Using evidence‐based co‐design to develop a hybrid delivered exercise intervention that aims to increase confidence to exercise in people with haemophilia

Journal article

Taylor, S., Barker, Karen, Stephensen, D. and Williamson, Esther 2024. Using evidence‐based co‐design to develop a hybrid delivered exercise intervention that aims to increase confidence to exercise in people with haemophilia. Haemophilia. https://doi.org/10.1111/hae.14972
AuthorsTaylor, S., Barker, Karen, Stephensen, D. and Williamson, Esther
AbstractAbstractIntroductionDue to advances in treatments, people with haemophilia (PWH) are living longer. They are not as active as the general population due to joint damage and lack confidence to be active due to concerns about further bleeds and pain. There is a need to facilitate healthy aging through promotion of physical activity (PA) and exercise. Changing patient beliefs and increasing physical literacy and confidence to move are thought to be key to helping PWH become more active.AimThis paper describes the development of an exercise and behaviour change intervention to improve confidence to exercise in PWH.MethodsThe 4‐stage Medical Research Council framework for complex intervention development was used.ResultsStakeholders included 17 PWH and 7 physiotherapists working in haemophilia. Seven online focus group meetings were held. The final intervention is a hybrid 12‐week physiotherapist led progressive exercise programme. Classes are 45 min including Pilates, High intensity interval training and balance elements, together with discussion sessions focusing on PA recommendations, the types and benefits of different exercise styles and the effects of PA, together with the effects of aging for PWH. The COM‐B model of behaviour change was used to develop the intervention.ConclusionCo‐design helps to produce an intervention that understands the stakeholders needs. Through this process the intervention developed to incorporate not only increasing PA but also confidence to exercise. The use of behaviour change theory identified the behaviour techniques included in the intervention and aims to increase physical literacy in this population.
KeywordsGenetics (clinical); Hematology; General Medicine
Year2024
JournalHaemophilia
PublisherWiley
ISSN1351-8216
1365-2516
Digital Object Identifier (DOI)https://doi.org/10.1111/hae.14972
Official URLhttps://onlinelibrary.wiley.com/doi/10.1111/hae.14972
FunderNational Institute for Health and Care Research (NIHR) Applied Research Collaboration Oxford
Thames Valley at Oxford Health NHS Foundation Trust
Publication dates
Online10 Mar 2024
Publication process dates
Deposited20 Mar 2024
Accepted30 Jan 2024
Publisher's version
File Access Level
Open
Output statusPublished
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