A scoping review of gaps and priorities in dementia care in Europe
Journal article
Martin, A., O'Connor, S. and Jackson, C. 2018. A scoping review of gaps and priorities in dementia care in Europe. Dementia: The International Journal for Social Research and Practice. https://doi.org/10.1177/1471301218816250
| Authors | Martin, A., O'Connor, S. and Jackson, C. |
|---|---|
| Abstract | Dementia is a widely recognized public health priority due to the increasing number of people living with the condition and its attendant health, social and economic costs. Delivering appropriate care is a challenge in many countries in Europe contributing to unmet needs of people living with dementia. Acute hospital settings are often the default route in pursuit for dementia care due to the lack of or limited knowledge of local service provisions. The care environment and the skillsets in acute hospitals do not fully embrace the personhood necessary in dementia care. Predictions of an exponential increase in people living with dementia in the coming 30 years require evidence based strategies for advancing dementia care and maximizing independent living. However, the evidence required to inform priorities for enabling improvements in dementia care is rarely presented in a way that stimulates and sustains political interests. This scoping review of the literature drew on principles of meta-ethnography to clarify the gaps and priorities in dementia care in Europe. The review constituted eight papers (n=8) and a stakeholder consultation involving three organizations implementing dementia care programs in Europe comprising: Emmaus Elderly Care and Residential Care Holy Heart in Belgium and ZorgSaam in the Netherlands. Overarching concepts of gaps identified include fragmented non person centered care pathways, the culture of dementia care, limited knowledge and skills, poor communication and information sharing and ineffective healthcare policies. Key areas distinguished from the literature for narrowing the gaps to improve care experiences and the support for people living with dementia care encompass person centered care, integrated care pathways and healthcare workforce development. Action for advancing care and maximizing independent living needs to go beyond mere inclusions on political agendas to incorporate a shift in health and social care policies to address the needs of people living with dementia. Key words Dementia care, care priorities, gaps in care |
| Keywords | Dementia care; care priorities; gaps in care |
| Year | 2018 |
| Journal | Dementia: The International Journal for Social Research and Practice |
| Digital Object Identifier (DOI) | https://doi.org/10.1177/1471301218816250 |
| Publication dates | |
| Online | 29 Nov 2018 |
| Publication process dates | |
| Deposited | 13 Nov 2018 |
| Accepted | 04 Nov 2018 |
| Accepted author manuscript | |
| Output status | Published |
| Additional information | Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) |
Permalink -
https://repository.canterbury.ac.uk/item/88xq3/a-scoping-review-of-gaps-and-priorities-in-dementia-care-in-europe
Download files
407
total views92
total downloads5
views this month2
downloads this month
Export as
Related outputs
The development, implementation and evaluation of an online resource for the AHP educator career framework
Hammond, J., Hilburn, N., Martin, A. and Kerrell, R. 2024. The development, implementation and evaluation of an online resource for the AHP educator career framework.The implementation and evaluation of the AHP educator career framework
Hammond, J., Hilburn, N., Martin, A. and Kerrell, R. 2024. The implementation and evaluation of the AHP educator career framework . NHS England.Is my mind my own? Inside managing self-diagnosed insomnia in a mixed economy: a critical autoethnography
Martin, A. 2024. Is my mind my own? Inside managing self-diagnosed insomnia in a mixed economy: a critical autoethnography. PhD Thesis School of Allied and Public Health ProfessionsCommunity areas of sustainable care and dementia excellence in Europe (CASCADE) - Final report: A process and technology evaluation of the CASCADE programme in the United Kingdom implementation sites
Martin, A., Hatzidimitriadou, E., Sangeorzan, I., Smith, R., Wright, T., Price, N., Sirlantzis, K. and Rajapakse, S. 2023. Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Final report: A process and technology evaluation of the CASCADE programme in the United Kingdom implementation sites. Canterbury Canterbury Christ Church University.Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Final report findings from the evaluation study of the CASCADE model at two implementation sites in Belgium
Sangeorzan, I., Martin, A., Hatzidimitriadou, E., Smith, R., Hulbert, S. and Wright, T. 2023. Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Final report findings from the evaluation study of the CASCADE model at two implementation sites in Belgium. Canterbury Canterbury Christ Church University.Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Executive report: A retrospective analysis of the ZorgSaam model of long-term home and residential care for older adults
Martin, A., Smith, R., Hatzidimitriadou, E., Sangeorzan, I., Hulbert, S. and Wright, T. 2023. Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Executive report: A retrospective analysis of the ZorgSaam model of long-term home and residential care for older adults. Canterbury Canterbury Christ Church University.Effectiveness of the community areas for sustainable dementia care and excellence in Europe (CASCADE) model of care: findings from a residential care home in Belgium
Martin, A. and Hatzidimitriadou, E., Smith, R., Sangeorzan, I., Wright, T., & Hulbert, S. 2022. Effectiveness of the community areas for sustainable dementia care and excellence in Europe (CASCADE) model of care: findings from a residential care home in Belgium.Overcoming COVID-19 constraints on person centered dementia care: A narrative inquiry of lived experiences of residential care staff in Belgium
Martin, A. 2022. Overcoming COVID-19 constraints on person centered dementia care: A narrative inquiry of lived experiences of residential care staff in Belgium. Journal of Long-Term Care. pp. 183-192. https://doi.org/10.31389/jltc.129The experiences and perceptions of people living with dementia, informal carers and healthcare professionals of integrated care: findings from a qualitative evidence synthesis
Martin, A. and Smith, R., Martin, A, Wright, T., Hulbert, S.,& Hatzidimitriadou,E. 2021. The experiences and perceptions of people living with dementia, informal carers and healthcare professionals of integrated care: findings from a qualitative evidence synthesis.Overcoming the COVID-19 constraints on person-centred dementia care: a narrative inquiry of experiences of residential care staff in Belgium
Martin, A. and Hatzidimitriadou, E. 2021. Overcoming the COVID-19 constraints on person-centred dementia care: a narrative inquiry of experiences of residential care staff in Belgium.Integrated dementia care: A qualitative evidence synthesis of the experiences of people living with dementia, informal carers and healthcare professionals.
Smith, R., Martin, A., Wright, T., Hulbert, S. and Hatzidimitriadou, E. 2021. Integrated dementia care: A qualitative evidence synthesis of the experiences of people living with dementia, informal carers and healthcare professionals. Archives of Gerontology and Geriatrics. 97, p. 104471. https://doi.org/S0167-4943(21)00134-5The CASCADE project: exploring a ‘guest house’ concept
Smith, R., Wright, T., Martin, A. and Hatzidimitriadou, E. 2020. The CASCADE project: exploring a ‘guest house’ concept. Journal of Dementia Care. 28 (5), pp. 20-21.Developing an integrated career and competence framework for whole systems approach to urgent and emergency care delivery
Martin, A. and Manley, K. 2019. Developing an integrated career and competence framework for whole systems approach to urgent and emergency care delivery. International Emergency Nursing. https://doi.org/10.1016/j.ienj.2019.06.007An acquired or heritable connective tissue disorder? a review of hypermobile Ehlers Danlos Syndrome
Martin, A. 2019. An acquired or heritable connective tissue disorder? a review of hypermobile Ehlers Danlos Syndrome. European Journal of Medical Genetics. https://doi.org/10.1016/j.ejmg.2019.103672The whole systems approach to integrating urgent and emergency care
Manley, K., Martin, A., Jackson, C. and Wright, T. 2015. The whole systems approach to integrating urgent and emergency care. Health Service Journal- for healthcare leaders.Reviewing challenges and gaps in European and global dementia policy
Wright, T. and O'Connor, S. 2018. Reviewing challenges and gaps in European and global dementia policy. Journal of Public Mental Health. 17 (4), pp. 157-167. https://doi.org/10.1108/JPMH-02-2018-0012A realist synthesis of effective continuing professional development (CPD): a case study of healthcare practitioners' CPD
Manley, K., Martin, A., Jackson, C. and Wright, T. 2018. A realist synthesis of effective continuing professional development (CPD): a case study of healthcare practitioners' CPD. Nurse Education Today. 69, pp. 134-141.Baseline case study report: the rich picture
Jackson, C. 2018. Baseline case study report: the rich picture.Survey of international experts to build consensus about optimum care standards, educational programmes, care environments & technological developments for people living with dementia
Wright, T. and Jackson, C. 2018. Survey of international experts to build consensus about optimum care standards, educational programmes, care environments & technological developments for people living with dementia.A scoping review of staff training and education needs
Martin, A. and Jackson, C. 2018. A scoping review of staff training and education needs.CASCADE baseline review of current partner technology enabled care service (TECS) initiatives and proposal for a collaborative evaluation strategy
Jackson, C. 2018. CASCADE baseline review of current partner technology enabled care service (TECS) initiatives and proposal for a collaborative evaluation strategy.
Using participatory practice development, Delphi and realist research approaches to understand how frontline teams can use the workplace to integrate learning, development, improvement and innovation
Manley, K. and Jackson, C. 2018. Using participatory practice development, Delphi and realist research approaches to understand how frontline teams can use the workplace to integrate learning, development, improvement and innovation.Using participatory, practice development, Delphi and realist research approaches to understand how frontline teams can use the workplace to make sustainable improvements in the quality of their practice
Manley, K., Jackson, C., Martin, A. and Wright, T. 2018. Using participatory, practice development, Delphi and realist research approaches to understand how frontline teams can use the workplace to make sustainable improvements in the quality of their practice.Safety culture, quality improvement, realist evaluation (SCQIRE): evaluating the impact of the patient safety collaborative initiative
Manley, K., Jackson, C., McKenzie, C., Martin, A. and Wright, T. 2017. Safety culture, quality improvement, realist evaluation (SCQIRE): evaluating the impact of the patient safety collaborative initiative.Patient safety, culture, leadership and improvement capability in frontline practice
Martin, A. and Manley, K. 2017. Patient safety, culture, leadership and improvement capability in frontline practice.Communication in dementia
Watts, P. and O'Connor, S. 2017. Communication in dementia. in: Schussler, S. and Lohrmann, C. (ed.) Dementia in Nursing Homes Springer. pp. 105-122End-of-life care and advance care planning in Dementia
O'Connor, S. 2017. End-of-life care and advance care planning in Dementia. in: Schussler, S. and Lohrmann, C. (ed.) Dementia in Nursing Homes Springer. pp. 159Evaluation report of the impact of the second year of the Community Art Studio Group initiative to enhance the mental health and wellbeing of residents in Canterbury
Jackson, C. 2017. Evaluation report of the impact of the second year of the Community Art Studio Group initiative to enhance the mental health and wellbeing of residents in Canterbury.A pedagogic study to measure the effectiveness of an impact indicators framework for CPD learning on practitioner development in the workplace
Jackson, C. 2017. A pedagogic study to measure the effectiveness of an impact indicators framework for CPD learning on practitioner development in the workplace.Primary care strategic workforce planning programme
Jackson, C. and Wright, T. 2017. Primary care strategic workforce planning programme.Developing standards for an integrated approach to workplace facilitation for interprofessional teams in health and social care contexts: a Delphi study
Martin, A. and Manley, K. 2017. Developing standards for an integrated approach to workplace facilitation for interprofessional teams in health and social care contexts: a Delphi study. Journal of Interprofessional Care. https://doi.org/10.1080/13561820.2017.1373080Reflections on the SCQIRE project: an evaluation in progress
Jackson, C. 2017. Reflections on the SCQIRE project: an evaluation in progress.Addressing the issue of safer staffing in community care settings: shining the spotlight on doing things differently
Jackson, C. 2017. Addressing the issue of safer staffing in community care settings: shining the spotlight on doing things differently.Embedding the CPD impact tool in faculty programmes: a snapshot pilot of its potential application
Jackson, C. 2017. Embedding the CPD impact tool in faculty programmes: a snapshot pilot of its potential application.Facilitating in the moment of practice
Jackson, C. and Manley, K. 2017. Facilitating in the moment of practice.Safety culture, quality improvement realistic evaluation. SCQIRE project
Jackson, C. 2017. Safety culture, quality improvement realistic evaluation. SCQIRE project.Understanding factors behind the late testing and diagnoses of HIV: a review of the international literature
O'Connor, S. and Manship, S. 2016. Understanding factors behind the late testing and diagnoses of HIV: a review of the international literature. HIV Nursing. 16 (4), pp. 97-103.The contribution of community singing groups to the well-being of older people: participant perspectives from the United Kingdom
Skingley, A., Martin, A. and Clift, S. 2016. The contribution of community singing groups to the well-being of older people: participant perspectives from the United Kingdom. Journal of Applied Gerontology. 35 (12), pp. 1302-1324. https://doi.org/10.1177/0733464815577141Summary of proceedings from the launch symposium, discussion, and proposed action plan for the England Centre for Practice Development’s international community of practice for end of life care
O'Connor, S. and The England Centre for Practice Development International Community of Practice for End of Life Care 2016. Summary of proceedings from the launch symposium, discussion, and proposed action plan for the England Centre for Practice Development’s international community of practice for end of life care.Safe caseloads for adult community nursing services – an updated review of the evidence
Jackson, C., Wright, T. and Martin, A. 2016. Safe caseloads for adult community nursing services – an updated review of the evidence.Practice development - what can it offer us as an approach to co- designing sustainable research, innovation and improvement?
Jackson, C. 2017. Practice development - what can it offer us as an approach to co- designing sustainable research, innovation and improvement?Overcoming synecdoche: why practice development and quality improvement approaches should be better integrated
Manley, K., Büscher, A., Jackson, C., O’Connor, S. and Stehling, H. 2017. Overcoming synecdoche: why practice development and quality improvement approaches should be better integrated. International Practice Development Journal. 7 (1). https://doi.org/10.19043/ipdj.71.012Publishing your work: an editor’s perspective
O'Connor, S. 2015. Publishing your work: an editor’s perspective.Practice development in end of life home care
O'Connor, S. 2015. Practice development in end of life home care.Transforming the workforce through systems leadership and workplace facilitation of learning development and improvement
Manley, K. and Martin, A. 2016. Transforming the workforce through systems leadership and workplace facilitation of learning development and improvement. Enhancing Practice Conference: Unearthing the Architecture of Practice Patterns, Practice Development and the Co-Construction of Healthful Workplaces. Queen Margaret University, Edinburgh, Scotland