Sleep hygiene education and children with developmental disabilities: Findings from a co-design study

Journal article


Sutton, J.E., Huws, J.C. and Burton, C. 2019. Sleep hygiene education and children with developmental disabilities: Findings from a co-design study. Journal of Intellectual Disabilities. https://doi.org/10.1177/1744629518818950
AuthorsSutton, J.E., Huws, J.C. and Burton, C.
Abstract

This qualitative study develops a programme theory demonstrating the complexity embedded in sleep hygiene education (SHE) as an intervention to improve sleep problems in children with developmental disabilities. In co-design workshops, eight parents and six sleep practitioners deliberated themes developed from findings of an earlier exploratory study of stakeholder perceptions of SHE. A SHE tool underpinned by programme theory was developed evidenced by mid-range theories of change. Analytical themes were developed to explain the programme theory and the complexities of a successful SHE intervention: the need to legitimize children’s sleep problems and consider the nature of customization, knowledge sharing, health expectation and impact of sleep service rationing and gaming strategies on implementation success. Policy and practice implications include a need to raise the public profile of children’s sleep problems and promote parental involvement in intervention implementation. Further research is needed to test out this theory-driven framework for evaluating SHE.

KeywordsChildren; Developmental disabilities; Sleep hygiene education; Experience-based co-design; Programme theory
Year2019
Journal Journal of Intellectual Disabilities
PublisherSAGE
ISSN1744-6309
Digital Object Identifier (DOI)https://doi.org/10.1177/1744629518818950
Official URLhttps://doi.org/10.1177/1744629518818950
Publication dates
Online17 Jan 2019
Publication process dates
Deposited26 May 2020
Accepted author manuscript
License
Output statusPublished
References

American Association on Intellectual and Developmental Disabilities (2018) Definition of Intellectual Disability. Available at: https://aaidd.org/intellectual-disability/definition#.WMD8FWBvhto (accessed 6
December 2018).
American Psychiatric Association (2013) Diagnostic and Statistical Manual of Mental Disorders, 5th ed.
Arlington, VA, US: American Psychiatric Publishing..
18 Journal of Intellectual Disabilities XX(X)
Armitage CJ (2009) Is there utility in the transtheoretical model? British Journal of Health Psychology
14(Pt 2): 195–210.
Astbury B and Leeuw FL (2010) Unpacking black boxes: Mechanisms and theory building in evaluation.
American Journal of Evaluation 31(3): 363–381.
Atkinson D, Boulter P, Hebron C, et al. (2013) The Health Equalities Framework. Improving Health and
Lives. Learning Disability Observatory.
Bandura A (1977) Self Efficacy: The Exercise of Control. New York: Freeman.
Bandura A (1997) Self-efficacy: Toward a unifying theory of behavioural change. Psychological Review 84:
191–215.
Beresford B, Stuttard L, Clarke S, et al. (2012) Managing behaviour and sleep problems in disabled children:
An investigation into the effectiveness and costs of parent-training interventions. DFE-RR204. Department for Education Research Report. Department for Education, London.
Beresford B, Stuttard L, Clarke S, et al. (2016) Parent’s experiences of psychoeducational sleep management
interventions. A qualitative study of parents of children with neurodevelopmental disabilities. Clinical
Practice in Pediatric Psychology 4(2): 164–175.
Bevan G and Hood C (2006) What’s measured is what matters. Targets and gaming in the English public
health care system. Public Administration 84(3): 517–530.
Black CA, McConkey R, Roberts P, et al. (2010) Developing a person centred support service for families
caring for children with severe learning disabilities in rural and urban areas. Journal of Intellectual and
Developmental Disabilities 14(2): 111–131.
Bonuck K and Grant R (2012) Sleep problems and early developmental delay: Implications for early intervention programs. Intellectual and Developmental disabilities 50(1): 41–52.
Bourke Taylor H, Pallant JF, Law M, et al. (2013). Relationships between sleep disruptions, health and care
responsibilities among mothers of school-aged children with disabilities. Journal of Paediatrics and Child
Health 49: 775–782.
Bradley P and Willson A (2014) Achieving Prudent Healthcare in NHS Wales. Cardiff: Public Health Wales.
Braun V and Clarke V (2006) Using thematic analysis in psychology. Qualitative Research in Psychology 3:
77–101.
British Institute of Learning Disabilities (2013) Summary Report: Is Healthcare Getting Better for People
with Learning Disabilities. Birmingham: British Institute for Learning Disabilities.
Burnard P, Gill P, Stewart K, et al. (2008) Analyzing and presenting qualitative data. British Dental Journal
204: 429–432.
Chen HT (2015) Practical Program Evaluation: Theory Driven Evaluation and the Integrated Evaluation
Perspective. London: Sage.
Creswell J (2007) Qualitative Inquiry and Research Design. Choosing Among Five Approaches. London:
Sage.
Culham A and Nind M (2003) Deconstructing normalisation: Clearing the way for inclusion. Journal of
Intellectual and Developmental Disability 28(1): 65–78.
Davis K and Gavidia Payne S (2009) The impact of child, family and professional support characteristics on
the quality of life in families of young children with disabilities. Journal of Intellectual and Developmental
Disabilities. 34(2): 153–162.
Davis H and Meltzer L (2007) Working in Partnership Through Early Support. London: Early Support.
Department of Health.
de Blok C, Meijboom B, Luijkx K, et al. (2012) The human dimension of modular care provision: Opportunities for personalization and customization. International Journal of Production Economics 142:
16–26.
Dempster R, Wildman B and Keating A (2013) The role of stigma in parental help-seeking for child behaviour
problems. Journal of Clinical Child and Adolescent Psychiatry 42(1): 56–67.
Department of Health (2009) Valuing People Now. A New Three Year Strategy for People with Learning
Disabilities. London: Department of Health.
Sutton et al. 19
Department of Health (2015) Transforming Care for People with Learning Disabilities-Next Steps. London.
Department of Health.
Disability Rights Commission (2006) Equal Treatment: Closing the Gap. Stratford-Upon-Avon: Disability
Rights Commission.
Donetto S, Tsianakas V and Robert G (2014) Using Experience-based Co-design to Improve the Quality of
Healthcare: Mapping where We are Now and Establishing Future Directions Final Report. London:
King’s College London.
Emerson E, Baines S, Allerton L, et al. (2012) Health Inequalities and People with Learning Disabilities in
the UK. Improving Health and Lives. Learning Disability Observatory.
Family Fund (2013) Tired all the Time. The Impact of Sleep Difficulties on Families with Disabled Children.
York: Family Fund.
Funnell SC and Rogers PJ (2011) Purposeful Program Theory: Effective Use of Theories of Change and Logic
Models. San Francisco: Jossey-Bass.
Galland BC and Mitchell EA (2010) Helping children sleep. Archives of Disease in Childhood 95(10):
850–853.
Gilbert T (2004) Involving people with learning disabilities in research: Issues and possibilities. Health and
Social Care in the Community 12(4):298–308.
Glenton C, Colvin CJ, Carlsen B, et al. (2013) Barriers and facilitators to the implementation of lay health
worker programmes to improve access to maternal and child health: Qualitative evidence synthesis.
Cochrane Database of Systematic Reviews 8(10): CD010414.
Jan JE, Owens JA, Weiss MD, et al. (2008) Sleep hygiene for children with neurodevelopmental disabilities.
Pediatrics 122(6): 1343–1350.
Janzen JA, Silvius J, Jacobs S, et al. (2005) What is health expectation? Developing a pragmatic conceptual
model from psychological theory. Health Expectation 9: 37–48.
Kennedy LA, Milton B and Bundred P (2008) Lay food and health worker involvement in community
nutrition and dietetics in England. Roles, responsibilities and relationships with professionals. Journal of
Human Nutrition and Dietetics 21(3): 210–224.
Locock L, Robert G, Boaz A, et al. (2014) Testing accelerated experience-based co-design: A qualitative
study of using a national archive of patient experience narrative interviews to promote rapid
patient-centred service improvement. Health Services and Delivery Research 2(4): 1–150.
Malow BA, Adkins KW, Reynolds A, et al. (2013) Parent-based sleep education for children with autism
spectrum disorders. Journal of Autism and Developmental Disorders 44(1): 216–228.
Mansell J and Beadle Brown J (2004) Person-centred planning or person-centred action? A response to the
commentaries. Journal of Applied Research in Intellectual Disabilities 17: 31–35.
Mason J (2007) The provision of psychotherapy to people with intellectual disabilities. An investigation into
some of the relevant factors. Journal of Intellectual Disability Research 51(3): 244–249.
Mason J and Scior I (2004) ‘Diagnostic overshadowing’ amongst clinicians working with people with
intellectual disabilities in the UK. Journal of Applied Research in Intellectual Disabilities 17(2):
86–96.
McDaid C and Sloper P (2009) Evidence of Effectiveness of Behavioural Interventions to Help Parents
Manage Sleep Problems in Young Disabled Children: A Rapid Review. York: Social Policy Research
Unit.
McDougall A, Kerr AM and Espie CA (2005) Sleep disturbance in children with rett syndrome: A qualitative
investigation of the parental experience. Journal of Applied Research in Intellectual Disabilities 18:
201–215.
Medical Research Council (2000) Framework for the Development and Evaluation of RCTs for Complex
Interventions to Improve Health. London: Medical Research Council.
Medical Research Council (2008) Developing and Evaluating Complex Interventions: New Guidance.
London: Medical Research Council.
Mencap (2007) Death by Indifference. Following up the Treat Me Right! Report. London: Mencap.
20 Journal of Intellectual Disabilities XX(X)
Minvielle E, Waelli M, Sicotte C, et al. (2014) Managing customization in health care. A framework derived
from the service sector literature. Health Policy 177: 216–227.
National Health Service England (2015) Supporting People with and/or Autism who Display Behaviour that
Challenges, Including those with a Mental Health Condition. Service Model for Commissioners of Health
and Social Care Service. London: NHS England.
National Institute for Health and Care Excellence (NICE) (2013) Autism: The Management and Support of
Children and Young People on the Autism Spectrum. (National Clinical Guideline no. 170). London:
British Psychological Society and the Royal College of Psychiatrists.
Nigg CR, Geller KS, Horwath CC, et al. (2011) A research agenda to examine the efficacy and relevance of
the transtheoretical model for physical activity behaviours. Psychology of Sport and Exercise 12(1): 7–12.
Pearpoint J, O’Brien J and Forest M (1998) PATH. A Workbook for Planning Positive Possible Futures.
Toronto: Inclusion Press.
Perkins D and Zimmerman M (1995) Empowerment theory, research and application. American Journal of
Community Psychology 23(5): 569–579.
Prochaska JO and DiClemente CC (1983) Stages and processes of self-change of smoking: Toward an
integrative model of change. Journal of Consulting and Clinical Psychology 51(3): 390–395.
Prochaska JO and Velicer WF (1997) The transtheoretical model of health behaviour change. American
Journal of Health Promotion 12(1): 38–48.
Reason P and Bradury H (2001) Introduction: Inquiry and participation in search of a world worthy of human
aspiration. In: Reason P and Bradbury H (eds.), Handbook of Action Research. London: Sage, pp. 1–14.
Richdale A, Francis A, Gavidia Payne S, et al. (2000) Stress, behaviour, and sleep problems in children with
an intellectual disability. Journal of Intellectual and Developmental Disability 25(2): 147–161.
Robinson AM and Richdale AL (2004) Sleep problems in children with an intellectual disability: Parental
perceptions of sleep problems, and views of treatment effectiveness. Child: Care, Health and Development 30(2): 139–150.
Rodero E (2012) See it on a radio story. Sound effects and shots to evoked imagery and attention on audio
fiction. Communication Research 39(4): 458–479.
Sanderson H and Lewis J (2012) A Practical Guide to Delivering Personalisation. Person Centred Practice in
Health and Social Care. London: Jessica Kingsley.
Stores G and Wiggs L (2001) Sleep disturbance: A serious, widespread, yet neglected problem in disorders of
development. In: Stores G and and Wiggs L (eds.), Sleep Disturbance in Children and Adolescents with
Disorders of Development: Its Significance and Management. New York: Cambridge University Press, pp.
3–14.
Sutton J (2011) Promoting effective interventions for sleep problems. Nursing Children and Young People
23(8): 14–18.
Sutton J (2017) Sleep hygiene education and children with developmental disabilities. Unpublished doctoral
thesis, Bangor University, UK.
The King’s Fund (2014) Experience Based Co-Design Toolkit. London: King’s Fund.
Tietze A, Blankenburg M, Hechler T, et al. (2012) Sleep disturbances in children with multiple disabilities.
Sleep Medicines Review 16(2): 117–127.
Tobiano G, Bucknall T, Marshall A, et al. (2016) Patients’ perceptions of participation in nursing care on
medical wards. Scandinavian Journal of Caring Sciences 30: 260–270.
Vogel DL and Wade NG (2009) Stigma and help seeking. The British Psychological Society 22: 20–23.
Vriend JL, Corkum PV, Moon EC, et al. (2011) Behavioral interventions for sleep problems in children with
autism spectrum disorders: Current findings and future directions. Journal of Pediatric Psychology 36(9):
1017–1029.
Wiggs L and Stores G (1996) Sleep problems in children with severe intellectual disabilities: What help is
being provided? Journal of Applied Research in Intellectual Disabilities 9: 159–164.
Wolfensberger W and Tullman S (1982) A brief outline of the principle of normalization. Rehabilitation
Psychology 27(3): 131–145.

Permalink -

https://repository.canterbury.ac.uk/item/8v943/sleep-hygiene-education-and-children-with-developmental-disabilities-findings-from-a-co-design-study

Download files


Accepted author manuscript
JIDD author accepted proof1.pdf
License: CC BY-ND 4.0

  • 21
    total views
  • 2
    total downloads
  • 1
    views this month
  • 0
    downloads this month

Export as

Related outputs

Making authentic: exploring boundary objects and bricolage in knowledge mobilisation through National Health Service-university partnerships
Melville-Richards, L., Rycroft-Malone, J., Burton, C. and Wilkinson, J. 2020. Making authentic: exploring boundary objects and bricolage in knowledge mobilisation through National Health Service-university partnerships. Evidence & Policy: A Journal of Research, Debate and Practice. https://doi.org/10.1332/174426419X15623134271106
A multicentre, randomised controlled trial to compare the clinical and cost-effectiveness of Lee Silverman Voice Treatment versus standard NHS Speech and Language Therapy versus control in Parkinson’s disease: a study protocol for a randomised controlled trial
Sackley, C. M., Rick, C., Au, P., Brady, M. C., Beaton, G., Burton, C., Caulfield, M., Dickson, S., Dowling, F., Hughes, M., Ives, N., Jowett, S., Masterton-Algar, P., Nicoll, A., Patel, S., Smith, C. H., Woolley, R. and Clarke, C. E. 2020. A multicentre, randomised controlled trial to compare the clinical and cost-effectiveness of Lee Silverman Voice Treatment versus standard NHS Speech and Language Therapy versus control in Parkinson’s disease: a study protocol for a randomised controlled trial. Trials. 21 (436). https://doi.org/10.1186/s13063-020-04354-7
'Function first—be active, stay independent’—Promoting physical activity and physical function in people with long-term conditions by primary care: a protocol for a realist synthesis with embedded co-production and co-design
Law, R-J, Williams, L., Langley, J., Burton, C., Hall, B., Hiscock, J., Morrison, V., Lemmey, A., Partridge, R., Lovell-Smith, C., Gallanders, J. and Williams, N. 2020. 'Function first—be active, stay independent’—Promoting physical activity and physical function in people with long-term conditions by primary care: a protocol for a realist synthesis with embedded co-production and co-design. BMJ Open. 10 (2). https://doi.org/10.1136/bmjopen-2019-035686
Towards safe nurse staffing in England’s National Health Service: progress and pitfalls of policy evolution
Lawless, J., Couch, R., Griffiths, P., Burton, C. and Ball, J. 2019. Towards safe nurse staffing in England’s National Health Service: progress and pitfalls of policy evolution. Health Policy. 123 (6), pp. 590-594. https://doi.org/10.1016/j.healthpol.2019.03.011
Brief smoking cessation in acute Welsh hospitals: A realist approach
Davies, S., Burton, C., Williams, L. and Tinkler, A. 2019. Brief smoking cessation in acute Welsh hospitals: A realist approach. Health Promotion International. 35 (2), pp. 244-254. https://doi.org/10.1093/heapro/daz020
Understanding how and why de-implementation works in health and care: research protocol for a realist synthesis of evidence
Burton, C., Williams, L., Bucknall, T., Edwards, S., Fisher, D., Hall, B., Harris, G., Jones, P., Makin, M., McBride, A., Meacock, R., Parkinson, J., Rycroft-Malone, J. and Waring, J. 2019. Understanding how and why de-implementation works in health and care: research protocol for a realist synthesis of evidence. Systematic Reviews. 8 (194). https://doi.org/doi.org10.1186/s13643-019-1111-8
NHS managers’ use of nursing workforce planning and deployment technologies: a realist synthesis
Burton, C., Rycroft-Malone, J., Williams, L., Davies, S., McBride, A., Hall, B., Rowlands, A., Jones, A., Fisher, D., Jones, M. and Caulfield, M. 2018. NHS managers’ use of nursing workforce planning and deployment technologies: a realist synthesis. Southampton (UK) NIHR Journals Library.
NHS managers’ use of nursing workforce planning and deployment technologies: a realist synthesis
Burton, C., Rycroft-Malone, J., Williams, L, Davies, S., McBride, A., Hall, B., Rowlands, A., Jones, A., Fisher, D., Jones, M. and Caulfield, M. 2018. NHS managers’ use of nursing workforce planning and deployment technologies: a realist synthesis. Health Services and Delivery Research. 6 (36). https://doi.org/10.3310/hsdr06360
The generation of consensus guidelines for carrying out process evaluations in rehabilitation research
Masterson-Algar, P., Burton, C. and Rycroft-Malone, J. 2018. The generation of consensus guidelines for carrying out process evaluations in rehabilitation research. BMC Medical Research Methodology. 18 (1), pp. 1-11. https://doi.org/10.1186/s12874-018-0647-y
Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke
Masterson-Algar, P., Williams, S., Burton, C., Arthur, C., Hoare, Z., Morrison, V., Radford, K., Seddon, D. and Elghenzai, S. 2018. Getting back to life after stroke: co-designing a peer-led coaching intervention to enable stroke survivors to rebuild a meaningful life after stroke. Disability and Rehabilitation. 42 (10), pp. 1359-1372.
Arts-based palliative care training, education and staff development: A scoping review
Turton, B.M., Williams, S., Burton, C.R. and Williams, L. 2018. Arts-based palliative care training, education and staff development: A scoping review. Palliative Medicine. 32 (2). https://doi.org/10.1177/0269216317712189
What works for whom in the management of diabetes in people living with dementia: a realist review
Bunn, F., Goodman, C., Reece Jones, P., Russell, B., Trivedi, D,, Sinclair, A., Bayer, A., Rait, G., Rycroft-Malone, J. and Burton, C. 2017. What works for whom in the management of diabetes in people living with dementia: a realist review. BMC Medicine. 15. https://doi.org/10.1186/s12916-017-0909-2
The PD COMM trial: a protocol for the process evaluation of a randomised trial assessing the effectiveness of two types of SLT for people with Parkinson's disease.
Masterson-Algar, P, Burton, C., Brady, M.C., Nicoll, A., Clarke, C.E., Rick, C., Hughes, M., Au, P., Smith, C.H. and Sackley, C.M. 2017. The PD COMM trial: a protocol for the process evaluation of a randomised trial assessing the effectiveness of two types of SLT for people with Parkinson's disease. Trials. 18 (397), p. 2017. https://doi.org/10.1186/s13063-017-2130-1
Managing diabetes in people with dementia: a realist review
Bunn, F., Goodman, C., Jones, P.R., Russell, B., Trivedi, D., Sinclair, A., Bayer, A., Rait, G., Rycroft-Malone, J. and Burton, C. 2017. Managing diabetes in people with dementia: a realist review. Perth, Scotland NIHR Journals Library. https://doi.org/10.3310/hta21750
Implementation and trial evidence: a plea for fore-thought
Brocklehurst, P.R., Williams, L., Burton, C., Goodwin, T. and Rycroft-Malone, J. 2017. Implementation and trial evidence: a plea for fore-thought. British Dental Journal. 222 (5), pp. 331-335. https://doi.org/10.1038/sj.bdj.2017.213
What works for whom in the management of diabetes in people living with dementia: a realist review
Bunn, F., Goodman, C., Jones, P. R., Russell, B., Trivedi, D., Sinclair, A., Bayer, A., Rait, G., Rycroft-Malone, J. and Burton, C. 2017. What works for whom in the management of diabetes in people living with dementia: a realist review. BMC Medicine. 15 (141). https://doi.org/10.1186/s12916-017-0909-2
Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions
Rycroft-Malone, J., Burton, C., Williams, L., Edwards, S., Fisher, D., Hall, B., McCormack, B., Nutley, S., Seddon, D. and Williams, R. 2016. Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions. National Institute of Health Research. https://doi.org/10.3310/hsdr04120
Implementing a Systematic Voiding Program for Patients With Urinary Incontinence After Stroke
French, B., Thomas, L.H., Harrison, J., Burton, C., Forshaw, D., Booth, J., Britt, D., Cheater, F.M., Roe, B. and Watkins, C.L. 2016. Implementing a Systematic Voiding Program for Patients With Urinary Incontinence After Stroke. Qualitative Health Research. 26 (10). https://doi.org/10.1177/1049732316630975
Implementing best practice in infection prevention and control. A realist evaluation of the role of intermediaries
Williams, L., Rycroft-Malone, J. and Burton, C. 2016. Implementing best practice in infection prevention and control. A realist evaluation of the role of intermediaries. International Journal of Nursing Studies. 60, pp. 156-167. https://doi.org/10.1016/j.ijnurstu.2016.04.012
Bringing critical realism to nursing practice: Roy Bhaskar's contribution
Williams, L., Rycroft-Malone, J. and Burton, C. 2016. Bringing critical realism to nursing practice: Roy Bhaskar's contribution. nursing philosophy: an international journal for healthcare professionals. 18 (2). https://doi.org/10.1111/nup.12130
Managers' use of nursing workforce planning and deployment technologies: protocol for a realist synthesis of implementation and impact
Burton, C., Rycroft-Malone, J., Williams, L., Davies, S., McBride, A., Hall, B., Rowlands, A.M. and Jones, A. 2016. Managers' use of nursing workforce planning and deployment technologies: protocol for a realist synthesis of implementation and impact. BMJ Open. 6 (8). https://doi.org/10.1136/bmjopen-2016-013645
Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions
Williams, L., Rycroft-Malone, J., Burton, C., Edwards,S., Fisher, D., Hall, B., McCormack, B., Nutley, S.M., Seddon, D. and Williams, R. 2016. Improving skills and care standards in the support workforce for older people: a realist synthesis of workforce development interventions. BMJ Open. 6 (8). https://doi.org/10.1136/bmjopen-2016-011964
Strategies to prevent oral disease in dependent older people
Brocklehurst, P., Williams, L., Hoare, Z., Goodwin, T., McKenna, G., Tsakos, G., Chestnutt, I.G., Pretty, I., Wassall, R., Jerkovic-Cosic, K., Hayes, M., Watt, R.G. and Burton, C. 2016. Strategies to prevent oral disease in dependent older people. Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD012402
Process evaluations in neurological rehabilitation: a mixed-evidence systematic review and recommendations for future research
Masterson-Algar, P., Burton, C. and Rycroft-Malone, J. 2016. Process evaluations in neurological rehabilitation: a mixed-evidence systematic review and recommendations for future research. BMJ Open. 6 (11). https://doi.org/10.1136/bmjopen-2016-013002
Managing diabetes in people with dementia: protocol for a realist review
Bunn, F., Goodman, C., Rycroft Malone, J., Reece Jones, P., Burton, C., Rait, G., Trivedi, D., Bayer, A. and Sinclair, A. 2016. Managing diabetes in people with dementia: protocol for a realist review. Systematic Reviews. 5 (5). https://doi.org/10.1186/s13643-015-0182-4
Collaboration and co-production knowledge in healthcare: opportunities and challenges
Rycroft-Malone, J., Burton, C.R., Bucknall , T., Graham, I.D., Hutchinson, A. and Stacey, D. 2016. Collaboration and co-production knowledge in healthcare: opportunities and challenges. International Journal of Health Policy and Management. 5 (4), pp. 221-223. https://doi.org/10.15171/IJHPM.2016.08
Collective action for implementation: a realist evaluation of organisational collaboration in healthcare
Rycroft-Malone, J., Burton, C.R., Wilkinson, J., Harvey, G., McCormack, B., Baker, R., Dopson, S., Graham, I.D., Staniszewska, S., Thompson, C., Ariss, S., Melville-Richards, L. and Williams , L. 2016. Collective action for implementation: a realist evaluation of organisational collaboration in healthcare. Implementation Science : IS. 11 (17). https://doi.org/10.1186/s13012-016-0380-z
An occupational therapy intervention for residents with stroke-related disabilities in UK care homes (OTCH): cluster randomised controlled trial with economic evaluation
Sackley, C.M., Walker, M.F., Burton, C.R., Watkins,C.L, Mant, J., Roalfe, A.K., Wheatley, K., Sheehan, B., Sharp, L., Stant, K.E., Fletcher-Smith, J., Steel, K., Barton, G.R., Irvine, L. and Peryer, G. 2016. An occupational therapy intervention for residents with stroke-related disabilities in UK care homes (OTCH): cluster randomised controlled trial with economic evaluation. Health Technology Assessment. 20 (15). https://doi.org/10.3310/hta20150
Identifying Continence OptioNs after Stroke (ICONS): an evidence synthesis, case study and exploratory cluster randomised controlled trial of the introduction of a systematic voiding programme for patients with urinary incontinence after stroke in secondary care
Thomas, L. H., French, B., Sutton, C. J., Forshaw, D., Leathley, M. J., Burton, C., Roe, B., Cheater, F. M., Booth, J., McColl, E., Carter, B., Walker, A., Brittain, K., Whiteley, G., Rodgers, H., Barrett, J. and Watkins, C. L. 2015. Identifying Continence OptioNs after Stroke (ICONS): an evidence synthesis, case study and exploratory cluster randomised controlled trial of the introduction of a systematic voiding programme for patients with urinary incontinence after stroke in secondary care. NIHR Journals Library.
Collective action for knowledge mobilisation: a realist evaluation of the collaborations for leadership in applied health research and care
Rycroft-Malone, J., Burton, C., Wilkinson, J., Harvey, G., McCormack, B., Baker, R., Dopson, S., Graham, I., Staniszewska, S., Thompson, C., Ariss, S., Melville-Richards, L. and Williams, L. 2015. Collective action for knowledge mobilisation: a realist evaluation of the collaborations for leadership in applied health research and care. UK NIHR Journals Library. https://doi.org/10.3310/hsdr03440
An untapped resource: patient and public involvement in implementation comment on "Knowledge mobilization in healthcare organizations": a view from the resource-based view of the firm
Burton, C. and Rycroft-Malone, J. 2015. An untapped resource: patient and public involvement in implementation comment on "Knowledge mobilization in healthcare organizations": a view from the resource-based view of the firm. International Journal of Health Policy and Management. 4 (12), pp. 845-847. https://doi.org/10.15171/ijhpm.2015.150
Investigating preferences for support with life after stroke: a discrete choice experiment
Burton, C., Fargher, E., Plumpton, C., Roberts, G.W, Owen, H. and Roberts, E. 2014. Investigating preferences for support with life after stroke: a discrete choice experiment. BMC Health Services Research. 14 (63). https://doi.org/10.1186/1472-6963-14-63
Evaluating a systematic voiding programme for patients with urinary incontinence after stroke in secondary care using soft systems analysis and Normalisation Process Theory: findings from the ICONS case study phase.International journal of nursing studies
Thomas, L.H, French, B., Burton, C., Sutton, C., Forshaw, D., Dickinson, H., Leathley, M.J., Britt, D., Roe, B., Cheater, F.M, Booth, J., Watkins, C.L, ICONS Project Team, ICONS Patient and Public and Carer Involvement Groups 2014. Evaluating a systematic voiding programme for patients with urinary incontinence after stroke in secondary care using soft systems analysis and Normalisation Process Theory: findings from the ICONS case study phase.International journal of nursing studies. International Journal of Nursing Studies. 51 (10), pp. 1308-1320. https://doi.org/10.1016/j.ijnurstu.2014.02.009
Improving skills and care standards in the support workforce for older people: a realist review
Rycroft-Malone, J., Burton, C., Hall, B., McCormack, B., Nutley, S., Seddon, D. and Williams, L. 2014. Improving skills and care standards in the support workforce for older people: a realist review. BMJ Open. 4 (5). https://doi.org/10.1136/bmjopen-2014-005356
Does self-efficacy influence recovery and well-being in osteoarthritis patients undergoing joint replacement? A systematic review
Magklara, E., Burton, C. and Morrison, V. 2014. Does self-efficacy influence recovery and well-being in osteoarthritis patients undergoing joint replacement? A systematic review. Clinical Rehabilitation. 28 (9). https://doi.org/10.1177/0269215514527843
Towards a programme theory for fidelity in the evaluation of complex interventions.
Masterson-Algar, P., Burton, C., Rycroft-Malone, J., Sackley, C.M. and Walker, M.F. 2014. Towards a programme theory for fidelity in the evaluation of complex interventions. Journal of Evaluation in Clinical Practice . 20 (4), pp. 445 - 452. https://doi.org/10.1111/jep.12174
Investigating the organisational impacts of quality improvement: a protocol for a realist evaluation of improvement approaches drawing on the Resource Based View of the Firm.
Burton, C., Rycroft Malone, J., Robert, G., Willson, A. and Hopkins, A. 2014. Investigating the organisational impacts of quality improvement: a protocol for a realist evaluation of improvement approaches drawing on the Resource Based View of the Firm. BMJ Open. 4:e005650. https://doi.org/10.1136/bmjopen-2014-005650
Resource based view of the firm as a theoretical lens on the organisational consequences of quality improvement.
Burton, C. and Rycroft-Malone, J. 2014. Resource based view of the firm as a theoretical lens on the organisational consequences of quality improvement. International Journal of Health Policy and Management. 3 (3), pp. 113 - 115. https://doi.org/10.15171/ijhpm.2014.74
The study protocol of: 'Initiating end of life care in stroke: clinical decision-making around prognosis'.
Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrell, P., Horne, M., Ntambwe, L.I., Tyson, S., Mitchell, H., Williams, S. and Elghenzai, S. 2014. The study protocol of: 'Initiating end of life care in stroke: clinical decision-making around prognosis'. BMC Palliative Care. 13 (55). https://doi.org/10.1186/1472-684X-13-55
Identifying continence options after stroke (ICONS): a cluster randomised controlled feasibility trial.
Thomas, L.H., Watkins, C.L., Sutton, C.J., Forshaw, D., Leathley, M.J., French, B., Burton, C., Cheater, F., Roe, B., Britt, D., Booth, J., McColl, E., The ICONS Project Team and The ICONS Patient, Public and Carer Involvement Groups 2014. Identifying continence options after stroke (ICONS): a cluster randomised controlled feasibility trial. Trials. 15 (509). https://doi.org/10.1186/1745-6215-15-509
What is rehabilitation potential? Development of a theoretical model through the accounts of healthcare professionals working in stroke rehabilitation services
Burton, C.R., Horne, M., Woodward-Nutt, K., Bowen, A. and Tyrrell, P. 2014. What is rehabilitation potential? Development of a theoretical model through the accounts of healthcare professionals working in stroke rehabilitation services. Disability and Rehabilitation. 37 (21), pp. 1955-1960. https://doi.org/10.3109/09638288.2014.991454