Parents’ and carers’ attitudes to the use of digital technology and its role in the care of children with complex needs.

Journal article


Apps, J., Webb, S. and Hutton, E. 2024. Parents’ and carers’ attitudes to the use of digital technology and its role in the care of children with complex needs. The British Journal of Occupational Therapy. 87 (7), pp. 452-460. https://doi.org/10.1177/03080226241233112
AuthorsApps, J., Webb, S. and Hutton, E.
Abstract

Abstract

Introduction:
Parent/carers of disabled children want timely and personalized support. Research suggests that technology may address some limitations associated with traditional methods of communication with therapists (e.g. letter, telephone). This exploratory study examined United Kingdom (UK) parents and carers views on the use of digital technology (i.e. computers/phones) in supporting their child and the potential for its greater use in the care of children with complex needs.

Methods:
An online survey was distributed via special schools and support forums/networks. Questions explored use of and attitudes to digital technology in the care of children with complex needs. Descriptive statistical analyses and content analyses were undertaken on the data.

Results:
Respondents were 43 parents/carers whose children used rehabilitation services prior to the COVID-19 pandemic. The majority used digital technology frequently to support their child and saw the potential for greater use in rehabilitation services – provided this was not at the expense of in-person therapist contact.

Conclusion:
Parents and carers held positive views of digital technology as a tool to support their child and enhance rehabilitation services. Recommendations include regular service consultation on parental/child attitudes to digital service delivery and longitudinal studies to assess related health outcomes.

KeywordsParents and carers; Rehabilitation therapies; Digital technology; Occupational therapy; Children with complex needs
Year2024
JournalThe British Journal of Occupational Therapy
Journal citation87 (7), pp. 452-460
PublisherSAGE
ISSN1477-6006
0308-0226
Digital Object Identifier (DOI)https://doi.org/10.1177/03080226241233112
Official URLhttps://journals.sagepub.com/doi/10.1177/03080226241233112
FunderHigher Education Innovation Funding (HEIF)
Publication dates
Online19 Mar 2024
Publication process dates
Deposited28 Mar 2024
Publisher's version
License
File Access Level
Open
Output statusPublished
Permalink -

https://repository.canterbury.ac.uk/item/9766y/parents-and-carers-attitudes-to-the-use-of-digital-technology-and-its-role-in-the-care-of-children-with-complex-needs

  • 51
    total views
  • 44
    total downloads
  • 3
    views this month
  • 1
    downloads this month

Export as

Related outputs

Interventions to improve continence for children and young people with neurodisability: a national survey of practitioner and family perspectives and experiences.
Eke, H., Ball, S., Allinson, Annette, Anderson, Rob, Hunt, Harriet, Hutton, Eve, Lindsay, Claire, Logan, Stuart, Madden, Nicholas, Melluish, Julia, Richardson, Davina, Rogers, June, Thompson Coon, Jo, Whear, Rebecca, Wright, Anne and Morris, C. 2024. Interventions to improve continence for children and young people with neurodisability: a national survey of practitioner and family perspectives and experiences. BMJ Paediatrics Open. 8 (1), p. e002238. https://doi.org/10.1136/bmjpo-2023-002238
Mechanised orthosis for children with neurological disorders (MOTION) - Evaluation of training packages
Hatzidimitriadou, E., Stein, M., Moore, J., Apps, J. and Kanderakis, T. 2023. Mechanised orthosis for children with neurological disorders (MOTION) - Evaluation of training packages. Canterbury Canterbury Christ Church University.
Mechanised orthosis for children with neurological disorders (MOTION) - Assessment of training needs of professionals and parents in bionic rehabilitation final report on survey and interviews of health care professionals and parents of children with CP
Hatzidimitriadou, E., Apps, J., Stein, M. and Moore, J. 2023. Mechanised orthosis for children with neurological disorders (MOTION) - Assessment of training needs of professionals and parents in bionic rehabilitation final report on survey and interviews of health care professionals and parents of children with CP. Canterbury Canterbury Christ Church University.
Can Mentimeter enhance university student participation in taught sessions?
Webb, S. 2022. Can Mentimeter enhance university student participation in taught sessions? International Journal of Higher Education Pedagogies. 3 (4), pp. 1- 12. https://doi.org/10.33422/ijhep.v3i4.72
Improving continence in children and young people with neurodisability: a systematic review and survey.
Eke, H., Hunt, H., Ball, S., Rogers, M., Whear, R., Allinson, A., Melluish, J., Lindsay, C., Richardson, D., Rogers, J., Hutton, E., Madden, N., Wright, A., Anderson, R., Logan, S., Thompson Coon, J. and Morris, C. 2021. Improving continence in children and young people with neurodisability: a systematic review and survey. Health Technology Assessment. 25 (73), pp. 1-258. https://doi.org/10.3310/hta25730
Uptake of, attitudes to and experiences of robotic assistive technology in health professionals, parents and carers of children and young adults with neurodisabilities: a protocol for a systematic review
Smith, R., Apps, J. and Hatzidimitriadou, E. 2021. Uptake of, attitudes to and experiences of robotic assistive technology in health professionals, parents and carers of children and young adults with neurodisabilities: a protocol for a systematic review. National Institute for Health Research.
Universal approaches to support children’s physical and cognitive development in the early years
Soan, S. and Hutton, E. 2021. Universal approaches to support children’s physical and cognitive development in the early years. Abingdon, Oxon Routledge.
POSTED -therapist-led postural care workshop for parents and teaching staff
Hotham, S., Hutton, E. and Hamilton-West, K. 2012. POSTED -therapist-led postural care workshop for parents and teaching staff.
POSTED train the trainer workshop
Hotham, S., Hutton, E. and Hamilton-West, K. 2016. POSTED train the trainer workshop.
POSTED - general questionnaire
Hotham, S., Hutton, E. and Hamilton-West, K. 2014. POSTED - general questionnaire.
POSTED training manual
Hutton, E. and Hamilton-West, K. 2016. POSTED training manual.
SPARKLE report - supporting pre-school groups in Mid Kent
Hutton, E. 2008. SPARKLE report - supporting pre-school groups in Mid Kent.
Divided and United Kingdom: parents in education and the common issue of inequality across the diversity of four nations
Christie, S. and Apps, J. 2019. Divided and United Kingdom: parents in education and the common issue of inequality across the diversity of four nations. in: Byrne, D. and Paseka, A. (ed.) Parental Involvement Across European Education Systems : Critical Perspectives Abingdon, Oxon. Routledge.
Greater choice and control ? parent carer views on personal health budgets for disabled children who use rehabilitation therapy services.
Hutton, E. and King, A. 2018. Greater choice and control ? parent carer views on personal health budgets for disabled children who use rehabilitation therapy services.
Running a research consultation group with parents and carers of children with complex health needs who use children’s rehabilitation therapy services: practical considerations and insights
Hutton, E., Apps, J., Wells, G. and Cowie, C. 2017. Running a research consultation group with parents and carers of children with complex health needs who use children’s rehabilitation therapy services: practical considerations and insights.
5 school newsletter mistakes you're probably making
Apps, J. 2017. 5 school newsletter mistakes you're probably making. Teach Primary. 11 (3), pp. 62-63.
Supporting parents and carers of children with physical disabilities
Hutton, E. 2017. Supporting parents and carers of children with physical disabilities.
Greater choice and control? parent carers views on personal health budgets for children who use rehabilitation therapy services
Hutton, E. and King, A. 2017. Greater choice and control? parent carers views on personal health budgets for children who use rehabilitation therapy services.
POSTED postural care in education - evaluation report
Hutton, E. 2017. POSTED postural care in education - evaluation report.
Consulting parents and carers of children with complex needs who use rehabilitation therapy services about research - what issues are important?
Hutton, E., Apps, J., Cowie, C. and Wells, G. 2018. Consulting parents and carers of children with complex needs who use rehabilitation therapy services about research - what issues are important?
First in family to attend University: understanding and enabling the parent-child support relationship
Apps, J. and Christie, S. 2018. First in family to attend University: understanding and enabling the parent-child support relationship. International Journal About Parents in Education. 10 (1), pp. 59-69.
Parent/carer views on personal health budgets for disabled children who use rehabilitation therapy services
Hutton, E. and King, A. 2017. Parent/carer views on personal health budgets for disabled children who use rehabilitation therapy services. Disability & Society. 33 (2), pp. 254-271. https://doi.org/10.1080/09687599.2017.1398636
Exploring the participation of children with Down Syndrome in Handwriting Without Tears®
Patton, S. and Hutton, E. 2017. Exploring the participation of children with Down Syndrome in Handwriting Without Tears®. Journal of Occupational Therapy, Schools, & Early Intervention. 10 (2), pp. 171-184. https://doi.org/10.1080/19411243.2017.1292485
A study in to the effectiveness of a postural care training programme aimed at improving knowledge, understanding, and confidence in parents and school staff
Hotham, S., Hamilton-West, K., Hutton, E., King, A. and Abbott, N. 2017. A study in to the effectiveness of a postural care training programme aimed at improving knowledge, understanding, and confidence in parents and school staff. Child: Care, Health and Development. https://doi.org/10.1111/cch.12444
Parents' perspectives on a collaborative approach to the application of the Handwriting Without Tears programme with children with Down Syndrome
Patton, S. and Hutton, E. 2016. Parents' perspectives on a collaborative approach to the application of the Handwriting Without Tears programme with children with Down Syndrome. Australian Occupational Therapy Journal. 63 (4), pp. 266-276. https://doi.org/10.1111/1440-1630.12301
Understanding the support needs of disabled children and their families in East Kent
Hutton, E., King, A., Hamilton-West, K. and Hotham, S. 2016. Understanding the support needs of disabled children and their families in East Kent.
Writing readiness and children with Down Syndrome in an Irish context
Patton, S. and Hutton, E. 2016. Writing readiness and children with Down Syndrome in an Irish context. Support for Learning. 31 (3). https://doi.org/10.1111/1467-9604.12132
Researching together, inter-professional research in postural care for children with disabilities
Hutton, E. and Crombie, S. 2014. Researching together, inter-professional research in postural care for children with disabilities.
POSTED increasing confidence in postural care
Hutton, E. 2015. POSTED increasing confidence in postural care.
A kaleidoscope of enquiry - showcasing examples of collaborative practice to promote inclusive learning environments
Soan, S., Hutton, E. and MacCobb, S. 2015. A kaleidoscope of enquiry - showcasing examples of collaborative practice to promote inclusive learning environments. BERA Conference 2015. Belfast 15 - 17 Sep 2015
A study into the effectiveness of an education programme for parents and teachers
Hutton, E., Hotham, S. and Hamilton-West, K. 2013. A study into the effectiveness of an education programme for parents and teachers.
Universal Strategies to support motor and functional skills in a sample of UK schools
Hutton, E. and Soan, S. 2015. Universal Strategies to support motor and functional skills in a sample of UK schools. Cambridge University Press.
Making a case for universal and targeted children's occupational therapy in the United Kingdom
Hutton, E., Tuppeny, S. and Hasselbusch, A. 2016. Making a case for universal and targeted children's occupational therapy in the United Kingdom. British Journal of Occupational Therapy. https://doi.org/10.1177/0308022615618218
Transforming urgent & emergency care together: phase 1 final report
Manley, K., Jackson, C., Martin, A., Apps, J., Setchfield, I., Oliver, G., East Kent Hospitals University NHS Foundation Trust, South East Coast Ambulance Service and Ashford, NHS Canterbury & Coastal, NHS South Kent Coast and NHS Thanet Clinincal Commissioning Groups 2014. Transforming urgent & emergency care together: phase 1 final report. Canterbury, UK England Centre for Practice Development: Canterbury Christ Church University.
Development of a reliable, valid measure to assess parents' and teachers' understanding of postural care for children with physical disabilities: the (UKC PostCarD) questionnaire
Hotham, S., Hutton, E. and Hamilton-West, K. 2015. Development of a reliable, valid measure to assess parents' and teachers' understanding of postural care for children with physical disabilities: the (UKC PostCarD) questionnaire. Child: Care, Health and Development. https://doi.org/10.1111/cch.12242
'Lessons learned' from introducing universal strategies designed to support the motor and functional skills of Reception and Year 1 children in a sample of primary schools in South East England
Hutton, E. and Soan, S. 2015. 'Lessons learned' from introducing universal strategies designed to support the motor and functional skills of Reception and Year 1 children in a sample of primary schools in South East England. Education 3-13: International Journal of Primary, Elementary and Early Years Education. https://doi.org/10.1080/03004279.2015.1048270
A study into the effectiveness of a postural care education programme
Hutton, E., Hotham, S., Hamilton-West, K. and King, A. 2013. A study into the effectiveness of a postural care education programme.
A study into the effectiveness of a postural care education programme aimed at improving self-efficacy in carers of children with physical disabilities
Hutton, E., Hotham, S., Hamilton-West, K. and King, A. 2013. A study into the effectiveness of a postural care education programme aimed at improving self-efficacy in carers of children with physical disabilities.
Report to the Creative Foundation on the Folkestone Triennial Review
van Vuuren, W., Jackson, A., Powell, S. and Apps, J. 2012. Report to the Creative Foundation on the Folkestone Triennial Review.
Development of a reliable, valid measure to assess parents' and teachers' understanding of postural care for children with physical disabilities
Hutton, E., Hotham, S. and Hamilton-West, K. 2012. Development of a reliable, valid measure to assess parents' and teachers' understanding of postural care for children with physical disabilities.
Development of a reliable, valid measure to assess parents' and teachers' understanding of postural care for children with physical disabilities.
Hutton, E., Hamilton-West, K. and Hotham, S. 2012. Development of a reliable, valid measure to assess parents' and teachers' understanding of postural care for children with physical disabilities.
Report to Folkestone Harbour Company: Results of consultations on Folkestone seafront - a new approach
van Vuuren, W., Powell, S. and Apps, J. 2010. Report to Folkestone Harbour Company: Results of consultations on Folkestone seafront - a new approach. Folkestone Harbour Company.
Skills for primary schools: movement and co-ordination resources
Hutton, E. and Soan, S. 2010. Skills for primary schools: movement and co-ordination resources. Support for Learning. 25 (3), pp. 116-121. https://doi.org/10.1111/j.1467-9604.2010.01449.x
Posture for learning: meeting the postural care needs of children with physical disabilities in mainstream primary schools in England - a research into practice exploratory study
Hutton, E. and Coxon, K. 2011. Posture for learning: meeting the postural care needs of children with physical disabilities in mainstream primary schools in England - a research into practice exploratory study. Disability and Rehabilitation. 33 (19/20), pp. 1912-1924. https://doi.org/10.3109/09638288.2010.544837
An analysis of conversion to UCAS 'Accepted Applicant' status of AHKM partnership school students
Apps, J., Bryant, R. and Rogers, R. 2010. An analysis of conversion to UCAS 'Accepted Applicant' status of AHKM partnership school students. Aimhigher Kent and Medway.
Supporting parents and professionals
Apps, J. 2009. Supporting parents and professionals. Children in Scotland.
Occupational therapy in mainstream primary schools: an evaluation of a pilot project
Hutton, E. 2009. Occupational therapy in mainstream primary schools: an evaluation of a pilot project. British Journal of Occupational Therapy. 72 (7), pp. 308-313.
Involving parents in a research study about the care that children with a physical disability receive in primary school settings
Hutton, E. 2008. Involving parents in a research study about the care that children with a physical disability receive in primary school settings.
Movement and coordination resources for quality first teaching
Hutton, E. 2009. Movement and coordination resources for quality first teaching.
Postural management in mainstream primary schools: the views of teachers and teaching assistants
Hutton, E. 2009. Postural management in mainstream primary schools: the views of teachers and teaching assistants.
Excellence in clinical practice
Hutton, E. and Williams, I. 2009. Excellence in clinical practice.
A-Z of postural care: how to have a good posture when sitting, standing, exercising and relaxing, a guide for teachers and parents and everyone
Hutton, E., Poole, C., Townsend, I., Mortimore, J., Godden, S., Jensen, J. and Ariss, T. 2009. A-Z of postural care: how to have a good posture when sitting, standing, exercising and relaxing, a guide for teachers and parents and everyone. Canterbury, UK Canterbury Christ Church University.
Back to school
Hutton, E. 2008. Back to school.
Postural management for children with physical disabilities in mainstream primary schools - a pilot study of the views of teachers and teaching assistants
Hutton, E. 2008. Postural management for children with physical disabilities in mainstream primary schools - a pilot study of the views of teachers and teaching assistants. Posture and Mobility. 25 (2), pp. 21-22.
OT into Schools
Hutton, E. 2008. OT into Schools. Special Children.
Work-based masters modules - reviewing the OT service in a special school
Hutton, E. and Webb, S. 2008. Work-based masters modules - reviewing the OT service in a special school. Occupational Therapy News. 36 (1), pp. 39-39.
SPARKLE project
Hutton, E. 2006. SPARKLE project.
'Back to school' - piloting an occupational therapy service in mainstream schools in the UK
Hutton, E. 2008. 'Back to school' - piloting an occupational therapy service in mainstream schools in the UK. Reflective Practice. 9 (4), pp. 461-472. https://doi.org/10.1080/14623940802431572
Family support in extended schools: planning, commissioning and delivery
Apps, J., Ashby, V. and Baumann, M. 2007. Family support in extended schools: planning, commissioning and delivery. London, UK National Family and Parenting Institute.
Family support in children's centres: planning, commissioning and delivery
Apps, J., Reynolds, J., Ashby, V. and Husain, F. 2007. Family support in children's centres: planning, commissioning and delivery. London, UK National Family and Parenting Institute.
Assessments of parenting and parenting support need: a study of four professional groups
Kellett, J. and Apps, J. 2009. Assessments of parenting and parenting support need: a study of four professional groups. York, UK Joseph Rowntree Foundation.
Training for parenting support
Cotton, D., Reynolds, J. and Apps, J. 2009. Training for parenting support. London, UK National Family and Parenting Institute.
Can government measure family wellbeing?
Wollny, I., Apps, J. and Henricson, C. 2010. Can government measure family wellbeing? Family and Parenting Institute.
Occupational therapy students’ attitudes towards individuals with disabilities: a comparison between Australia, Taiwan, the United Kingdom, and the United States
Brown, T., Mu, K., Peyton, C., Rodger, S., Stagnitti, K., Hutton, E., Casey, J., Watson, C., Hong, C. and Huang, Y. 2009. Occupational therapy students’ attitudes towards individuals with disabilities: a comparison between Australia, Taiwan, the United Kingdom, and the United States. Research in Developmental Disabilities. 30 (6), pp. 1541-1555. https://doi.org/10.1016/j.ridd.2009.07.020
Effectiveness of a social support intervention on infant feeding practices: randomised controlled trial
Watt, R., Tull, K., Hardy, R., Wiggins, M., Kelly, Y., Molloy, B., Dowler, E., Apps, J. and McGlone, P. 2009. Effectiveness of a social support intervention on infant feeding practices: randomised controlled trial. Journal of Epidemiology & Community Health. 63 (2), pp. 156-162. https://doi.org/10.1136/jech.2008.077115
Involving parents as service users in an interprofessional research project
Hutton, E. and Coxon, K. 2008. Involving parents as service users in an interprofessional research project. Journal of Interprofessional Care. 22 (6), pp. 661-663. https://doi.org/10.1080/13561820802038757
Beginning to SPARKLE
Hutton, E. 2009. Beginning to SPARKLE. Early Years Educator. 11 (7).
Movement and coordination resources for quality first teaching in primary schools
Soan, S. and Hutton, E. 2009. Movement and coordination resources for quality first teaching in primary schools. Primary First. 5, pp. 29-30.
Linking up directories of children's services
Barrett, H., Apps, J., Petrou, T., Ntow, S., Husain, F. and Henricson, C. 2006. Linking up directories of children's services. London, UK Department for Education and Skills.