Linking research to end users through community engagement: an umbrella review

Journal article

Getachew Taffere, Haftom Temesgen, Binega Haileselassie, Zenawi Zerihun, Brianne Wenning, Lisa Dikomitis and Afework Mulugeta 2023. Linking research to end users through community engagement: an umbrella review. Journal of Public Health. https://doi.org/10.1007/s10389-023-02167-x
AuthorsGetachew Taffere, Haftom Temesgen, Binega Haileselassie, Zenawi Zerihun, Brianne Wenning, Lisa Dikomitis and Afework Mulugeta
Abstract

Introduction
Investigation of effective modes of community engagement remains an important topic in research yet is often overlooked. Studies focusing on how to move beyond a tokenistic involvement of community members into one with true collaboration remain spread across a broad range of disciplines.

Objective
This umbrella review aims to bring together existing systematic reviews to highlight best practice related to community engagement in research.

Method
The Health Research Literature Explorer (PCORI), PubMed, and Google Scholar were searched. Studies published in English since 1990 on any aspect of end-user engagement in research were considered. A total of 23 articles met the inclusion criteria and withstood quality appraisal using the Joanna Briggs Institute appraisal checklist.

Results
Our findings indicate no conclusive evidence on which type of community engagement is most effective. Rather, we found engagement activities varied depending on the type and stages of the study.

Conclusion
Hence, the need for innovative approaches to measure the impact of community engagement was stressed in the review. However, it was possible to narrow the gap between research and implementation by adhering to cultural context, community concern, and attitudes.

Recommendation
Thus, research in general should underpin robust community engagement activities to gain better outcomes.

KeywordsPublic engagement; Service users; Community partnerships; Community engagement; Umbrella review; Research
Year2023
JournalJournal of Public Health
PublisherSpringer
ISSN0943-1853
1613-2238
Digital Object Identifier (DOI)https://doi.org/10.1007/s10389-023-02167-x
Official URLhttps://link.springer.com/article/10.1007/s10389-023-02167-x
Publication dates
Online21 Dec 2023
Publication process dates
Accepted24 Nov 2023
Deposited21 Feb 2024
Output statusPublished
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https://repository.canterbury.ac.uk/item/97278/linking-research-to-end-users-through-community-engagement-an-umbrella-review

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Dikomitis, L. 2019. Images depicting headache pain – a tool to aid the diagnosis of cluster headache: a pilot study. Journal of Multidisciplinary Healthcare. 2019 (12), pp. 691-698. https://doi.org/10.2147/JMDH.S207128
Images depicting pain: a screening tool for cluster headache
Buture, A., Dikomitis, L., Boland, L. and Ahmed, F. 2018. Images depicting pain: a screening tool for cluster headache. Cephalalgia. 38 (Supp 1), pp. 114-115. https://doi.org/10.1177/0333102418789865
Delays in the diagnosis and misdiagnosis of cluster headache – a systematic literature review
Buture, A., Boland, J. W., Dikomitis, L. and Ahmed, F. 2018. Delays in the diagnosis and misdiagnosis of cluster headache – a systematic literature review. Cephalalgia. 38 (Supp 1), pp. MTIS2018-145.
Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache
Buture, A., Boland, J. W., Dikomitis, L. and Ahmed, F. 2018. Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache. Neurological Sciences. 40, pp. 25-39. https://doi.org/10.1007/s10072-018-3598-5
Visual images: an additional tool for the screening of cluster headache
Buture, A., Dikomitis, L., Boland, J. W. and Ahmed, F. 2017. Visual images: an additional tool for the screening of cluster headache. Cephalalgia. 37, p. 219.
So looking at this, you look like you've got some issues going on with your joints: Exploring case-finding in long-tern condition review consultations - the ENHANCE pilot trial
Liddle, J., Chew-Graham, C. A., Mallen, C. D., Healey, E. L., Jinks, C. and Dikomitis, L. 2017. So looking at this, you look like you've got some issues going on with your joints: Exploring case-finding in long-tern condition review consultations - the ENHANCE pilot trial. Rheumatology. 56 (IS 2). https://doi.org/10.1093/rheumatology/kex062.181
'"The man who closed the asylums": Franco Basaglia and the revolution in mental health care', by John Foot (Verso, 2015)
Dikomitis, L. 2016. '"The man who closed the asylums": Franco Basaglia and the revolution in mental health care', by John Foot (Verso, 2015). Durham University Institute for Medical Humanities.
How do clinicians think about cluster headache
Dikomitis, L., Paemeleire, K., Goadsby, P. J. and Ahmed, F. 2016. How do clinicians think about cluster headache. Cephalalgia. 36 (S 1).
Developing a diagnostic tool for the early diagnosis of cluster headache
Buture, A., Dikomitis, L. and Ahmed, F. 2016. Developing a diagnostic tool for the early diagnosis of cluster headache. Cephalalgia.
Perceptions, understandings and experiences of cluster headache patients in the north of England: a qualitative study
Dikomitis, L., Quarshie, V., Paemeleire, K., Goadsby, P. J. and Ahmed, F. 2015. Perceptions, understandings and experiences of cluster headache patients in the north of England: a qualitative study. Cephalalgia. 25 (S6).
[Review of] The Past in Pieces: Belonging in the New Cyprus, by Rebecca Bryant. Contemporary Ethnography series. Philadelphia: University of Pennsylvania Press, 2010. 224 pp.
Dikomitis, L. 2014. [Review of] The Past in Pieces: Belonging in the New Cyprus, by Rebecca Bryant. Contemporary Ethnography series. Philadelphia: University of Pennsylvania Press, 2010. 224 pp. American Anthropologist. 116 (1), pp. 194-195. https://doi.org/10.1111/aman.12085_9
Perceptions and experiences of cluster headache among patients, general practitioners and neurologists in the north of england: A qualitative study
Ahmed, F., Dikomitis, L., Zafar, H. W., Goadsby, P. and Paemeliere, P. 2014. Perceptions and experiences of cluster headache among patients, general practitioners and neurologists in the north of england: A qualitative study. Journal of Headache and Pain. 15 (S1).
Patients perceptions of the causes of migraine in Flanders (Belgium): A qualitative study
Dikomitis, L., Bonte, M., Willems, S. and Paemeleire, K. 2013. Patients perceptions of the causes of migraine in Flanders (Belgium): A qualitative study. Cephalalgia. 33 (S 8), p. 198. https://doi.org/10.1177/0333102413490487