Developing a training course to teach research skills to people with learning disabilities: “It gives us a voice. We CAN be researchers!”.

Journal article


Tuffrey-Wijne, I., Lam, C., Marsden, D., Stapelberg, D., Newton, D., McDermott, M., Keagan-Bull, R., Jordon, L., Jeffrey, D., Harris, C. and Conway, B. 2020. Developing a training course to teach research skills to people with learning disabilities: “It gives us a voice. We CAN be researchers!”. British Journal of Learning Disabilities. 48 (4), pp. 301-314. https://doi.org/10.1111/bld.12331
AuthorsTuffrey-Wijne, I., Lam, C., Marsden, D., Stapelberg, D., Newton, D., McDermott, M., Keagan-Bull, R., Jordon, L., Jeffrey, D., Harris, C. and Conway, B.
Abstract

Background
Within learning disability research, it is important to involve people with learning disabilities at all stages, but there are limited opportunities for them to learn about the research process or to gain research skills.

Method
An eight-session research training course for people with learning disabilities was developed and piloted at a university in London. The focus was on understanding the research process and gaining practical skills in collecting, analysing and presenting research data. Training methods were experimental, with an emphasis on learning by experience in a “fun” way.

Results
Ten people with learning disabilities completed the course, showing great enthusiasm and commitment. During the final sessions, students developed and conducted their own research projects, choosing “Employment” as their research topic. The training methods were well received. Benefits included an increase in confidence and new work opportunities for several of the students. This paper was co-authored by the tutors and most of the course graduates.

Conclusion
It is possible for people with learning disabilities to become skilled researchers, but in order to do so, it is important that they have adequate training opportunities. Funding should be made available for more such courses.

KeywordsIntellectual disability; Research; Training
Year2020
JournalBritish Journal of Learning Disabilities
Journal citation48 (4), pp. 301-314
PublisherWiley
ISSN1354-4187
1468-3156
Digital Object Identifier (DOI)https://doi.org/10.1111/bld.12331
Official URLhttps://onlinelibrary.wiley.com/doi/10.1111/bld.12331
Publication dates
Print22 May 2020
Publication process dates
Accepted22 Apr 2020
Deposited03 Mar 2022
Publisher's version
License
Output statusPublished
Permalink -

https://repository.canterbury.ac.uk/item/908ww/developing-a-training-course-to-teach-research-skills-to-people-with-learning-disabilities-it-gives-us-a-voice-we-can-be-researchers

  • 27
    total views
  • 16
    total downloads
  • 0
    views this month
  • 2
    downloads this month

Export as

Related outputs

Intellectual disability nursing throughout the lifespan
Marsden, D., Doyle, C., Carey, E. and Ridley, J. 2023. Intellectual disability nursing throughout the lifespan. in: Learning and Intellectual Disability Nursing Practice Routledge, Taylor and Francis.
P18 Caring for people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic: a transcontinental study
Paul Horan, Melissa Desroches, Daniel Marsden, Kathleen Fisher,, Judith Stych,, Sarah Ailey, Shirley McMillan, Henrietta Tripp and Nathan Wilson 2022. P18 Caring for people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic: a transcontinental study. Journal of Epidemiology & Community Health. 76 (Suppl. 1). https://doi.org/10.1136/jech-2022-SSMabstracts.116
The COVID-19 pandemic experiences of people with intellectual and developmental disabilities (PWIDD) through a nursing lens: Global Perspectives
Daniel Marsden, Melissa Desroches, Kathleen Fisher, Judith Stych, Sarah Ailey, Shirley McMillan, Henrietta Trip and Nathan Wilson 2022. The COVID-19 pandemic experiences of people with intellectual and developmental disabilities (PWIDD) through a nursing lens: Global Perspectives.
International nursing actions to reduce health inequities faced by people with intellectual and developmental disability
Marsden, D., Fisher, K., Desroches, M., Rees, S., Northway, R., Horan, P., Stych, J., Ailey, S., Trip, H. and Wilson, N. 2022. International nursing actions to reduce health inequities faced by people with intellectual and developmental disability. Online Journal of Issues in Nursing. https://doi.org/10.3912/OJIN.Vol27No03Man07
Supporting the needs of people with developmental disabilities one year into the COVID-19 pandemic: An international, mixed methods study of nurses’ perspectives
Desroches, M., Fisher, K., Ailey, S., Stych, J., McMillan, S., Horan, P., Marsden, D., Trip, H. and Wilson, N. 2022. Supporting the needs of people with developmental disabilities one year into the COVID-19 pandemic: An international, mixed methods study of nurses’ perspectives. Journal of Policy and Practice in Intellectual Disabilities. https://doi.org/10.1111/jppi.12411
A training resource to educate students about learning disabilities
Harper, L., Marsden, D., Darko, E., Summers, J., Scriverer, Hannah, Otasanya, Carolyn and Ambridge, A. 2020. A training resource to educate students about learning disabilities. Nursing Times. 116 (4), pp. 23-26.
Providing holistic care
Marsden, D. and Cooper, S. 2020. Providing holistic care. in: Heslop, P. and Hebron, C. (ed.) Promoting the Health and Well-Being of People with Learning Disabilities Cham Springer.
Supporting people with learning disabilities who identify as LGBT to express their sexual and gender identities
Robinson, Z., Marsden, D., Abdulla, S. and Dowling, F. 2020. Supporting people with learning disabilities who identify as LGBT to express their sexual and gender identities. Learning Disability Practice. https://doi.org/10.7748/ldp.2020.e2094
Inclusion of learning disability research in nursing journals : a review of 5 international journals 2013-2017
Marsden, D., Northway, R., Ross, S. and Statham, D. 2019. Inclusion of learning disability research in nursing journals : a review of 5 international journals 2013-2017.
An update on informed consent and the effect on the clinical practice of those working with people with a learning disability
Adams, D., Marsden, D., Carr, C. and Senior, K. 2018. An update on informed consent and the effect on the clinical practice of those working with people with a learning disability. Learning Disability Practice. https://doi.org/10.7748/ldp.2018.e1855
The 4C framework for making reasonable adjustments for people with learning disabilities
Marsden, D. and Giles, R. 2017. The 4C framework for making reasonable adjustments for people with learning disabilities. Nursing Standard. https://doi.org/10.7748/ns.2017.e10152
Cardiology
Marsden, D. 2016. Cardiology. in: Hardy, S., Chaplin, E. and Woodward, P. (ed.) Supporting the Physical Health Needs of People with Learning Disabilities : A Handbook for Professionals, Support Staff and Families Pavilion Publishing Ltd.
Respiratory illness
Marsden, D. 2016. Respiratory illness. in: Hardy, S., Chaplin, E. and Woodward, P. (ed.) Supporting the Physical Health Needs of People with Learning Disabilities : A Handbook for Professionals, Support Staff and Families Pavilion Publishing Ltd.
The twenty-first century : networking for success
Marsden, D. 2015. The twenty-first century : networking for success. in: Gates, B., Fearns, D. and Welch, J. (ed.) Learning Disability Nursing at a Glance Wiley-Blackwell. pp. 155-156
How East Kent is making the NHS workforce more inclusive
Marsden, D. 2013. How East Kent is making the NHS workforce more inclusive. Health Service Journal.
Networking opportunities for learning disability nurses
Abdulla, S., Marsden, D., Wilson, S. and Parker, M. 2013. Networking opportunities for learning disability nurses. Learning Disability Practice. 16 (5), pp. 30-32. https://doi.org/10.7748/ldp2013.06.16.5.30.e1434
Parking to achieve conscious competence: A reflection about practice development in the context of people with learning disabilities using hospital services
Marsden, D. 2012. Parking to achieve conscious competence: A reflection about practice development in the context of people with learning disabilities using hospital services. International Practice Development Journal. 2 (1).
The role of technology in learning disability nursing
Marsden, D., Green, A., March, T. and Ledington, S. 2012. The role of technology in learning disability nursing. Learning Disability Practice. 15 (3), pp. 28-30. https://doi.org/10.7748/ldp2012.04.15.3.28.c9009
Focus on the future
Atkinson, D., Marsden, D. and Menneer, N. 2012. Focus on the future. Learning Disability Practice. 15 (2), p. 9. https://doi.org/10.7748/ldp2012.03.15.2.9.p7683
Critical policy
Marsden, D. 2002. Critical policy. Learning Disability Practice. 5 (3), pp. 20-23. https://doi.org/10.7748/ldp.5.3.20.s14