A clinical practice guideline for primary care physiotherapy in patients with haemophilia
Journal article
Blokzijl, J., Pisters, Martijn F., Aspdahl, M., de Boer, Wypke, Dybvik Matlary, Ruth Elise, Douma‐van Riet, Danielle, de Kleijn, Piet, Lobet, Sébastien, Loughnane, Paula, McLaughlin, P., Bladen, M., Roche, Sheila, Stephensen, D., van Vlimmeren, Leo, van Vulpen, L. and Timmer, M. 2024. A clinical practice guideline for primary care physiotherapy in patients with haemophilia. Haemophilia. https://doi.org/10.1111/hae.15065
| Authors | Blokzijl, J., Pisters, Martijn F., Aspdahl, M., de Boer, Wypke, Dybvik Matlary, Ruth Elise, Douma‐van Riet, Danielle, de Kleijn, Piet, Lobet, Sébastien, Loughnane, Paula, McLaughlin, P., Bladen, M., Roche, Sheila, Stephensen, D., van Vlimmeren, Leo, van Vulpen, L. and Timmer, M. |
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| Abstract | AbstractIntroductionAs a result of centralisation of haemophilia care to a limited number of intramural settings, many persons with haemophilia have to travel long distances to attend their haemophilia specialised treatment centre. However, regular physiotherapy treatment can be provided by primary care physiotherapists in the personʼs own region. Due to the rarity of the disease most primary care physiotherapists have limited experience with this population. This study aims to provide a clinical practice guideline for primary care physiotherapists working with persons with bleeding disorders.MethodA list of the most urgent key‐questions was derived from a previous study. Literature was summarised using the grading of recommendations assessment, development, and evaluation (GRADE) evidence‐to‐decision framework. Recommendations were drafted based on four 90 min consensus meetings with expert physiotherapists. Recommendations were finalised after feedback and >80% consensus of all stakeholders (including PWH, physiotherapists, haematologists and the corresponding societies).ResultsA list of 82 recommendations was formulated to support primary care physiotherapists when treating a person with a bleeding disorder. These recommendations could be divided into 13 categories: two including recommendations on organisation of care, six on therapy for adult patients with bleeding disorders and five on therapy adaptations for paediatric care. Therapy recommendations included treatment after a joint‐ or muscle bleed, haemophilic arthropathy, chronic synovitis, non‐haemophilia related conditions and orthopaedic surgery.ConclusionAn evidence‐based practice guideline, based on current evidence from literature and clinical expertise, has been developed for primary care physiotherapists treating a person with haemophilia. To improve care, the recommendations should be implemented in daily practice. |
| Keywords | Clinical practice guideline; Haemophilia; Physical therapy |
| Year | 2024 |
| Journal | Haemophilia |
| Publisher | Wiley |
| ISSN | 1351-8216 |
| 1365-2516 | |
| Digital Object Identifier (DOI) | https://doi.org/10.1111/hae.15065 |
| Official URL | https://onlinelibrary.wiley.com/doi/10.1111/hae.15065 |
| Publication dates | |
| Online | 10 Jul 2024 |
| Publication process dates | |
| Deposited | 15 Jul 2024 |
| Accepted | 21 May 2024 |
| Publisher's version | File Access Level Open |
| Output status | Published |
| Additional information | Publications router: Date 2024-05-21 of type 'accepted_date' included in notification. |
Publications router: License for VOR version of this article starting on 2024-07-10: http://creativecommons.org/licenses/by-nc/4.0/ included in notification | |
| License | http://creativecommons.org/licenses/by-nc/4.0/ |
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