Muscle strengthening intervention for boys with haemophilia: Developing and evaluating a best-practice exercise programme with boys, families and health-care professionals
Hashem, F., Stephensen, D., Drechsler, W.I., Bladen, M., Carroll, L., Pellatt-Higgins, T. and Saloniki, E.C. 2020. Muscle strengthening intervention for boys with haemophilia: Developing and evaluating a best-practice exercise programme with boys, families and health-care professionals. Health Expectations. 23 (5), pp. 1350-1361. https://doi.org/10.1111/hex.13119
|Authors||Hashem, F., Stephensen, D., Drechsler, W.I., Bladen, M., Carroll, L., Pellatt-Higgins, T. and Saloniki, E.C.|
Background: Muscle strengthening exercises have the potential to improve outcomes for boys with haemophilia, but it is unclear what types of exercise might be of benefit.
Objective: To design and develop a muscle strengthening programme with healthcare professionals aimed at improving musculoskeletal health, and refine the intervention by engaging boys with haemophilia and their families (Study 1). Following delivery, qualitatively evaluate the feasibility and acceptability of the exercise programme with the boys and the study's physiotherapists (Study 2). Design: A person-based approach was used for planning and designing the exercise programme, and evaluating it post-delivery. The following methods were utilized: modified nominal group technique (NGT) with health-care professionals; focus group with families; exit interviews with boys; and interviews with the study's physiotherapists.
Results: Themes identified to design and develop the intervention included exercises to lower limb and foot, dosage, age accommodating, location, supervision and
Conclusions: An exercise intervention was designed and refined through engagement with boys and their families. Boys and physiotherapists involved in the intervention's delivery were consulted who found the exercises to be generally acceptable with some minor refinements necessary.
|Keywords||Boys; Exercise; Haemophilia; Life-experience; Muscle strength; Patient adherence; Physiotherapy|
|Journal citation||23 (5), pp. 1350-1361|
|Digital Object Identifier (DOI)||https://doi.org/10.1111/hex.13119|
|Funder||National Institute for Health Research (NIHR)|
|Online||17 Aug 2020|
|Publication process dates|
|Accepted||21 Jul 2020|
|Deposited||31 Mar 2022|
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