What works for whom in the management of diabetes in people living with dementia: a realist review

Journal article


Bunn, F., Goodman, C., Jones, P. R., Russell, B., Trivedi, D., Sinclair, A., Bayer, A., Rait, G., Rycroft-Malone, J. and Burton, C. 2017. What works for whom in the management of diabetes in people living with dementia: a realist review. BMC Medicine. 15 (141). https://doi.org/10.1186/s12916-017-0909-2
AuthorsBunn, F., Goodman, C., Jones, P. R., Russell, B., Trivedi, D., Sinclair, A., Bayer, A., Rait, G., Rycroft-Malone, J. and Burton, C.
Abstract

Background
Dementia and diabetes mellitus are common long-term conditions and co-exist in a large number of older people. People living with dementia (PLWD) may be less able to manage their diabetes, putting them at increased risk of complications such as hypoglycaemia. The aim of this review was to identify key mechanisms within different interventions that are likely to improve diabetes outcomes in PLWD.

Methods
This is a realist review involving scoping of the literature and stakeholder interviews to develop theoretical explanations of how interventions might work, systematic searches of the evidence to test and develop the theories and their validation with a purposive sample of stakeholders. Twenty-six stakeholders — user/patient representatives, dementia care providers, clinicians specialising in diabetes or dementia and researchers — took part in interviews, and 24 participated in a consensus conference.

Results
We included 89 papers. Ten focused on PLWD and diabetes, and the remainder related to people with either dementia, diabetes or other long-term conditions. We identified six context-mechanism-outcome configurations which provide an explanatory account of how interventions might work to improve the management of diabetes in PLWD. This includes embedding positive attitudes towards PLWD, person-centred approaches to care planning, developing skills to provide tailored and flexible care, regular contact, family engagement and usability of assistive devices. An overarching contingency emerged concerning the synergy between an intervention strategy, the dementia trajectory and social and environmental factors, especially family involvement.

Conclusions
Evidence highlighted the need for personalised care, continuity and family-centred approaches, although there was limited evidence that this happens routinely. This review suggests there is a need for a flexible service model that prioritises quality of life, independence and patient and carer priorities. Future research on the management of diabetes in older people with complex health needs, including those with dementia, needs to look at how organisational structures and workforce development can be better aligned to their needs.

Trial registration
PROSPERO, CRD42015020625. Registered on 18 May 2015.

KeywordsDementia; Diabetes; Realist review; Realist synthesis; Self-management
Year2017
JournalBMC Medicine
Journal citation15 (141)
PublisherSpringer Nature
ISSN1741-7015
Digital Object Identifier (DOI)https://doi.org/10.1186/s12916-017-0909-2
Official URLhttps://doi.org/10.1186/s12916-017-0909-2
Related URLhttps://bmcmedicine.biomedcentral.com/
Publication dates
Online28 Jul 2017
Publication process dates
Accepted04 Jul 2017
Deposited22 May 2020
Supplemental file
License
Output statusPublished
References

1.
Bunn F, Burn AM, Goodman C, Rait G, Norton S, Robinson L, et al. Comorbidity and dementia: a scoping review of the literature. BMC Med. 2014;12:192.

PubMed
PubMed Central
Article
Google Scholar
2.
Prince M, Jackson J. World Alzheimer report 2009. London: Alzheimer’s Disease International; 2009. Available: http://www.alz.co.uk/research/files/WorldAlzheimerReport.pdf. Accessed 18 Sept 2012.

3.
Bloomfield HE, Greer N, Newman D, MacDonald R, Carlyle M, Fitzgerald P, et al. Predictors and consequences of severe hypoglycemia in adults with diabetes—a systematic review of the evidence. VA-ESP Proj. #09-009. 2012.

4.
Punthakee Z, Miller ME, Launer LJ, Williamson JD, Lazar RM, Cukierman-Yaffee T, et al. Poor cognitive function and risk of severe hypoglycemia in type 2 diabetes: post hoc epidemiologic analysis of the ACCORD trial. Diabetes Care. 2012;35:787–93.

PubMed
PubMed Central
Article
Google Scholar
5.
Feil DG, Zhu CW, Sultzer DL. The relationship between cognitive impairment and diabetes self-management in a population-based community sample of older adults with type 2 diabetes. J Behav Med. 2012;35:190–9.

PubMed
Article
Google Scholar
6.
Hewitt J, Smeeth L, Chaturvedi N, Bulpitt CJ, Fletcher AE. Self management and patient understanding of diabetes in the older person. Diabet Med. 2011;28:117–22.

CAS
PubMed
Article
Google Scholar
7.
Sinclair AJ, Girling AJ, Bayer AJ. Cognitive dysfunction in older subjects with diabetes mellitus: impact on diabetes self-management and use of care services. All Wales Research into Elderly (AWARE) Study. Diabetes Res Clin Pract. 2000;50:203–12.

CAS
PubMed
Article
Google Scholar
8.
Abdelhafiz AH, McNicholas E, Sinclair AJ. Hypoglycemia, frailty and dementia in older people with diabetes: reciprocal relations and clinical implications. J Diabetes Complications. 2016;30:1548–54.

PubMed
Article
Google Scholar
9.
Abdelhafiz AH, Rodríguez-Mañas L, Morley JE, Sinclair AJ. Hypoglycemia in older people — a less well recognized risk factor for frailty. Aging Dis. 2015;6:156–67.

PubMed
PubMed Central
Article
Google Scholar
10.
IDOP. The hidden impact of diabetes in social care Report by the Institute of Diabetes for Older People and Novo Nordisk. Bedfordshire: Institute of Diabetes for Older People; 2013.

Google Scholar
11.
Bunn F, Burn A, Goodman C, Robinson L, Rait G, Norton S, et al. Comorbidity and dementia: a mixed method study on improving health care for people with dementia (CoDem). Heal Serv Deliv Res. 2016;4:1–156.

Article
Google Scholar
12.
Sinclair AJ, Hillson R, Bayer AJ, National Expert Working G. Diabetes and dementia in older people: a Best Clinical Practice Statement by a multidisciplinary National Expert Working Group. Diabet Med. 2014;31:1024–31.

CAS
PubMed
Article
Google Scholar
13.
Morley JE, Sinclair A. Individualising treatment for older people with diabetes. Lancet. 2013;382:378–80. http://linkinghub.elsevier.com/retrieve/pii/S0140673613610557.

PubMed
Article
Google Scholar
14.
Wong G, Greenhalgh T, Westhorp G, Buckingham J, Pawson R. RAMESES publication standards: realist syntheses. BMC Med. 2013;11:21.

PubMed
PubMed Central
Article
Google Scholar
15.
Pawson R, Greenhalgh T, Harvey G, Walshe KR. Realist synthesis: an introduction. ESRC Research Methods Programme, editor. Manchester: University of Manchester; 2004.

Google Scholar
16.
Rycroft-Malone J, McCormack B, Hutchinson AM, DeCorby K, Bucknall TK, Kent B, et al. Realist synthesis: illustrating the method for implementation research. Implement Sci. 2012;7:33.

PubMed
PubMed Central
Article
Google Scholar
17.
Pawson R. Evidence-based policy: a realist perspective. London: Sage Publications; 2006.

Google Scholar
18.
Bunn F, Goodman C, Malone JR, Jones PR, Burton C, Rait G, et al. Managing diabetes in people with dementia: protocol for a realist review. Syst Rev. 2016;5:5.

PubMed
PubMed Central
Article
Google Scholar
19.
Manzano A. The craft of interviewing in realist evaluation. Eval. 2016;22:342–60. http://dx.doi.org/10.1177/1356389016638615.

Article
Google Scholar
20.
Pearson M, Brand SL, Quinn C, Shaw J, Maguire M, Michie S, et al. Using realist review to inform intervention development: methodological illustration and conceptual platform for collaborative care in offender mental health. Implement Sci. 2015;10(1):134.

CAS
PubMed
PubMed Central
Article
Google Scholar
21.
Ford JA, Wong G, Jones AP, Steel N. Access to primary care for socioeconomically disadvantaged older people in rural areas: a realist review. BMJ Open. 2016;6(5):e010652.

22.
Pawson R. Evidence-based policy: the promise of ‘Realist Synthesis’. Eval. 2002;8:340–58. http://evi.sagepub.com/cgi/doi/10.1177/135638902401462448. Accessed 2 May 2014.

Article
Google Scholar
23.
Rycroft-Malone J, Burton C, Hall B, McCormack B, Nutley S, Seddon D, et al. Improving skills and care standards in the support workforce for older people: a realist review. BMJ Open. 2014;4:e005356.

PubMed
PubMed Central
Article
Google Scholar
24.
Wong G, Pawson R, Owen L. Policy guidance on threats to legislative interventions in public health: a realist synthesis. BMC Public Health. 2011;11:222.

PubMed
PubMed Central
Article
Google Scholar
25.
Aikens JE, Trivedi R, Aron DC, Piette JD. Integrating support persons into diabetes telemonitoring to improve self-management and medication adherence. J Gen Intern Med. 2015;30:319–26.

PubMed
Article
Google Scholar
26.
Alsaeed D, Jamieson E, Orlu Gul M, Smith FJ. Challenges to optimal medicines use in people living with dementia and their caregivers: a literature review. Int J Pharm. 2016;512:396–404.

CAS
PubMed
Article
Google Scholar
27.
Anderson RA, Bailey Jr DE, Wu B, Corazzini K, McConnell ES, Thygeson NM, et al. Adaptive leadership framework for chronic illness: framing a research agenda for transforming care delivery. ANS Adv Nurs Sci. 2015;38:83–95.

PubMed
PubMed Central
Article
Google Scholar
28.
Bahar-Fuchs A, Clare L, Woods B. Cognitive training and cognitive rehabilitation for mild to moderate Alzheimer’s disease and vascular dementia (Review). Cochrane Database Syst Rev. 2013; Art No: CD003260. doi:10.1002/14651858.CD003260.pub2.

29.
Bailey RA, Pfeifer M, Shillington AC, Harshaw Q, Funnell MM, VanWingen J, et al. Effect of a patient decision aid (PDA) for type 2 diabetes on knowledge, decisional self-efficacy, and decisional conflict. BMC Health Serv Res. 2015;16:10.

Article
Google Scholar
30.
Baxter MA. The new NHS and diabetes care. Br J Diabetes Vasc Dis. 2014;14:87–94.

Article
Google Scholar
31.
Bergdahl E, Benzein E, Ternestedt BM, Elmberger E, Andershed B. Co-creating possibilities for patients in palliative care to reach vital goals—a multiple case study of home-care nursing encounters. Nurs Inq. 2013;20:341–51.

PubMed
Article
Google Scholar
32.
Beverly EA, Wray LA, Chiu CJ, LaCoe CL. Older adults’ perceived challenges with health care providers treating their yype 2 diabetes and comorbid conditions. Clin Diabetes. 2014;32:12–7.

PubMed
PubMed Central
Article
Google Scholar
33.
Boots LMM, De Vugt ME, Van Knippenberg RJM, Kempen GIJM, Verhey FRJ. A systematic review of Internet-based supportive interventions for caregivers of patients with dementia. Int J Geriatr Psychiatry. 2014;29:331–44.

CAS
PubMed
Article
Google Scholar
34.
Boots LM, de Vugt ME, Withagen HE, Kempen GI, Verhey FR. Development and initial evaluation of the Web-based self-management program “Partner in Balance” for family caregivers of people with early stage dementia: an exploratory mixed-methods study. JMIR Res Protoc. 2016;5:e33.

PubMed
PubMed Central
Article
Google Scholar
35.
Branda ME, LeBlanc A, Shah ND, Tiedje K, Ruud K, Van Houten H, et al. Shared decision making for patients with type 2 diabetes: a randomized trial in primary care. BMC Health Serv Res. 2013;13:301.

PubMed
PubMed Central
Article
Google Scholar
36.
Brown J, Carson A, Waugh A, Park D. Managing diabetes in people with dementia. Nurs Times. 2015;111:16–9.

PubMed
Google Scholar
37.
Camp CJ, Fox K, Skrajner MJ, Antenucci V, Haberman J. Creating effective self-management for older adults with type 2 diabetes and cognitive impairment. Adv Aging Res. 2015;4:33–41.

Article
Google Scholar
38.
Chrvala CA, Sherr D, Lipman RD. Diabetes self-management education for adults with type 2 diabetes mellitus: a systematic review of the effect on glycemic control. Patient Educ Couns. 2016;99:926–43.

PubMed
Article
Google Scholar
39.
Clare L, Bayer A, Burns A, Corbett A, Jones R, Knapp M, et al. Goal-oriented cognitive rehabilitation in early-stage dementia: study protocol for a multi-centre single-blind randomised controlled trial (GREAT). Trials. 2013;14:152.

PubMed
PubMed Central
Article
Google Scholar
40.
Clare L, Linden DE, Woods RT, Whitaker R, Evans SJ, Parkinson CH, et al. Goal-oriented cognitive rehabilitation for people with early-stage Alzheimer disease: a single-blind randomized controlled trial of clinical efficacy. Am J Geriatr Psychiatry. 2010;18:928–39.

PubMed
Article
Google Scholar
41.
Davis KK, Mintzer M, Dennison Himmelfarb CR, Hayat MJ, Rotman S, Allen J. Targeted intervention improves knowledge but not self-care or readmissions in heart failure patients with mild cognitive impairment. Eur J Heart Fail. 2012;14:1041–9.

PubMed
Article
Google Scholar
42.
De Vriendt P, Peersman W, Florus A, Verbeke M, Van de Velde D. Improving health related quality of life and independence in community dwelling frail older adults through a client-centred and activity-oriented program. A pragmatic randomized controlled trial. J Nutr Heal Aging. 2015;20:35–40.

Article
Google Scholar
43.
Dhedhi SA, Swinglehurst D, Russell J. “Timely” diagnosis of dementia: what does it mean? A narrative analysis of GPs’ accounts. BMJ Open. 2014;4:e004439.

PubMed
PubMed Central
Article
Google Scholar
44.
Donald M, Dower J, Coll JR, Baker P, Mukandi B, Doi SA. Mental health issues decrease diabetes-specific quality of life independent of glycaemic control and complications: findings from Australia’s living with diabetes cohort study. Heal Qual Life Outcomes. 2013;11:170.

Article
Google Scholar
45.
Dugmore O, Orrell M, Spector A. Qualitative studies of psychosocial interventions for dementia: a systematic review. Aging Ment Heal. 2015;19:955–67.

Article
Google Scholar
46.
Feil DG, Lukman R, Simon B, Walston A, Vickrey B. Impact of dementia on caring for patients’ diabetes. Aging Ment Heal. 2011;15:894–903.

Article
Google Scholar
47.
Feil DG, Pearman A, Victor T, Harwood D, Weinreb J, Kahle K, et al. The role of cognitive impairment and caregiver support in diabetes management of older outpatients. Int J Psychiatry Med. 2009;39:199–214.

PubMed
Article
Google Scholar
48.
Fleming R, Sum S. Empirical studies on the effectiveness of assistive technology in the care of people with dementia: a systematic review. J Assist Technol. 2014;8:14–34.

Article
Google Scholar
49.
Gibson G, Dickinson C, Brittain K, Robinson L. The everyday use of assistive technology by people with dementia and their family carers: a qualitative study. BMC Geriatr. 2015;15:89.

PubMed
PubMed Central
Article
CAS
Google Scholar
50.
Giebel CM, Sutcliffe C, Challis D. Activities of daily living and quality of life across different stages of dementia: a UK study. Aging Ment Health. 2015;19:63–71.

PubMed
Article
Google Scholar
51.
Gillespie A, Best C, O’Neill B. Cognitive function and assistive technology for cognition: a systematic review. J Int Neuropsychol Soc. 2012;18:1–19.

PubMed
Article
Google Scholar
52.
Goeman D, Conway S, Norman R, Morley J, Weerasuriya R, Osborne RH, Beauchamp A. Optimising health literacy and access of service provision to community dwelling older people with diabetes receiving home nursing support. J Diabetes Res. 2016;2016:2483263. http://dx.doi.org/10.1155/2016/2483263.

PubMed
PubMed Central
Article
Google Scholar
53.
Graff MJL, Vernooij-Dassen MJM, Thijssen M, Dekker J, Hoefnagels WHL, OldeRikkert MGM. Effects of community occupational therapy on quality of life, mood, and health status in dementia patients and their caregivers: a randomized controlled trial. J Gerontol Med Sci. 2007;62A:1002–9.

Article
Google Scholar
54.
Graff MJL, Vernooij-Dassen MJM, Thijssen M, Dekker J, Hoefnagels WHL, Rikkert MGMO. Community based occupational therapy for patients with dementia and their care givers: randomised controlled trial. BMJ. 2006;333:1196.

PubMed
PubMed Central
Article
Google Scholar
55.
Graff MJ, Adang EM, Vernooij-Dassen MJ, Dekker J, Jonsson L, Thijssen M, et al. Community occupational therapy for older patients with dementia and their care givers: cost effectiveness study. BMJ. 2008;336:134–8.

PubMed
PubMed Central
Article
Google Scholar
56.
Greenhalgh T, Wherton J, Sugarhood P, Hinder S, Procter R, Stones R. What matters to older people with assisted living needs? A phenomenological analysis of the use and non-use of telehealth and telecare. Soc Sci Med. 2013;93:86–94.

PubMed
Article
Google Scholar
57.
Hackel JM. “Patient-centered care” for complex patients with type 2 diabetes mellitus—analysis of two cases. Clin Med Insights Endocrinol Diabetes. 2013;6:47–61.

PubMed
PubMed Central
Article
Google Scholar
58.
Heisler M, Vijan S, Anderson RM, Ubel PA, Bernstein SJ, Hofer TP. When do patients and their physicians agree on diabetes treatment goals and strategies, and what difference does it make? J Gen Intern Med. 2003;18:893–902.

PubMed
PubMed Central
Article
Google Scholar
59.
Hsu WC, Hei K, Lau K, Ghiloni S, Le H, Gilroy S, et al. Utilization of a cloud-based diabetes management program for insulin initiation and titration enables collaborative decision making between healthcare. Diabetes Technol Ther. 2016;18:1–9.

Article
CAS
Google Scholar
60.
Huang ES, Gorawara-Bha RCM. Self-reported goals of older patients with type 2 diabetes mellitus. J Am Geriatr Soc. 2005;53:306–11.

PubMed
PubMed Central
Article
Google Scholar
61.
IDF. In: Sinclair A, Dunning T, Colagiuri S, editors. Managing older people with type 2 diabetes Global Guideline. Brussels: International Diabetes Federation; 2013. www.idf.org.

Google Scholar
62.
Iliffe S, Wilcock J, Haworth D. Delivering psychosocial interventions for people with dementia in primary care: jobs or skills? Dementia. 2006;5:327–38.

Article
Google Scholar
63.
Jekel K, Damian M, Wattmo C, Hausner L, Bullock R, Connelly PJ, et al. Mild cognitive impairment and deficits in instrumental activities of daily living: a systematic review. Alzheimers Res Ther. 2015;7:17.

PubMed
PubMed Central
Article
Google Scholar
64.
Jowsey T, Pearce-Brown C, Douglas KA, Yen L. What motivates Australian health service users with chronic illness to engage in self-management behaviour? Heal Expect. 2014;17:267–77.

Article
Google Scholar
65.
Jowsey T, Dennis S, Yen L, Mofizul Islam M, Parkinson A, Dawda P. Time to manage: patient strategies for coping with an absence of care coordination and continuity. Sociol Health Illn. 2016;38:854–7.

PubMed
Article
Google Scholar
66.
Kennedy A, Bower P, Reeves D, Blakeman T, Bowen R, Chew-Graham C, et al. Implementation of self management support for long term conditions in routine primary care settings: cluster randomised controlled trial. BMJ. 2013;346:f2882.

PubMed
PubMed Central
Article
Google Scholar
67.
Kennedy A, Rogers A, Bowen R, Lee V, Blakeman T, Gardner C, et al. Implementing, embedding and integrating self-management support tools for people with long-term conditions in primary care nursing: a qualitative study. Int J Nurs Stud. 2014;51:1103–13.

PubMed
Article
Google Scholar
68.
Kennedy A, Rogers A, Chew-Graham C, Blakeman T, Bowen R, Gardner C, et al. Implementation of a self-management support approach (WISE) across a health system: a process evaluation explaining what did and did not work for organisations, clinicians and patients. Implement Sci. 2014;9:129.

PubMed
PubMed Central
Article
Google Scholar
69.
Knapp M, Barlow J, Comas-Herrera A, Damant J, Freddolino P, Hamblin K, et al. The case for investment in technology to manage the global costs of dementia. Policy Innov. Res Unit London. Leeds: National Health Service; 2015. p. 1–118.

Google Scholar
70.
Laakkonen ML, Kautiainen H, Holtta E, Savikko N, Tilvis RS, Strandberg TE, et al. Effects of self-management groups for people with dementia and their spouses — randomized controlled trial. J Am Geriatr Soc. 2016;64:752–60.

PubMed
Article
Google Scholar
71.
Lingler JH, Sereika SM, Amspaugh CM, Arida JA, Happ ME, Houze MP, et al. An intervention to maximize medication management by caregivers of persons with memory loss: intervention overview and two-month outcomes. Geriatr Nurs. 2016;37:186–91.

PubMed
PubMed Central
Article
Google Scholar
72.
Markle-Reid M, Ploeg J, Fisher K, Reimer H, Kaasalainen S, Gafni A, et al. The Aging, Community and Health Research Unit—Community Partnership Program for older adults with type 2 diabetes and multiple chronic conditions: a feasibility study. Pilot Feasibility Stud. 2016;2:24.

PubMed
PubMed Central
Article
Google Scholar
73.
Martin F, Turner A, Wallace LM, Choudhry K, Bradbury N. Perceived barriers to self-management for people with dementia in the early stages. Dementia. 2013;12:481–93.

PubMed
Article
Google Scholar
74.
Martin F, Turner A, Wallace LM, Stanley D, Jesuthasan J, Bradbury N. Qualitative evaluation of a self-management intervention for people in the early stage of dementia. Dement. 2015;14:418–35.

Article
Google Scholar
75.
Mathers N, Ng CJ, Campbell MJ, Colwell B, Brown I, Bradley A. Clinical effectiveness of a patient decision aid to improve decision quality and glycaemic control in people with diabetes making treatment choices: a cluster randomised controlled trial (PANDAs) in general practice. BMJ Open. 2012;2:e001469. http://onlinelibrary.wiley.com/o/cochrane/clcentral/articles/503/CN-...

PubMed
PubMed Central
Article
Google Scholar
76.
Mayberry LS, Kripalani S, Rothman RL, Osborn CY. Bridging the digital divide in diabetes: family support and implications for health literacy. Diabetes Technol Ther. 2011;13:1005–12.

PubMed
PubMed Central
Article
Google Scholar
77.
Mayberry LS, Berg CA, Harper KJ, Osborn CY. The design, usability, and feasibility of a family-focused diabetes self-care support mHealth intervention for diverse, low-income adults with type 2 diabetes. J Diabetes Res. 2016;2016:7586385.

PubMed
PubMed Central
Article
Google Scholar
78.
Metzelthin SF, Daniels R, van Rossum E, Cox K, Habets H, de Witte LP, et al. A nurse-led interdisciplinary primary care approach to prevent disability among community-dwelling frail older people: a large-scale process evaluation. Int J Nurs Stud. 2013;50:1184–96.

PubMed
Article
Google Scholar
79.
Metzelthin SF, van Rossum E, de Witte LP, Ambergen AW, Hobma SO, Sipers W, et al. Effectiveness of interdisciplinary primary care approach to reduce disability in community dwelling frail older people: cluster randomised controlled trial. BMJ. 2013;347:f5264.

PubMed
PubMed Central
Article
Google Scholar
80.
Mountain G. Self-management for people with early dementia: an exploration of concepts and supporting evidence. Dementia. 2006;5:429–46.

Article
Google Scholar
81.
Mountain GA, Craig CL. What should be in a self-management programme for people with early dementia? Aging Ment Health. 2012;16:576–83.

PubMed
Article
Google Scholar
82.
Munshi MN, Segal AR, Suhl E, Ryan C, Sternthal A, Giusti J, et al. Assessment of barriers to improve diabetes management in older adults: a randomized controlled study. Diabetes Care. 2013;36:543–9.

PubMed
PubMed Central
Article
Google Scholar
83.
Munshi MN, Segal AR, Suhl E, Staum E, Desrochers L, Sternthal A, et al. Frequent hypoglycemia among elderly patients with poor glycemic control. Arch Intern Med. 2011;171:362–4.

PubMed
PubMed Central
Article
Google Scholar
84.
Newton L, Dickinson C, Gibson G, Brittain K, Robinson L. Exploring the views of GPs, people with dementia and their carers on assistive technology: a qualitative study. BMJ Open. 2016;6:e011132.

PubMed
PubMed Central
Article
Google Scholar
85.
Penn ML, Kennedy AP, Vassilev II, Chew-Graham CA, Protheroe J, Rogers A, et al. Modelling self-management pathways for people with diabetes in primary care. BMC Fam Pract. 2015;16:112.

PubMed
PubMed Central
Article
CAS
Google Scholar
86.
Piette JD, Kerr EA. The impact of comorbid chronic conditions on diabetes care. Diabetes Care. 2006;29:725–31.

PubMed
Article
Google Scholar
87.
Procter R, Greenhalgh T, Wherton J, Sugarhood P, Rouncefield M, Hinder S. The day-to-day co-production of ageing in place. Comput Support Coop Work. 2014;23:245–67.

PubMed
PubMed Central
Article
Google Scholar
88.
Quinn C, Toms G, Jones C, Brand A, Edwards RT, Sanders F, et al. A pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). Int Psychogeriatrics. 2016;28:787–800.

Article
Google Scholar
89.
Reinhardt Varming A, Møller Hansen U, Andrésdóttir G, Reventlov Husted R, Willaing I. Empowerment, motivation, and medical adherence (EMMA): the feasibility of a program for patient-centered consultations to support medication adherence and blood glucose control in adults with type 2 diabetes. Patient Prefer Adherence. 2015;9:1243–53.

Google Scholar
90.
Ryan P, Sawin K. The individual and family self-management theory: background and perspectives on context, process and outcomes. Nurs Outlook. 2010;57:217–25.

Article
Google Scholar
91.
Sachar A. How important is mental health involvement in integrated diabetes care? The Inner North West London experience. London J Prim Care. 2012;5:63–7.

Article
Google Scholar
92.
Schaller S, Marinova-Schmidt V, Setzer M, Kondylakis H, Griebel L, Sedlmayr M, et al. Usefulness of a tailored eHealth service for informal caregivers and professionals in the dementia treatment and care setting: the eHealthMonitor Dementia Portal. JMIR Res Protoc. 2016;5:e47.

PubMed
PubMed Central
Article
Google Scholar
93.
Schulman-Green D, Jaser SS, Park C, Whittemore R. A metasynthesis of factors affecting self-management of chronic illness. J Adv Nurs. 2016;72:1469–89.

PubMed
PubMed Central
Article
Google Scholar
94.
Sherifali D, Bai J-W, Kenny M, Warren R, Ali MU. Diabetes self-management programmes in older adults: a systematic review and meta-analysis. Diabet Med. 2015;32:1404–14.

CAS
PubMed
Article
Google Scholar
95.
Span M, Hettinga M, Vernooij-Dassen M, Eefsting J, Smits C. Involving people with dementia in the development of supportive IT applications: a systematic review. Ageing Res Rev. 2013;12:535–51.

PubMed
Article
Google Scholar
96.
Suh G-H, Ju Y-S, Yeon BK, Shah A. A longitudinal study of Alzheimer’s disease: rates of cognitive and functional decline. Int J Geriatr Psychiatry. 2004;19:817–24.

PubMed
Article
Google Scholar
97.
Sun X, Guyatt GH. Interventions to enhance self management support. BMJ. 2013;346:f3949.

PubMed
Article
Google Scholar
98.
Tan CCL, Cheng KKF, Wang W. Self-care management programme for older adults with diabetes: an integrative literature review. Int J Nurs Pract. 2015;21 Suppl 2:115–24.

PubMed
Article
Google Scholar
99.
Taylor SJC, Pinnock H, Epiphaniou E, Pearce G, Parke HL, Schwappach A, et al. A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic RevIew of Self-Management Support for long-term conditions. Southampton (UK): Heal Serv Deliv. Res; 2014.

Google Scholar
100.
Toms GR, Quinn C, Anderson DE, Clare L. Help yourself: perspectives on self-management from people with dementia and their caregivers. Qual Health Res. 2014;25:87–98.

PubMed
Article
Google Scholar
101.
Wherton J, Sugarhood P, Procter R, Rouncefield M, Dewsbury G, Hinder S, et al. Designing assisted living technologies “in the wild”: preliminary experiences with cultural probe methodology. BMC Med Res Methodol. 2012;12:188.

PubMed
PubMed Central
Article
Google Scholar
102.
Yardley S, Cottrell E, Rees E, Protheroe J. Modelling successful primary care for multimorbidity: a realist synthesis of successes and failures in concurrent learning and healthcare delivery. BMC Fam Pr. 2015;16:23.

Article
Google Scholar
103.
Greenhalgh T, Procter R, Wherton J, Sugarhood P, Hinder S, Rouncefield M. What is quality in assisted living technology? The ARCHIE framework for effective telehealth and telecare services. BMC Med. 2015;13:91.

PubMed
PubMed Central
Article
Google Scholar
104.
Quinn C, Toms G, Anderson D, Clare L. A review of self-management interventions for people with dementia and mild cognitive impairment. J Appl Gerontol. 2016;35:1154–88.

PubMed
Article
Google Scholar
105.
McBain H, Mulligan K, Haddad M, Flood C, Jones J, Simpson A. Self management interventions for type 2 diabetes in adult people with severe mental illness (Review). Cochrane Database Syst Rev. 2016;4:CD011361.

PubMed
Google Scholar
106.
Goodwin N, Sonola L, Thiel V, Kodner D. Co-ordinated care for people with complex chronic conditions: key lessons and markers for success. London: The King’s Fund; 2013. http://www.kingsfund.org.uk/sites/files/kf/field/field_publication_f...

Google Scholar
107.
Care Quality Commission. My diabetes, my care. Newcastle-upon-Tyne: Care Quality Commission; 2016.

Google Scholar
108.
McBain H, Mulligan K, Lamontagne-Godwin F, Jones J, Haddad M, Flood C, et al. Implementation of recommended type 2 diabetes care for people with severe mental illness — a qualitative exploration with healthcare professionals. BMC Psychiatry. 2016;16:222.

PubMed
PubMed Central
Article
Google Scholar
109.
Taylor B, Bircher J, Wilson C, Barr S. RCGP National Diabetes Audit Quality Improvement Programme Report. London: Royal College of General Practitioners; 2016.

Google Scholar
110.
Bunn F, Burn A, Robinson L, Poole M, Rait G, Brayne C, et al. Healthcare organisation and delivery for people with dementia and comorbidity: a qualitative study exploring the views of patients, carers and professionals. BMJ Open. 2017;7:e013067.

PubMed
PubMed Central
Article
Google Scholar
111.
Mountain G. Self-management programme for people with dementia and their spouses demonstrates some benefits, but the model has limitations. Evid Based Nurs. 2016;20:26–8.

PubMed
Article
Google Scholar
112.
Rolland JS. Chronic illness and the life cycle: a conceptual framework. Fam Process. 1987;26:203–21.

CAS
PubMed
Article
Google Scholar
113.
Eaton S, Roberts S, Turner B. Delivering person centred care in long term conditions. BMJ. 2015;350:4. http://www.bmj.com/cgi/doi/10.1136/bmj.h181.

Article
Google Scholar
114.
Sinclair AJ, Paolisso G, Castro M, Bourdel-Marchasson I, Gadsby R, Rodriguez Manas L. European Diabetes Working Party for Older People 2011 clinical guidelines for type 2 diabetes mellitus. Executive summary. Diabetes Metab. 2011;37 Suppl 3:S27–38.

PubMed
Article
Google Scholar
115.
NICE. Managing blood glucose in adults with type 2 diabetes. Manchester: National Institute for Health and Care Excellence; 2016. http://pathways.nice.org.uk/pathways/type-2-diabetes-in-adults.

Google Scholar
116.
American Diabetes Association. Older Adults. Diabetes Care. 2015;38:S67–9. http://care.diabetesjournals.org/cgi/doi/10.2337/dc15-S013.

Article
Google Scholar
117.
Caverly TJ, Fagerlin A, Zikmund-Fisher BJ, Kirsh S, Kullgren JT, Prenovost K, et al. Appropriate prescribing for patients with diabetes at high risk for hypoglycemia: National Survey of Veterans Affairs Health Care Professionals. JAMA Intern Med. 2015;175:1–3.

Article
Google Scholar
118.
Down K. M Mitchell, D Wardle. Assistive technology: standards for service provision. London: Foundation For Assistive Technology London; 2006.

Google Scholar
119.
Vijayaraghavan S, O’Shea T, Campbell-Richards D, Sudra R, Morris J, Byrne E, Greenhalgh T. DAWN: Diabetes Appointments via Webcam in Newham. Br J Diabetes. 2015;15(3):123–6.

Article
Google Scholar
120.
Sinclair AJ, Armes DG, Randhawa G, Bayer AJ. Caring for older adults with diabetes mellitus: characteristics of carers and their prime roles and responsibilities. Diabet Med. 2010;27:1055–9.

CAS
PubMed
Article
Google Scholar
121.
Miranda-Castillo C, Woods B, Orrell M. People with dementia living alone: what are their needs and what kind of support are they receiving? Int Psychogeriatrics. 2010;22:607–17.

Article
Google Scholar
122.
de Witt L, Ploeg J. Caring for older people living alone with dementia: healthcare professionals’ experiences. Dementia. 2016;15:221–38.

PubMed
Article
Google Scholar
123.
de Witt L, Ploeg J, Black M. Living alone with dementia: an interpretive phenomenological study with older women. J Adv Nurs. 2010;66:1698–707.

PubMed
Article
Google Scholar
124.
NICE. Type 1 diabetes in adults: diagnosis and management. Manchester: National Institute for Health and Care Excellence; 2015. nice.org.uk/guidance/ng17.

Google Scholar
125.
NICE. Dementia: supporting people with Dementia and their carers in health and social care. Manchester: National Institute for Health and Care Excellence; 2006. http://www.nice.org.uk/CG42. Accessed 1 Dec 2016.

Google Scholar
126.
Guthrie B, Payne K, Alderson P, McMurdo MET, Mercer SW. Adapting clinical guidelines to take account of multimorbidity. BMJ. 2012;345:e6341. http://www.bmj.com/cgi/doi/10.1136/bmj.e6341. Accessed 5 Oct 2012.

PubMed
Article
Google Scholar
127.
Chen LK, Chen YM, Lin MH, Peng LN, Hwang SJ. Care of elderly patients with diabetes mellitus: a focus on frailty. Ageing Res Rev. 2010;9 Suppl 1:S18–22.

PubMed
Article
Google Scholar
128.
Lipska K, Ross J, Miao Y, Shah N, Lee S, Steinman MA. Potential overtreatment of diabetes mellitus in older adults with tight glycemic control. JAMA Intern Med. 2015;175:356–62.

PubMed
PubMed Central
Article
CAS
Google Scholar
129.
Pawson R, Greenhalgh T, Harvey G, Walshe K. Realist review—a new method of systematic review designed for complex policy interventions. J Heal Serv Res Policy. 2005;10 Suppl 1:21–34. http://dx.doi.org/10.1258/1355819054308530%0A.

Article
Google Scholar
130.
Zarit SH, Femia EE, Kim K, Whitlatch CJ. The structure of risk factors and outcomes for family caregivers: implications for assessment and treatment. Aging Ment Health. 2010;14:220–31.

PubMed
Article
Google Scholar
131.
Powers MA, Bardsley J, Cypress M, Duker P, Funnell MM, Fischl AH, et al. Diabetes self-management education and support in type 2 diabetes. Diabetes Educ. 2017;43:40–53. http://journals.sagepub.com/doi/10.1177/0145721716689694.

PubMed
Article
Google Scholar
132.
American Diabetes Association. Standards of Medical care in diabetes — 2017. J Clin Appl Res Educ. 2017;40:1–142.

Google Scholar

Permalink -

https://repository.canterbury.ac.uk/item/8v910/what-works-for-whom-in-the-management-of-diabetes-in-people-living-with-dementia-a-realist-review

Download files


Supplemental file
DIAMOND_Published.pdf
License: CC BY 4.0

  • 199
    total views
  • 42
    total downloads
  • 0
    views this month
  • 0
    downloads this month

Export as

Related outputs

Lee Silverman voice treatment versus NHS speech and language therapy versus control for dysarthria in people with Parkinson's disease (PD COMM): pragmatic, UK based, multicentre, three arm, parallel group, unblinded, randomised controlled trial.
Sackley, Catherine M, Rick, C., Brady, Marian C, Woolley, Rebecca, Burton, Christopher, Patel, Smitaa, Masterson-Algar, Patricia, Nicoll, Avril, Smith, Christina H, Jowett, Sue, Ives, Natalie, Beaton, Gillian, Dickson, Sylvia, Ottridge, Ryan, Sharp, Leslie, Nankervis, Helen, Clarke, Carl E and PD COMM collaborative group 2024. Lee Silverman voice treatment versus NHS speech and language therapy versus control for dysarthria in people with Parkinson's disease (PD COMM): pragmatic, UK based, multicentre, three arm, parallel group, unblinded, randomised controlled trial. BMJ (Clinical research ed.). 386, p. e078341. https://doi.org/10.1136/bmj-2023-078341
The effect of two speech and language approaches on speech problems in people with Parkinson’s disease: the PD COMM RCT
Sackley, C., Rick, C., Brady, M., Burton, C., Jowett, S., Patel, S., Woolley, R., Masterson-Algar, P., Nicoll, A., Smith, C., Abdali, Z., Ives, N., Beaton, G., Dickson, S., Ottridge, R., Nankervis, H. and Clarke, C. 2024. The effect of two speech and language approaches on speech problems in people with Parkinson’s disease: the PD COMM RCT. Health Technology Assessment. 28 (58), pp. 1-141. https://doi.org/10.3310/adwp8001
Emergency admission predictive risk stratification models: assessment of implementation consequences (PRISMATIC 2): protocol for a mixed methods study.
Kingston, M., Snooks, Helen, Watkins, Alan, Burton, Christopher, Dale, Jeremy, Davies, Jan, Dearden, Alex, Evans, Bridie, Santos Gomes, B., Jones, Jenna, Kumar, Rashmi, Porter, Alison, Sewell, Bernadette and Wallace, E. 2024. Emergency admission predictive risk stratification models: assessment of implementation consequences (PRISMATIC 2): protocol for a mixed methods study. British Journal of General Practice Open (BJGP Open). https://doi.org/10.3399/BJGPO.2024.0182
CSP2023: 322 Allied health professional (AHP) practice placement sustainability: Co-creation of a self-evaluation and improvement framework
Elliott, S. and Burton, C. 2024. CSP2023: 322 Allied health professional (AHP) practice placement sustainability: Co-creation of a self-evaluation and improvement framework. Physiotherapy. 123 (S1), p. e178. https://doi.org/10.1016/j.physio.2024.04.222
A survey of the NHS reporting radiographer workforce in England
Lockwood, P., Burton, C., Shaw, T. and Woznitza, N. 2024. A survey of the NHS reporting radiographer workforce in England. Radiography Open. 10 (1), pp. 1-18. https://doi.org/10.7577/radopen.5635
Did the evidence-based intervention (EBI) programme reduce inappropriate procedures, lessen unwarranted variation or lead to spill-over effects in the National Health Service?
Joel Glynn, Timothy Jones, Mike Bell, Jane Blazeby, Christopher Burton, Carmel Conefrey, Jenny L. Donovan, Nicola Farrar, Josie Morley, Angus McNair, Amanda Owen-Smith, Ellen Rule, Gail Thornton, Victoria Tucker, Iestyn Williams, Leila Rooshenas and William Hollingworth 2024. Did the evidence-based intervention (EBI) programme reduce inappropriate procedures, lessen unwarranted variation or lead to spill-over effects in the National Health Service? PLoS ONE. https://doi.org/10.1371/journal.pone.0290996
Assessing the barriers and enablers to the implementation of the diagnostic radiographer musculoskeletal X‑ray reporting service within the NHS in England: a systematic literature review
Lockwood, P., Burton, C., Woznitza, N. and Shaw, T. 2023. Assessing the barriers and enablers to the implementation of the diagnostic radiographer musculoskeletal X‑ray reporting service within the NHS in England: a systematic literature review. BMC Health Services Research. 23 (1270), pp. 1-41. https://doi.org/10.1186/s12913-023-10161-y
Evolving power dynamics in global health: From biomedical hegemony to market dynamics in global health financing; A response to the recent commentaries
Lassa, S., Saddiq, Muhammed, Owen, Jenny, Burton, Christopher and Balen, J. 2023. Evolving power dynamics in global health: From biomedical hegemony to market dynamics in global health financing; A response to the recent commentaries. International Journal of Health Policy and Management. 12, p. 8264. https://doi.org/10.34172/ijhpm.2023.8264
"It's not just about the numbers": Inside the black box of nurses' professional judgement in nurse staffing systems in England and Wales: Insights from a qualitative cross-case comparative study
Allen, Davina, Jacob, Nina, Strange, Heather, Jones, Aled, Burton, Chris and Rafferty, Anne Marie 2023. "It's not just about the numbers": Inside the black box of nurses' professional judgement in nurse staffing systems in England and Wales: Insights from a qualitative cross-case comparative study. International Journal of Nursing Studies. 147, p. 104586. https://doi.org/10.1016/j.ijnurstu.2023.104586
The Implementation in CONtext (ICON) framework: A meta-framework of context domains, attributes, and features in healthcare
Squires, J.E., Graham, I.D., Santos, W.J., Hutchinson, A.M., Backman, C., Bergström, A., Brehaut, J., Brouwers, M., Burton, C., Candido, L.K., Cassidy, C., Chalmers, C., Chapman, A., Colquhoun, H., Curran, J., Demery Varin, M., Doering, P., Elliott Rose, A., Fairclough, L., Francis, J., Godfrey, C., Greenough, M., Grimshaw, J.M., Grinspun, D., Harvey, G., Hillmer, M., Ivers, N., Lavis, J., Li, S., Michie, S., Miller, W., Noseworthy, T., Rader, T., Robson, M., Rycroft-Malone, J., Stacey, D., Straus, S., Tricco, A.C., Wallin, L. and Watkins, V. 2023. The Implementation in CONtext (ICON) framework: A meta-framework of context domains, attributes, and features in healthcare. Health Research Policy and Systems. https://doi.org/10.1186/s12961-023-01028-z
Using arts-based research in applied health care: An example from an evaluation of NHS dental contract reform in Wales
Overs, E., Woods, Chris, Jones, L., Williams, Lynne, Williams, Sion, Burton, Chris and Brocklehurst, Paul R 2022. Using arts-based research in applied health care: An example from an evaluation of NHS dental contract reform in Wales. Journal of Health Services Research and Policy. 28 (3), pp. 190-196. https://doi.org/10.1177/13558196221137202
Optimising the Conceptualisation of Context Comment on "Stakeholder Perspectives of Attributes and Features of Context Relevant to Knowledge Translation in Health Settings: A Multi-country Analysis".
Rycroft-Malone, J., Rogers, L. and Burton, C. 2022. Optimising the Conceptualisation of Context Comment on "Stakeholder Perspectives of Attributes and Features of Context Relevant to Knowledge Translation in Health Settings: A Multi-country Analysis". International Journal of Health Policy and Management. 11 (10), pp. 2365-2367. https://doi.org/10.34172/ijhpm.2022.6900
EMPOWERing older people and their communities to manage their own CARE (EMPOWERCARE): Evaluation study of a social innovation initiative across four European countries
Hatzidimitriadou, E., Wright, T., Stirrup, V., Kuzbit, P., Thompson, T., DeBraal, P, Burton, C., Price, A., Stein, M., Wells, G., Manship, S., Martin, A. and Chung, P. 2022. EMPOWERing older people and their communities to manage their own CARE (EMPOWERCARE): Evaluation study of a social innovation initiative across four European countries. International Journal of Integrated Care. https://doi.org/10.5334/ijic.ICIC22333
Promoting physical activity and physical function in people with long-term conditions in primary care: the Function First realist synthesis with co-design
Law, R., Langley, J., Hall, B., Burton, C., Hiscock, J., Williams, L., Morrison, V., Lemmey, A., Lovell-Smith, Candida, Gallanders, John, Cooney, J. and Williams, N. 2021. Promoting physical activity and physical function in people with long-term conditions in primary care: the Function First realist synthesis with co-design. Health Services and Delivery Research. 9 (16), pp. 1-104. https://doi.org/10.3310/hsdr09160
‘Function First’: how to promote physical activity and physical function in people with long-term conditions managed in primary care? A study combining realist and co-design methods
Law, Rebecca Jane, Langley, Joseph, Hall, Beth, Burton, Christopher, Hiscock, Julia, Williams, Lynne, Morrison, Val, Lemmey, Andrew, Lovell-Smith, Candida, Gallanders, John, Cooney, Jennifer Kate and Williams, Nefyn 2021. ‘Function First’: how to promote physical activity and physical function in people with long-term conditions managed in primary care? A study combining realist and co-design methods. BMJ Open. 11 (7). https://doi.org/10.1136/bmjopen-2020-046751
Pro-judge study: Nurses’ professional judgement in nurse staffing systems
Jacob, Nina, Burton, Chris, Hale, Rachel, Jones, Aled, Lloyd, Amy, Rafferty, Anne-Marie and Allen, Davina 2021. Pro-judge study: Nurses’ professional judgement in nurse staffing systems. Journal of Advanced Nursing. 7 (10), pp. 4226-4233. https://doi.org/10.1111/jan.14921
Theory and practical guidance for effective de-implementation of practices across health and care services: a realist synthesis
Christopher R. Burton, Lynne Williams, Tracey Bucknall, Denise Fisher, Beth Hall, Gill Harris, Peter Jones, Matthew Makin, Anne Mcbride, Rachel Meacock, John Parkinson, Jo Rycroft-Malone and Justin Waring 2021. Theory and practical guidance for effective de-implementation of practices across health and care services: a realist synthesis. Health Services and Delivery Research. 9 (2), pp. 1-102. https://doi.org/10.3310/hsdr09020
Dental therapists compared with general dental practitioners for undertaking check-ups in low-risk patients: pilot RCT with realist evaluation
Brocklehurst, P., Hoare, Z., Woods, C., Williams, L., Brand, A., Shen, J., Breckons, M., Ashley, J., Jenkins, A, Gough, Lesley, Preshaw, P., Burton, C., Shepherd, Karen and Bhattarai, N. 2021. Dental therapists compared with general dental practitioners for undertaking check-ups in low-risk patients: pilot RCT with realist evaluation. Health Services and Delivery Research. 9 (3), pp. 1-118. https://doi.org/10.3310/hsdr09030
Making authentic: exploring boundary objects and bricolage in knowledge mobilisation through National Health Service-university partnerships
Melville-Richards, Lucy, Rycroft-Malone, Joanne, Burton, Christopher and Wilkinson, Joyce 2020. Making authentic: exploring boundary objects and bricolage in knowledge mobilisation through National Health Service-university partnerships. Evidence & Policy: A Journal of Research, Debate and Practice. 16 (4), pp. 517-539. https://doi.org/10.1332/174426419x15623134271106
A multicentre, randomised controlled trial to compare the clinical and cost-effectiveness of Lee Silverman Voice Treatment versus standard NHS Speech and Language Therapy versus control in Parkinson’s disease: a study protocol for a randomised controlled trial
Sackley, C. M., Rick, C., Au, P., Brady, M. C., Beaton, G., Burton, C., Caulfield, M., Dickson, S., Dowling, F., Hughes, M., Ives, N., Jowett, S., Masterton-Algar, P., Nicoll, A., Patel, S., Smith, C. H., Woolley, R. and Clarke, C. E. 2020. A multicentre, randomised controlled trial to compare the clinical and cost-effectiveness of Lee Silverman Voice Treatment versus standard NHS Speech and Language Therapy versus control in Parkinson’s disease: a study protocol for a randomised controlled trial. Trials. 21 (436). https://doi.org/10.1186/s13063-020-04354-7
'Function first—be active, stay independent’—Promoting physical activity and physical function in people with long-term conditions by primary care: a protocol for a realist synthesis with embedded co-production and co-design
Law, R-J, Williams, L., Langley, J., Burton, C., Hall, B., Hiscock, J., Morrison, V., Lemmey, A., Partridge, R., Lovell-Smith, C., Gallanders, J. and Williams, N. 2020. 'Function first—be active, stay independent’—Promoting physical activity and physical function in people with long-term conditions by primary care: a protocol for a realist synthesis with embedded co-production and co-design. BMJ Open. 10 (2). https://doi.org/10.1136/bmjopen-2019-035686
Implementation, impact and costs of policies for safe staffing in acute NHS trusts
Ball, J., Barker, H., Burton, C., Crouch, R., Griffith, P., Jones, J. and Rycroft Malone, J. 2019. Implementation, impact and costs of policies for safe staffing in acute NHS trusts. University of Southampton. https://doi.org/10.5258/SOTON/P0012
Sleep hygiene education and children with developmental disabilities: Findings from a co-design study
Sutton, J.E., Huws, J.C. and Burton, C. 2019. Sleep hygiene education and children with developmental disabilities: Findings from a co-design study. Journal of Intellectual Disabilities. https://doi.org/10.1177/1744629518818950
Towards safe nurse staffing in England’s National Health Service: progress and pitfalls of policy evolution
Lawless, J., Couch, R., Griffiths, P., Burton, C. and Ball, J. 2019. Towards safe nurse staffing in England’s National Health Service: progress and pitfalls of policy evolution. Health Policy. 123 (6), pp. 590-594. https://doi.org/10.1016/j.healthpol.2019.03.011
Brief smoking cessation in acute Welsh hospitals: A realist approach
Davies, S., Burton, C., Williams, L. and Tinkler, A. 2019. Brief smoking cessation in acute Welsh hospitals: A realist approach. Health Promotion International. 35 (2), pp. 244-254. https://doi.org/10.1093/heapro/daz020
Understanding how and why de-implementation works in health and care: research protocol for a realist synthesis of evidence
Burton, C., Williams, L., Bucknall, T., Edwards, S., Fisher, D., Hall, B., Harris, G., Jones, P., Makin, M., McBride, A., Meacock, R., Parkinson, J., Rycroft-Malone, J. and Waring, J. 2019. Understanding how and why de-implementation works in health and care: research protocol for a realist synthesis of evidence. Systematic Reviews. 8 (194). https://doi.org/doi.org10.1186/s13643-019-1111-8
NHS managers’ use of nursing workforce planning and deployment technologies: a realist synthesis
Burton, C., Rycroft-Malone, J., Williams, L., Davies, S., McBride, A., Hall, B., Rowlands, A., Jones, A., Fisher, D., Jones, M. and Caulfield, M. 2018. NHS managers’ use of nursing workforce planning and deployment technologies: a realist synthesis. Health Services and Delivery Research. 6 (36). https://doi.org/10.3310/hsdr06360
The generation of consensus guidelines for carrying out process evaluations in rehabilitation research
Masterson-Algar, P., Burton, C. and Rycroft-Malone, J. 2018. The generation of consensus guidelines for carrying out process evaluations in rehabilitation research. BMC Medical Research Methodology. 18 (1), pp. 1-11. https://doi.org/10.1186/s12874-018-0647-y
Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke
Masterson-Algar, P., Williams, S., Burton, C., Arthur, C., Hoare, Z., Morrison, V., Radford, K., Seddon, D. and Elghenzai, S. 2018. Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke. Disability and Rehabilitation. 42 (10), pp. 1359-1372.
Arts-based palliative care training, education and staff development: A scoping review
Turton, B.M., Williams, S., Burton, C.R. and Williams, L. 2018. Arts-based palliative care training, education and staff development: A scoping review. Palliative Medicine. 32 (2). https://doi.org/10.1177/0269216317712189
The PD COMM trial: a protocol for the process evaluation of a randomised trial assessing the effectiveness of two types of SLT for people with Parkinson's disease.
Masterson-Algar, P, Burton, C., Brady, M.C., Nicoll, A., Clarke, C.E., Rick, C., Hughes, M., Au, P., Smith, C.H. and Sackley, C.M. 2017. The PD COMM trial: a protocol for the process evaluation of a randomised trial assessing the effectiveness of two types of SLT for people with Parkinson's disease. Trials. 18 (397), p. 2017. https://doi.org/10.1186/s13063-017-2130-1
Managing diabetes in people with dementia: a realist review
Bunn, F., Goodman, C., Jones, P.R., Russell, B., Trivedi, D., Sinclair, A., Bayer, A., Rait, G., Rycroft-Malone, J. and Burton, C. 2017. Managing diabetes in people with dementia: a realist review. Perth, Scotland NIHR Journals Library. https://doi.org/10.3310/hta21750
Implementation and trial evidence: a plea for fore-thought
Brocklehurst, P.R., Williams, L., Burton, C., Goodwin, T. and Rycroft-Malone, J. 2017. Implementation and trial evidence: a plea for fore-thought. British Dental Journal. 222 (5), pp. 331-335. https://doi.org/10.1038/sj.bdj.2017.213
Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions
Rycroft-Malone, J., Burton, C., Williams, L., Edwards, S., Fisher, D., Hall, B., McCormack, B., Nutley, S., Seddon, D. and Williams, R. 2016. Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions. National Institute of Health Research. https://doi.org/10.3310/hsdr04120
Implementing a Systematic Voiding Program for Patients With Urinary Incontinence After Stroke
French, B., Thomas, L.H., Harrison, J., Burton, C., Forshaw, D., Booth, J., Britt, D., Cheater, F.M., Roe, B. and Watkins, C.L. 2016. Implementing a Systematic Voiding Program for Patients With Urinary Incontinence After Stroke. Qualitative Health Research. 26 (10). https://doi.org/10.1177/1049732316630975
Implementing best practice in infection prevention and control. A realist evaluation of the role of intermediaries
Williams, L., Rycroft-Malone, J. and Burton, C. 2016. Implementing best practice in infection prevention and control. A realist evaluation of the role of intermediaries. International Journal of Nursing Studies. 60, pp. 156-167. https://doi.org/10.1016/j.ijnurstu.2016.04.012
Bringing critical realism to nursing practice: Roy Bhaskar's contribution
Williams, L., Rycroft-Malone, J. and Burton, C. 2016. Bringing critical realism to nursing practice: Roy Bhaskar's contribution. nursing philosophy: an international journal for healthcare professionals. 18 (2). https://doi.org/10.1111/nup.12130
Managers' use of nursing workforce planning and deployment technologies: protocol for a realist synthesis of implementation and impact
Burton, C., Rycroft-Malone, J., Williams, L., Davies, S., McBride, A., Hall, B., Rowlands, A.M. and Jones, A. 2016. Managers' use of nursing workforce planning and deployment technologies: protocol for a realist synthesis of implementation and impact. BMJ Open. 6 (8). https://doi.org/10.1136/bmjopen-2016-013645
Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions
Williams, L., Rycroft-Malone, J., Burton, C., Edwards,S., Fisher, D., Hall, B., McCormack, B., Nutley, S.M., Seddon, D. and Williams, R. 2016. Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions. BMJ Open. 6 (8). https://doi.org/10.1136/bmjopen-2016-011964
Strategies to prevent oral disease in dependent older people
Brocklehurst, P., Williams, L., Hoare, Z., Goodwin, T., McKenna, G., Tsakos, G., Chestnutt, I.G., Pretty, I., Wassall, R., Jerkovic-Cosic, K., Hayes, M., Watt, R.G. and Burton, C. 2016. Strategies to prevent oral disease in dependent older people. Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD012402
Process evaluations in neurological rehabilitation: a mixed-evidence systematic review and recommendations for future research
Masterson-Algar, P., Burton, C. and Rycroft-Malone, J. 2016. Process evaluations in neurological rehabilitation: a mixed-evidence systematic review and recommendations for future research. BMJ Open. 6 (11). https://doi.org/10.1136/bmjopen-2016-013002
Managing diabetes in people with dementia: protocol for a realist review
Bunn, F., Goodman, C., Rycroft Malone, J., Reece Jones, P., Burton, C., Rait, G., Trivedi, D., Bayer, A. and Sinclair, A. 2016. Managing diabetes in people with dementia: protocol for a realist review. Systematic Reviews. 5 (5). https://doi.org/10.1186/s13643-015-0182-4
Collaboration and co-production knowledge in healthcare: opportunities and challenges
Rycroft-Malone, J., Burton, C.R., Bucknall , T., Graham, I.D., Hutchinson, A. and Stacey, D. 2016. Collaboration and co-production knowledge in healthcare: opportunities and challenges. International Journal of Health Policy and Management. 5 (4), pp. 221-223. https://doi.org/10.15171/IJHPM.2016.08
Collective action for implementation: a realist evaluation of organisational collaboration in healthcare
Rycroft-Malone, J., Burton, C.R., Wilkinson, J., Harvey, G., McCormack, B., Baker, R., Dopson, S., Graham, I.D., Staniszewska, S., Thompson, C., Ariss, S., Melville-Richards, L. and Williams , L. 2016. Collective action for implementation: a realist evaluation of organisational collaboration in healthcare. Implementation Science : IS. 11 (17). https://doi.org/10.1186/s13012-016-0380-z
An occupational therapy intervention for residents with stroke-related disabilities in UK care homes (OTCH): cluster randomised controlled trial with economic evaluation
Sackley, C.M., Walker, M.F., Burton, C.R., Watkins,C.L, Mant, J., Roalfe, A.K., Wheatley, K., Sheehan, B., Sharp, L., Stant, K.E., Fletcher-Smith, J., Steel, K., Barton, G.R., Irvine, L. and Peryer, G. 2016. An occupational therapy intervention for residents with stroke-related disabilities in UK care homes (OTCH): cluster randomised controlled trial with economic evaluation. Health Technology Assessment. 20 (15). https://doi.org/10.3310/hta20150
Identifying Continence OptioNs after Stroke (ICONS): an evidence synthesis, case study and exploratory cluster randomised controlled trial of the introduction of a systematic voiding programme for patients with urinary incontinence after stroke in secondary care
Thomas, L. H., French, B., Sutton, C. J., Forshaw, D., Leathley, M. J., Burton, C., Roe, B., Cheater, F. M., Booth, J., McColl, E., Carter, B., Walker, A., Brittain, K., Whiteley, G., Rodgers, H., Barrett, J. and Watkins, C. L. 2015. Identifying Continence OptioNs after Stroke (ICONS): an evidence synthesis, case study and exploratory cluster randomised controlled trial of the introduction of a systematic voiding programme for patients with urinary incontinence after stroke in secondary care. NIHR Journals Library.
Collective action for knowledge mobilisation: a realist evaluation of the collaborations for leadership in applied health research and care
Rycroft-Malone, J., Burton, C., Wilkinson, J., Harvey, G., McCormack, B., Baker, R., Dopson, S., Graham, I., Staniszewska, S., Thompson, C., Ariss, S., Melville-Richards, L. and Williams, L. 2015. Collective action for knowledge mobilisation: a realist evaluation of the collaborations for leadership in applied health research and care. UK NIHR Journals Library. https://doi.org/10.3310/hsdr03440
An untapped resource: patient and public involvement in implementation comment on "Knowledge mobilization in healthcare organizations": a view from the resource-based view of the firm
Burton, C. and Rycroft-Malone, J. 2015. An untapped resource: patient and public involvement in implementation comment on "Knowledge mobilization in healthcare organizations": a view from the resource-based view of the firm. International Journal of Health Policy and Management. 4 (12), pp. 845-847. https://doi.org/10.15171/ijhpm.2015.150
Investigating preferences for support with life after stroke: a discrete choice experiment
Burton, C., Fargher, E., Plumpton, C., Roberts, G.W, Owen, H. and Roberts, E. 2014. Investigating preferences for support with life after stroke: a discrete choice experiment. BMC Health Services Research. 14 (63). https://doi.org/10.1186/1472-6963-14-63
Evaluating a systematic voiding programme for patients with urinary incontinence after stroke in secondary care using soft systems analysis and Normalisation Process Theory: findings from the ICONS case study phase.International journal of nursing studies
Thomas, L.H, French, B., Burton, C., Sutton, C., Forshaw, D., Dickinson, H., Leathley, M.J., Britt, D., Roe, B., Cheater, F.M, Booth, J., Watkins, C.L, ICONS Project Team, ICONS Patient and Public and Carer Involvement Groups 2014. Evaluating a systematic voiding programme for patients with urinary incontinence after stroke in secondary care using soft systems analysis and Normalisation Process Theory: findings from the ICONS case study phase.International journal of nursing studies. International Journal of Nursing Studies. 51 (10), pp. 1308-1320. https://doi.org/10.1016/j.ijnurstu.2014.02.009
Improving skills and care standards in the support workforce for older people: a realist review
Rycroft-Malone, J., Burton, C., Hall, B., McCormack, B., Nutley, S., Seddon, D. and Williams, L. 2014. Improving skills and care standards in the support workforce for older people: a realist review. BMJ Open. 4 (5). https://doi.org/10.1136/bmjopen-2014-005356
Does self-efficacy influence recovery and well-being in osteoarthritis patients undergoing joint replacement? A systematic review
Magklara, E., Burton, C. and Morrison, V. 2014. Does self-efficacy influence recovery and well-being in osteoarthritis patients undergoing joint replacement? A systematic review. Clinical Rehabilitation. 28 (9). https://doi.org/10.1177/0269215514527843
Towards a programme theory for fidelity in the evaluation of complex interventions.
Masterson-Algar, P., Burton, C., Rycroft-Malone, J., Sackley, C.M. and Walker, M.F. 2014. Towards a programme theory for fidelity in the evaluation of complex interventions. Journal of Evaluation in Clinical Practice . 20 (4), pp. 445 - 452. https://doi.org/10.1111/jep.12174
Investigating the organisational impacts of quality improvement: a protocol for a realist evaluation of improvement approaches drawing on the Resource Based View of the Firm.
Burton, C., Rycroft Malone, J., Robert, G., Willson, A. and Hopkins, A. 2014. Investigating the organisational impacts of quality improvement: a protocol for a realist evaluation of improvement approaches drawing on the Resource Based View of the Firm. BMJ Open. 4:e005650. https://doi.org/10.1136/bmjopen-2014-005650
Resource based view of the firm as a theoretical lens on the organisational consequences of quality improvement.
Burton, C. and Rycroft-Malone, J. 2014. Resource based view of the firm as a theoretical lens on the organisational consequences of quality improvement. International Journal of Health Policy and Management. 3 (3), pp. 113 - 115. https://doi.org/10.15171/ijhpm.2014.74
The study protocol of: 'Initiating end of life care in stroke: clinical decision-making around prognosis'.
Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrell, P., Horne, M., Ntambwe, L.I., Tyson, S., Mitchell, H., Williams, S. and Elghenzai, S. 2014. The study protocol of: 'Initiating end of life care in stroke: clinical decision-making around prognosis'. BMC Palliative Care. 13 (55). https://doi.org/10.1186/1472-684X-13-55
Identifying continence options after stroke (ICONS): a cluster randomised controlled feasibility trial.
Thomas, L.H., Watkins, C.L., Sutton, C.J., Forshaw, D., Leathley, M.J., French, B., Burton, C., Cheater, F., Roe, B., Britt, D., Booth, J., McColl, E., The ICONS Project Team and The ICONS Patient, Public and Carer Involvement Groups 2014. Identifying continence options after stroke (ICONS): a cluster randomised controlled feasibility trial. Trials. 15 (509). https://doi.org/10.1186/1745-6215-15-509
What is rehabilitation potential? Development of a theoretical model through the accounts of healthcare professionals working in stroke rehabilitation services
Burton, C.R., Horne, M., Woodward-Nutt, K., Bowen, A. and Tyrrell, P. 2014. What is rehabilitation potential? Development of a theoretical model through the accounts of healthcare professionals working in stroke rehabilitation services. Disability and Rehabilitation. 37 (21), pp. 1955-1960. https://doi.org/10.3109/09638288.2014.991454