Processes in an experience-based co-design project with family carers in community mental health

Journal article

Chisholm, L., Holttum, S. and Springham, N. 2018. Processes in an experience-based co-design project with family carers in community mental health. SAGE Open. 8 (4), pp. 1-13. https://doi.org/10.1177/2158244018809220
AuthorsChisholm, L., Holttum, S. and Springham, N.
Abstract

Experience-based co-design (EBCD) is a service design strategy that facilitates collaborative work between professional staff and service users toward common goals. There is a lack of published examples of it in relation to family carer engagement within a mental health context, and little research exploring the mechanisms behind successful implementation.

The aim of this study was to explore the processes that facilitated EBCD with carer involvement. The study adopted a grounded theory–informed approach involving interviews with 16 participants of an existing EBCD project in an English National Health Service (NHS) trust, reflecting multiple stakeholders. EBCD can be thrown off track in two ways: conflict and getting “bogged down.” Leadership by project and design-group leaders could return group cohesion and maintain project momentum. The developed model reflects key processes.

Future research should examine EBCD projects with similar ranges of stakeholders and in contexts with different levels of organizational change.

KeywordsExperience-based co-design; service user and carer involvement; grounded theory; mental health; community mental health team; England
Year2018
JournalSAGE Open
Journal citation8 (4), pp. 1-13
PublisherSAGE
ISSN2158-2440
Digital Object Identifier (DOI)https://doi.org/10.1177/2158244018809220
Publication dates
Print29 Oct 2018
Publication process dates
Deposited08 Nov 2018
Accepted21 Sep 2018
Publisher's version
Output statusPublished
Additional information

This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://www.creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage)

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