References | Bell, S. (2010). Visual methods for collecting and analysing data. In I. Bourgeault, R. Dingwall, & R. De Vries (Eds.),The SAGE handbook of qualitative methods in health research (pp.513–535). London: SAGE Publications Ltd doi: 10.4135/9781446268247 Bhopal, R., (2014). Migration, ethnicity, race, and health in multicultural societies. (2nd edn) Oxford: Oxford University Press. Boydell, K. & Gladstone, B. (2012). The production and dissemination of knowledge: A scoping review of arts-based health research. Sozialforschung/Qualitative Social Research, 13(1), Art 32. Brennan, M. (2015). Loss, bereavement and creativity: Meanings and uses. Illness Crisis and Loss, 23(4), 291–309. doi:10.1177/1054137315590958 Brown, G., Marshall, M., Bower, P. et al. (2014). Barriers to recruiting ethnic minorities to mental health research: A systematic review. International Journal of Methods in Psychiatric Research, 23(1), 36–48. doi:10.1002/mpr.1434 Bryant, A. & Charmaz, K. (2007). Grounded theory in historical perspective: An epistemological account. In A. Bryant (Ed.) & K. Charmaz (Ed.), The SAGE handbook of grounded theory (pp.31–57). Los Angeles, CA: Sage. Buckingham, D. (2009). ‘Creative’ visual methods in media research: Possibilities, problems and proposals. Media, Culture and Society, 31(4), 633–652. doi:10.1177/0163443709335280 Budd, J., Stacey, T., Martin, B. at al. (2018). Women’s experiences of being invited to participate in a case-control study of stillbirth – findings from the Midlands and North of England Stillbirth Study. BMC Pregnancy and Childbirth, 18(317). 1–8. doi:10.1186/s12884-018-1956-1 Bulger, S. (2017). Writing down your sorrow: A healing process after miscarriage, stillbirth and newborn losses. In S. Gair & A. van Luyn (Eds.), Sharing qualitative research: Showing lived experiences and community narratives (1st edn, Vol. 1, pp.163–187). New York: Routledge. Buser, T.J., Buser, J.K., & Gladding, S.T. (2015). Good grief: The part of arts in healing loss and grief. In T. Duffey (Ed.), Creative interventions in grief and loss therapy: When the music stops, a dream dies (pp.173–183). New York: Taylor and Francis. doi:10.1300/J456v01n03_11 Butler-Kisber, L. (2008). Collage as inquiry. In J.G. Knowles & A.L. Cole (Eds.), Handbook of the arts in qualitative research (pp.265–276). Thousand Oaks, Canada: SAGE. Butler-Kisber, L. (2010). Qualitative inquiry: Thematic, narrative and arts-informed perspectives (1st edn). Thousand Oaks, California: SAGE. Butler-Kisber, L. & Poldma, T. (2010). The power of visual approaches in qualitative inquiry: The use of collage making and concept mapping in experiential research. In EKSIG 2009: Experiential knowledge, method and methodology – International Conference 2009 of the DRS Special Interest Group on experiential knowledge, conference proceedings. Cacciatore, J., Schnebly, S. & Froen, J.F. (2009). The effects of social support on maternal anxiety and depression after stillbirth. Health and Social Care in the Community, 17(2), 167–176. doi:10.1111/ j.1365-2524.2008.00814.x Centers for Disease Control and Prevention. 2020. Tuskegee Study – Timeline – CDC – NCHHSTP. [online] Available at: <www.cdc.gov/tuskegee/ timeline.htm> [Accessed 12 July 2020]. Chilton, G. & Scotti, V. (2014). Snipping, gluing, writing: The properties of collage as an arts-based research practice in art therapy. Art Therapy, 31(4), 163–171. doi:10.1080/07421656.2015.96 3484 Clarke, V. & Braun, V. (2014). Thematic analysis. In A.C. Michalos (Ed.), Encyclopaedia of quality of life and wellbeing research (pp.6626–6628). Springer, Dordrecht, Netherlands: Springer. Creswell, J.W. (2014). Research design: Qualitative, quantitative and mixed methods approaches (4th edn). Los Angeles: SAGE. Dawson, S., Campbell, S.M., Giles, S.J. et al. (2018). Black and minority ethnic group involvement in health and social care research: A systematic review. Health Expectations. 21(1), 3–22. doi:10.1111/hex.12597. Delamont, S. (2009). The only honest thing: Autoethnography, reflexivity and small crises in fieldwork. Ethnography and Education, 4(1), 51–63. Devon County Council. (2020, June 15). Race – ethnicity, national origins, race or colour. www. devon.gov.uk/equality/communities/race Dewhurst, M. (2018). Teachers bridging difference, exploring identity with art. Cambridge, MA: Harvard Education Press. Edgar-Bailey, M. & Kress, V.E. (2010). Resolving child and adolescent traumatic grief: Creative techniques and interventions. Journal of Creativity in Mental Health, 5(2), 158–176. doi:10.1080/1540 1383.2010.485090 Feen-Calligan, H., Washington, O.G.M. & Moxley, D.P. (2010). Homelessness among older AfricanAmerican women: Interpreting a serious social issue through the arts in community-based participatory action research. New Solutions, 19(4), 423–448. doi:10.2190/NS.19.4.d Flenady, V., Boyle, F., Koopmans, L. et al. (2014). Meeting the needs of parents after a stillbirth or neonatal death. BJOG: An International Journal of Obstetrics and Gynaecology, 121(4), 137–140. doi:10.1111/1471-0528.13009 Foster, V. (2015). Collaborative arts-based research for social justice. London: Routledge. Gardosi, J., Madurasinghe, V., Williams, M. et al. (2013). Maternal and fetal risk factors for stillbirth: Population based study. BMJ (Online), 346(7893), 1–14. doi:10.1136/bmj.f108 Gold, K.J., Normandin, M.M. & Boggs, M.E. (2016). Are participants in face-to-face and internet support groups the same? Comparison of demographics and depression levels among women bereaved by stillbirth. Archives of Womens Mental Health, 19(1), 1073–1078. doi:10.1007/s00737- 016-0657-x Halcomb, E. (2016). Understanding the importance of collecting qualitative data creatively. Nurse Researcher, 23(3), 6–7. doi:10.7748/nr.23.3.6.s2 Henry, S.E. & Verica, J.M. (2015). (Re)visioning the self through art. Educational Studies, 51(2), 153–167. doi:10.1080/00131946.2015.1015353 Institute of Race Relations. (2020). Definitions. Irr. org.uk. Retrieved from www.irr.org.uk/research/ statistics/definitions/. Jonas-Simpson, C. & McMahon, E. (2005). The language of loss when a baby dies prior to birth: Cocreating human experience. Nursing Science Quarterly, 18(2), 124–130. doi:10.1177/0894318405275861 Jongeward, C. (2009). Visual portraits: Integrating artistic process into qualitative research. In P. Leavy (Ed.), Method meets art: Arts-based research practice (239–251). New York: The Guilford Press. Jutlla, K. & Raghavan, R. (2017). Improving the recruitment of Black, Asian and Minority Ethnic (BAME) communities in health and social care research: A review of literature. De Montfort University. http://hdl.handle.net/2086/13221 Knight, M., Nair, M., Tuffnell, D. et al. on behalf of MBRRACE-UK. (2016). Saving lives, improving mothers’ care – Surveillance of maternal deaths in the UK 2012–2014 and lessons learned to inform maternity care from the UK and Ireland Confidential Enquiries into Maternal Deaths and Morbidity 2009–2012. Oxford: National Perinatal Epidemiology Unit, University of Oxford 2016. Retrieved from: www.npeu.ox.ac.uk/downloads/ files/mbrrace-uk/reports/Saving%20Lives%20 Improving%20Mothers%20Care%20report%20 2014%20Full.pdf Kramer-Roy, D. (2015). Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: A role for health and care professionals. Disability and Society, 30(8), 1207–1224. doi:10.1080/0968759 9.2015.1090955 McNiff, S. (2011). Artistic expressions as primary modes of inquiry. British Journal of Guidance & Counselling, 39(5), 385–396. doi:10.1080/03069 885.2011.621526 Memon, A, Taylor, K, Mohebati, L.M. et al. (2016). Perceived barriers to accessing mental health services among black and minority ethnic (BME) communities: A qualitative study in Southeast England. BMJ Open, 6(11), e012337. doi:10.1136/ bmjopen-2016- 012337 Morse, J.M. & Niehaus, L. (2009). Mixed method design: Principles and procedures (2nd edn). New York: Routledge Muglu, J., Rather, H., Arroyo-Manzano, D. et al. (2019). Risks of stillbirth and neonatal death with advancing gestation at term: A systematic review and meta-analysis of cohort studies of 15 million pregnancies. PLoS Medicine 16(7): e1002838. doi:10.1371/journal.pmed.1002838 NHS. (2018). Stillbirth. Retrieved from www.nhs.uk/ conditions/stillbirth/ NHS England. (2020). News: NHS England and NHS Confederation launch expert research centre on health inequalities. Retrieved from www.england. nhs.uk/2020/05/nhs-england-and-nhs-confederation-launch-expert-research-centre-on-healthinequalities/ Noy, C. (2008). Sampling knowledge: The hermeneutics of snowball sampling in qualitative research. International Journal of Social Research Methodology, 11(4), 327–344. doi:10.1080/13645570701401305 Pollock, D., Pearson, E., Cooper, M. et al. (2020). Voices of the unheard: A qualitative survey exploring bereaved parents experiences of stillbirth stigma. Women and Birth, 33(2), 165–174. doi:10.1016/j.wombi.2019.03.002 Ravelli, A.C.J., Jager, K.J., De Groot, M.H. et al. (2010). Travel time from home to hospital and adverse perinatal outcomes in women at term in the Netherlands. BJOG: An International Journal of Obstetrics and Gynaecology, 118(4), 457–465. doi:10.1111/j.1471-0528.2010.02816.x Ross, M. (1981). Creativity and creative problem solving. The Annual Handbook for Group Facilitators, 10, 129–134. Scott, J. (2011). Stillbirths: Breaking the silence of a hidden grief. The Lancet 377 (9775), 1386–1388. doi:10.1016/S0140-6736(11)60107-4 Siette, J., Cassidy, M., & Priebe, S. (2017). Effectiveness of befriending interventions: A systematic review and meta-analysis. BMJ Open, 7 (e014304), 1–12. doi:10.1136/bmjopen-2016-014304 Silver, R.M. (2019). Maternal going to sleep position and late stillbirth: Time to act but with care. EClinicalMedicine, 10(1), 49–57. doi:10.1016/j. eclinm.2019.04.002 Sinha, P. & Hickman, R. (2016). The Sabar ways of knowing through the arts. Visual Arts Research, 42(1), 88–103. www.jstor.org/stable/10.5406/ visuartsrese.42.1.0088 Smart, A. & Harrison, E. (2016). The under-representation of minority ethnic groups in UK medical research. Ethnicity and Health, 22(1), 65–82. doi:1 0.1080/13557858.2016.1182126 Smith, G.C. (2015). Prevention of stillbirth. The Obstetrician & Gynaecologist, 17(3), 183–187. https:// doi.org/10.1111/tog.12197 Stiell, B., Tang, N., Bennett, C. & Price, C. (2006). Building policy/research relationships: Using innovative methodologies to engage ethnic minority women. Local Economy, 21(2), 211–218. Strouse, S. (2014). Collage: Integrating the torn pieces. In B. Thompson & R. Neimeyer (Eds.), Grief and the expressive arts: Practices for creating meaning (pp.187–197). New York: Routledge Szto, P., Furman, R. & Langer, C. (2005). Poetry and photography: An exploration into expressive/ creative qualitative research. Qualitative Social Work, 4(2), 135–156. doi:10.1177/1473325005052390 Tommy’s. (2020). Statistics about stillbirth. Retrieved from www.tommys.org/our-organisation/charityresearch/pregnancy-statistics/stillbirth Vaikla-Poldma, T. (2003). An investigation of learning and teaching processes in an interior design class: An interpretive and contextual Inquiry. (Unpublished doctoral thesis). McGill University, Montreal, Canada. Vais, A. & Kean, L. (2015). Stillbirth in the UK: Current trends, investigation and opportunities for prevention. Obstetrics, Gynaecology & Reproductive Medicine, 25(6), 160–166. doi:10.1016/j. ogrm.2015.03.003 Vacchelli, E. (2018). Embodiment in qualitative research: Collage making with migrant, refugee and asylum seeking women. Qualitative Research, 18(2), 171–190. doi:10.1177/1468794117708008 Waheed, W., Hughes-Morley, A., Woodham, A. et al. (2015). Overcoming barriers to recruiting ethnic minorities to mental health research: A typology of recruitment strategies. BMC Psychiatry, 15(101) 1–11. doi:10.1186/s12888-015- 0484-z Washington, O.G.M. & Moxley, D.P. (2008). Telling my story: From narrative to exhibit in illuminating the lived experience of homelessness among older African American women. Journal of Health Psychology, 13(2), 154–165. doi:10.1177/1359105307086702 Webb, N.B. (2003). Play and expressive therapies to help bereaved children: Individual, family, and group treatment. Smith College Studies in Social Work, 73(3), 405–422. doi:10.1080/00377310309517694 Willer, E.K., Droser, V.A., Hoyt, K.D. et al. (2018). A visual narrative analysis of children’s baby loss remembrance drawings. Journal of Family Communication, 18(2), 153–169. doi:10.1080/15267431. 2018.1428608 Woodall, A., Morgan, C., Sloan, C. & Howard, L. (2010). Barriers to participation in mental health research: Are there specific gender, ethnicity and age related barriers? BMC Psychiatry, 10(103) 1–10. doi:10.1186/1471-244X-10-103 |
---|