Global perspectives on dementia and art: an international discussion about changing public health policy

In an era of global environmental deterioration and income inequity, public health faces many challenges, including the growing number of individuals, especially older people, with chronic diseases. Dementia is increasingly being seen not just as a biomedical problem to solve but as a public and community challenge to address more broadly. Concepts like prevention, brain health, and quality of life/well-being are receiving more attention. The engagement of community in addressing these challenges is being seen as critical to successful social adaptation. Arts programs are reinvigorating cultural responses to the growing number of older people with cognitive challenges. The humanities offer ways of understanding the power of words and stories in public discourse and a critical lens though which to view political and economic influences.

In this paper, we report on a panel held in London on the occasion of the conference at the Royal Society for Public Health in March, 2017, in which the authors presented. Key issues discussed included problem framing, the nature of evidence, the politics of power and influence, and the development of effective interventions. In this paper, we review the rejection of two policies, one on dementia and one on the arts and humanities in public health, by the American Public Health Association; the emergence of policies in the UK; and some of the state of the art practices, particularly in training, again focusing on the UK.

Alzheimer’s Society. (2012). Dementia 2012: A national challenge. Retrieved from www.alzheimers.org.uk

Alzheimer-Europe. (2013). 2013: National policies covering the care and support of people with dementia and their carers. Retrieved from www.alzheimer-europe.org/Policy-in-Practice2/Country-comparisons/2013-National-policies-covering-the-care-and-support-of-people-with-dementia-and-theircarers

APPG. (2014). Building on the National Dementia Strategy: Change, progress and priorities. All Party Preliminary Group on Dementia. Retrieved from file:///C:/Users/acer/Downloads/APPG_on_
Dementia_-_2014_report_-_Building_on_the_NDSE.pdf
APPG. (2017). Creative health: The arts for health and wellbeing. Report for All Party Parliamentary
Group on Arts, Health and Wellbeing. Retrieved from www.artshealthandwellbeing.org.uk/appginquiry/Publications/Creative_Health_Inquiry_Report_2017.pdf

Benade´, P., Du Plessis, E., & Koen, M. (2017). Exploring resilience in nurses caring for older persons.
Health SA Gesondheid, 22, 138–149.

Bracken, M. B. (2004). Epidemiology as a liberal art: From graduate school to middle school, an unfulfilled agenda. Annals of Epidemiology, 24(3), 171–173.

Broderick, S. (2011). Arts practices in unreasonable doubt? Reflections on understandings of art
practices in healthcare contexts. Arts & Health, 3, 95–109.

Bulmer Smith, K., Profetto-McGrath, J., & Cummings, G. (2009). Emotional intelligence and nursing:
An integrative literature review. International Journal of Nursing Studies, 46, 1624–1636.

Bungay, H., & Clift, S. (2010). Arts on prescription: A review of practice in the UK. Perspectitives in Public Health, 130(6), 277–281.

Burns, M. (2013). Beyond arts and health: The need to include all of popular culture. Perspectives in Public Health, 133(1), 21–22.

Camic, P. M., & Chatterjee, H. J. (2013). Museums and art galleries as partners in public health interventions. Perspectives in Public Health, 133, 66–73.

Capacci, S., & Mazzochi, M. (2011). Five a day; a price to pay: An evaluation of the UK program impact accounting for market forces. NCBI, 30(1), 87–98.

Caspi, E. (2017). Trust at stake: Is the “dual mission” of the U.S. Alzheimer’s Association out of balance? Dementia, Retrieved from http://journals.sagepub.com/doi/abs/10.1177/1471301217719789.

Clift, S. (2012). Creative arts as a public health resource: Moving from practice-based research to evidence-based practice. Perspectives in Public Health, 132, 120–127.

Clift, S., & Camic, P. (Eds.) (2015). Oxford textbook of creative arts, health, and well-being:
International perspectives on practice, policy and research. Oxford: Oxford University Press.

Clift, S., Morrison, I., Vella-Burrows, T., & Hancox, G. (2011). Singing for mental health and wellbeing:
Community initiatives in England. In A. Brader (Ed.), Songs of resilience. Cambridge: Cambridge Scholars Press.

Cohen, G. D. (2009). New theories and research findings on the positive influence of music and the art on health with ageing. Arts & Health, 1, 48–62.

Crawford, P., Brown, B., Baker, C., Tischler, V., & Abrams, B. (2005). Health humanities. London: Palgrave-Macmillan.

Crossick, G., & Kaszynska, P. (2016). Understanding the value of arts & culture. The AHRC Cultural Value Project. London: AHRC. Retrieved from www.ahrc.ac.uk/documents/publications/culturalvalue-project-final-report

Davies, C., Knuiman, M., & Rosenberg, M. (2016). The art of being mentally healthy: A study to quantify the relationship between recreational arts engagement and mental well-being in the general population. BMC Public Health, 16, 15. https://doi.org/10.1186/s12889-015-2672-7

Day, V. (2009). Promoting health literacy through storytelling. OJIN: The Online Journal of Issues in
Nursing, 14(3), art. 6.

Daykin, N. (2017). Arts, health and well-being: A social inquiry. In T. Stickley and S. Clift (Eds.), Arts, health & well-being: A theoretical inquiry. Newcastle upon Tyne, UK : Cambridge Scholars Publishing

DCMS. (2016). The culture white paper. Department for Culture, Media and Sport. Retrieved from
www.gov.uk/government/publications/culture-white-paper

Dewer, B. (2012). Using creative methods in practice development to understand and develop compassionate
care. International Practice Development Journal, 2(1), Article 2. Retrieved from www.
fons.org/library/journal/volume2-issue1/article2

Earhart, G. M. (2009). Dance as therapy for individuals with Parkinson disease. European Journal of Physical and Rehabilitation Medicine, 45, 231–238.

Frieden, T. J. (2014). Six component necessary for effective public health programme implementation.
American Journal of Public Health, 104(1), 17–22.

Fritsch, T., Kwak, J., Gran, S., Lang, J., Montgomery, R. R., & Basting, A. D. (2009). Impact of TimeSlips, a creative expression intervention program, on nursing home residents with dementia and their caregivers. The Gerontologist, 49, 117–127.

Gordon-Nesbitt, R. (2015). Exploring the longitudinal relationship between arts engagement and health. Arts for Health Manchester Metropolitan University, Manchester UK. ISBN: 978-1-900756-77-8.

Gordon Nesbitt, R. (2017). Creative Health: The Arts for Health and Wellbeing. Report for All Party Parliamentary Group on Arts, Health and Wellbeing. Online at: www.artshealthandwellbeing.org.
uk/appginquiry/Publications/Creative_Health_Inquiry_Report_2017.pdf

Hanlon, P., Carlisle, S., Hannah, M., Reilly, D., & Lyon, A. (2011). Making the case for a fifth wave in public health. Public Health, 125, 30–36.

Jack, K., & Wibberley, C. (2013). The meaning of emotion work to student nurses: A Heideggerian analysis. International Journal of Nursing Studies, 51(6), 900–907.

Kumagai, A. (2012). Perspective: Acts of interpretation: A philosophical approach to using creative arts. Medical Education, 87(8), 1138–1144.

Lindsay, G., & Schwind, J. (2015). Arts-informed narrative inquiry as a practice development methodology in mental health. International Practice Development Journal, 5(1), Article 5. Retrieved from www.fons.org/library/journal/volume5-issue1/article5

McCormack, B., & Titchen, A. (2006). Critical creativity: Melding, exploding, blending. Educational Action Research, 14(2), 239–266.

Milla´n-Calenti, J., Lorenzo-Lo´pez, L., Alonso-Bua, B., de Labra, C., Gonza � ´lez-Abraldes, I., & Maseda, A. (2016). Optimal nonpharmacological management of agitation in Alzheimer’s disease: Challenges and solutions. Clinical Interventions in Aging, 11, 175–184.

National Institute for Care Excellence. (2015). Older people: Independence and mental well-being. NICE
Guideline NG32. Retrieved from nice.org.uk/guidance/ng32

Richter, T., Meyer, G., Mohler, R., & Kopke, S. (2012). Psychosocial interventions for reducing antipsychotic medication in care home residents. Cochrane Database Systematic Review, 12, CD008634.

RSPH. (2013). Arts, health and well-being: Beyond the millennium: How far have we come and where do we want to go? Retrieved from file://stafs-nhr-1.ccad.canterbury.ac.uk/pkv2/Downloads/Arts
%20and%20health%20report-smaller.pdf

RSPH. (2015). Rethinking the Wider Public Health Workforce August 2015 Centre for Workforce Intelligence. Retrieved from www.rsph.org.uk/our-work/policy/wider-public-health-workforce.html

Saunders, K., & Shaw, T. (2015). Creating caring cultures: Getting started. Foundation of Nursing Studies, London UK. Retrieved from fons.org/resources/documents/FoNS-Creating-CaringCultures–Getting-Started-Script-April-2015.pdf

Sheard, D. (2009). Nurturing: Emotions at work in staff. London: Alzheimer’s Society.

Smith, R. (2002). Spend (slightly) less on health and more on the arts—Health would probably be improved. British Medical Journal, 325, 1432–1433.

Stuckey, H. L., & Nobel, J. (2010). The connection between art, healing, and public health: A review of
current literature. American Journal of Public Health, 100, 254–263.

Sung, H.-C., Lee, W.-L., Chang, S.-M., & Smith, G. (2011). Exploring nursing staff’s attitudes and use of music for older people with dementia in long-term care facilities. Journal of Clinical Nursing, 20(11), 1776–1783.

Tesch, L., & Hansen, E. C. (2013). Evaluating effectiveness of arts and health programmes in primary
healthcare. Arts & Health, 5, 19–38.

Vella-Burrows, T. (2011). Care staff perspectives of the role of music in the care of people living with
dementia (PhD thesis, Department of Music and Performing Arts, Canterbury Christ Church University).

Vella-Burrows, T. (2015). The arts and older people; a global perspective. In S. Clift & P. Camic (Eds.),
Creative arts, health and well-being. International perspectives on practice, policy and research.
Oxford: Oxford University Press (Chapter 29).

Walji-Jivraj, N., & Schwind, J. (2016). Nurses’ experience of creating an artistic instrument as a form
of professional development: An arts-informed narrative inquiry. International Practice Development Journal, 7(1), Article 3. Retrieved from fons.org/Resources/Documents/
Journal/Vol7No1/IPDJ_0701_3.pdf

Webster, J. (2008). Enabling privacy and dignity in care: Using creative arts to develop practice with older people. Report. International Practice Development Journal, 5(1), Article 5. Retrieved from
https://www.fons.org/resources/documents/Project%20Reports/DissSerie...

Weed, D. L. (1995). Epidemiology, the humanities, and public health. American Journal of Public Health, 85(7), 914–918.

White, M. (2010). Developing guidelines for good practice in participatory arts-in-health-care contexts. Journal of Applied Arts and Health, 1, 139–155.

Whitehouse, P. (2003). The rebirth of bioethics: Extending the original formulations of Van Rensselaer
Potter. The American Journal of Bioethics, 3(4), W26–W31.

WHO. (2012). Dementia: A public health priority. World Health Organization and Alzheimer’s Disease International, Geneva Switzerland. Retrieved from www.who.int

Zeilig, H., Poland, F., Fox, C., & Killck, J. (2017). The arts in dementia care education: A developmental study. Journal of Public Mental Health, 14(1), 18–23. https://doi.org/10.1108/JPMH-06-2014-0028