P18 Caring for people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic: a transcontinental study

Journal article


Paul Horan, Melissa Desroches, Daniel Marsden, Kathleen Fisher,, Judith Stych,, Sarah Ailey, Shirley McMillan, Henrietta Tripp and Nathan Wilson 2022. P18 Caring for people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic: a transcontinental study. Journal of Epidemiology & Community Health. 76 (Suppl. 1). https://doi.org/10.1136/jech-2022-SSMabstracts.116
AuthorsPaul Horan, Melissa Desroches, Daniel Marsden, Kathleen Fisher,, Judith Stych,, Sarah Ailey, Shirley McMillan, Henrietta Tripp and Nathan Wilson
Abstract

Background

The COVID-19 pandemic has caused substantial challenges to the support systems of people with intellectual and developmental disabilities (IDD) internationally – this study explored the care experiences of people with (IDD) as reported by nurses in Ireland, the UK, the USA, Canada, Australia and New Zealand.

Aim

The aim of this study was to carry out an international investigation into the basic care needs experience of people with IDD one year into the Covid 19 pandemic internationally, as observed by nurses.

Methods

An online 52-item questionnaire was used to survey a convenience sample of 369 nurses across North America, Europe and Australasia. Descriptive statistics were used to rank the challenges in caring for PWIDD. Manifest content analysis was used to analyse open-ended responses. This study was approved by the Institutional Ethics Review Board at one of the co-author’s educational institution.

Results

The quantitative findings from this study were similar across global regions in terms of the challenges faced by people with IDD, including disrupted socialisation with family/friends, limitations to day programming or educational activities, ensuring sufficient staffing to care for people with IDD and coping with pandemic related changes.

Qualitative content analysis of open-ended survey responses revealed many challenges for people with IDD during the pandemic which included, issues relating to meaningful socialisation and daytime activation for positive mental/behavioural health and issues regarding access to the quality healthcare care and understating and adapting to changing public health guidelines.

Conclusion

Overall this study revealed that the COVID-19 pandemic exposed the existing often unrecognized health and care inequities experienced by people with IDD. Continuing issues with access to care and support for people with IDD in health and social care settings were further impaired by the pandemic. The importance of having meaningful activity and socialization for overall well-being of people with IDD during a long-term public health crisis became very much apparent in the study’s findings.

This is especially tragic in a group already experiencing inequitable distribution of healthcare, compounding existing disadvantages across a multitude of life domains. These problems are often accentuated by the stigma associated with disability, and a lack of understanding of the healthcare needs of this population. This study benefited greatly from an international collaboration made more possible due great advances in virtual communication during the pandemic.

KeywordsLearning Disabilities; Intellectual Disabilities ; Covid 19
Year2022
JournalJournal of Epidemiology & Community Health
Journal citation76 (Suppl. 1)
PublisherBMJ Publishing Group
ISSN0143-005X
1470-2738
Digital Object Identifier (DOI)https://doi.org/10.1136/jech-2022-SSMabstracts.116
Official URLhttps://jech.bmj.com/content/76/Suppl_1/A56.1
Publication process dates
Deposited05 Jan 2023
EventSociety for Social Medicine & Population Health 66th Annual Scientific meeting
File
File Access Level
Open
Permalink -

https://repository.canterbury.ac.uk/item/93672/p18-caring-for-people-with-intellectual-and-developmental-disabilities-idd-during-the-covid-19-pandemic-a-transcontinental-study

Download files


File
  • 4
    total views
  • 0
    total downloads
  • 0
    views this month
  • 0
    downloads this month

Export as

Related outputs

Intellectual disability nursing throughout the lifespan
Marsden, D., Doyle, C., Carey, E. and Ridley, J. 2023. Intellectual disability nursing throughout the lifespan. in: Learning and Intellectual Disability Nursing Practice Routledge, Taylor and Francis.
The COVID-19 pandemic experiences of people with intellectual and developmental disabilities (PWIDD) through a nursing lens: Global Perspectives
Daniel Marsden, Melissa Desroches, Kathleen Fisher, Judith Stych, Sarah Ailey, Shirley McMillan, Henrietta Trip and Nathan Wilson 2022. The COVID-19 pandemic experiences of people with intellectual and developmental disabilities (PWIDD) through a nursing lens: Global Perspectives.
International nursing actions to reduce health inequities faced by people with intellectual and developmental disability
Marsden, D., Fisher, K., Desroches, M., Rees, S., Northway, R., Horan, P., Stych, J., Ailey, S., Trip, H. and Wilson, N. 2022. International nursing actions to reduce health inequities faced by people with intellectual and developmental disability. Online Journal of Issues in Nursing. https://doi.org/10.3912/OJIN.Vol27No03Man07
Supporting the needs of people with developmental disabilities one year into the COVID-19 pandemic: An international, mixed methods study of nurses’ perspectives
Desroches, M., Fisher, K., Ailey, S., Stych, J., McMillan, S., Horan, P., Marsden, D., Trip, H. and Wilson, N. 2022. Supporting the needs of people with developmental disabilities one year into the COVID-19 pandemic: An international, mixed methods study of nurses’ perspectives. Journal of Policy and Practice in Intellectual Disabilities. https://doi.org/10.1111/jppi.12411
A training resource to educate students about learning disabilities
Harper, L., Marsden, D., Darko, E., Summers, J., Scriverer, Hannah, Otasanya, Carolyn and Ambridge, A. 2020. A training resource to educate students about learning disabilities. Nursing Times. 116 (4), pp. 23-26.
Developing a training course to teach research skills to people with learning disabilities: “It gives us a voice. We CAN be researchers!”.
Tuffrey-Wijne, I., Lam, C., Marsden, D., Stapelberg, D., Newton, D., McDermott, M., Keagan-Bull, R., Jordon, L., Jeffrey, D., Harris, C. and Conway, B. 2020. Developing a training course to teach research skills to people with learning disabilities: “It gives us a voice. We CAN be researchers!”. British Journal of Learning Disabilities. 48 (4), pp. 301-314. https://doi.org/10.1111/bld.12331
Providing holistic care
Marsden, D. and Cooper, S. 2020. Providing holistic care. in: Heslop, P. and Hebron, C. (ed.) Promoting the Health and Well-Being of People with Learning Disabilities Cham Springer.
Supporting people with learning disabilities who identify as LGBT to express their sexual and gender identities
Robinson, Z., Marsden, D., Abdulla, S. and Dowling, F. 2020. Supporting people with learning disabilities who identify as LGBT to express their sexual and gender identities. Learning Disability Practice. https://doi.org/10.7748/ldp.2020.e2094
Inclusion of learning disability research in nursing journals : a review of 5 international journals 2013-2017
Marsden, D., Northway, R., Ross, S. and Statham, D. 2019. Inclusion of learning disability research in nursing journals : a review of 5 international journals 2013-2017.
An update on informed consent and the effect on the clinical practice of those working with people with a learning disability
Adams, D., Marsden, D., Carr, C. and Senior, K. 2018. An update on informed consent and the effect on the clinical practice of those working with people with a learning disability. Learning Disability Practice. https://doi.org/10.7748/ldp.2018.e1855
The 4C framework for making reasonable adjustments for people with learning disabilities
Marsden, D. and Giles, R. 2017. The 4C framework for making reasonable adjustments for people with learning disabilities. Nursing Standard. https://doi.org/10.7748/ns.2017.e10152
Cardiology
Marsden, D. 2016. Cardiology. in: Hardy, S., Chaplin, E. and Woodward, P. (ed.) Supporting the Physical Health Needs of People with Learning Disabilities : A Handbook for Professionals, Support Staff and Families Pavilion Publishing Ltd.
Respiratory illness
Marsden, D. 2016. Respiratory illness. in: Hardy, S., Chaplin, E. and Woodward, P. (ed.) Supporting the Physical Health Needs of People with Learning Disabilities : A Handbook for Professionals, Support Staff and Families Pavilion Publishing Ltd.
The twenty-first century : networking for success
Marsden, D. 2015. The twenty-first century : networking for success. in: Gates, B., Fearns, D. and Welch, J. (ed.) Learning Disability Nursing at a Glance Wiley-Blackwell. pp. 155-156
How East Kent is making the NHS workforce more inclusive
Marsden, D. 2013. How East Kent is making the NHS workforce more inclusive. Health Service Journal.
Networking opportunities for learning disability nurses
Abdulla, S., Marsden, D., Wilson, S. and Parker, M. 2013. Networking opportunities for learning disability nurses. Learning Disability Practice. 16 (5), pp. 30-32. https://doi.org/10.7748/ldp2013.06.16.5.30.e1434
Parking to achieve conscious competence: A reflection about practice development in the context of people with learning disabilities using hospital services
Marsden, D. 2012. Parking to achieve conscious competence: A reflection about practice development in the context of people with learning disabilities using hospital services. International Practice Development Journal. 2 (1).
The role of technology in learning disability nursing
Marsden, D., Green, A., March, T. and Ledington, S. 2012. The role of technology in learning disability nursing. Learning Disability Practice. 15 (3), pp. 28-30. https://doi.org/10.7748/ldp2012.04.15.3.28.c9009
Focus on the future
Atkinson, D., Marsden, D. and Menneer, N. 2012. Focus on the future. Learning Disability Practice. 15 (2), p. 9. https://doi.org/10.7748/ldp2012.03.15.2.9.p7683
Critical policy
Marsden, D. 2002. Critical policy. Learning Disability Practice. 5 (3), pp. 20-23. https://doi.org/10.7748/ldp.5.3.20.s14