Using evidence‐based co‐design to develop a hybrid delivered exercise intervention that aims to increase confidence to exercise in people with haemophilia
Journal article
Taylor, S., Barker, Karen, Stephensen, D. and Williamson, Esther 2024. Using evidence‐based co‐design to develop a hybrid delivered exercise intervention that aims to increase confidence to exercise in people with haemophilia. Haemophilia. https://doi.org/10.1111/hae.14972
Authors | Taylor, S., Barker, Karen, Stephensen, D. and Williamson, Esther |
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Abstract | AbstractIntroductionDue to advances in treatments, people with haemophilia (PWH) are living longer. They are not as active as the general population due to joint damage and lack confidence to be active due to concerns about further bleeds and pain. There is a need to facilitate healthy aging through promotion of physical activity (PA) and exercise. Changing patient beliefs and increasing physical literacy and confidence to move are thought to be key to helping PWH become more active.AimThis paper describes the development of an exercise and behaviour change intervention to improve confidence to exercise in PWH.MethodsThe 4‐stage Medical Research Council framework for complex intervention development was used.ResultsStakeholders included 17 PWH and 7 physiotherapists working in haemophilia. Seven online focus group meetings were held. The final intervention is a hybrid 12‐week physiotherapist led progressive exercise programme. Classes are 45 min including Pilates, High intensity interval training and balance elements, together with discussion sessions focusing on PA recommendations, the types and benefits of different exercise styles and the effects of PA, together with the effects of aging for PWH. The COM‐B model of behaviour change was used to develop the intervention.ConclusionCo‐design helps to produce an intervention that understands the stakeholders needs. Through this process the intervention developed to incorporate not only increasing PA but also confidence to exercise. The use of behaviour change theory identified the behaviour techniques included in the intervention and aims to increase physical literacy in this population. |
Keywords | Genetics (clinical); Hematology; General Medicine |
Year | 2024 |
Journal | Haemophilia |
Publisher | Wiley |
ISSN | 1351-8216 |
1365-2516 | |
Digital Object Identifier (DOI) | https://doi.org/10.1111/hae.14972 |
Official URL | https://onlinelibrary.wiley.com/doi/10.1111/hae.14972 |
Funder | National Institute for Health and Care Research (NIHR) Applied Research Collaboration Oxford |
Thames Valley at Oxford Health NHS Foundation Trust | |
Publication dates | |
Online | 10 Mar 2024 |
Publication process dates | |
Deposited | 20 Mar 2024 |
Accepted | 30 Jan 2024 |
Publisher's version | File Access Level Open |
Output status | Published |
Additional information | Publications router. |
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