Experiences of intimate continence care and the impact on the family dyad relationship for people living at home with dementia and their co-resident family members

Journal article


Cole, Laura, Drennan, Vari M., Manthorpe, Jill, Hatzidimitriadou, Eleni and Iliffe, Steven 2022. Experiences of intimate continence care and the impact on the family dyad relationship for people living at home with dementia and their co-resident family members. Dementia. https://doi.org/10.1177/14713012221076667
AuthorsCole, Laura, Drennan, Vari M., Manthorpe, Jill, Hatzidimitriadou, Eleni and Iliffe, Steven
AbstractObjectives: The experience of providing/receiving intimate continence care between family members can be difficult and emotive. Often, for people living with dementia this seems an area of care overlooked by professionals. This study investigated the experiences of intimate continence care for people living with dementia and their family member (the family dyad), and whether they viewed this as impacting on their relationship. Method: Face-to-face interviews were conducted at 6 monthly intervals over a 12-month period with 13 carers (all family members) and one person living with dementia (13 family dyads) in England. Interviews were recorded and transcribed. Analysis of the data was achieved using a descriptive phenomenological method. Findings: Carers’ attitudes towards providing intimate continence care revealed a task-focused approach for some but feelings of disgust and distress for others. Four participants (including the participant living with dementia) reported that intimate continence care had strengthened their dyad relationship. However, some carers perceived the care and support received from health and social care practitioners to be insufficient, which placed extra stress on them and adversely affected their family dyad relationship. Conclusion: Implications of the study suggest that integrated and effective continence care and support for people living with dementia and their carers could (1) maintain the quality of the family dyad relationship, (2) help keep the person living at home, delaying an unwanted move to a care home and (3) consequently improve overall quality of life for individuals in the family dyad. Assuring integrated and effective continence care should be a priority for service funders and quality assurance regulators.
KeywordsDementia; Family dyad; Continence care
Year2022
JournalDementia
PublisherSAGE Publications
ISSN1471-3012
1741-2684
Digital Object Identifier (DOI)https://doi.org/10.1177/14713012221076667
Official URLhttps://journals.sagepub.com/doi/full/10.1177/14713012221076667
FunderProgramme Grants for Applied Research
Publication dates
Online21 Apr 2022
Publication process dates
Deposited04 May 2022
Publisher's version
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Output statusPublished
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https://repository.canterbury.ac.uk/item/9102x/experiences-of-intimate-continence-care-and-the-impact-on-the-family-dyad-relationship-for-people-living-at-home-with-dementia-and-their-co-resident-family-members

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License: CC BY-NC 4.0

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