‘A life I can cope with’. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME

Journal article

Clark, C. and Holttum, S. 2021. ‘A life I can cope with’. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME. Health Expectations. https://doi.org/10.1111/hex.13326
AuthorsClark, C. and Holttum, S.
Abstract

Objectives
This study aimed to explore the experience of cognitive behavioural therapy (CBT) aimed at better management of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), rather than increasing activity.

Design
This was a qualitative study using grounded theory analysis.

Methods
Semi-structured interviews were conducted with 13 adults who had engaged in CBT at a specialist CFS/ME service in which CBT is aimed at improved management of the condition.

Results
A model was produced in which participants felt more able to cope with CFS/ME. Reduced fatigue did not seem to be a necessary precondition to managing. This has implications for CBT for CFS/ME.

Conclusions
Specialist CBT for CFS/ME may result in improved coping and reduced distress, independently of changes in fatigue.

Patient or Public Contribution
The researcher met with a representative from the university's service user advisory group (SAGE), who had lived experience of CFS/ME. They commented on possible questions for the interview topic guide and provided advice on ways in which ethical issues specific to CFS/ME could be considered, for example, prevention of harm during interviews. Second, for quality assurance as part of respondent validation, a proposed draft of the grounded theory was discussed with participants.

KeywordsChronic fatigue syndrome/ME; Cognitive behavioural therapy; Grounded theory; Therapeutic processes
Year2021
JournalHealth Expectations
PublisherWiley
ISSN1369-6513
1369-7625
Digital Object Identifier (DOI)https://doi.org/10.1111/hex.13326
Official URLhttps://onlinelibrary.wiley.com/doi/10.1111/hex.13326
Publication dates
Online02 Sep 2021
Publication process dates
Deposited30 Aug 2024
Publisher's version
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Open
Output statusPublished
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