The Global Intellectual Disability Nursing Research Collaboratory: Forming an international transformational nursing network

Journal article

Fisher, Kathleen M., Desroches, Melissa L., Northway, Ruth, Marsden, Daniel, Horan, Paul and Rees, Stacey 2024. The Global Intellectual Disability Nursing Research Collaboratory: Forming an international transformational nursing network. International Nursing Review. https://doi.org/10.1111/inr.13000

Publication dates
Authors	Fisher, Kathleen M., Desroches, Melissa L., Northway, Ruth, Marsden, Daniel, Horan, Paul and Rees, Stacey
Abstract	Aim This paper explains how we created the Global Intellectual Disability Nurse Research Collaboratory (GIDNRC), a transformative network. The GIDNRC aims to make improvements in the understanding, research, policy, clinical care, and support provided to people with an intellectual disability. Background In 2022, the World Health Organization (WHO) called upon healthcare leaders internationally to take actions to promote more equal healthcare for disabled persons. This paper promotes the GIDNRC as a way for professionals to work together to make more equal healthcare throughout the world for people with intellectual disabilities. Sources of evidence We created this paper by reviewing peer-reviewed literature and research, international policies, and nursing networking initiatives. Discussion This paper explores current policy, research, and practice issues that formed the basis of beginning the GIDNRC, including how the COVID-19 pandemic changed care. Conclusion Nurses are over 50% of the world's health workforce. Therefore, they have the potential to make a large impact in making care for people with intellectual disability much more equal than currently exists throughout the world. However, barriers exist. Forming the GIDNRC, as well as using the World Wide Web, offers an opportunity to address barriers to this goal. Implications for nursing practice Nurses can address the needs of people with intellectual disability in their daily nursing practice. The GIDNRC aims to strengthen these clinical skills, understand how care may vary throughout the world, and share knowledge, good practices, and new ways to approach care for people with an intellectual disability worldwide. Implications for nursing policy International nursing policy should actively focus on the needs of people with intellectual disabilities and the role nurses play in addressing these health needs. The GIDNRC may provide an important way to achieve developments in this policy.
Keywords	Collaboratory; Global; Intellectual disability; Nursing research; Transformational networks
Year	2024
Journal	International Nursing Review
Publisher	Wiley
ISSN	0020-8132
	1466-7657
Digital Object Identifier (DOI)	https://doi.org/10.1111/inr.13000
Official URL	https://onlinelibrary.wiley.com/doi/10.1111/inr.13000
Online	05 Jul 2024
Publication process dates
Accepted	05 Jun 2024
Deposited	15 Jul 2024
Accepted author manuscript	License CC BY-NC-ND File Access Level Open
Output status	Published

Permalink -

https://repository.canterbury.ac.uk/item/98640/the-global-intellectual-disability-nursing-research-collaboratory-forming-an-international-transformational-nursing-network

File access - Request a copy

Restricted files

Accepted author manuscript

Under embargo until 05 Jul 2025

32
total views
0
total downloads
3
views this month
0
downloads this month

Export as

Related outputs

A scoping review examining the impact of learning disability and autism training on healthcare professionals' perspectives and practice

Butler, I and Marsden, D. 2024. A scoping review examining the impact of learning disability and autism training on healthcare professionals' perspectives and practice. Learning Disability Practice. https://doi.org/10.7748/ldp.2024.e2249

Nursing older people with intellectual disabilities

Marsden, D. Ross, F. M., Harris, R., Fitzpatrick, J. M. and Abley, C. (ed.) 2024. Nursing older people with intellectual disabilities. Elsevier.

Intellectual disability nursing throughout the lifespan

Marsden, D., Doyle, C., Carey, E. and Ridley, J. 2023. Intellectual disability nursing throughout the lifespan. in: Learning and Intellectual Disability Nursing Practice Routledge, Taylor and Francis.

P18 Caring for people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic: a transcontinental study

Paul Horan, Melissa Desroches, Daniel Marsden, Kathleen Fisher,, Judith Stych,, Sarah Ailey, Shirley McMillan, Henrietta Tripp and Nathan Wilson 2022. P18 Caring for people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic: a transcontinental study. Journal of Epidemiology & Community Health. 76 (Suppl. 1). https://doi.org/10.1136/jech-2022-SSMabstracts.116

The COVID-19 pandemic experiences of people with intellectual and developmental disabilities (PWIDD) through a nursing lens: Global Perspectives

Daniel Marsden, Melissa Desroches, Kathleen Fisher, Judith Stych, Sarah Ailey, Shirley McMillan, Henrietta Trip and Nathan Wilson 2022. The COVID-19 pandemic experiences of people with intellectual and developmental disabilities (PWIDD) through a nursing lens: Global Perspectives.

International nursing actions to reduce health inequities faced by people with intellectual and developmental disability

Marsden, D., Fisher, K., Desroches, M., Rees, S., Northway, R., Horan, P., Stych, J., Ailey, S., Trip, H. and Wilson, N. 2022. International nursing actions to reduce health inequities faced by people with intellectual and developmental disability. Online Journal of Issues in Nursing. https://doi.org/10.3912/OJIN.Vol27No03Man07

Supporting the needs of people with developmental disabilities one year into the COVID-19 pandemic: An international, mixed methods study of nurses’ perspectives

Desroches, M., Fisher, K., Ailey, S., Stych, J., McMillan, S., Horan, P., Marsden, D., Trip, H. and Wilson, N. 2022. Supporting the needs of people with developmental disabilities one year into the COVID-19 pandemic: An international, mixed methods study of nurses’ perspectives. Journal of Policy and Practice in Intellectual Disabilities. https://doi.org/10.1111/jppi.12411

A training resource to educate students about learning disabilities

Harper, L., Marsden, D., Darko, E., Summers, J., Scriverer, Hannah, Otasanya, Carolyn and Ambridge, A. 2020. A training resource to educate students about learning disabilities. Nursing Times. 116 (4), pp. 23-26.

Developing a training course to teach research skills to people with learning disabilities: “It gives us a voice. We CAN be researchers!”.

Tuffrey-Wijne, I., Lam, C., Marsden, D., Stapelberg, D., Newton, D., McDermott, M., Keagan-Bull, R., Jordon, L., Jeffrey, D., Harris, C. and Conway, B. 2020. Developing a training course to teach research skills to people with learning disabilities: “It gives us a voice. We CAN be researchers!”. British Journal of Learning Disabilities. 48 (4), pp. 301-314. https://doi.org/10.1111/bld.12331

Providing holistic care

Marsden, D. and Cooper, S. 2020. Providing holistic care. in: Heslop, P. and Hebron, C. (ed.) Promoting the Health and Well-Being of People with Learning Disabilities Cham Springer.

Supporting people with learning disabilities who identify as LGBT to express their sexual and gender identities

Robinson, Z., Marsden, D., Abdulla, S. and Dowling, F. 2020. Supporting people with learning disabilities who identify as LGBT to express their sexual and gender identities. Learning Disability Practice. https://doi.org/10.7748/ldp.2020.e2094

Inclusion of learning disability research in nursing journals : a review of 5 international journals 2013-2017

Marsden, D., Northway, R., Ross, S. and Statham, D. 2019. Inclusion of learning disability research in nursing journals : a review of 5 international journals 2013-2017.

An update on informed consent and the effect on the clinical practice of those working with people with a learning disability

Adams, D., Marsden, D., Carr, C. and Senior, K. 2018. An update on informed consent and the effect on the clinical practice of those working with people with a learning disability. Learning Disability Practice. https://doi.org/10.7748/ldp.2018.e1855

The 4C framework for making reasonable adjustments for people with learning disabilities

Marsden, D. and Giles, R. 2017. The 4C framework for making reasonable adjustments for people with learning disabilities. Nursing Standard. https://doi.org/10.7748/ns.2017.e10152

Cardiology

Marsden, D. 2016. Cardiology. in: Hardy, S., Chaplin, E. and Woodward, P. (ed.) Supporting the Physical Health Needs of People with Learning Disabilities : A Handbook for Professionals, Support Staff and Families Pavilion Publishing Ltd.

Respiratory illness

Marsden, D. 2016. Respiratory illness. in: Hardy, S., Chaplin, E. and Woodward, P. (ed.) Supporting the Physical Health Needs of People with Learning Disabilities : A Handbook for Professionals, Support Staff and Families Pavilion Publishing Ltd.

The twenty-first century : networking for success

Marsden, D. 2015. The twenty-first century : networking for success. in: Gates, B., Fearns, D. and Welch, J. (ed.) Learning Disability Nursing at a Glance Wiley-Blackwell. pp. 155-156

How East Kent is making the NHS workforce more inclusive

Marsden, D. 2013. How East Kent is making the NHS workforce more inclusive. Health Service Journal.

Networking opportunities for learning disability nurses

Abdulla, S., Marsden, D., Wilson, S. and Parker, M. 2013. Networking opportunities for learning disability nurses. Learning Disability Practice. 16 (5), pp. 30-32. https://doi.org/10.7748/ldp2013.06.16.5.30.e1434

Parking to achieve conscious competence: A reflection about practice development in the context of people with learning disabilities using hospital services

Marsden, D. 2012. Parking to achieve conscious competence: A reflection about practice development in the context of people with learning disabilities using hospital services. International Practice Development Journal. 2 (1).