The transition to adulthood for autistic young people

Background: Poor outcomes in adulthood are common within the autistic population, including health outcomes. Research regarding healthcare utilisation has found that autistic adolescents are not adequately supported during the transition to adulthood. To better understand the healthcare experiences of autistic young people and their families, and the support provided by services to meet those needs, this systematic review aimed to explore stakeholder experiences of transition from child to adult healthcare services for autistic young people. Method: Thirteen qualitative studies were identified through five electronic databases and analysed using thematic synthesis. The quality of studies was appraised and a sensitivity analysis was conducted. Findings: Five analytical themes were identified: 1) Challenges within the healthcare system, 2) Unmet needs during the transition to adulthood and beyond, 3) Greater investment in services is required, 4) Integration and education could help services address unique needs, 5) Positive relationships can significantly support well-being. Discussion: The importance of specialist training for clinicians, accurate information sharing, promoting trust within professional relationships and considering ‘readiness’ for transition were highlighted. Future research exploring the available and developing supports for autistic individuals, particularly those without intellectual disability, would be beneficial.