Hearing the patient voice for persistent pain intervention development: recommendations for using a bespoke online discussion forum for qualitative data collection

Journal article

Woodcock, C., Cornwall, N., Harrisson, Sarah A, Jinks, Clare, Buttery, Alison, Ashworth, J., Mallen, C. and Dikomitis, L. 2024. Hearing the patient voice for persistent pain intervention development: recommendations for using a bespoke online discussion forum for qualitative data collection. British Journal of Pain. https://doi.org/10.1177/20494637241254098
AuthorsWoodcock, C., Cornwall, N., Harrisson, Sarah A, Jinks, Clare, Buttery, Alison, Ashworth, J., Mallen, C. and Dikomitis, L.
Abstract

Introduction
Understanding patients’ experiences is important when developing interventions for people living with persistent pain. Interviews and focus groups are frequently used to capture beliefs, views, and perspectives. These methods often require a commitment to a predetermined date and time that may present a barrier to participation. An asynchronous online discussion forum, specifically designed for research purposes, provides an alternative and potentially more accessible method for participation. In this article we discuss a bespoke online discussion forum, the Q-PROMPPT blog, as a case example.

Methods
We describe how we developed the Q-PROMPPT blog, with patient and public involvement, and its use as an innovative method for qualitative data collection in the context of developing an intervention for patients prescribed opioids for persistent pain. Drawing on our experiences we discuss the following areas: planning and design, participant recruitment and registration, and participant experience and engagement.

Results
We identify and address key concerns for each area of the Q-PROMPPT blog: planning and design: choosing software, assigning roles, designing the interface to promote usability; recruitment of participants: recruiting eligible participants, participant anonymity; participant experience and engagement: mitigating risk of harm, facilitating discussions, planning for forum close.

Conclusion
Based on our lessons learnt, we outline recommendations for using a bespoke online discussion forum as a qualitative method to inform intervention development for people living with persistent pain. These include collaboration with information communication technology teams, co-design with patient and public partners, minimising risk of imposter participants and developing trust and online community identity.

KeywordsChronic pain; Intervention development; Netnography; Online methods; Primary care; Person-based approach; Patient and public involvment; Qualitative methods
Year2024
JournalBritish Journal of Pain
PublisherSAGE Publications
ISSN2049-4637
2049-4645
Digital Object Identifier (DOI)https://doi.org/10.1177/20494637241254098
Official URLhttps://journals.sagepub.com/doi/10.1177/20494637241254098
FunderProgramme Grants for Applied Research
National Institute for Health Research (NIHR) Applied Research Collaboration
Publication dates
Online23 Jul 2024
Publication process dates
Deposited05 Aug 2024
Publisher's version
License
File Access Level
Open
Output statusPublished
Permalink -

https://repository.canterbury.ac.uk/item/98928/hearing-the-patient-voice-for-persistent-pain-intervention-development-recommendations-for-using-a-bespoke-online-discussion-forum-for-qualitative-data-collection

Download files

Publisher's version
woodcock-et-al-2024-hearing-the-patient-voice-for-persistent-pain-intervention-development-recommendations-for-using-a.pdf
License: CC BY 4.0
File access level: Open

  • 12
    total views
  • 2
    total downloads
  • 3
    views this month
  • 0
    downloads this month

Export as

Related outputs

Typical cruising speed of speed pedelecs and the link with motor power as a result of a Belgian naturalistic cycling study
Rotthier, B., Stevens, G., Dikomitis, L., Huyck, B., Motoasca, E. and Capelle, J. Typical cruising speed of speed pedelecs and the link with motor power as a result of a Belgian naturalistic cycling study.
Exploring general practitioners' management of self‐harm in young people: A qualitative study
Mughal, F., Saunders, B, Lewis, Martyn, Armitage, Christopher J., Dikomitis, L., Lancaster, Gillian, Townsend, Ellen and Chew‐Graham, Carolyn A. 2024. Exploring general practitioners' management of self‐harm in young people: A qualitative study. Health Expectations. 27 (5). https://doi.org/10.1111/hex.70026
Ethical and epistemological implications of conducting ethnographic fieldwork as a researcher-cum-clinician in Brussels, Belgium
Lafaut, Dirk and Dikomitis, L. 2024. Ethical and epistemological implications of conducting ethnographic fieldwork as a researcher-cum-clinician in Brussels, Belgium. Medical Anthropology. 43 (6), pp. 538-552. https://doi.org/10.1080/01459740.2024.2386583
Exploring the effectiveness of eHealth interventions in treating Post Intensive Care Syndrome (PICS) outcomes: a systematic review
D'Oliveira, T., Shergill, S., Dikomitis, L., Lai Jie, D., Johnston, E. and Liu, Z. 2024. Exploring the effectiveness of eHealth interventions in treating Post Intensive Care Syndrome (PICS) outcomes: a systematic review. Critical Care.
Designing a primary care pharmacist-led review for people treated with opioids for persistent pain: a multi-method qualitative study.
Woodcock, C., Cornwall, Nicola, Dikomitis, Lisa, Harrisson, Sarah A, White, Simon, Helliwell, Toby, Knaggs, Roger, Hodgson, Eleanor, Pincus, Tamar, Santer, M., Mallen, Christian, Ashworth, Julie, Jinks, Clare and PROMPPT research team 2024. Designing a primary care pharmacist-led review for people treated with opioids for persistent pain: a multi-method qualitative study. BJGP open. https://doi.org/10.3399/BJGPO.2023.0221
Centre variation in home dialysis uptake: A survey of kidney centre practice in relation to home dialysis organisation and delivery in England
Damery, S., Lambie, Mark, Williams, Iestyn, Coyle, David, Fotheringham, James, Solis-Trapala, Ivonne, Allen, K., Potts, Jessica, Dikomitis, Lisa and Davies, S. 2024. Centre variation in home dialysis uptake: A survey of kidney centre practice in relation to home dialysis organisation and delivery in England. Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis. 44 (4), pp. 265-274. https://doi.org/10.1177/08968608241232200
Sikh silences across generations
Dikomitis, L., Shergill, S. and Dikomitis, E. 2024. Sikh silences across generations. Anthropology News.
The psychosocial burden of cutaneous leishmaniasis in rural Sri Lanka: A multi-method qualitative study.
Nuwangi, Hasara, Dikomitis, Lisa, Weerakoon, Kosala Gayan, Agampodi, S. and Agampodi, Thilini Chanchala 2024. The psychosocial burden of cutaneous leishmaniasis in rural Sri Lanka: A multi-method qualitative study. PLoS Neglected Tropical Diseases. 18 (1), p. e0011909. https://doi.org/10.1371/journal.pntd.0011909
Ethnography: sense and sensibilities
Dikomitis, L. and Wenning, B. 2023. Ethnography: sense and sensibilities. in: Ledger, A. and Walker, K. A. (ed.) Starting Research in Clinical Education Wiley-Blackwell. pp. 145-154
Acceptability of a proposed practice pharmacist-led review for opioid-treated patients with persistent pain: A qualitative study to inform intervention development
Nicola Cornwall, Charlotte Woodcock, Julie Ashworth, Sarah A Harrisson, Lisa Dikomitis, Simon White, Toby Helliwell, Eleanor Hodgson, Roger Knaggs, Tamar Pincus, Miriam SanterChristian D. Mallen, Clare Jinks and On Behalf Of The PROMPPT Team 2023. Acceptability of a proposed practice pharmacist-led review for opioid-treated patients with persistent pain: A qualitative study to inform intervention development. British Journal of Pain.
Linking research to end users through community engagement: an umbrella review
Getachew Taffere, Haftom Temesgen, Binega Haileselassie, Zenawi Zerihun, Brianne Wenning, Lisa Dikomitis and Afework Mulugeta 2023. Linking research to end users through community engagement: an umbrella review. Journal of Public Health. https://doi.org/10.1007/s10389-023-02167-x
Teaching medical anthropology in UK medical schools: cultivating autoethnographic practice among medical students
Harvey, T., Dikomitis, L. and Wenning, B. 2023. Teaching medical anthropology in UK medical schools: cultivating autoethnographic practice among medical students. Teaching Anthropology. 12 (2), pp. 53-65. https://doi.org/10.22582/ta.v12i2.695
Traditional healers working with primary care and mental health for early intervention in psychosis in young persons: protocol for the feasibility cluster randomised controlled trial
Farooq, Saeed, Sheikh, Saima, Dikomitis, Lisa, Haq Mian Mukhtar, Ul, Khan, Abdul Jalil, Sanauddin, Noor, Ali, Malik Wajid, Ali, Johar, Khan, Muhammad Firaz, Chaudhry, Imran, Husain, Nusrat, Gul, Muhammad, Irfan, Muhammad, Andrews, Gabrielle, Kaistha, Prachi, Shah, Syed Muhammad Uzair, Azeemi, Ishfaq, Hamid, Shumaila, Minhaz, Aaliya, Mallen, Christian and Lewis, Martyn 2023. Traditional healers working with primary care and mental health for early intervention in psychosis in young persons: protocol for the feasibility cluster randomised controlled trial. BMJ Open. 13 (7), p. e072471. https://doi.org/10.1136/bmjopen-2023-072471
Safeguarding community-centred global health research during crises
Agampodi, T., Nuwangi, H., Gunasekara, Sonali, Mallawaarachchi, Asitha, Price, Helen P, Dikomitis, Lisa and Agampodi, S. 2023. Safeguarding community-centred global health research during crises. BMJ Global Health. 8 (8), p. e013304. https://doi.org/10.1136/bmjgh-2023-013304
'We do not rush to the hospital for ordinary wounds (suḷu tuvāla)': A qualitative study on the early clinical manifestations of cutaneous leishmaniasis and associated health behaviours in rural Sri Lanka.
Gunasekara, Sonali Dinushika, Wickramasinghe, Nuwan Darshana, Agampodi, S., Fernando, Manoj Sanjeewa, Weerakoon, Kosala Gayan, Liyanage, Chandani, Dikomitis, Lisa and Agampodi, Thilini Chanchala 2023. 'We do not rush to the hospital for ordinary wounds (suḷu tuvāla)': A qualitative study on the early clinical manifestations of cutaneous leishmaniasis and associated health behaviours in rural Sri Lanka. PLoS Neglected Tropical Diseases. 17 (5), p. e0010939. https://doi.org/10.1371/journal.pntd.0010939
The functions of self‐harm in young people and their perspectives about future general practitioner‐led care: A qualitative study
Mughal, F., Chew‐Graham, Carolyn A., Babatunde, Opeyemi O., Saunders, Benjamin, Meki, Aula and Dikomitis, Lisa 2023. The functions of self‐harm in young people and their perspectives about future general practitioner‐led care: A qualitative study. Health Expectations. 26 (3), pp. 1180-1188. https://doi.org/10.1111/hex.13733
Recommendations on patient-facing websites regarding diagnostic imaging for low back, knee, and shoulder pain: A scoping review
Andrew Cuff, Thomas Jesson, Gillian Yeowell, Lisa Dikomitis, Nadine E. Foster and Chris Littlewood 2022. Recommendations on patient-facing websites regarding diagnostic imaging for low back, knee, and shoulder pain: A scoping review. PEC Innovation. 1. https://doi.org/10.1016/j.pecinn.2022.100040
The experiences and needs of supporting individuals of young people who self-harm: A systematic review and thematic synthesis
Faraz Mughal, M. Isabela Troya, Lisa Dikomitis, Stephanie Tierney, Nadia Corp, Nicola Evans, Ellen Townsend and Carolyn A. Chew-Graham 2022. The experiences and needs of supporting individuals of young people who self-harm: A systematic review and thematic synthesis. eClinicalMedicine. 48, p. 101437. https://doi.org/10.1016/j.eclinm.2022.101437
Sickle cell disease in Bahia, Brazil: The social production of health policies and institutional neglect
Mota, C., Trad, L. and Dikomitis, L. 2022. Sickle cell disease in Bahia, Brazil: The social production of health policies and institutional neglect. Societies. 12 (4), p. 108. https://doi.org/10.3390/soc12040108
Update on the pathophysiology of cluster headache: Imaging and neuropeptide studies
Buture, A., Boland, J. W., Dikomitis, L. and Ahmed, F. 2022. Update on the pathophysiology of cluster headache: Imaging and neuropeptide studies. Journal of Pain Research. 12, pp. 269-281. https://doi.org/10.2147/JPR.S175312
Conceptualising and Teaching Biomedical Uncertainty to Medical Students: an Exploratory Qualitative Study
Eva Lukšaitė, Rosemary A. Fricker, Robert K. McKinley and Lisa Dikomitis 2022. Conceptualising and Teaching Biomedical Uncertainty to Medical Students: an Exploratory Qualitative Study. Medical Science Educator. 32, pp. 371-378. https://doi.org/10.1007/s40670-021-01481-x
The potential of general practice to support young people who self-harm: a narrative review
Faraz Mughal, Lisa Dikomitis, Opeyemi O Babatunde and Carolyn A Chew-Graham 2022. The potential of general practice to support young people who self-harm: a narrative review. British Journal of General Practice Open (BJGP Open). 6 (1). https://doi.org/10.3399/BJGPO.2021.0159
Exploring the impact of the first wave of COVID-19 on social work practice: A qualitative study in England, UK
Tom Kingstone, Paul Campbell, Alina Andras, Karen Nixon, Christian Mallen, Lisa Dikomitis and The Q-COVID-19 Group 2022. Exploring the impact of the first wave of COVID-19 on social work practice: A qualitative study in England, UK. The British Journal of Social Work. 52 (4), pp. 2043-2062. https://doi.org/10.1093/bjsw/bcab166
How do people with knee osteoarthritis perceive and manage flares? A qualitative study
Parry, E., Dikomitis, L., Peat, G. and Chew-Graham, C. A. 2022. How do people with knee osteoarthritis perceive and manage flares? A qualitative study. British Journal of General Practice (BJGP). 6 (2), p. BJGPO.2021.0086. https://doi.org/10.3399/BJGPO.2021.0086
Intervening to eliminate the centre-effect variation in home dialysis use: protocol for Inter-CEPt - a sequential mixed-methods study designing an intervention bundle
Maatla Tshimologo, Kerry Allen, David Coyle, Sarah Damery, Lisa Dikomitis, James Fotheringham, Harry Hill, Mark Lambie, Louise Phillips-Darby, Ivonne Solis-Trapala, Iestyn Williams and Simon J Davies 2022. Intervening to eliminate the centre-effect variation in home dialysis use: protocol for Inter-CEPt - a sequential mixed-methods study designing an intervention bundle. BMJ Open. 12 (6).
Experiences of newly diagnosed oral cancer patients during the first wave of the COVID-19 pandemic: A qualitative study from Pakistan
Khattak, M., Khattak, Saad Ishaq, Khan, Muslim, Khan, Z., Dikomitis, L., Ul-Haq, Z. and Saddki, N. 2022. Experiences of newly diagnosed oral cancer patients during the first wave of the COVID-19 pandemic: A qualitative study from Pakistan. International Journal of Environmental Research and Public Health. 19 (14), p. 8508. https://doi.org/1660-4601/19/14/8508
Exploring the cultural effects of gender on perceptions of cutaneous leishmaniasis: a systematic literature review
Brianne Wenning, Helen Price, Hasara Nuwangi, Kelemework Tafere Reda, Ben Walters, Reem Ehsanullah, Greice Viana, Alina Andras and Lisa Dikomitis 2022. Exploring the cultural effects of gender on perceptions of cutaneous leishmaniasis: a systematic literature review. Global health research and policy. 7 (34). https://doi.org/10.1186/s41256-022-00266-y
Community-based interventions for the prevention and control of Cutaneous Leishmaniasis: A systematic review
Kay Polidano, Brianne Wenning, Alejandra Ruiz-Cadavid, Baheya Dawaishan, Jay Panchal, Sonali Gunasekara, Haftom Abebe, Marciglei Morais, Helen Price and Lisa Dikomitis 2022. Community-based interventions for the prevention and control of Cutaneous Leishmaniasis: A systematic review. Social Sciences. 11 (10), p. 490. https://doi.org/2076-0760/11/10/490
Embedding behavioral and social sciences across the medical curriculum: (Auto) ethnographic insights from medical schools in the United Kingdom
Dikomitis, Lisa, Wenning, B., Ghobrial, Andrew and Adams, K. 2022. Embedding behavioral and social sciences across the medical curriculum: (Auto) ethnographic insights from medical schools in the United Kingdom. Societies. 12 (4), p. 101. https://doi.org/10.3390/soc12040101
Rewriting the history of leishmaniasis in Sri Lanka: An untold story since 1904
Nuwangi, H., Weerakoon, Kosala Gayan, Agampodi, Thilini Chanchala, Price, Helen Philippa, Dikomitis, Lisa and Agampodi, Suneth Buddhika 2022. Rewriting the history of leishmaniasis in Sri Lanka: An untold story since 1904. PLoS Neglected Tropical Diseases. 16 (12), p. e0010918. https://doi.org/10.1371/journal.pntd.0010918
Patients' and healthcare professionals' perspectives on a community-based intervention for schizophrenia in Pakistan: A focus group study.
Khattak, Maria Ishaq, Dikomitis, Lisa, Khan, Muhammad Firaz, Haq, Mukhtar Ul, Saeed, Umaima, Awan, Naila Riaz, Haq, Zia Ul, Shepherd, Thomas, Mallen, Christian D and Farooq, S. 2022. Patients' and healthcare professionals' perspectives on a community-based intervention for schizophrenia in Pakistan: A focus group study. PLoS ONE. 17 (8), p. e0273286. https://doi.org/10.1371/journal.pone.0273286
Culture, migration, Brexit, and COVID-19: managing the mental health of patients from Central and Eastern Europe
Poppleton, Aaron, Saunders, Caroline, Chew-Graham, Carolyn A, Kingstone, Tom, Chudyk, Adrian and Dikomitis, Lisa 2022. Culture, migration, Brexit, and COVID-19: managing the mental health of patients from Central and Eastern Europe. The British Journal of General Practice : The Journal of the Royal College of General Practitioners. 72 (720), pp. 308-309. https://doi.org/72/720/308
Placing Leishmaniasis in the limelight through the communicable disease surveillance system: An experience from Sri Lanka
Gunasekara, S., Nuwangi, H., Wickramasinghe, N., Weerakoon, Kosala, Price, H., Dikomitis, Lisa and Agampodi, Suneth Buddhika 2022. Placing Leishmaniasis in the limelight through the communicable disease surveillance system: An experience from Sri Lanka. Pathogens (Basel, Switzerland). 11 (6), p. 680. https://doi.org/pathogens11060680
Burnout among primary health-care professionals in low- and middle-income countries: systematic review and meta-analysis
Wright, Tanya, Mughal, Faraz, Babatunde, Opeyemi O., Dikomitis, Lisa, Mallen, Christian D. and Helliwell, Toby 2022. Burnout among primary health-care professionals in low- and middle-income countries: systematic review and meta-analysis. Bulletin of the World Health Organization. 100 (6), pp. 385-401A. https://doi.org/10.2471/BLT.22.288300
Community engagement in Cutaneous Leishmaniasis research in Brazil, Ethiopia, and Sri Lanka: A decolonial approach for global health.
Polidano, Kay, Parton, Linda, Agampodi, Suneth B, Agampodi, Thilini C, Haileselassie, Binega H, Lalani, Jayasundara M G, Mota, Clarice, Price, Helen P, Rodrigues, Steffane, Tafere, Getachew R, Trad, Leny A B, Zerihun, Zenawi and Dikomitis, Lisa 2022. Community engagement in Cutaneous Leishmaniasis research in Brazil, Ethiopia, and Sri Lanka: A decolonial approach for global health. Frontiers in Public Health. 10, p. 823844. https://doi.org/10.3389/fpubh.2022.823844
What does "good" community and public engagement look like? Developing relationships with community members in global health research
Hickey, Gary, Porter, Katie, Tembo, Doreen, Rennard, Una, Tholanah, Martha, Beresford, Peter, Chandler, David, Chimbari, Moses, Coldham, Tina, Dikomitis, Lisa, Dziro, Biggy, Ekiikina, Peter O, Khattak, Maria I, Montenegro, Cristian R, Mumba, Noni, Musesengwa, Rosemary, Nelson, Erica, Nhunzvi, Clement, Ramirez, Caroline M and Staniszewska, Sophie 2022. What does "good" community and public engagement look like? Developing relationships with community members in global health research. Frontiers in Public Health. 9, p. 776940. https://doi.org/10.3389/fpubh.2021.776940
The perceptions of general practice among Central and Eastern Europeans in the United Kingdom: A systematic scoping review
Poppleton, A., Howells, K., Adeyemi, I., Chew‐Graham, C., Dikomitis, L. and Sanders, C. 2022. The perceptions of general practice among Central and Eastern Europeans in the United Kingdom: A systematic scoping review. Health Expectations. https://doi.org/10.1111/hex.13433
Cutaneous leishmaniasis and mental health: Exploring psychosocial impact and CL-associated stigma (the ECLIPSE programme)
Dikomitis, L., Agampodi, Suneth Buddhika, Machado, P., Mulugeta, Afework, Trad, Leny A. B. and Price, Helen 2021. Cutaneous leishmaniasis and mental health: Exploring psychosocial impact and CL-associated stigma (the ECLIPSE programme). Research Meeting and Webinar on Cutaneous Leishmaniasis (CL): Research and development for neglected diseases and associated social issues. 49 (2), pp. 201-209.
Effective engagement and involvement with community stakeholders in the co-production of global health research
Doreen Tembo, Gary Hickey, Cristian Montenegro, David Chandler, Erica Nelson, Katie Porter, Lisa Dikomitis, Lisa Dikomitis, Mary Chambers, Moses Chimbari, Peter Beresford, Peter O Ekiikina, Rosemary Musesengwa, Sophie Staniszewska, Tina Coldham and Una Rennard 2021. Effective engagement and involvement with community stakeholders in the co-production of global health research. British Medical Journal (BMJ). 2021 (372), p. n178. https://doi.org/10.1136/bmj.n178
Prevalence of osteoarthritis in lower middle- and low-income countries: a systematic review and meta-analysis
Ismail Yahaya, Tanya Wright, Opeyemi O. Babatunde, Nadia Corp, Toby Helliwell, Lisa Dikomitis and Christian D. Mallen 2021. Prevalence of osteoarthritis in lower middle- and low-income countries: a systematic review and meta-analysis. Rheumatology International. 41, pp. 1221-1231. https://doi.org/10.1007/s00296-021-04838-y
Experiences of general practice care for self-harm: A qualitative study of young people's perspectives
Mughal, F., Dikomitis, L., Babtunde, O.O. and Chew-Graham, C. A. 2021. Experiences of general practice care for self-harm: A qualitative study of young people's perspectives. British Journal of General Practice (BJGP). 71 (711), pp. 3744-e752. https://doi.org/10.3399/BJGP.2021.0091
How medical students in the United Kingdom think: About anthropology, for example
Dikomitis, L. 2021. How medical students in the United Kingdom think: About anthropology, for example. in: Martinez, I. and Wiedman, D. W. (ed.) Anthropology in Medical Education: Sustaining Engagement and Impact Cham Springer. pp. 91-113
Patients' perspectives on flares in knee osteoarthritis: a qualitative study
Parry, E., Dikomitis, L., Peat, G. and Chew-Graham, C. 2020. Patients' perspectives on flares in knee osteoarthritis: a qualitative study. Osteoarthritis and Cartilage. 28 (S1), p. S392. https://doi.org/10.1016/j.joca.2020.02.611
Role of the GP in the management of patients with self-harm behaviour: A systematic review
Dikomitis, L., Faraz Mughal, M. Isabela Troya, Lisa Dikomitis, Carolyn A. Chew-Graham, Nadia Corp and Opeyemi O Babatunde 2020. Role of the GP in the management of patients with self-harm behaviour: A systematic review. British Journal of General Practice (BJGP). 70 (694), pp. e364-e373. https://doi.org/10.3399/bjgp20X708257
Development and evaluation of a screening tool to aid the diagnosis of a cluster headache
Alina Buture, Jason W. Boland, Lisa Dikomitis, Chao Huang and Fayyaz Ahmed 2020. Development and evaluation of a screening tool to aid the diagnosis of a cluster headache. Brain Sciences. 10 (2), p. 77. https://doi.org/10.3390/brainsci10020077
Supervised treatment in outpatients for schizophrenia plus (STOPS+): protocol for a cluster randomised trial of a community-based intervention to improve treatment adherence and reduce the treatment gap for schizophrenia in Pakistan
Thomas Andrew Shepherd, Zia Ul-Haq, Mian Ul-Haq, Muhammad Firaz Khan, Adil Afridi, Lisa Dikomitis, Michelle E Robinson, Martyn Lewis, Atif Rahman, Krysia Dziedzic, Umaima Saeed, Naila Riaz Awan, Christian Mallen and Saeed Farooq 2020. Supervised treatment in outpatients for schizophrenia plus (STOPS+): protocol for a cluster randomised trial of a community-based intervention to improve treatment adherence and reduce the treatment gap for schizophrenia in Pakistan. BMJ Open. 2020 (10), p. e034709. https://doi.org/10.1136/bmjopen-2019-034709
Perceptions, experiences, and understandings of cluster headache among GPs and neurologists: a qualitative study
Alina Buture, Fayyaz Ahmed, Yachna Mehta, Koen Paemeleire, Peter J Goadsby and Lisa Dikomitis 2020. Perceptions, experiences, and understandings of cluster headache among GPs and neurologists: a qualitative study. British Journal of General Practice (BJGP). 70 (696), pp. e514-e522. https://doi.org/10.3399/bjgp20X710417
Guidelines for the use of diagnostic imaging in musculoskeletal pain conditions affecting the lower back, knee and shoulder: A scoping review
Andrew Cuff, Stephen Parton, Robert Tyer, Lisa Dikomitis, Nadine Foster and Chris Littlewood 2020. Guidelines for the use of diagnostic imaging in musculoskeletal pain conditions affecting the lower back, knee and shoulder: A scoping review. Musculoskeletal Care. 18 (4), p. 5460554. https://doi.org/10.1002/msc.1497
Rehabilitation following rotator cuff repair: A multi-centre pilot & feasibility randomised controlled trial (RaCeR)
Chris Littlewood, Marcus Bateman, Stephanie Butler-Walley, Sarah Bathers, Kieran Bromley, Martyn Lewis, Lennard Funk, Jean Denton, Maria Moffatt, Rachel Winstanley, Saurabh Mehta, Gareth Stephens, Lisa Dikomitis and Nadine E Foster 2020. Rehabilitation following rotator cuff repair: A multi-centre pilot & feasibility randomised controlled trial (RaCeR). Clinical Rehabilitation. 35 (6), pp. 829-836. https://doi.org/10.1177/0269215520978859
Rehabilitation following rotator cuff repair: A nested qualitative study exploring the perceptions and experiences of participants in a randomised controlled trial
Stephens, G., Littlewood, C., Foster, N. E. and Dikomitis, L. 2020. Rehabilitation following rotator cuff repair: A nested qualitative study exploring the perceptions and experiences of participants in a randomised controlled trial. Clinical Rehabilitation. 35 (6), pp. 911-919. https://doi.org/10.1177/0269215520984025
The politics of restoring religious sites and cemeteries in the north of Cyprus: an ethnography among Greek Cypriot refugees
Dikomitis, L. and Argyrou, V. 2020. The politics of restoring religious sites and cemeteries in the north of Cyprus: an ethnography among Greek Cypriot refugees. in: Kruse, T., Faustmann, H. and Rogge, S. (ed.) When the Cemetery Becomes Political - Dealing with the Religious Heritage in Multi-Ethnic Regions Munich and New York University of Münster.
Understanding self-harm in older adults: a qualitative study
M. Isabela Troya, Lisa Dikomitis, Opeyemi O. Babatunde, Bernadette Bartlam and Carolyn A. Chew-Graham 2019. Understanding self-harm in older adults: a qualitative study. eClinicalMedicine. 12, pp. 52-61. https://doi.org/10.1016/j.eclinm.2019.06.002
Self-harm in older adults: Systematic review
M. Isabela Troya, Opeyemi Babatunde, Kay Polidano, Bernadette Bartlam, McCloskey, E., Lisa Dikomitis and Carolyn A. Chew-Graham 2019. Self-harm in older adults: Systematic review. British Journal of Psychology. 214 (4), pp. 186-200. https://doi.org/10.1192/bjp.2019.11
Self-harm in young people: the exceptional potential of the general practice consultation
Faraz Mughal, Opeyemi Babatunde, Lisa Dikomitis, Judith Shaw, Ellen Townsend, M. Isabela Troya and Carolyn A. Chew-Graham 2019. Self-harm in young people: the exceptional potential of the general practice consultation. British Journal of General Practice (BJGP). 69 (681), pp. 168-169. https://doi.org/10.3399/bjgp19X701393
Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults
M. Isabela Troya, Carolyn A. Chew-Graham, Opeyemi Babatunde, Bernadette Bartlam, Adele Higginbottom and Lisa Dikomitis 2019. Patient and public involvement and engagement in a doctoral research project exploring self-harm in older adults. Health Expectations. 22 (4), pp. 617-631. https://doi.org/10.1111/hex.12917
Protocol for a multi-centre pilot and feasibility randomised controlled trial with a nested qualitative study: rehabilitation following rotator cuff repair (the RaCeR study)
Chris Littlewood, Marcus Bateman, Kendra Cooke, Susie Hennnings, Tina Cookson, Kieran Bromley, Martyn Lewis, Lennard Funk, Jean Denton, Maria Moffatt, Rachel Winstanley, Saurabh Mehta, Gareth Stephens, Lisa Dikomitis, Linda Chesterton and Nadine E. Foster 2019. Protocol for a multi-centre pilot and feasibility randomised controlled trial with a nested qualitative study: rehabilitation following rotator cuff repair (the RaCeR study). Trials. 20 (328). https://doi.org/10.1186/s13063-019-3407-3
Exploring differences in individual and group judgements in standard setting
Peter Yeates, Natalie Cope, Eva Luksaite, Andrew Hassell and Lisa Dikomitis 2019. Exploring differences in individual and group judgements in standard setting. Medical Education. 53 (9), pp. 941-962. https://doi.org/10.1111/medu.13915
Images depicting headache pain – a tool to aid the diagnosis of cluster headache: a pilot study
Dikomitis, L. 2019. Images depicting headache pain – a tool to aid the diagnosis of cluster headache: a pilot study. Journal of Multidisciplinary Healthcare. 2019 (12), pp. 691-698. https://doi.org/10.2147/JMDH.S207128
Images depicting pain: a screening tool for cluster headache
Buture, A., Dikomitis, L., Boland, L. and Ahmed, F. 2018. Images depicting pain: a screening tool for cluster headache. Cephalalgia. 38 (Supp 1), pp. 114-115. https://doi.org/10.1177/0333102418789865
Delays in the diagnosis and misdiagnosis of cluster headache – a systematic literature review
Buture, A., Boland, J. W., Dikomitis, L. and Ahmed, F. 2018. Delays in the diagnosis and misdiagnosis of cluster headache – a systematic literature review. Cephalalgia. 38 (Supp 1), pp. MTIS2018-145.
Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache
Buture, A., Boland, J. W., Dikomitis, L. and Ahmed, F. 2018. Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache. Neurological Sciences. 40, pp. 25-39. https://doi.org/10.1007/s10072-018-3598-5
Visual images: an additional tool for the screening of cluster headache
Buture, A., Dikomitis, L., Boland, J. W. and Ahmed, F. 2017. Visual images: an additional tool for the screening of cluster headache. Cephalalgia. 37, p. 219.
So looking at this, you look like you've got some issues going on with your joints: Exploring case-finding in long-tern condition review consultations - the ENHANCE pilot trial
Liddle, J., Chew-Graham, C. A., Mallen, C. D., Healey, E. L., Jinks, C. and Dikomitis, L. 2017. So looking at this, you look like you've got some issues going on with your joints: Exploring case-finding in long-tern condition review consultations - the ENHANCE pilot trial. Rheumatology. 56 (IS 2). https://doi.org/10.1093/rheumatology/kex062.181
'"The man who closed the asylums": Franco Basaglia and the revolution in mental health care', by John Foot (Verso, 2015)
Dikomitis, L. 2016. '"The man who closed the asylums": Franco Basaglia and the revolution in mental health care', by John Foot (Verso, 2015). Durham University Institute for Medical Humanities.
How do clinicians think about cluster headache
Dikomitis, L., Paemeleire, K., Goadsby, P. J. and Ahmed, F. 2016. How do clinicians think about cluster headache. Cephalalgia. 36 (S 1).
Developing a diagnostic tool for the early diagnosis of cluster headache
Buture, A., Dikomitis, L. and Ahmed, F. 2016. Developing a diagnostic tool for the early diagnosis of cluster headache. Cephalalgia.
Perceptions, understandings and experiences of cluster headache patients in the north of England: a qualitative study
Dikomitis, L., Quarshie, V., Paemeleire, K., Goadsby, P. J. and Ahmed, F. 2015. Perceptions, understandings and experiences of cluster headache patients in the north of England: a qualitative study. Cephalalgia. 25 (S6).
[Review of] The Past in Pieces: Belonging in the New Cyprus, by Rebecca Bryant. Contemporary Ethnography series. Philadelphia: University of Pennsylvania Press, 2010. 224 pp.
Dikomitis, L. 2014. [Review of] The Past in Pieces: Belonging in the New Cyprus, by Rebecca Bryant. Contemporary Ethnography series. Philadelphia: University of Pennsylvania Press, 2010. 224 pp. American Anthropologist. 116 (1), pp. 194-195. https://doi.org/10.1111/aman.12085_9
Perceptions and experiences of cluster headache among patients, general practitioners and neurologists in the north of england: A qualitative study
Ahmed, F., Dikomitis, L., Zafar, H. W., Goadsby, P. and Paemeliere, P. 2014. Perceptions and experiences of cluster headache among patients, general practitioners and neurologists in the north of england: A qualitative study. Journal of Headache and Pain. 15 (S1).
Patients perceptions of the causes of migraine in Flanders (Belgium): A qualitative study
Dikomitis, L., Bonte, M., Willems, S. and Paemeleire, K. 2013. Patients perceptions of the causes of migraine in Flanders (Belgium): A qualitative study. Cephalalgia. 33 (S 8), p. 198. https://doi.org/10.1177/0333102413490487