'No one knows like we do' - the narratives of mental health service users trained as researchers
Journal article
Palmer, D., Williams, L., White, S., Chenga, C., Calabria, V., Branch, D., Arundal, S., Storer, L., Ash, C., Cuthill, C., Bezuayehu, H. and Hatzidimitriadou, E. 2009. 'No one knows like we do' - the narratives of mental health service users trained as researchers. Journal of Public Mental Health. 8 (4), pp. 18-28. https://doi.org/10.1108/17465729200900024
| Authors | Palmer, D., Williams, L., White, S., Chenga, C., Calabria, V., Branch, D., Arundal, S., Storer, L., Ash, C., Cuthill, C., Bezuayehu, H. and Hatzidimitriadou, E. |
|---|---|
| Abstract | In 2008, Mind in Bexley received a research development grant from the Big Lottery Fund and a training grant from Bexley Care Trust to empower service users to participate and contribute to a pilot research project. The project aims were to work with, develop, train and support the service users as researchers, in order to record the narratives of service users who have common experiences of mental health distress and treatment. The research development project set up an advisory group, created and developed a partnership with the University of Kent and provided workshops and training sessions to explore some of the principles of research and ethics. In addition, the group under took a preliminary literature review, developed and refined a research questionnaire and piloted interviews with six service users. Many issues were raised and lessons learned during the planning and conduct of the project. This paper discusses the process and reflects on aspects of the project's design and delivery. In addition, this paper highlights some of the difficulties in under taking service user research and suggests recommendations as to how to overcome some of these complex issues. |
| Year | 2009 |
| Journal | Journal of Public Mental Health |
| Journal citation | 8 (4), pp. 18-28 |
| Publisher | Emerald |
| ISSN | 1746-5729 |
| Digital Object Identifier (DOI) | https://doi.org/10.1108/17465729200900024 |
| Related URL | http://www.mindinbexley.org.uk/news/news_027.html |
| Publication dates | |
| Dec 2009 | |
| Publication process dates | |
| Deposited | 09 Apr 2015 |
| Accepted | 2009 |
| Output status | Published |
Permalink -
https://repository.canterbury.ac.uk/item/873z5/-no-one-knows-like-we-do-the-narratives-of-mental-health-service-users-trained-as-researchers
132
total views0
total downloads4
views this month0
downloads this month
Export as
Related outputs
Social determinants of the mental health of pregnant women in Nepal: Stakeholder perspectives.
Sah, L., Hatzidimitriadou, E., Wier, Jacqueline and Sah, Rajeeb Kumar 2024. Social determinants of the mental health of pregnant women in Nepal: Stakeholder perspectives. PLoS ONE. 19 (12), p. e0314736. https://doi.org/10.1371/journal.pone.0314736Strategies for improving access to primary care services for homeless immigrants in England: a Delphi study.
Namata, C. and Hatzidimitriadou, E. 2023. Strategies for improving access to primary care services for homeless immigrants in England: a Delphi study. Primary health care research & development. 24, p. e70. https://doi.org/10.1017/S1463423623000646Mechanised orthosis for children with neurological disorders (MOTION) - Normative data collection
Coleman, D., Brown, M., Hunt, M. and Hatzidimitriadou, E. 2023. Mechanised orthosis for children with neurological disorders (MOTION) - Normative data collection. Canterbury Canterbury Christ Church University.Mechanised orthosis for children with neurological disorders (MOTION) - Evaluation of training packages
Hatzidimitriadou, E., Stein, M., Moore, J., Apps, J. and Kanderakis, T. 2023. Mechanised orthosis for children with neurological disorders (MOTION) - Evaluation of training packages. Canterbury Canterbury Christ Church University.Mechanised orthosis for children with neurological disorders (MOTION) - Assessment of training needs of professionals and parents in bionic rehabilitation final report on survey and interviews of health care professionals and parents of children with CP
Hatzidimitriadou, E., Apps, J., Stein, M. and Moore, J. 2023. Mechanised orthosis for children with neurological disorders (MOTION) - Assessment of training needs of professionals and parents in bionic rehabilitation final report on survey and interviews of health care professionals and parents of children with CP. Canterbury Canterbury Christ Church University.Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Final report: A process and technology evaluation of the CASCADE programme in the United Kingdom implementation sites
Martin, A., Hatzidimitriadou, E., Sangeorzan, I., Smith, R., Wright, T., Price, N., Sirlantzis, K. and Rajapakse, S. 2023. Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Final report: A process and technology evaluation of the CASCADE programme in the United Kingdom implementation sites. Canterbury Canterbury Christ Church University.Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Final report findings from the evaluation study of the CASCADE model at two implementation sites in Belgium
Sangeorzan, I., Martin, A., Hatzidimitriadou, E., Smith, R., Hulbert, S. and Wright, T. 2023. Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Final report findings from the evaluation study of the CASCADE model at two implementation sites in Belgium. Canterbury Canterbury Christ Church University.Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Executive report: A retrospective analysis of the ZorgSaam model of long-term home and residential care for older adults
Martin, A., Smith, R., Hatzidimitriadou, E., Sangeorzan, I., Hulbert, S. and Wright, T. 2023. Community areas of sustainable care and dementia excellence in Europe (CASCADE) - Executive report: A retrospective analysis of the ZorgSaam model of long-term home and residential care for older adults. Canterbury Canterbury Christ Church University.Evaluation study of diabetes and wellbeing (DWELL) - Report 4: Workforce training and cost effectiveness
Hatzidimitriadou, E., Manship, S., Thompson, T., Morris, R., Moore, J., Hulbert, S. and Saloniki, E.-C. 2023. Evaluation study of diabetes and wellbeing (DWELL) - Report 4: Workforce training and cost effectiveness. Canterbury. UK Canterbury Christ Church University.Evaluation study of Diabetes and Wellbeing (DWELL) - Report 3: Process evaluation
Hatzidimitriadou, E., Manship, S., Thompson, T., Morris, R., Moore, J. and Hulbert, S. 2023. Evaluation study of Diabetes and Wellbeing (DWELL) - Report 3: Process evaluation. Canterbury Canterbury Christ Church University.Evaluation study of diabetes and wellbeing (DWELL) - Report 2: Participant outcomes
Hatzidimitriadou, E., Manship, S., Thompson, T., Morris, R., Moore, J., Hulbert, S. and Saloniki, E.-C. 2023. Evaluation study of diabetes and wellbeing (DWELL) - Report 2: Participant outcomes. Canterbury, UK Canterbury Christ Church University.Evalatuation study of the diabetes and welbeing (DWELL) - Report 1: Evaluation methodology
Hatzidimitriadou, E., Manship, S., Thompson, T., Morris, R., Moore, J. and Hulbert, S. 2023. Evalatuation study of the diabetes and welbeing (DWELL) - Report 1: Evaluation methodology. Canterbury, UK Canterbury Christ Church University.The experiences and perceptions of healthcare professionals regarding assistive technology training: A systematic review
Manship, S., Hatzidimitriadou, E., Moore, J., Stein, M., Towse, D. and Smith, R. 2023. The experiences and perceptions of healthcare professionals regarding assistive technology training: A systematic review. Assistive Technology. https://doi.org/10.1080/10400435.2023.2219294EMPOWERCARE: EMPOWERing individuals & communities to manage their own CARE
Hatzidimitriadou, E., Wright, T., England, M., Thompson, T. and Lynch, M. 2023. EMPOWERCARE: EMPOWERing individuals & communities to manage their own CARE. Canterbury Canterbury Christ Church University.Virtual and augmented reality in healthcare education (VARE) project report
Hatzidimitriadou, E., Taylor, J., Clark, N., Field, S., Reader, J., Buttery, A., Singh, B., Arealis, G. and Sirlantzis, K. 2022. Virtual and augmented reality in healthcare education (VARE) project report. Canterbury Canterbury Christ Church University.EMPOWERing older people and their communities to manage their own CARE (EMPOWERCARE): Evaluation study of a social innovation initiative across four European countries
Hatzidimitriadou, E., Wright, T., Stirrup, V., Kuzbit, P., Thompson, T., DeBraal, P, Burton, C., Price, A., Stein, M., Wells, G., Manship, S., Martin, A. and Chung, P. 2022. EMPOWERing older people and their communities to manage their own CARE (EMPOWERCARE): Evaluation study of a social innovation initiative across four European countries. International Journal of Integrated Care. https://doi.org/10.5334/ijic.ICIC22333
The DWELL Project: Development and evaluation of an innovative psychoeducational programme for people with type 2 diabetes
Chapman-Hatchett, A., Webster, J., Hatzidimitriadou, E., Manship, S., Moore, J. and Thompson, T. 2022. The DWELL Project: Development and evaluation of an innovative psychoeducational programme for people with type 2 diabetes.Effectiveness of robotic exoskeletons for improving gait in children with cerebral palsy: a systematic review
Hunt, M., Everaert, L., Brown, M., Muraru, L., Hatzidimitriadou, E. and Desloovere, K. 2022. Effectiveness of robotic exoskeletons for improving gait in children with cerebral palsy: a systematic review . Gait & Posture. 98, pp. 343-354. https://doi.org/10.1016/j.gaitpost.2022.09.082Experiences of intimate continence care and the impact on the family dyad relationship for people living at home with dementia and their co-resident family members
Cole, Laura, Drennan, Vari M., Manthorpe, Jill, Hatzidimitriadou, E. and Iliffe, S. 2022. Experiences of intimate continence care and the impact on the family dyad relationship for people living at home with dementia and their co-resident family members. Dementia: The International Journal for Social Research and Practice. https://doi.org/10.1177/14713012221076667Optimising health system capacity: A case study of community care staff's role transition in response to the coronavirus pandemic.
Martin, A. and Hatzidimitriadou, E. 2021. Optimising health system capacity: A case study of community care staff's role transition in response to the coronavirus pandemic. Health & Social Care in the Community. https://doi.org/10.1111/hsc.13653Overcoming the COVID-19 constraints on person-centred dementia care: a narrative inquiry of experiences of residential care staff in Belgium
Martin, A. and Hatzidimitriadou, E. 2021. Overcoming the COVID-19 constraints on person-centred dementia care: a narrative inquiry of experiences of residential care staff in Belgium.Mental health, trauma and wellbeing of forced and other migrants: effective responses at times of crisis
Hatzidimitriadou, E. 2021. Mental health, trauma and wellbeing of forced and other migrants: effective responses at times of crisis. in: Fouskas, T. (ed.) Immigrants, Asylum Seekers and Refugees in Times of Crises: B. An International Handbook on Migration, Asylum, Social Integration and Exclusion Athens, Greece European Public Law Organization (EPLO). pp. 765-788A national survey of UK healthcare professionals regarding their knowledge, experiences and training needs of assistive technology (AT)
Morris, R., Hatzidimitriadou, E., Manship, S., Stein, M., Parkin, C., Achille-Fauveau, S. and Laval, D. 2021. A national survey of UK healthcare professionals regarding their knowledge, experiences and training needs of assistive technology (AT).Online training in ‘assistive technology for posture and mobility’ for healthcare professionals
Stein, M., Hatzidimitriadou, E., Manship, S., Morris, R., Gallien, P., Petit, A., Achille-Fauveau, S., Laval, D. and Menard, L. 2021. Online training in ‘assistive technology for posture and mobility’ for healthcare professionals.Integrated dementia care: A qualitative evidence synthesis of the experiences of people living with dementia, informal carers and healthcare professionals.
Smith, R., Martin, A., Wright, T., Hulbert, S. and Hatzidimitriadou, E. 2021. Integrated dementia care: A qualitative evidence synthesis of the experiences of people living with dementia, informal carers and healthcare professionals. Archives of Gerontology and Geriatrics. 97, p. 104471. https://doi.org/S0167-4943(21)00134-5Uptake of, attitudes to and experiences of robotic assistive technology in health professionals, parents and carers of children and young adults with neurodisabilities: a protocol for a systematic review
Smith, R., Apps, J. and Hatzidimitriadou, E. 2021. Uptake of, attitudes to and experiences of robotic assistive technology in health professionals, parents and carers of children and young adults with neurodisabilities: a protocol for a systematic review. National Institute for Health Research.Training of professionals in assistive technologies: pedagogic issues and strategies (Formation des professionnels aux technologies d’assistance: Enjeux et stratégies pédagogiques)
Menard, L., Achille-Fauveau, S., Laval Quesney, D., Petit, A., Hatzidimitriadou, E., Stein, M., Manship, S., Morris, R. and Gallien, P. 2021. Training of professionals in assistive technologies: pedagogic issues and strategies (Formation des professionnels aux technologies d’assistance: Enjeux et stratégies pédagogiques).Novel robotic assistive technologies: choosing appropriate training for healthcare professionals
Ménard, L., Petit, A., Leblong, E., Stein, M., Hatzidimitriadou, E., Khemmar, R., Manship, S., Morris, R., Ragot, N. and Gallien, P. 2020. Novel robotic assistive technologies: choosing appropriate training for healthcare professionals. Modelling, Measurement and Control C. 81 (1-4), pp. 43-48. https://doi.org/10.18280/mmc_c.811-408The CASCADE project: exploring a ‘guest house’ concept
Smith, R., Wright, T., Martin, A. and Hatzidimitriadou, E. 2020. The CASCADE project: exploring a ‘guest house’ concept. Journal of Dementia Care. 28 (5), pp. 20-21.Contextual determinants of Intimate Partner Violence: a multi-level analysis in six European cities
Dias, N. G., Fraga, S., Soares, J., Hatzidimitriadou, E., Ioannidi-Kapolou, E., Lindert, J., Sundin, O., Toth, O., Barros, H. and Ribeiro, A. I. 2020. Contextual determinants of Intimate Partner Violence: a multi-level analysis in six European cities. International Journal of Public Health. https://doi.org/10.1007/s00038-020-01516-xParticipant experiences of the DWELL programme: focus group findings on motivation, experiences, facilitators and barriers
Manship, S., Hatzidimitriadou, E., Morris, R., Hulbert, S., Webster, J., Belmas, N. and Best, A. 2020. Participant experiences of the DWELL programme: focus group findings on motivation, experiences, facilitators and barriers. European Journal of Public Health. 30 (Supplement 5), p. v509. https://doi.org/10.1093/eurpub/ckaa165.1390Patient empowerment, eating behaviours and illness control: pre-post outcomes from DWELL delivery in UK and France
Morris, R., Hatzidimitriadou, E., Manship, S., Hulbert, S., Webster, J., Teke, J., Belmas, N., Best, A., Averous, V. and Cazier. J. 2020. Patient empowerment, eating behaviours and illness control: pre-post outcomes from DWELL delivery in UK and France. European Journal of Public Health. 30 (Supplement 5), p. v509. https://doi.org/10.1093/eurpub/ckaa165.1389The Diabetes and WELLbeing programme: protocol of a multi-site European complex intervention study
Hatzidimitriadou, E., Manship, S., Morris, R., Hulbert, S., Webster, J., Belmas, N., Best, A., Averous, V., Vanbosseghem, R. and Gijssel, M. 2020. The Diabetes and WELLbeing programme: protocol of a multi-site European complex intervention study. European Journal of Public Health. 30 (Supplement 5), p. v509. https://doi.org/10.1093/eurpub/ckaa165.138831.A. Workshop: A holistic co-produced approach to self-management of diabetes across four European countries
Hatzidimitriadou, E. 2020. 31.A. Workshop: A holistic co-produced approach to self-management of diabetes across four European countries. European Journal of Public Health. 30 (Supplement 5), p. v508. https://doi.org/10.1093/eurpub/ckaa165.1387The contribution of new technologies and robotics in assistive technology for disability: What training is required for healthcare professionals? (L'apport des Nouvelles Technologies et de la Robotique dans les Aides Techniques de Compensation du Handicap: Quelle formation pour les professionnels de santé?)
Menard, L., Petit, A., Leblong, E., Khemmar, R., Hatzidimitriadou, E., Manship, S., Stein, M., Morris, R., Ragot, N. and Gallien, P. 2020. The contribution of new technologies and robotics in assistive technology for disability: What training is required for healthcare professionals? (L'apport des Nouvelles Technologies et de la Robotique dans les Aides Techniques de Compensation du Handicap: Quelle formation pour les professionnels de santé?).Intimate partner violence and primary care and emergency use: the role of informal social support
Dias, N., Ribeiro, A., Henriques, A., Soares, J., Hatzidimitriadou, E., Ioannidi-Kapolou, E., Lindert, J., Sundin, O., Toth, O., Barros, H. and Fraga, S. 2020. Intimate partner violence and primary care and emergency use: the role of informal social support. Health and Social Work. 45 (2), pp. 91-100.