Exploring why people decline cancer treatment: perspectives from patients and psychologists

Section A: Limited qualitative literature exists exploring the reasons why some patients choose to decline or disengage from conventional cancer treatment. While most quantitative research identifies certain factors contributing to treatment disengagement, this thematic synthesis explores the experiences of those choosing to decline; providing a richer
understanding of the potential barriers for engagement. A critical review of the literature identifies implications for clinical practice and research, while future recommendations are made.

Section B: Research has identified certain factors which may contribute to individuals declining cancer treatment, however, little is known about the experience of the staff who recommend treatment, how they respond, and the impact such decisions may have on them. To date, research has focused on medical professionals’ experiences, whereas the understandings ofpsychological staff who have engaged therapeuically with individuals making decisions to decline curative cancer treatment are missing from the literature. Utilising Interpretative Phenomenological Analysis, this study reports on qualified psychologists’ experiences of working with individuals who have declined curative cancer treatment. Discussion of findings and consideration for clinical and research implications are provided.