Journal article


Martin, A., O'Connor, S. and Jackson, C. 2018. A scoping review of gaps and priorities in dementia care in Europe. Dementia: the international journal of social research and practice. https://doi.org/10.1177/1471301218816250
AuthorsMartin, A., O'Connor, S. and Jackson, C.
Abstract

Dementia is a widely recognized public health priority due to the increasing number of people living with the condition and its attendant health, social and economic costs. Delivering appropriate care is a challenge in many countries in Europe contributing to unmet needs of people living with dementia. Acute hospital settings are often the default route in pursuit for dementia care due to the lack of or limited knowledge of local service provisions. The care environment and the skillsets in acute hospitals do not fully embrace the personhood necessary in dementia care. Predictions of an exponential increase in people living with dementia in the coming 30 years require evidence based strategies for advancing dementia care and maximizing independent living. However, the evidence required to inform priorities for enabling improvements in dementia care is rarely presented in a way that stimulates and sustains political interests.

This scoping review of the literature drew on principles of meta-ethnography to clarify the gaps and priorities in dementia care in Europe. The review constituted eight papers (n=8) and a stakeholder consultation involving three organizations implementing dementia care programs in Europe comprising: Emmaus Elderly Care and Residential Care Holy Heart in Belgium and ZorgSaam in the Netherlands. Overarching concepts of gaps identified include fragmented non person centered care pathways, the culture of dementia care, limited knowledge and skills, poor communication and information sharing and ineffective healthcare policies. Key areas distinguished from the literature for narrowing the gaps to improve care experiences and the support for people living with dementia care encompass person centered care, integrated care pathways and healthcare workforce development. Action for advancing care and maximizing independent living needs to go beyond mere inclusions on political agendas to incorporate a shift in health and social care policies to address the needs of people living with dementia.

Key words Dementia care, care priorities, gaps in care

KeywordsDementia care; care priorities; gaps in care
Year2018
JournalDementia: the international journal of social research and practice
Digital Object Identifier (DOI)https://doi.org/10.1177/1471301218816250
Publication dates
Online29 Nov 2018
Publication process dates
Deposited13 Nov 2018
Accepted04 Nov 2018
Accepted author manuscript
Output statusPublished
Additional information

Attribution-NonCommercial 4.0 International (CC BY-NC 4.0)

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