Mobile technology use by people experiencing multiple sclerosis fatigue: survey methodology

Journal article


Van Kessel, K., Babbage, D. R., Reay, N., Miner-Williams, W. M. and Kersten, P. 2017. Mobile technology use by people experiencing multiple sclerosis fatigue: survey methodology. JMIR mHealth and uHealth. 5 (2). https://doi.org/10.2196/mhealth.6192
AuthorsVan Kessel, K., Babbage, D. R., Reay, N., Miner-Williams, W. M. and Kersten, P.
Abstract

Background:

Fatigue is one of the most commonly reported symptoms of multiple sclerosis (MS). It has a profound impact on all spheres of life, for people with MS and their relatives. It is one of the key precipitants of early retirement. Individual, group, and Internet cognitive behavioral therapy–based approaches to supporting people with MS to manage their fatigue have been shown to be effective.

Objective:

The aim of this project was to (1) survey the types of mobile devices and level of Internet access people with MS use or would consider using for a health intervention and (2) characterize the levels of fatigue severity and their impact experienced by the people in our sample to provide an estimate of fatigue severity of people with MS in New Zealand. The ultimate goal of this work was to support the future development of a mobile intervention for the management of fatigue for people with MS.

Methods:

Survey methodology using an online questionnaire was used to assess people with MS. A total of 51 people with MS participated. The average age was 48.5 years, and the large majority of the sample (77%) was female.

Results:

Participants reported significant levels of fatigue as measured with the summary score of the Neurological Fatigue Index (mean 31.4 [SD 5.3]). Most (84%) respondents scored on average more than 3 on the fatigue severity questions, reflecting significant fatigue. Mobile phone usage was high with 86% of respondents reporting having a mobile phone; apps were used by 75% of respondents. Most participants (92%) accessed the Internet from home.

Conclusions:

New Zealand respondents with MS experienced high levels of both fatigue severity and fatigue impact. The majority of participants have a mobile device and access to the Internet. These findings, along with limited access to face-to-face cognitive behavioral therapy–based interventions, create an opportunity to develop a mobile technology platform for delivering a cognitive behavioral therapy–based intervention to decrease the severity and impact of fatigue in people with MS.

KeywordsMultiple sclerosis; MS; Fatigue; Mobile technology; Mobile technology use; Health intervention
Year2017
JournalJMIR mHealth and uHealth
Journal citation5 (2)
PublisherJMIR Publications
ISSN2291-5222
Digital Object Identifier (DOI)https://doi.org/10.2196/mhealth.6192
Official URLhttps://mhealth.jmir.org/2017/2/e6/
Publication dates
Online28 Feb 2017
Publication process dates
Accepted22 Dec 2016
Deposited21 Apr 2022
Publisher's version
License
File Access Level
Open
Output statusPublished
Permalink -

https://repository.canterbury.ac.uk/item/90yx5/mobile-technology-use-by-people-experiencing-multiple-sclerosis-fatigue-survey-methodology

Download files


Publisher's version
PDF.pdf
License: CC BY 4.0
File access level: Open

  • 15
    total views
  • 4
    total downloads
  • 1
    views this month
  • 0
    downloads this month

Export as

Related outputs

Benefits of realist evaluation for rapidly changing health service delivery
Jagosh, J., Stott, H., Halls, S., Thomas, R., Liddiard, C., Cupples, M., Cramp, F., Kersten, P., Foster, D. and Walsh, N.E. 2022. Benefits of realist evaluation for rapidly changing health service delivery. BMJ Open. 12 (e060347), pp. 1-5. https://doi.org/10.1136/bmjopen-2021-060347
Collegial surface acting emotional labour, burnout, and intention to leave in novice and pre-retirement nurses in the United Kingdom: a cross sectional study.
Theodosius, C., Koulougliotti, C., Kersten, P., Rosten, C., Clarke, A. and Warren, Z. 2021. Collegial surface acting emotional labour, burnout, and intention to leave in novice and pre-retirement nurses in the United Kingdom: a cross sectional study. Nursing Open. 8 (1), pp. 463-472. https://doi.org/10.1002/nop2.649
Design considerations for a Multiple Sclerosis Fatigue mobile app MS Energize: A pragmatic iterative approach using usability testing and resonance checks.
Van Kessel, K., Babbage, D., Kersten, P., Drown, J., Sezier, A., Thomas, P. and Thomas, S. 2021. Design considerations for a Multiple Sclerosis Fatigue mobile app MS Energize: A pragmatic iterative approach using usability testing and resonance checks. Internet Interventions. 24, p. 100371. https://doi.org/10.1016/j.invent.2021.100371
The immediate and subsequent impact of a first-time traumatic anterior shoulder dislocation, results from a national cohort study
Olds, M., Ellis, R., Parmar, P. and Kersten, P. 2020. The immediate and subsequent impact of a first-time traumatic anterior shoulder dislocation, results from a national cohort study. Shoulder and Elbow. 13 (2), pp. 223-232. https://doi.org/10.1177/1758573220921484
Predicting Recurrent Instability of the Shoulder (PRIS): A valid prediction tool of patients who will not have repeat shoulder instability after first-Time traumatic anterior dislocation
Olds, M., Ellis, R. and Kersten, P. 2020. Predicting Recurrent Instability of the Shoulder (PRIS): A valid prediction tool of patients who will not have repeat shoulder instability after first-Time traumatic anterior dislocation. Journal of Orthopaedic & Sports Physical Therapy. 50 (8), pp. 431-469. https://doi.org/10.2519/jospt.2020.9284
Provision of first contact physiotherapy in primary care across the UK: A survey of the service
Halls, S., Thomas. R., Stott, H., Cupples, M. E., Kersten, P., Cramp, F., Foster, D. and Walsh, N. 2020. Provision of first contact physiotherapy in primary care across the UK: A survey of the service. Physiotherapy. 108, pp. 2-9. https://doi.org/10.1016/j.physio.2020.04.005
Developing clinical expertise in musculoskeletal physiotherapy; Using observed practice to create a valued practice-based collaborative learning cycle
Carr, M., Morris, J. and Kersten, P. 2020. Developing clinical expertise in musculoskeletal physiotherapy; Using observed practice to create a valued practice-based collaborative learning cycle. Musculoskeletal Science and Practice. 50, p. 102278. https://doi.org/10.1016/j.msksp.2020.102278
Who will redislocate his/her shoulder? Predicting recurrent instability following a first traumatic anterior shoulder dislocation
Olds, M. K., Ellis, R., Parmar, P. and Kersten, P. 2019. Who will redislocate his/her shoulder? Predicting recurrent instability following a first traumatic anterior shoulder dislocation. BMJ Open Sport and Exercise Medicine. 5 (1). https://doi.org/10.1136/bmjsem-2018-000447
Digitizing a face-to-face group fatigue management program: exploring the views of people with multiple sclerosis and health care professionals via consultation groups and interviews
Thomas, S., Pulman, A., Thomas, P., Collard, S., Jiang, N., Dogan, H., Davies Smith, A., Hourihan, S., Roberts, F., Kersten, P., Pretty, K., Miller, J. K., Stanley, K. and Gay, M. 2019. Digitizing a face-to-face group fatigue management program: exploring the views of people with multiple sclerosis and health care professionals via consultation groups and interviews. JMIR Formative Research. 3 (2). https://doi.org/10.2196/10951
Incidence and outcomes of major trauma in New Zealand: findings from a feasibility study of New Zealand’s first national trauma registry
Czuba, K. J., Kersten, P., Anstiss, D., Kayes, N. M., Gabbe. B. J., Civil, I., Kool, B., Terry, G., Smith, G. A., Rohan, M. and Siegert, R. J. 2019. Incidence and outcomes of major trauma in New Zealand: findings from a feasibility study of New Zealand’s first national trauma registry. The New Zealand Medical Journal. 132 (1494), pp. 26-40.
Optimising the real-world impact of rehabilitation reviews: increasing the relevance and usability of systematic reviews in rehabilitation
Kayes, N., Martin, R. A., Bright, F. A. S., Kersten, P. and Pollock, A. 2019. Optimising the real-world impact of rehabilitation reviews: increasing the relevance and usability of systematic reviews in rehabilitation. European Journal of Physical and Rehabilitation Medicine. 55 (3), pp. 331-341. https://doi.org/10.23736/S1973-9087.19.05793-9
MS Energize: Field trial of an app for self-management of fatigue for people with multiple sclerosis
Babbage, D., Van Kessel, K., Drown, J., Thomas, S., Sezier, A., Thomas, P. and Kersten, P. 2019. MS Energize: Field trial of an app for self-management of fatigue for people with multiple sclerosis. Internet Interventions. https://doi.org/10.1016/j.invent.2019.100291
The Nijmegen Questionnaire: a valid measure for hyperventilation
Li Ogilvie, V., Kayes, N. and Kersten, P. 2019. The Nijmegen Questionnaire: a valid measure for hyperventilation. New Zealand Journal of Physiotherapy. 47 (3), pp. 160-171. https://doi.org/10.15619/NZJP/47.3.04
Cluster-randomised controlled trial of an occupational therapy intervention for children aged 11-13 years, designed to increase participation in order to prevent symptoms of mental illness
Tokolahi E., Vandal A., Kersten, P., Pearson J. and Hocking C. 2018. Cluster-randomised controlled trial of an occupational therapy intervention for children aged 11-13 years, designed to increase participation in order to prevent symptoms of mental illness. Child and Adolescent Mental Health. 23 (4), pp. 313-327. https://doi.org/10.1111/camh.12270
Developing a comprehensive framework of community integration for people with ABI: A conceptual analysis.
Shaikh, N., Kersten, P., Siegert, R. J. and Theodom, A. 2018. Developing a comprehensive framework of community integration for people with ABI: A conceptual analysis. Disability and Rehabilitation. 41 (4). https://doi.org/10.1080/09638288.2018.1443163
Strengths and Difficulties Questionnaire: internal validity and reliability for New Zealand pre-schoolers
Kersten, P., Vandal, A. C., Elder, H. and McPherson, K. M. 2018. Strengths and Difficulties Questionnaire: internal validity and reliability for New Zealand pre-schoolers. BMJ Open. 8 (4). https://doi.org/10.1136/bmjopen-2018-021551
Development of a toolkit to enhance care processes for people with a long-term neurological condition: a qualitative descriptive study
Sezier, A., Mudge, S., Kayes, N., Kersten, P., Payne, D., Harwood, M., Potter, E., Smith, G. and McPherson, K. M. 2018. Development of a toolkit to enhance care processes for people with a long-term neurological condition: a qualitative descriptive study. BMJ Open. 8 (6). https://doi.org/10.1136/bmjopen-2018-022038
Making sense of recovery after traumatic brain injury through a peer mentoring intervention: a qualitative exploration
Kersten, P., Cummins, C., Kayes, N., Babbage, D., Elder, H., Foster, A., Weatherall, M., Siegert, R. J., Smith, G. and McPherson, K. 2018. Making sense of recovery after traumatic brain injury through a peer mentoring intervention: a qualitative exploration. BMJ Open. 8 (10). https://doi.org/10.1136/bmjopen-2017-020672
Mapping the rehabilitation interventions of a community stroke team to the Extended International Classification of Functioning, Disability and Health Core Set for Stroke
Evans, M., Hocking, C. and Kersten, P. 2017. Mapping the rehabilitation interventions of a community stroke team to the Extended International Classification of Functioning, Disability and Health Core Set for Stroke. Disability and Rehabilitation. 39 (25). https://doi.org/10.1080/09638288.2016.1239763
Improving precision of the Five Facet Mindfulness Questionnaire using a Rasch approach.
Oleg N. Medvedev, Richard J. Siegert, Paula Kersten and Christian U. Krägeloh 2017. Improving precision of the Five Facet Mindfulness Questionnaire using a Rasch approach. Mindfulness. 8 (4), pp. 995-1008. https://doi.org/10.1007/s12671-016-0676-8
Concurrent validity of the Strengths and Difficulties Questionnaire in an indigenous pre-school population
Paula Kersten, Alain C. Vandal, Hinemoa Elder, Robyn Tauroa and Kathryn M. McPherson 2017. Concurrent validity of the Strengths and Difficulties Questionnaire in an indigenous pre-school population. Journal of Child and Family Studies. 26, p. 2126–2135. https://doi.org/10.1007/s10826-017-0725-5
Te Waka Kuaka, Rasch analysis of a cultural assessment tool in traumatic brain injury in Māori
Elder, H., Czuba, K., Kersten, P., Caracuel, A. and McPherson, K. 2017. Te Waka Kuaka, Rasch analysis of a cultural assessment tool in traumatic brain injury in Māori. F1000Research. 6 (1034). https://doi.org/10.12688/f1000research.11500.1
Measuring neurobehavioral functioning in people with traumatic brain injury: Rasch analysis of Neurobehavioral Functioning Inventory.
Czuba KJ, Kersten, P, Kayes NM, Smith G, Barker-Collo SL, Taylor WJ and McPherson KM 2016. Measuring neurobehavioral functioning in people with traumatic brain injury: Rasch analysis of Neurobehavioral Functioning Inventory. Journal of Head Trauma Rehabilitation. 31 (4), pp. E59-E68. https://doi.org/10.1097/HTR.0000000000000170
In children aged 18 years and under, what promotes recurrent shoulder instability after traumatic anterior shoulder dislocation? A systematic review and meta-analysis of risk factors.
Olds, M., Donaldson, K., Ellis, R. and Kersten, P. 2016. In children aged 18 years and under, what promotes recurrent shoulder instability after traumatic anterior shoulder dislocation? A systematic review and meta-analysis of risk factors. British Journal of Sports Medicine. https://doi.org/10.1136/bjsports-2015-095149
Development and content of a school-based occupational therapy intervention for promoting emotional wellbeing in children
Ema Tokolahi, Clare Hocking and Paula Kersten 2016. Development and content of a school-based occupational therapy intervention for promoting emotional wellbeing in children. Occupational Therapy in Mental Health. 32 (3), pp. 245-258. https://doi.org/10.1080/0164212X.2015.1129522
Making time; deeper connection, fuller stories, best practice. Experiences of Māori and non-Māori nurse-researchers
Hinemoa Elder, Paula Kersten, Kathryn McPherson, Lyn Dawson, Harry Harrison, Jaquie Harrison and Adrienne Poulter 2016. Making time; deeper connection, fuller stories, best practice. Experiences of Māori and non-Māori nurse-researchers. Annals of Psychiatry and Mental Health. 4 (6).
What influences the implementation of the New Zealand Stroke Guidelines for Physiotherapists and Occupational Therapists?
Suzie Mudge, Sankaran Murugan, Anna Hart and Paula Kersten 2016. What influences the implementation of the New Zealand Stroke Guidelines for Physiotherapists and Occupational Therapists? Disability and Rehabilitation. 39 (5), pp. 511-518. https://doi.org/10.3109/09638288.2016.1146361
Cross-cultural acceptability and utility of the Strengths and Difficulties Questionnaire: views of families
Kersten, P., Dudley, M., Nayar, S., Elder, H., Robertson, H., Tauroa, R. and McPherson, K. M. 2016. Cross-cultural acceptability and utility of the Strengths and Difficulties Questionnaire: views of families. BMC Psychiatry. 16 (347). https://doi.org/doi.org/10.1186/s12888-016-1063-7
Ordinal-to-interval scale conversion tables and national items for the New Zealand version of the WHOQOL-BREF
Krägeloh, C. U., Billington, D. R., Hsien-Chuan Hsu, P., Feng, X. J., Medvedev, O. N., Kersten, P., Landon, J. and Siegert, R. J. 2016. Ordinal-to-interval scale conversion tables and national items for the New Zealand version of the WHOQOL-BREF. PLoS ONE. 11 (11). https://doi.org/10.1371/journal.pone.0166065
Exploring strategies used following a group-based fatigue management programme for people with multiple sclerosis (FACETS) via the Fatigue Management Strategies Questionnaire (FMSQ)
S Thomas, P Kersten, P W Thomas, V Slingsby, A Nock, R Jones, A Davies Smith, K T Galvin, R Baker and C Hillier Exploring strategies used following a group-based fatigue management programme for people with multiple sclerosis (FACETS) via the Fatigue Management Strategies Questionnaire (FMSQ). BMJ Open. 2015 (5), p. e008274.. https://doi.org/10.1136/bmjopen-2015-008274.
A critical review of the psychometric properties of the Nijmegen Questionnaire for hyperventilation syndrome.
Ogilvie, V. L. and Kersten, P. 2015. A critical review of the psychometric properties of the Nijmegen Questionnaire for hyperventilation syndrome. New Zealand Journal of Physiotherapy. 43 (1). https://doi.org/10.15619/NZJP/43.1.01
Exploring researchers’ experiences of working with people with acquired brain injury
Greenwood, A., Theadom, A., Kersten, P. and McPherson, K. 2015. Exploring researchers’ experiences of working with people with acquired brain injury. Brain Injury. 29 (5). https://doi.org/10.3109/02699052.2014.1002422
Risk factors which predispose first-time anterior traumatic shoulder dislocations to recurrent instability in adults: A systematic review and meta-analysis
Olds, M., Ellis, R., Donaldson, K., Parmar, P. and Kersten, P. 2015. Risk factors which predispose first-time anterior traumatic shoulder dislocations to recurrent instability in adults: A systematic review and meta-analysis. British Journal of Sports Medicine. 49 (14). https://doi.org/10.1136/bjsports-2015-094584
Whakawhiti korero, a method for the development of a cultural assessment tool, Te Waka Kuaka in Maori traumatic brain injury
Elder, H. and Kersten, P. 2015. Whakawhiti korero, a method for the development of a cultural assessment tool, Te Waka Kuaka in Maori traumatic brain injury. Behavioural Neurology. https://doi.org/10.1155/2015/137402
A systematic review of evidence for the psychometric properties of the Strengths and Difficulties Questionnaire
Paula Kersten, Karol Czuba, Kathryn McPherson, Margaret Dudley, Hinemoa Elder, Robyn Tauroa and Alain Vandal 2015. A systematic review of evidence for the psychometric properties of the Strengths and Difficulties Questionnaire. International Journal of Behavioral Development. https://doi.org/10.1177/0165025415570647
Quality and reporting of cluster randomised controlled trials evaluating occupational therapy interventions: A systematic review
Ema Tokolahi, Clare Hocking, Paula Kersten and Alain C. Vandal 2015. Quality and reporting of cluster randomised controlled trials evaluating occupational therapy interventions: A systematic review. OTJR: Occupation, Participation and Health. 36 (1), pp. 14-24. https://doi.org/10.1177/1539449215618625
One year follow-up of a pragmatic multi-centre randomised controlled trial of a group-based fatigue management programme (FACETS) for people with MS.
Thomas P., Thomas S., Kersten P., Jones R., Slingsby V., Nock A., Davies Smith A., Baker R., Galvin K. and Hillier C. 2014. One year follow-up of a pragmatic multi-centre randomised controlled trial of a group-based fatigue management programme (FACETS) for people with MS. BMC Neurology. 14. https://doi.org/10.1186/1471-2377-14-109
Is the pain Visual Analogue Scale linear and responsive to change? An exploration using Rasch analysis
Kersten, P., White, P. J. and Tennant, A. 2014. Is the pain Visual Analogue Scale linear and responsive to change? An exploration using Rasch analysis. PLoS ONE. 9 (6), p. e99485. https://doi.org/10.1371/journal.pone.0099485
Cluster-randomised controlled trial of an occupational therapy group intervention for children designed to promote emotional wellbeing: study protocol
Tokolahi, E. M., Hocking, C., Kersten, P. and Vandal, A. C. 2014. Cluster-randomised controlled trial of an occupational therapy group intervention for children designed to promote emotional wellbeing: study protocol. BMC Psychology. 2. https://doi.org/10.1186/2050-7283-2-16
The Patient-Rated Wrist and Hand Evaluation: a systematic review of its validity and reliability
Taylor, J. and Kersten, P. 2014. The Patient-Rated Wrist and Hand Evaluation: a systematic review of its validity and reliability. New Zealand Journal of Physiotherapy. 42 (2), pp. 139-145. https://doi.org/10.15619/nzjp/42.3.01
Older adults’ experiences of community integration following traumatic brain injury.
Kent, J., Kersten, P. and Wright-St Clair, V. 2014. Older adults’ experiences of community integration following traumatic brain injury. New Zealand Journal of Physiotherapy. 42 (3), pp. 148-153.
The Multiple Sclerosis Fatigue Self-Efficacy Scale (MS-FSE): initial validation
Thomas, S., Kersten, P. and Thomas, P. 2014. The Multiple Sclerosis Fatigue Self-Efficacy Scale (MS-FSE): initial validation. Clinical Rehabilitation. 29 (4), pp. 376-387. https://doi.org/10.1177/0269215514543702
Bridging the gap between goal intentions and actions: a systematic review in patient populations
Kersten, P., McCambridge, A., McPherson, K., Kayes, N. and Theadom, A. 2014. Bridging the gap between goal intentions and actions: a systematic review in patient populations. Disability and Rehabilitation. 37 (7), p. 563=570. https://doi.org/10.3109/09638288.2014.935874
Using feedback from patient-reported outcome measures in mental health services: A scoping study and typology.
Krägeloh CU, Czuba K, Billington R, Kersten, P and Siegert R 2014. Using feedback from patient-reported outcome measures in mental health services: A scoping study and typology. Psychiatric Services. 66 (3), pp. 224-241. https://doi.org/10.1176/appi.ps.201400141
Bridging the goal intention-action gap in rehabilitation: a study of if-then implementation intentions in neurorehabilitation
Kersten, P., McPherson, K. M., Kayes, N. M., Theadom, A. and McCambridge, A. 2014. Bridging the goal intention-action gap in rehabilitation: a study of if-then implementation intentions in neurorehabilitation. Disability & Society. 37 (12), pp. 1073-1081. https://doi.org/10.3109/09638288.2014.955137