Trauma and spinal cord injury: Reflections from research into physical activity and sport

Book chapter


Brighton, J. and Williams, T. 2024. Trauma and spinal cord injury: Reflections from research into physical activity and sport. in: McMahon, J. and McGannon, K. R. (ed.) Trauma-Informed Research in Sport, Exercise, and Health Abingdon Routledge, Taylor and Francis.
AuthorsBrighton, J. and Williams, T.
EditorsMcMahon, J. and McGannon, K. R.
Abstract

Spinal cord injury (SCI) results from neural damage to the spinal cord and is typically experienced as a traumatic event impacting people’s physical, psychological, social, and emotional worlds. In this chapter, we reflect on our empirical research with people who have acquired SCI and their experiences with physical activity (PA) and sport over time following this traumatic life event. We begin by briefly outlining how injury to the spinal cord occurs and the ongoing traumatising effects of SCI in relation to people’s health and well-being. We then move on to discuss our own research taking a critical approach to (1) PA promotion (Toni) and (2) sport and identity (James) when exploring the lives of people who have acquired SCI. Here we reflect on conceptual and methodological considerations in undertaking research into SCI, trauma, PA, and sport including the possibilities and challenges of using longitudinal integrated methods and ethnographic approaches. To conclude, we make suggestions for the development of a trauma-informed approach to research with people with SCI and provide methodological recommendations for future PA and sport research in this field.

KeywordsTrauma; Disability; Spinal cord injury; Physical activity; Sport
Year2024
Book titleTrauma-Informed Research in Sport, Exercise, and Health
PublisherRoutledge, Taylor and Francis
Output statusPublished
Place of publicationAbingdon
ISBN9781032366104
Publication dates
Print10 Jun 2024
Publication process dates
Deposited12 Sep 2024
Related URLhttps://www.routledge.com/Trauma-Informed-Research-in-Sport-Exercise-and-Health-Qualitative-Methods/McMahon-McGannon/p/book/9781032366104?gad_source=1&gclid=CjwKCAjwooq3BhB3EiwAYqYoEmLX4SNfbn1u6AsZ9NOeKPD08Z6GPHmce3EOG0k8MWALFS9EAsl0gBoC6_QQAvD_BwE
References

<journalref>Ahuja, C. S., Wilson, J. R., Nori, S., Kotter, M. R. N., Druschel, C., Curt, A., & Fehlings, M. G. (2017). Traumatic spinal cord injury. Nature Reviews Disease Primers, 3, 17018. https://doi.org/10.1038/nrdp.2017.18
<journalref>Andersen, M. B., & Ivarsson, A. (2015). A methodology of loving kindness: How interpersonal neurobiology, compassion and transference can inform researcher–participant encounters and storytelling. Qualitative Research in Sport, Exercise and Health, 8(1), 1–20. https://doi-org.ezphost.dur.ac.uk/10.1080/2159676X.2015.1056827
<bookref>Angelo, G. (2015). Rapport: The art of connecting with people and building relationships. SN & NS Publications.
<thesisref>Brighton, J. (2014). Narratives of spinal cord injury and the sporting body: An ethnographic study. Unpublished PhD Thesis, Leeds Beckett University.
<bookref>Brighton, J. (2015). Researching disabled sporting bodies: Reflections from an ‘able’-bodied ethnographer. In I. Wellard (Ed.), Researching embodied sport (pp. 163–177). Routledge.
<bookref>Brighton, J. (2020). Posttraumatic growth in disability sport following spinal cord injury: A narrative approach. In R. Wadey, M. Day, & K. Howells (Eds.), Growth following adversity in sport (pp. 174–188). Routledge.
<bookref>Brighton, J., & Williams, T. L. (2018). Using interviews to explore experiences of disability in sport and physical activity. In R. Medcalf & C. Mackintosh (Eds.), Researching difference in sport and physical activity (pp. 25–40). Routledge. https://doi.org/10.4324/9781315266749-3
<journalref>Brighton, J., Townsend, R. C., Campbell, N., & Williams, T. L. (2021). Moving beyond models: Theorizing physical disability in the sociology of sport. Sociology of Sport Journal, 38(4), 386–398. https://doi.org/10.1123/ssj.2020-0012
<journalref>Cairney, J., McGannon, K. R., & Atkinson, M. (2018). Exercise is medicine: Critical considerations in the qualitative research landscape. Qualitative Research in Sport, Exercise and Health, 10(4), 391–399. https://doi.org/10.1080/2159676X.2018.1476010
<journalref>Canning, K. L., & Hicks, A. L. (2014). Secondary health conditions associated with spinal cord injury. Critical Reviews in Physical and Rehabilitation Medicine, 26, 181–191. https://doi.org/10.1615/CritRevPhysRehabilMed.2014011067
<journalref>Chamberlain, K., Cain, T., Sheridan, J., & Dupuis, A. (2011). Pluralisms in qualitative research: From multiple methods to integrated methods. Qualitative Research in Psychology, 8, 151–169. https://doi.org/10.1080/14780887.2011.572730
<journalref>Crenshaw, K. W. (1989). Demarginalizing the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. The University of Chicago Legal Forum, 140, 139–167.
<journalref>Day, M. C. (2013). The role of initial physical activity experiences in promoting posttraumatic growth in Paralympic athletes with an acquired disability. Disability and Rehabilitation, 35, 2064–2072. https://doi.org/10.3109/09638288.2013.805822
<bookref>Frank, A. W. (2013). The wounded storyteller (2nd ed.). University of Chicago Press.
<journalref>Garland-Thomson, R. (2006). Ways of staring. Journal of Visual Culture, 5(2), 173–192. https://doi.org/10.1177/1470412906066907
<bookref>Irish, T., McDonald, K., & Cavallerio, F. (2022). Race, disability and sport: The experience of black deaf individuals. In B. Powis, J. Brighton, & P. D. Howe (Eds.), Researching disability sport (pp. 112–123). Routledge.
<journalref>Krause, K. S., & Saunders, L. L. (2011). Health, secondary conditions, and life expectancy after spinal cord injury. Archives of Physical Medicine and Rehabilitation, 92, 1770–1775. https://doi.org/10.1016/j.apmr.2011.05.024
<journalref>Lonbay, S., Pearson, A., Hamilton, E., Higgins, Pa., Foulkes, E., & Glascott, M. (2021). Trauma-informed participatory research: Reflections on co-producing a research proposal. Gateways: International Journal of Community Research and Engagement, 14(1), 1–8. http://dx.doi.org/10.5130/ijcre.v14i1.7728
<bookref>Macbeth, J., & Powis, B. (2022). What are we doing here?: Confessional tales of non-disabled researchers in disability sport. In B. Powis, J. Brighton, & P. D. Howe (Eds.), Researching disability sport (pp. 55–69). Routledge.
Massey, W. V., & Williams, T. L. (2020). Sporting activities for individuals who experienced trauma during their youth: A meta-study. Qualitative Health Research, 30(1), 73-87. http://doi.org/10.1177/1049732319849563
<journalref>McMahon, J., McGannon, K. R., Zehntner, C., Werbicki, L., Stephenson, E., & Martine, K. (2022). Trauma-informed abuse education in sport: Engaging athlete abuse survivors as educators and facilitating a community of care. Sport, Education and Society. https://doi.org/10.1080/13573322.2022.2096586
<journalref>Moreno-Fergusson, M. E., & Grace, P. J. (2016). Ethical analysis of a qualitative researcher’s unease in encountering a participant’s existential ambivalence. Annual Review of Nursing Research, 34(1), 51–65. https://doi.org/10.1891/0739-6686.34.51
<bookref>O’Reilly, K. (2012). Ethnographic method. Routledge.
<journalref>Papaloukas, P., Quincey, K., & Williamson, I. R. (2017). Venturing into the visual voice: Combining photos and interviews in phenomenological inquiry around marginalisation and chronic illness. Qualitative Research in Psychology, 14(4), 415–441. https://doi.org/10.1080/14780887.2017.1329364
<bookref>Papathomas, A. (2016). Narrative inquiry: From cardinal to marginal … and back? In B. Smith & A.C. Sparkes (Eds.), International handbook of qualitative methods in sport and exercise (pp. 37–48). Routledge.
<journalref>Papathomas, A., Williams, T. L., & Smith, B. (2015). Understanding physical activity participation in spinal cord injured populations: Three narrative types for consideration. International Journal of Qualitative Studies on Health and Well-Being, 14(10), 27295. https://doi.org/10.3402/qhw.v10.27295
<journalref>Pollard, C., & Kennedy, P. (2007). A longitudinal analysis of emotional impact, coping strategies and post‐traumatic psychological growth following spinal cord injury: A 10‐year review. British Journal of Health Psychology, 12(3), 347–362. https://doi.org/10.1348/135910707X197046
<journalref>Richardson, E. V., Smith, B., & Papathomas, A. (2017). Disability and the gym: Experiences, barriers and facilitators of gym use for individuals with physical disabilities. Disability and Rehabilitation, 39(19), 1950–1957. https://doi.org/10.1080/09638288.2016.1213893
<journalref>Sanders, P., Wadey, R., Day, M., & Winter, S. (2017). Qualitative fieldwork in medical contexts: Confessions of a neophyte researcher. Qualitative Research in Sport, Exercise and Health, 11(1), 106–118. https://doi.org/10.1080/2159676X.2017.1351390
<journalref>Sheridan, J., Chamberlain, K., & Dupuis, A. (2011). Timelining: Visualizing experience. Qualitative Research, 11(5), 552–569. https://doi.org/10.1177/1468794111413235
<journalref>Singh, A., Tetreault, L., Kalsi-Ryan, S., Nouri, A., & Fehlings, M. G. (2014). Global prevalence and incidence of traumatic spinal cord injury. Clinical Epidemiology, 6, 309–311. https://doi.org/10.2147/CLEP.S68889
<journalref>Smith, B. (2013). Sporting spinal cord injuries, social relations, and rehabilitation narratives: An ethnographic creative non-fiction of becoming disabled through sport. Sociology of Sport Journal, 30(2), 132–152. https://doi.org/10.1123/ssj.30.2.132
<journalref>Smith, E., Pooley, J.-A., Holmes, L., Gebbie, K., & Gershon, R. (2021). Vicarious trauma: Exploring the experiences of qualitative researchers who study traumatized populations. Disaster Medicine and Public Health Preparedness, 17, 1–6. https://doi.org/10.1017/dmp.2021.333
<journalref>Smith, B., Williams, O., Bone, L., & the Moving Social Work Co-production Collective (2023). Co-production: A resource to guide co-producing research in the sport, exercise, and health sciences. Qualitative Research in Sport, Exercise and Health, 15(2), 159–187. https://doi.org/10.1080/2159676X.2022.2052946
<journalref>Soundy, A., Stubbs, B., Freeman, P., Coffee, P., & Roskell, C. (2014). Factors influencing patients’ hope in stroke and spinal cord injury: A narrative review. International Journal of Therapy and Rehabilitation, 21(5), 210–218. https://doi.org/10.12968/ijtr.2014.21.5.210
<journalref>Sparkes, A. C., & Brighton, J. (2020). Autonomic dysreflexia and boosting in disability sport: Exploring the subjective meanings, management strategies, moral justifications, and perceptions of risk among male, spinal cord injured, wheelchair athletes. Qualitative Research in Sport, Exercise and Health, 12(3), 414–430. https://doi.org/10.1080/2159676X.2019.1623298
<journalref>Sparkes, A. C., Brighton, J., & Inckle, K. (2018). ‘It’s a part of me’: An ethnographic exploration of becoming a disabled sporting cyborg following spinal cord injury. Qualitative Research in Sport, Exercise and Health, 10(2), 151–166. https://doi.org/10.1080/2159676X.2017.1389768
<journalref>Sparkes, A. C., Brighton, J., & Inckle, K. (2021). ‘I am proud of my back’: An ethnographic study of the motivations and meanings of body modification as identity work among athletes with spinal cord injury. Qualitative Research in Sport, Exercise and Health, 13(3), 407–425. https://doi.org/10.1080/2159676X.2020.1756393
<otherref>Substance Abuse and Mental Health Services Administration (SAMHSA). (2014). SAMHSA’s concept of trauma and guidance for a trauma-informed approach. https://ncsacw.samhsa.gov/userfiles/files/SAMHSA_Trauma.pdf.
<bookref>Thomas, C. (2007). Sociologies of disability, ‘Impairment’, and chronic illness: Ideas in disability studies and medical sociology. Palgrave MacMillan.
<journalref>van Der Scheer, J. W., Martin Ginis, K. A., Ditor, D. S., Goosey-Tolfrey, V. L., Hicks, A. L., West, C. R., & Wolfe, D. L. (2017). Effects of exercise on fitness and health of adults with spinal cord injury: A systematic review. Neurology, 89. https://doi.org/10.1212/WNL.0000000000004224
<bookref>Wheeler, D., & Peers, D. (2022). Playing, passing, and pageantry: A collaborative autoethnography on sport, disability, sexuality, and belonging. In B. Powis, J. Brighton, & P. D. Howe (Eds.), Researching disability sport (pp. 98–111). Routledge.
<journalref>Williams, T. L. (2018). Exploring narratives of physical activity and disability over time: A novel integrated qualitative methods approach. Psychology of Sport and Exercise, 37, 224–234. https://doi.org/10.1016/j.psychsport.2017.09.004
<journalref>Williams, T. L., Hunt, E. R., Papathomas, A., & Smith, B. (2018a). Exercise is medicine? Most of the time for most; But not always for all. Qualitative Research in Sport, Exercise and Health, 10, 441–456. https://doi.org/10.1080/2159676X.2017.1405363
<journalref>Williams, T. L., Smith, B., & Papathomas, A. (2014). The barriers, benefits and facilitators of leisure time physical activity among people with spinal cord injury: A meta-synthesis of qualitative findings. Health Psychology Review, 8, 404–425. https://doi.org/10.1080/17437199.2014.898406
<journalref>Williams, T. L., Smith, B., & Papathomas, A. (2018b). Physical activity promotion for people with spinal cord injury: Physiotherapists’ beliefs and actions. Disability and Rehabilitation, 40, 52–61. https://doi.org/10.1080/09638288.2016.1242176
<bookref>Wolcott, H. (2005). The art of fieldwork (2nd ed.). Alta Mira Press.
<otherref>World Health Organization. (2020). Spinal cord injury. https://www.who.int/news-room/fact-sheets/d

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