National Audit Office (UK). Progress in improving stroke
care. 2010. Her Majesty’s Stationery Office P002346666 02/
1370 P. MASTERSON-ALGAR ET AL.
 World Health Organization (WHO). WHO STEPS Stroke
Manual: The WHO STEPwise Approach to Stroke
Surveillance. Geneva: World Health Organization; 2006.
 Daniel K, Charles DA, Wolfe MD. What are the social consequences of stroke for working-aged adults? A systematic
review. Stroke. 2009;40:e431–e440.
 Lo Buono V, Corallo F, Bramanti P, et al. Coping strategies
and health-related quality of life after stroke. J Health
 Pollock A, St George B, Fenton M, et al. Top ten research
priorities relating to life after stroke. Lancet Neurol. 2012;
 Morris R, Morris P. Participants’ experiences of hospitalbased peer coaching groups for stroke patients and carers.
Disabil Rehabil. 2012;34:347–354.
 Sveen U, Thommessen B, Bautz-Holter E, et al. Well-being
and instrumental activities of daily living after stroke. Clin
 Hartman-Maeir A, Soroker N, Ring H, et al. Activities, participation and satisfaction one-year post stroke. Disabil
 Carlsson GE, Moller A, Blomstrand C. Managing an everyday life of uncertainty-a qualitative study of coping in persons with mild stroke. Disabil Rehabil. 2009;31:773–782.
 Jones S, Auton M, Burton C, et al. Engaging service users in
the development of stroke services: an action research
study. J Clin Nurs. 2008;17:1270–1279.
 Parker CJ, Gladman JRF, Drummond AER, et al. A multicentre randomized controlled trial of leisure therapy and
conventional occupational therapy after stroke. Clin
 Logan PA, Gladman JRF, Drummond AER, et al. A study of
interventions and related outcomes in a randomized controlled trial of occupational therapy and leisure therapy for
community stroke patients. Clin Rehabil. 2003;17:249–255.
 Desrosiers J, Noreau L, Rochette A, et al. Effect of a home
leisure education program after stroke: a randomized controlled trial. Arch Phys Med Rehabil. 2007;88:1095–2000.
 Hartman-Maeir A, Eliad Y, Kizoni R, et al. Evaluation of a
long-term community based rehabilitation program for
adult stroke survivors. Neurorehabil. 2007;22:295–301.
 Reupert A, Maybery D. A snapshot of Australian programs
to support children and adolescents whose parents have a
mental illness. Psychiatr Rehabil J. 2009;33:125–132.
 Foster K, Lewis P, McCloughen A. Experiences of peer support for children and adolescents whose parents and siblings have mental health illness. J Child Adolesc Psychiatr
 Kessler D, Egan M, Kubina LA. Peer support for stroke survivors: a case study. BMC Health Serv Res. 2014;14:256–265.
 Beauchamp MR, Scarlett LJ, Ruissen GR, et al. Peer mentoring of adults with spinal cord injury: a transformational
leadership perspective. Disabil Rehabil. 2016;38:1884–1892.
 Greenwood N, Habibi R, Mackenzie A, et al. Peer support
for carers: a qualitative investigation of the experiences of
carers and peer volunteers. Am J Alzheimers Dis Other
 Ng L, Amatya B, Khan F. Outcomes of a peer support program in multiple sclerosis in an Australian community
cohort: a prospective study. J Neurodegener Dis. 2013;
 Nesta (UK). Peer Support: What is it and does it work?
National voices. People shaping health and social care.
 Dennis CL. Peer support within a health care context: a
concept analysis. Int J Nurs Stud. 2003;40:321–332.
 Ch’ng AM, French D, McLean N. Coping with the challenges of recovery from stroke: long term perspectives of
stroke support group members. J Health Psychol. 2008;13:
 Hancock E. Health Recovery Social Networks: Exploring the
experiences of participants in stroke recovery peer support
groups. Ottawa, Canada: Stroke Recovery CanadaVR
 Batalden M, Batalden P, Margolis P, et al. Coproduction of
healthcare service. BMJ Qual Saf. 2016;25:509–517.
 Beaver LG, Litowsky L, Suddes M, et al. I.N.S.P.I.R.E.S. - inpatient support program in recovery from stroke- “the voice(s) of experience”. Stroke. 2012;43:e115–e162.
 Ajzen I. The theory of planned behavior. Organ Behav Hum
Decis Process. 1991;50:179–211.
 Bandura A. Self-efficacy. New York: Freeman; 1997.
 Leventhal H, Diefenbach MA, Leventhal EA. Illness cognition: Using common sense to understand treatment adherence and affect cognition interactions. Cogn Ther Res.
 Bass MB. Leadership and performance beyond expectations. 4th ed. New York: Free Press; 1985.
 Kelly GA. The psychology of personal constructs. 2nd ed.
New York: Norton; 1955.
 Johnston M, Pollard B, Morrison V, et al. Functional limitations and survival following stroke:psychological and clinincal predictors of 3-year outcome. Int J Behav Med. 2004;11:
 Morrison V, Pollard B, Johnston M, et al. Depression and
anxiety following stroke: Demographic, clinical, psychological predictors of 3-year outcome. J Psychosom Res.
 Clarke D, Jones F, Harris R, et al. What outcomes are associated with developing and implementing co-produced
interventions in acute care settings? A rapid evidence synthesis. BMJ Open. 2017;7:e014650.
 Van Swieten J, Koudstaal P, Visser M, et al. Interobserver
agreement for the assessment of handicap in stroke
patients. Stroke. 1988;19:604–607.
 Quinn T, Langhorne P, Stott D. Barthel index for stroke trials: development, properties, and application. Stroke 2011;
 Goldberg D, Williams P. A User’s Guide to the General
health Questionnaire. Windsor: NFER-Nelson; 1988.
 Charmaz K. Grounded theory: Objectivist and constructivist
methods. In: Denzin N.K. & Lincoln T.S. eds. Handbook of
Qualitative Research. 2nd ed. Thousand Oaks, CA: Sage
 Kouwenhoven SE, Kirkevold M, Engedal K, et al. Depression
in acute stroke: prevalence, dominant symptoms and associated factors. A systematic literature review. Disabil
PEER-LED COACHING INTERVENTION FOR STROKE SURVIVORS 1371
 Simoni A, Shanks A, Balasooriya-Smeekens C. Stroke survivors and their families receive information and support on
an individual basis from an online forum: descriptive analysis of a population of 2348 patients and qualitative study
of a sample of participants. BMJ Open. 2016;6:e010501.
 Cameron JI, Gignac MA. “Timing It Right”: a conceptual
framework for addressing the support needs of family
caregivers to stroke survivors from the hospital to the
home. Patient Educ Couns. 2008;70:305–314.
 Goldfinger JZ, Kronish IM, Fei K, et al. Peer education for
secondary stroke prevention in inner-city minorities: design
and methods of the prevent recurrence of all inner-city
Strokes through Education randomized controlled trial.
Contemp Clin Trials. 2012;33:1065–1073