The experiences and beliefs of people with severe haemophilia and healthcare professionals on pain management, and their views of using exercise as an aspect of intervention: a qualitative study
Journal article
Stephensen, D., McLaughlin, P., Hurley, M., Chowdary, P. and Khair, K. 2022. The experiences and beliefs of people with severe haemophilia and healthcare professionals on pain management, and their views of using exercise as an aspect of intervention: a qualitative study. Disability and Rehabilitation. 44 (26), pp. 8420-8428. https://doi.org/10.1080/09638288.2021.2018054
Authors | Stephensen, D., McLaughlin, P., Hurley, M., Chowdary, P. and Khair, K. |
---|---|
Abstract | Purpose: To explore the experiences, views and beliefs of people with severe haemophilia and healthcare professionals (HCPs) on approaches for pain management, as well as their views on exercise being used as an aspect of management. Results: Fourteen men with haemophilia with a median age of 47 (range 23–73) and six haemophilia HCPs agreed to participate. Of the people with haemophilia, 11 attended two focus groups and three were interviewed over telephone. Healthcare professionals were interviewed face-to-face. Two themes were conceptualised from the data: (i) haemophilia management and pain management is discordant (imbalance between good haemophilia care but poor pain management, historical medico-social influences on pain management, the need for trust); (ii) uncertain about exercise but clear on what matters (conflicting views on exercise, the need for proof of safety, personalised care). Conclusions: Options for effective pain management remain limited and what is used is heavily influenced by beliefs and experience. Exercise as a treatment option in pain management is conceptually acceptable for people with haemophilia. Effective pain management requires understanding of individual beliefs and fears, and a personalised approach supported by knowledgeable, trusted clinicians. |
Keywords | Haemophilia; Pain management; Reflexive thematic analysis; Exercise; Rehabilitation; Rare disease |
Year | 2022 |
Journal | Disability and Rehabilitation |
Journal citation | 44 (26), pp. 8420-8428 |
Publisher | Taylor & Francis |
ISSN | 0963-8288 |
1464-5165 | |
Digital Object Identifier (DOI) | https://doi.org/10.1080/09638288.2021.2018054 |
Official URL | https://www.tandfonline.com/doi/full/10.1080/09638288.2021.2018053 |
Funder | National Institute for Health Research (NIHR) |
Publication dates | |
Online | 09 Dec 2021 |
Publication process dates | |
Accepted | 24 Dec 2021 |
Deposited | 02 Nov 2023 |
Publisher's version | License |
Output status | Published |
https://repository.canterbury.ac.uk/item/96391/the-experiences-and-beliefs-of-people-with-severe-haemophilia-and-healthcare-professionals-on-pain-management-and-their-views-of-using-exercise-as-an-aspect-of-intervention-a-qualitative-study
Download files
35
total views9
total downloads2
views this month1
downloads this month