Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study.
Journal article
McLaughlin, P., Chowdary, P., Khair, K., Smith, C., Stephensen, D. and Hurley, M. 2024. Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study. Pilot and Feasibility Studies. 10, p. 128. https://doi.org/10.1186/s40814-024-01550-z
Authors | McLaughlin, P., Chowdary, P., Khair, K., Smith, C., Stephensen, D. and Hurley, M. |
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Abstract | Background: Chronic pain is reported by between 30 and 71% of people with haemophilia (PWH). Exercise is shown to be effective for pain management in other arthritis’s, but it remains unclear if such an approach is effective or acceptable to PWH. The aim of this study was to evaluate the feasibility and acceptability of a telerehabilitation exercise intervention for PWH living with chronic pain. Results: Ten PWH were recruited and completed the intervention. Nine agreed to be interviewed post intervention. Attendance at individual sessions was 84.5% compared to 52.1% for the group sessions. Outcome measures were successfully completed for 100% at baseline, 70% at intervention end and 60% at 3-month follow-up. No serious adverse events were recorded. Group median values in outcome measures (pain, function, QoL) showed minimal change post intervention. Participant interviews highlighted high levels of enjoyment, confidence in continuing exercises independently and positive views of virtual delivery and condition-specific exercise. Conclusions: Recruitment rate and safety met the predefined progression criteria. Fidelity partially met the progression criteria, but the follow-up rate for self-reported measures did not. The study was acceptable to both participants and physiotherapists. Further intervention development is needed to review approaches to outcome measure collection and refine the usefulness of the knowledge-sharing sessions. |
Keywords | Haemophilia; Pain; Exercise; Rehabilitation; Telerehabilitation; Feasibility |
Year | 2024 |
Journal | Pilot and Feasibility Studies |
Journal citation | 10, p. 128 |
Publisher | BMC |
ISSN | 2055-5784 |
Digital Object Identifier (DOI) | https://doi.org/10.1186/s40814-024-01550-z |
Official URL | https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-024-01550-z |
Funder | National Institute for Health and Care Research (NIHR) |
Publication dates | |
Online | 08 Oct 2024 |
Publication process dates | |
Accepted | 25 Sep 2024 |
Deposited | 14 Oct 2024 |
Publisher's version | License File Access Level Open |
Output status | Published |
https://repository.canterbury.ac.uk/item/99597/exercise-based-telerehabilitation-for-the-management-of-chronic-pain-in-people-with-severe-haemophilia-a-mixed-methods-feasibility-study
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Publisher's version
McLaughlin et al Pilot and Feasibility Studies 2024.pdf | ||
License: CC BY-NC-ND 4.0 | ||
File access level: Open |
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