Older lesbian, gay, bisexual, transgender, queer and intersex peoples’ experiences and perceptions of receiving home care services in the community: A systematic review

Journal article


Smith, R. and Wright, T. 2021. Older lesbian, gay, bisexual, transgender, queer and intersex peoples’ experiences and perceptions of receiving home care services in the community: A systematic review. International Journal of Nursing Studies. 118. https://doi.org/10.1016/j.ijnurstu.2021.103907
AuthorsSmith, R. and Wright, T.
Abstract

Background
Numbers of older lesbian, gay, bisexual, transgender, queer and intersex (LGBTQI+) people are increasing worldwide in line with the ageing populations of many countries. Most LGBTQI+ people want to remain in their own homes as they age, making it important to understand their experiences and perceptions of receiving home care. This systematic review aimed to examine older (over 60 years) LGBTQI+ people's perceptions and experiences of using formal home care services in the community.

Methods
The following six electronic databases were searched from the date of their first records until the first week of March 2020: MEDLINE; PsycINFO; Social Policy and Practice; CINAHL; SSCI; and ASSIA. Hand searches of the reference lists of the included studies and relevant reviews were also conducted. Only peer reviewed research published in English was included. There were no restrictions on study design. Findings were analysed using narrative synthesis. The PROSPERO protocol registration identification number is: CRD42020168443.

Results
Seven studies involving 169 participants were included in the synthesis. All were qualitative. Most participants were either lesbian women or gay men, with no studies investigating home care for transgender, queer, intersex or other sexual minorities. Fear of accessing home care services due to the perceived threat of homophobia and past negative experiences of discrimination were common. Some concealed any LGBTQI+ materials in their homes to try and hide their sexuality from home care workers. Despite fear of discrimination, lesbian women and gay men reported wanting and expecting the same level of care, dignity and respect as their heterosexual counterparts. Mandatory LGBTQI+ sensitivity training for home care workers was identified for reducing homophobia and increasing the inclusivity of service providers.

Conclusion
Older lesbian women and gay men fear or experience discrimination from home care workers, with some choosing to hide their sexuality causing stress and anxiety. Sensitivity training in the needs of older LGBTQI+ people should be considered by home care service providers as a way of reducing homophobic attitudes which may exist among some home care workers. Due to the paucity of studies and their focus on older lesbian women and gay men, more research is needed to explore the experiences of other sexual minorities receiving home care services who are represented by the LGBTQI+ umbrella term.

KeywordsSexual and gender minorities ; LGBT; Aged people; Older people; Elderly people; Home care services
Year2021
JournalInternational Journal of Nursing Studies
Journal citation118
PublisherElsevier
ISSN0020-7489
Digital Object Identifier (DOI)https://doi.org/10.1016/j.ijnurstu.2021.103907
Official URLhttps://www.sciencedirect.com/science/article/abs/pii/S0020748921000390?via%3Dihub
Publication dates
Online25 Feb 2021
Publication process dates
Accepted17 Feb 2021
Deposited14 Jul 2021
Accepted author manuscript
License
File Access Level
Open
Output statusPublished
Permalink -

https://repository.canterbury.ac.uk/item/8xz0z/older-lesbian-gay-bisexual-transgender-queer-and-intersex-peoples-experiences-and-perceptions-of-receiving-home-care-services-in-the-community-a-systematic-review

Restricted files

Accepted author manuscript

  • 22
    total views
  • 0
    total downloads
  • 6
    views this month
  • 0
    downloads this month

Export as

Related outputs

What COVID-19 has taught us about social inequities and the urgent need for systemic change
Wright, T., Sah, R., Keys, C., Nanayakkara, G. and Onyejekwe, C. 2021. What COVID-19 has taught us about social inequities and the urgent need for systemic change. Public Health Nursing.
Necropolitical constructions of happy-ness, COVID-19 and higher education
Wright, T. and Keval, H. 2021. Necropolitical constructions of happy-ness, COVID-19 and higher education. Critical Studies on Security.
Integrated dementia care: A qualitative evidence synthesis of the experiences of people living with dementia, informal carers and healthcare professionals.
Smith, R., Martin, A., Wright, T., Hulbert, S. and Hatzidimitriadou, E. 2021. Integrated dementia care: A qualitative evidence synthesis of the experiences of people living with dementia, informal carers and healthcare professionals. Archives of Gerontology and Geriatrics. 97, p. 104471. https://doi.org/S0167-4943(21)00134-5
Uptake of, attitudes to and experiences of robotic assistive technology in health professionals, parents and carers of children and young adults with neurodisabilities: a protocol for a systematic review
Smith, R., Apps, J. and Hatzidimitriadou, E. 2021. Uptake of, attitudes to and experiences of robotic assistive technology in health professionals, parents and carers of children and young adults with neurodisabilities: a protocol for a systematic review. National Institute for Health Research.
The impact of COVID-19 on BAME populations: a systematic review of experiences and perspectives
Wright, T., Keval, H., Keys, C., Nanayakkara, G., Onyejekwe, C., Sah, R. and Smith, R. 2021. The impact of COVID-19 on BAME populations: a systematic review of experiences and perspectives. PROSPERO International prospective register of systematic reviews.
Health inequalities and ethnic vulnerabilities during COVID-19 in the UK: A reflection on the PHE reports
Keys, C., Nanayakkara, G., Onyejekwe, C., Sah, R. and Wright, T. 2021. Health inequalities and ethnic vulnerabilities during COVID-19 in the UK: A reflection on the PHE reports. Feminist Legal Studies. https://doi.org/10.1007/s10691-020-09446-y
The CASCADE project: exploring a ‘guest house’ concept
Smith, R., Wright, T., Martin, A. and Hatzidimitriadou, E. 2020. The CASCADE project: exploring a ‘guest house’ concept. Journal of Dementia Care. 28 (5), pp. 20-21.
HeEL Talk Collaboration and Interdisciplinary, Public Health England, and the Disproportionate Impact of Covid-19 on Black, Asian and Minority Ethnic (BAME) communities
Wright, T., Nanayakkara, G., Keys, C., Onyejekwe, C. and Sah, R. 2020. HeEL Talk Collaboration and Interdisciplinary, Public Health England, and the Disproportionate Impact of Covid-19 on Black, Asian and Minority Ethnic (BAME) communities.
A response to PHE's reports on disparities in risks and outcomes of COVID-19 for BAME communities
Keys, C., Nanayakkara, G., Onyejekwe, C., Sah, R. and Wright, T. 2020. A response to PHE's reports on disparities in risks and outcomes of COVID-19 for BAME communities.
Older LGBTQI+ people: a protocol for a systematic review of their experiences of receiving home care services in the community
Smith, R. and Wright, T. 2020. Older LGBTQI+ people: a protocol for a systematic review of their experiences of receiving home care services in the community. PROSPERO International Prospective Register of Systematic Reviews.
The whole systems approach to integrating urgent and emergency care
Manley, K., Martin, A., Jackson, C. and Wright, T. 2015. The whole systems approach to integrating urgent and emergency care. Health Service Journal- for healthcare leaders.
Reviewing challenges and gaps in European and global dementia policy
Wright, T. and O'Connor, S. 2018. Reviewing challenges and gaps in European and global dementia policy. Journal of Public Mental Health. 17 (4), pp. 157-167. https://doi.org/10.1108/JPMH-02-2018-0012
A realist synthesis of effective continuing professional development (CPD): a case study of healthcare practitioners' CPD
Manley, K., Martin, A., Jackson, C. and Wright, T. 2018. A realist synthesis of effective continuing professional development (CPD): a case study of healthcare practitioners' CPD. Nurse Education Today. 69, pp. 134-141.
Survey of international experts to build consensus about optimum care standards, educational programmes, care environments & technological developments for people living with dementia
Wright, T. and Jackson, C. 2018. Survey of international experts to build consensus about optimum care standards, educational programmes, care environments & technological developments for people living with dementia.
Using participatory, practice development, Delphi and realist research approaches to understand how frontline teams can use the workplace to make sustainable improvements in the quality of their practice
Manley, K., Jackson, C., Martin, A. and Wright, T. 2018. Using participatory, practice development, Delphi and realist research approaches to understand how frontline teams can use the workplace to make sustainable improvements in the quality of their practice.
I would have been/ could be amazing: a social justice oriented visual art rejoinder to whole earth?
Bruty, L., Haas, M., Peisley, T., Royal, L., Wright, K. and Wright, T. 2017. I would have been/ could be amazing: a social justice oriented visual art rejoinder to whole earth? in: Sustainability in Higher Education: Challenges and Opportunities Canterbury Christ Church University.
Safety culture, quality improvement, realist evaluation (SCQIRE): evaluating the impact of the patient safety collaborative initiative
Manley, K., Jackson, C., McKenzie, C., Martin, A. and Wright, T. 2017. Safety culture, quality improvement, realist evaluation (SCQIRE): evaluating the impact of the patient safety collaborative initiative.
The need for black and women of colour feminist epistemologies in critical suicide studies
Hayford, A. and Wright, T. 2018. The need for black and women of colour feminist epistemologies in critical suicide studies .
Primary care strategic workforce planning programme
Jackson, C. and Wright, T. 2017. Primary care strategic workforce planning programme.
Towards radical praxis through a new formation in practice development
Wright, T. 2017. Towards radical praxis through a new formation in practice development. International Practice Development Journal. 7 (2). https://doi.org/10.19043/ipdj.72.006
The ‘imagined to the reimagined’ revival of learning in higher education
Wright, T. 2017. The ‘imagined to the reimagined’ revival of learning in higher education. Journal of Perspectives in Applied Academic Practice. 5 (3). https://doi.org/10.14297/jpaap.v5i3.234
Exploring the benefits of intersectional feminist social justice approaches in art psychotherapy
Wright, T. and Wright, K. 2017. Exploring the benefits of intersectional feminist social justice approaches in art psychotherapy. The Arts in Psychotherapy. 54, pp. 7-14.
Safe caseloads for adult community nursing services – an updated review of the evidence
Jackson, C., Wright, T. and Martin, A. 2016. Safe caseloads for adult community nursing services – an updated review of the evidence.
Using systems thinking to identify workforce enablers for a whole systems approach to urgent and emergency care delivery: a multiple case study
Manley, K., Martin, A., Jackson, C. and Wright, T. 2016. Using systems thinking to identify workforce enablers for a whole systems approach to urgent and emergency care delivery: a multiple case study. BMC Health Services Research. https://doi.org/10.1186/s12913-016-1616-y
Managing gendered expectations upon resettlement: the experiences of Iraqi Kurdish Muslim women in the UK
Wright, T. 2013. Managing gendered expectations upon resettlement: the experiences of Iraqi Kurdish Muslim women in the UK. Gender, Place and Culture. 21 (6), pp. 733-749. https://doi.org/10.1080/0966369X.2013.802665
On ‘sisterhood’: What Iraqi Kurdish women migrants have to say about women and the commonalities they share
Wright, T. 2014. On ‘sisterhood’: What Iraqi Kurdish women migrants have to say about women and the commonalities they share. Journal of International Women's Studies. 15 (2), pp. 182-196.
Reconceptualising dementia friendly communities
Wright, T. 2014. Reconceptualising dementia friendly communities. Diversity and Equality in Health and Care. 11 (3), pp. 282-283.
The contrary nature of ‘differentiation’ in higher education
Wright, T. 2014. The contrary nature of ‘differentiation’ in higher education. Journal of Perspectives in Applied Academic Practice. 2 (2), pp. 52-55. https://doi.org/10.14297/jpaap.v2i2.107
Whatever happened to the F word in higher education?
Wright, T. 2014. Whatever happened to the F word in higher education? Journal of Gender Studies. https://doi.org/10.1080/09589236.2014.931801
Developing a caseload model to reflect the complexity of district and community nursing
Wright, T., Jackson, C., Manley, K., Martin, A. and Leary, A. 2015. Developing a caseload model to reflect the complexity of district and community nursing. Primary Health Care. 25 (7), pp. 32-33. https://doi.org/10.7748/phc.25.7.32.e1057
The Cassandra project: recognising the multidimensional complexity of community nursing for workforce development
Jackson, C., Leary, A., Wright, T., Leadbetter, T., Manley, K. and Martin, A. 2015. The Cassandra project: recognising the multidimensional complexity of community nursing for workforce development. Canterbury Christ Church University England Centre for Practice Development.
Continuing professional development (CPD) for quality care: context, mechanisms, outcome and impact: Education Outcomes Framework: round 2 funding: final report January 2015
Jackson, C., Manley, K., Martin, A. and Wright, T. 2015. Continuing professional development (CPD) for quality care: context, mechanisms, outcome and impact: Education Outcomes Framework: round 2 funding: final report January 2015. Canterbury Christ Chruch University England Centre for Practice Development.
Art for women’s sake: understanding feminist art therapy as didactic practice re-orientation
Wright, T. and Wright, T. 2013. Art for women’s sake: understanding feminist art therapy as didactic practice re-orientation.
Art for women’s sake: understanding feminist art therapy as didactic practice re-orientation
Wright, K. and Wright, T. 2013. Art for women’s sake: understanding feminist art therapy as didactic practice re-orientation.
The Cassandra Project- building a sustainable workload activity model for future community and district nursing workforce capacity planning
Jackson, C., Leary, A., Manley, K., Wright, T. and Martin, A. 2015. The Cassandra Project- building a sustainable workload activity model for future community and district nursing workforce capacity planning.
Art for women’s sake: understanding feminist art therapy as didactic practice re-orientation
Wright, T. and Wright, K. 2013. Art for women’s sake: understanding feminist art therapy as didactic practice re-orientation. International Practice Development Journal. 3 (Suppl.).
Transforming urgent & emergency care together: developing standards for integrated facilitation in and about the workplace
Manley, K., Martin, A., Jackson, C., Wright, T. and Health Education Kent Surrey and Sussex 2015. Transforming urgent & emergency care together: developing standards for integrated facilitation in and about the workplace. Canterbury, UK Canterbury Christ Church University.
Supporting social justice in art therapy
Wright, T. 2015. Supporting social justice in art therapy.
Bespoke CPD for practice nurses
Jackson, C., Crouch, S., Price, S. and Wright, T. 2015. Bespoke CPD for practice nurses. Practice Nursing. 26 (2), pp. 1-5. https://doi.org/10.12968/pnur.2015.26.2.94
Making the complexity of community nursing visible: the Cassandra project
Jackson, C., Manley, K., Martin, A., Wright, T. and Leadbetter, T. 2015. Making the complexity of community nursing visible: the Cassandra project. British Journal of Community Nursing. 20 (3), pp. 126-133. https://doi.org/10.12968/bjcn.2015.20.3.126