Development of a core domain set for nailfold capillaroscopy reporting.

Journal article

El Miedany, Yasser, Ismail, Sherif, Wadie, Mary, Müller-Ladneru, Ulf, Giacomelli, Roberto, Liakouli, Vasiliki, Hermann, Walter, Fathy, Nihal, El Gaafary, Maha, Fouad, Nermin A, Saber, Sally and Abu-Zaid, Mohamed Hassan 2024. Development of a core domain set for nailfold capillaroscopy reporting. Reumatologia clinica. 20 (7), pp. 345-352. https://doi.org/10.1016/j.reumae.2024.07.003
AuthorsEl Miedany, Yasser, Ismail, Sherif, Wadie, Mary, Müller-Ladneru, Ulf, Giacomelli, Roberto, Liakouli, Vasiliki, Hermann, Walter, Fathy, Nihal, El Gaafary, Maha, Fouad, Nermin A, Saber, Sally and Abu-Zaid, Mohamed Hassan
AbstractThe peripheral microangiopathy may be well evaluated and studied by nailfold capillaroscopy (NFC) which is a safe and non-invasive technique. NFC has been reported to have both diagnostic and prognostic values in patients presenting with Raynaud's phenomenon. The overarching objective of this work was to make a consensus on what domains should be included in a capillaroscopy report and that it can be used in daily clinical practice and clinical research in the area of rheumatology. A Delphi questionnaire was developed regarding capillaroscopy report from a literature review and expert consensus. The first Delphi round included 14 core areas, its 18 domains with 50 subdomains, derived from a systematic literature review. The level of evidence was determined for each core set using the Oxford Centre for Evidence-based Medicine (CEBM) system. Nine response categories have been set per each item ranging between 1 and 9. Round 2, aimed to reach preliminary consensus "in" or "out" for domains. It included all items that were rated "critical" by at least 80% of the participants as well as any new domains proposed in round 1. The participants to the first, and second round were 11 experts. Fourteen domains were discussed in the two rounds. At the end of the survey, the final report template of NFC in rheumatology reached a consensus. A nailfold capillaroscopy report template has been developed by this study, based on outcomes of a Delphi process, by international participants panel. All domains met the 80% voting threshold set in this work. The reporting template can be used for both clinical research as well as day to day practice to provide guidance and standardize the NFC reporting. [Abstract copyright: Copyright © 2024. Published by Elsevier España, S.L.U.]
KeywordsConnective tissue disease; Nailfold capillaroscopy; Raynaud's phenomenon; Reporting standard; Template; Consensus
Year2024
JournalReumatologia clinica
Journal citation20 (7), pp. 345-352
PublisherElsevier
ISSN2173-5743
Digital Object Identifier (DOI)https://doi.org/10.1016/j.reumae.2024.07.003
https://doi.org/S2173-5743(24)00095-9
Official URLhttps://www.reumatologiaclinica.org/en-linkresolver-development-core-domain-set-for-S2173574324000959
Publication dates
Online01 Aug 2024
Publication process dates
Accepted04 Apr 2024
Deposited04 Sep 2024
Output statusPublished
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https://repository.canterbury.ac.uk/item/98xw0/development-of-a-core-domain-set-for-nailfold-capillaroscopy-reporting

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