Continuing to care: the needs and roles of older carers of people with dementia

Conference paper


Milne, A., Hatzidimitriadou, E. and Chryssanthopoulou, C. 2005. Continuing to care: the needs and roles of older carers of people with dementia.
AuthorsMilne, A., Hatzidimitriadou, E. and Chryssanthopoulou, C.
TypeConference paper
Description

One characteristic of an ageing population is the increasing number of people with dementia. The vast majority are supported by family carers at home; this population is itself ageing and older carers constitute as ever larger proportion of the total number. Despite shifts in patterns of traditional reciprocity, intensive care is predominantly provided by spouses on a co-resident basis and daughters or sons on an extra resident basis. Care-giving for a PWD is widely evidenced as complex, stressful and demanding. Research identifies two broad categories of challenge: primary problems relating directly to the symptoms of dementia; and secondary problems related to the consequences of caring. Certainly dementia carers are at enhanced risk of experiencing poverty, social isolation, stress and a number of physical problems. Whilst research strongly suggests that carers actively benefit from a number of respite and specialist services, it is the oldest carers who provide the most intensive levels of care who receive the least. Developing responses which support caring dyads and are flexible are current deficits; narrow conceptualisations of 'need' and pathological constructions of caring also undermine the potential of the care system to offer effective support. Ethnic minority carers of PWD, carers of people with learning disabilities and dementia, and carers of relatives in long term care are particularly invisible subgroups of dementia caregivers increasing in both number and need.

Year2005
ConferenceBritish Sociological Association Annual Conference 2005: The life course: fragmentation, diversity and risk
Publication process dates
Deposited31 May 2017
Completed21 Mar 2005
Output statusUnpublished
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Hatzidimitriadou, E. and Milne, A. 2005. Planning ahead: meeting the needs of older people with intellectual disabilities in the United Kingdom. Dementia: The International Journal for Social Research and Practice. 4 (3), pp. 341-359. https://doi.org/10.1177/1471301205055027
GP attitudes to early diagnosis of dementia: evidence of improvement
Hatzidimitriadou, E., Milne, A. and Hamilton-West, K. 2005. GP attitudes to early diagnosis of dementia: evidence of improvement. Aging & Mental Health. 9 (5), pp. 449-455. https://doi.org/10.1080/13607860500142762
Providing care for older people with learning disabilities
Hatzidimitriadou, E. and Milne, A. 2006. Providing care for older people with learning disabilities. in: Carnaby, S. (ed.) Intimate and Personal Care for People with Learning Disabilties London Jessica Kingsley. pp. 160-180
Learning in the real world? Exploring widening participation student views concerning the 'fit' between knowledge learnt and work practices
Forrester-Jones, R. and Hatzidimitriadou, E. 2007. Learning in the real world? Exploring widening participation student views concerning the 'fit' between knowledge learnt and work practices. Assessment & Evaluation in Higher Education. 31 (6), pp. 611-624. https://doi.org/10.1080/02602930600760181
Migrant women and welfare issues: diversity of experiences, challenges and opportunities
Hatzidimitriadou, E. 2007. Migrant women and welfare issues: diversity of experiences, challenges and opportunities. International Journal of Migration, Health and Social Care. 3 (3), pp. 2-5. https://doi.org/10.1108/17479894200700014
Community activism and empowerment of Turkish-speaking migrant women in London
Hatzidimitriadou, E. and Cakir, S. 2009. Community activism and empowerment of Turkish-speaking migrant women in London. International Journal of Migration, Health and Social Care. 5 (1), pp. 34-46. https://doi.org/10.1108/17479894200900005
Migration and ageing: settlement experiences and emerging care needs of older refugees in developed countries
Hatzidimitriadou, E. 2010. Migration and ageing: settlement experiences and emerging care needs of older refugees in developed countries. Hellenic Journal of Psychology. 7 (1), pp. 1-20.
Intimate partner violence in Europe: design and methods of a multinational study
Costa, D., Soares, J., Lindert, J., Hatzidimitriadou, E., Karlsson, A., Sundin, O., Toth, O., Ioannidi-Kapolou, E., Degomme, O., Cervilla, J. and Barros, H. 2013. Intimate partner violence in Europe: design and methods of a multinational study. Gaceta Sanitaria. 27 (6), pp. 558-561. https://doi.org/10.1016/j.gaceta.2013.03.001
From the asylum to the community: a longitudinal study of staff involved in the transition from Tone Vale Hospital to community-based services
Carpenter, J., Ring, C., Sangster, A., Cambridge, P. and Hatzidimitriadou, E. 2000. From the asylum to the community: a longitudinal study of staff involved in the transition from Tone Vale Hospital to community-based services. Journal of Mental Health. 9 (2), pp. 211-230. https://doi.org/10.1080/09638230050009203
Early diagnosis of dementia by GPs: an exploratory study of attitudes
Milne, A., Woolford, H., Mason, J. and Hatzidimitriadou, E. 2000. Early diagnosis of dementia by GPs: an exploratory study of attitudes. Aging & Mental Health. 4 (4), pp. 292-300. https://doi.org/10.1080/713649958
Caring in later life: reviewing the role of older carers
Milne, A., Hatzidimitriadou, E., Chryssanthopoulou, C. and Owen, T. 2001. Caring in later life: reviewing the role of older carers. London Help the Aged.
Political ideology, helping mechanisms and empowerment of mental health self-help/mutual aid groups
Hatzidimitriadou, E. 2002. Political ideology, helping mechanisms and empowerment of mental health self-help/mutual aid groups. Journal of Community & Applied Social Psychology. 12 (4), pp. 271-285. https://doi.org/10.1002/casp.681
The caring in later life report: a secondary analysis of the 1995 General Household Survey
Milne, A. and Hatzidimitriadou, E. 2002. The caring in later life report: a secondary analysis of the 1995 General Household Survey. Quality in Ageing and Older Adults. 3 (3), pp. 3-15. https://doi.org/10.1108/14717794200200017
Gaining access to and working with self-help groups in mental health
Hatzidimitriadou, E. 2003. Gaining access to and working with self-help groups in mental health. in: Cochrane, S. (ed.) Where You Stand Affects Your Point of View: Emancipatory Approaches to Mental Health Research: Notes from SPN Study Day 12 June 2003 UK Social Perspectives Network.
Intimate partner violence and health-related quality of life in European men and women: findings from the DOVE study
Costa, D., Hatzidimitriadou, E., Ioannidi-Kapolou, E., Lindert, J., Soares, J., Sundin, O., Toth, O. and Barros, H. 2015. Intimate partner violence and health-related quality of life in European men and women: findings from the DOVE study. Quality of Life Research. 24 (2), pp. 463-471.
Physical intimate partner violence in Europe: results from a population-based multi-center study in six countries
Costa, D., Hatzidimitriadou, E., Ioannidi-Kapolou, E., Lindert, J., Soares, J., Sundin, O., Toth, O. and Barros, H. 2015. Physical intimate partner violence in Europe: results from a population-based multi-center study in six countries. International Journal of Epidemiology. 44 (S1), p. 264. https://doi.org/10.1093/ije/dyv096.500
"Tangled wires in the head": older migrant Chinese's perception of mental illness in Britain
Li, S., Hatzidimitriadou, E. and Psoinos, M. 2014. "Tangled wires in the head": older migrant Chinese's perception of mental illness in Britain. Journal of Aging Studies. 30 (1), pp. 73-86. https://doi.org/10.1016/j.jaging.2014.04.001
Cultural health capital and professional experiences of overseas doctors and nurses in the UK
Hatzidimitriadou, E. and Psoinos, M. 2014. Cultural health capital and professional experiences of overseas doctors and nurses in the UK. Diversity and Equality in Health and Care. 11 (1), pp. 35-47.
Evaluation of co-production processes in a community-based mental health project in Wandsworth
Hatzidimitriadou, E., Mantovani, N. and Keating, F. 2012. Evaluation of co-production processes in a community-based mental health project in Wandsworth. Kingston upon Thames Kingston University and St George's, University of London.
Ageing in the English countryside: is it good for your health?
Milne, A., Hatzidimitriadou, E. and Wiseman, J. 2004. Ageing in the English countryside: is it good for your health?
Health and quality of life among older people in rural England: exploring the impact and efficacy of policy
Milne, A., Hatzidimitriadou, E. and Wiseman, J. 2007. Health and quality of life among older people in rural England: exploring the impact and efficacy of policy. Journal of Social Policy. 36 (3), pp. 477-495. https://doi.org/10.1017/S0047279407001055