Mobile technology use by people experiencing multiple sclerosis fatigue: survey methodology

Journal article

Van Kessel, K., Babbage, D. R., Reay, N., Miner-Williams, W. M. and Kersten, P. 2017. Mobile technology use by people experiencing multiple sclerosis fatigue: survey methodology. JMIR mHealth and uHealth. 5 (2). https://doi.org/10.2196/mhealth.6192
AuthorsVan Kessel, K., Babbage, D. R., Reay, N., Miner-Williams, W. M. and Kersten, P.
Abstract

Background:

Fatigue is one of the most commonly reported symptoms of multiple sclerosis (MS). It has a profound impact on all spheres of life, for people with MS and their relatives. It is one of the key precipitants of early retirement. Individual, group, and Internet cognitive behavioral therapy–based approaches to supporting people with MS to manage their fatigue have been shown to be effective.

Objective:

The aim of this project was to (1) survey the types of mobile devices and level of Internet access people with MS use or would consider using for a health intervention and (2) characterize the levels of fatigue severity and their impact experienced by the people in our sample to provide an estimate of fatigue severity of people with MS in New Zealand. The ultimate goal of this work was to support the future development of a mobile intervention for the management of fatigue for people with MS.

Methods:

Survey methodology using an online questionnaire was used to assess people with MS. A total of 51 people with MS participated. The average age was 48.5 years, and the large majority of the sample (77%) was female.

Results:

Participants reported significant levels of fatigue as measured with the summary score of the Neurological Fatigue Index (mean 31.4 [SD 5.3]). Most (84%) respondents scored on average more than 3 on the fatigue severity questions, reflecting significant fatigue. Mobile phone usage was high with 86% of respondents reporting having a mobile phone; apps were used by 75% of respondents. Most participants (92%) accessed the Internet from home.

Conclusions:

New Zealand respondents with MS experienced high levels of both fatigue severity and fatigue impact. The majority of participants have a mobile device and access to the Internet. These findings, along with limited access to face-to-face cognitive behavioral therapy–based interventions, create an opportunity to develop a mobile technology platform for delivering a cognitive behavioral therapy–based intervention to decrease the severity and impact of fatigue in people with MS.

KeywordsMultiple sclerosis; MS; Fatigue; Mobile technology; Mobile technology use; Health intervention
Year2017
JournalJMIR mHealth and uHealth
Journal citation5 (2)
PublisherJMIR Publications
ISSN2291-5222
Digital Object Identifier (DOI)https://doi.org/10.2196/mhealth.6192
Official URLhttps://mhealth.jmir.org/2017/2/e6/
Publication dates
Online28 Feb 2017
Publication process dates
Accepted22 Dec 2016
Deposited21 Apr 2022
Publisher's version
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Open
Output statusPublished
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