Beyond the Stigma: Evaluation report

Research report


Worthington, N. 2024. Beyond the Stigma: Evaluation report. Canterbury Christ Church University.
AuthorsWorthington, N.
TypeResearch report
ContributorsGrainger, C.
Abstract

Background: This evaluation report was written for the Royal Orthopaedic Hospital NHS Foundation Trust (ROH), Birmingham, UK. It details research examining the impact of ROH's Beyond the Stigma project (BTS), an exhibition of stories about staff with physical and hidden impairments.

Objective: The research aimed to uncover BTS's long-term impact on participants who publicly shared lived experiences of disability in their hospital workplace, and how arts-based interventions can effectively identify and promote nuanced disability understandings and the wellbeing of disabled people working in healthcare.

Methods: Interpretative Phenomenological Analysis (IPA) interviews were conducted with six hospital staff. Transcripts were analyzed in depth.

Results: Three superordinate themes emerged from the data, Process of Hesitancy and Comfort, Perceptions of Impact and Contribution, and Journeying with Disability Understandings. These captured personal narratives of how it felt to disclose impairment and perceptions of the project’s impact. Long-term benefits of taking part in BTS were identified as increased self-confidence, openness, self-acceptance, and empowerment. Shifts in participants’ personal disability views pointed to improved quality of life inside and outside the workplace through new awareness of diverse and shared experiences, new ease with disability definitions, language, self-identity, and community participation.

Conclusion: This evaluative research exposed levels of risk, resilience, and compromise associated with sharing personal experiences of disability, and how these can be managed effectively in the workplace. BTS offers a model for health promotion and community participation across disabled and non-disabled communities that can be repeated and adapted to support employment strategies, shift understandings, and promote notions of disability gain and disability pride across healthcare settings.

KeywordsDisability; Arts & Health; Healthcare; Employment; Recruitment; Inclusion; Diversity; Equality; Arts-based methods; Phenomenology; Interpretative phenomenological analysis; Wellbeing; Storytelling; Impairment; Long-term health conditions; Mental health; Identity; Lived experience; Community; Resilience; Health promotion
Year2024
PublisherCanterbury Christ Church University
Related URLhttps://roh.nhs.uk/beyond-the-stigma/beyondstigma
Output statusUnpublished
File
License
All rights reserved
File Access Level
Open
Publication dates
PrintApr 2024
Publication process dates
Deposited09 Sep 2024
FunderThe Royal Orthopaedic Hospital NHS Foundation Trust
References

Barnes, C. (1991) Disabled people in Britain and discrimination. London: Hurst and Co.

Barnes, C. (1992) Disabling imagery and the media. Halifax: Ryburn.

Bolt, D. (2017) ‘Keynote’, Disability gains for the academy: exploring pedagogies in disability studies. Liverpool Hope University, 15 September.

Bos, A. E. R., Kanner, D., Muris, P., Janssen, B. and Mayer, B. (2009) ‘Mental illness stigma and disclosure: consequences of coming out of the closet’, Issues in Mental Health Nursing, 30, pp.509–513.

Charlton, J. I. (2000) Nothing about us without us: disability oppression and empowerment. Los Angeles: University of California Press.

Colella, A. J. and Bruyère, S. M. (2011). ‘Disability and employment: New directions for industrial and organizational psychology’ in S. Zedeck (ed.), APA handbook of industrial and organizational psychology, pp. 473–503. American Psychological Association.

Department for Work and Pensions (2023a) Family resources survey: financial year 2021 to 2022. Available at: https://www.gov.uk/government/statistics/family-resources-survey-fin...

Department for Work and Pensions (2023b) Employment of disabled people 2023. Available at: https://www.gov.uk/government/statistics/the-employment-of-disabled-...

Fox, A. M. and Sandahl, C. (2018a) ‘Beyond “cripping up”: an introduction’, Journal of Literary and Cultural Disability Studies, 12, (2), pp.121-127. Liverpool University Press.

Gewurtz R, Kirsh B. (2009) ‘Disruption, disbelief and resistance: A meta-synthesis of disability in the workplace’ Work, 34 (1), pp.33-44.

Goodley, D. (2011) Disability studies. London: Sage.

GOV.UK (no date) Definition of disability under the Equality Act 2010. Available at: https://www.gov.uk/definition-of-disability-under-equality-act-2010

Kulkarni, M. (2022) ‘Hiding but hoping to be found: workplace disclosure dilemmas of individuals with hidden disabilities’, Equality, Diversity and Inclusion, 41(3), pp.491-507.

NHS Digital (no date) Disability. Available at: https://digital.nhs.uk/data-and-information/data-collections-and-dat...

NHS England (2023) Workforce disability equality standard 2022 data analysis report for NHS trusts and foundation trusts. Available at: https://www.england.nhs.uk/long-read/workforce-disability-equality-s...

Oliver, M. (2004) ‘The social model in action: if I had a hammer’ in C. Barnes and G. Mercer (eds.) Implementing the social model of disability theory and research. Leeds: The Disability Press, pp.18-31.

Oliver, M. and Barnes, C. (2012) The new politics of disablement. Basingstoke: Palgrave Macmillan.

Olsen, J. (2022) ‘Employers: influencing disabled people’s employment through responses to reasonable adjustments’, Disability & Society.

Sandahl, C. and Auslander, P. (eds.) (2005) Bodies in commotion: disability and performance. Ann Arbor: The University of Michigan Press.

Shakespeare, T. and Watson, N. (2002) ‘The social model of disability: an outdated ideology’, Research in Social Science and Disability, (2), pp.9-28.

Smith, J. A., Flowers, P. and Larkin, M. (2009) Interpretative phenomenological analysis: theory, method and research. London: Sage.

Stephenson, J. (2018) ‘Exclusive: nurses with disabilities face discrimination in workplace’, Nursing Times. Available at: https://www.nursingtimes.net/news/workforce/exclusive-nurses-with-di...

The Royal Orthopaedic Hospital (2023a) Beyond the Stigma: an exhibition of stories about seen and hidden disability. Available at: https://roh.nhs.uk/beyond-the-stigma/beyondstigma

The Royal Orthopaedic Hospital (2023b) NHS workforce disability equality standard (WDES) report - October 23. Available at: https://roh.nhs.uk/doc-men-hidden/corporate-information/equality-and...

Vornholt, K., Villotti, P., Muschalla, B., Bauer, J., Colella, A., Zijlstra, F., Van Ruitenbeek, G., Uitdewilligen, S. and Corbière, M. (2018) ‘Disability and employment – overview and highlights’, European Journal of Work and Organizational Psychology, 27 (1), pp. 40-55.

Willig, C. (2013) Introducing qualitative research in psychology. 3rd ed. Maidenhead: Open University Press.

Permalink -

https://repository.canterbury.ac.uk/item/98yz4/beyond-the-stigma-evaluation-report

Download files


File
Beyond the Stigma Evaluation Report.pdf
License: All rights reserved
File access level: Open

  • 26
    total views
  • 27
    total downloads
  • 6
    views this month
  • 4
    downloads this month

Export as

Related outputs

Interdisciplinarity and stages in a process of engagement with theatre practice and disability
Worthington, N. 2025. Interdisciplinarity and stages in a process of engagement with theatre practice and disability. Journal of Literary & Cultural Disability Studies. 19 (1).
Exhibiting lived experiences of disability in a hospital workplace: A qualitative evaluation
Worthington, N. and Grainger, C. 2024. Exhibiting lived experiences of disability in a hospital workplace: A qualitative evaluation. Disability and Health Journal.
Theatre, disability and wellbeing: addressing best practice and creative outcomes across disabled and non-disabled communities through an Interpretative Phenomenological Analysis.
Worthington, N. and Sextou, P 2024. Theatre, disability and wellbeing: addressing best practice and creative outcomes across disabled and non-disabled communities through an Interpretative Phenomenological Analysis. Arts & Health: An International Journal for Research, Policy and Practice. https://doi.org/10.1080/17533015.2024.2350505
Exploring onstage portrayals of parent/carers of disabled adults/children
Worthington, N. 2023. Exploring onstage portrayals of parent/carers of disabled adults/children.
Review of Metanarratives of Disability: Culture, Assumed Authority, and the Normative Social Order
Worthington, N. 2023. Review of Metanarratives of Disability: Culture, Assumed Authority, and the Normative Social Order. Canadian Journal of Disability Studies. 12 (3).
The impact of interdisciplinary approaches to disability studies and theatre: learning the notes and the tune
Worthington, N. 2023. The impact of interdisciplinary approaches to disability studies and theatre: learning the notes and the tune.
Truth unseen
Worthington, N. 2023. Truth unseen. in: Musiyiwa, A. (ed.) Welcome to Britain: An Anthology of Poems and Short Fiction CivicLeicester.
'Beautiful Noise' evaluation report
Worthington, N. 2023. 'Beautiful Noise' evaluation report.
Why inherited distance and responses to inexperience of disability matters in theatre practice
Worthington, N. 2022. Why inherited distance and responses to inexperience of disability matters in theatre practice.
Comment from the field
Worthington, N. 2022. Comment from the field. Journal of Literary & Cultural Disability Studies. 16 (1), pp. 109-114. https://doi.org/10.3828/jlcds.2022.7
What are the lived experiences of theatre practice and disability among professional directors and actors in theatres funded by Arts Council England? An interpretative phenomenological analysis
Worthington, N. 2021. What are the lived experiences of theatre practice and disability among professional directors and actors in theatres funded by Arts Council England? An interpretative phenomenological analysis. PhD Thesis Liverpool Hope University
Debating the lived experiences of theatre practice and disability among professional directors and actors
Worthington, N. 2019. Debating the lived experiences of theatre practice and disability among professional directors and actors. Critical Commentary (The Student Journal of Newman University and GuildHE Research Institutions). 6 (2), pp. 27-39.
Working with deaf and disabled performers: An investigation into directing process and theatrical interpretation
Worthington, N. 2015. Working with deaf and disabled performers: An investigation into directing process and theatrical interpretation. Masters Thesis University of Birmingham Department of Drama and Theatre Arts