Consulting parents and carers of children with complex needs who use rehabilitation therapy services about research - what issues are important?
Project report
Hutton, E., Apps, J., Cowie, C. and Wells, G. 2018. Consulting parents and carers of children with complex needs who use rehabilitation therapy services about research - what issues are important?
| Authors | Hutton, E., Apps, J., Cowie, C. and Wells, G. |
|---|---|
| Type | Project report |
| Abstract | With the aim of establishing a foundation for collaboration and partnership in research, parents and carers of children with complex needs were invited through a local parent carer forum to take part in a consultation about their priorities for research, with a focus on rehabilitation therapy. Three meetings were organised where researchers and parents and carers could discuss issues and topics of importance. Potential research ideas were generated at these meetings and shared via email with other parents and carers who were unable to attend face-to-face meetings and professionals who work with children with complex need. A number of researchable questions were developed, based on these topics during the time allocated to the consultation. The aim is to build on this work to develop a proposal for funded research that will make a difference to parents and carers and their families. |
| Year | 2018 |
| Output status | Unpublished |
| File | |
| Publication process dates | |
| Deposited | 26 Jan 2018 |
| Completed | Jan 2018 |
| Funder | Higher Education Innovation Funding (HEIF) |
Permalink -
https://repository.canterbury.ac.uk/item/88855/consulting-parents-and-carers-of-children-with-complex-needs-who-use-rehabilitation-therapy-services-about-research-what-issues-are-important
Download files
118
total views68
total downloads3
views this month2
downloads this month
Export as
Related outputs
Parents’ and carers’ attitudes to the use of digital technology and its role in the care of children with complex needs.
Apps, J., Webb, S. and Hutton, E. 2024. Parents’ and carers’ attitudes to the use of digital technology and its role in the care of children with complex needs. The British Journal of Occupational Therapy. 87 (7), pp. 452-460. https://doi.org/10.1177/03080226241233112Interventions to improve continence for children and young people with neurodisability: a national survey of practitioner and family perspectives and experiences.
Eke, H., Ball, S., Allinson, Annette, Anderson, Rob, Hunt, Harriet, Hutton, Eve, Lindsay, Claire, Logan, Stuart, Madden, Nicholas, Melluish, Julia, Richardson, Davina, Rogers, June, Thompson Coon, Jo, Whear, Rebecca, Wright, Anne and Morris, C. 2024. Interventions to improve continence for children and young people with neurodisability: a national survey of practitioner and family perspectives and experiences. BMJ Paediatrics Open. 8 (1), p. e002238. https://doi.org/10.1136/bmjpo-2023-002238Mechanised orthosis for children with neurological disorders (MOTION) - Evaluation of training packages
Hatzidimitriadou, E., Stein, M., Moore, J., Apps, J. and Kanderakis, T. 2023. Mechanised orthosis for children with neurological disorders (MOTION) - Evaluation of training packages. Canterbury Canterbury Christ Church University.Mechanised orthosis for children with neurological disorders (MOTION) - Assessment of training needs of professionals and parents in bionic rehabilitation final report on survey and interviews of health care professionals and parents of children with CP
Hatzidimitriadou, E., Apps, J., Stein, M. and Moore, J. 2023. Mechanised orthosis for children with neurological disorders (MOTION) - Assessment of training needs of professionals and parents in bionic rehabilitation final report on survey and interviews of health care professionals and parents of children with CP. Canterbury Canterbury Christ Church University.Occupational therapy through a feminist lens
Wells, G. 2022. Occupational therapy through a feminist lens.EMPOWERing older people and their communities to manage their own CARE (EMPOWERCARE): Evaluation study of a social innovation initiative across four European countries
Hatzidimitriadou, E., Wright, T., Stirrup, V., Kuzbit, P., Thompson, T., DeBraal, P, Burton, C., Price, A., Stein, M., Wells, G., Manship, S., Martin, A. and Chung, P. 2022. EMPOWERing older people and their communities to manage their own CARE (EMPOWERCARE): Evaluation study of a social innovation initiative across four European countries. International Journal of Integrated Care. https://doi.org/10.5334/ijic.ICIC22333Improving continence in children and young people with neurodisability: a systematic review and survey.
Eke, H., Hunt, H., Ball, S., Rogers, M., Whear, R., Allinson, A., Melluish, J., Lindsay, C., Richardson, D., Rogers, J., Hutton, E., Madden, N., Wright, A., Anderson, R., Logan, S., Thompson Coon, J. and Morris, C. 2021. Improving continence in children and young people with neurodisability: a systematic review and survey. Health Technology Assessment. 25 (73), pp. 1-258. https://doi.org/10.3310/hta25730Uptake of, attitudes to and experiences of robotic assistive technology in health professionals, parents and carers of children and young adults with neurodisabilities: a protocol for a systematic review
Smith, R., Apps, J. and Hatzidimitriadou, E. 2021. Uptake of, attitudes to and experiences of robotic assistive technology in health professionals, parents and carers of children and young adults with neurodisabilities: a protocol for a systematic review. National Institute for Health Research.Universal approaches to support children’s physical and cognitive development in the early years
Soan, S. and Hutton, E. 2021. Universal approaches to support children’s physical and cognitive development in the early years. Abingdon, Oxon Routledge.Supporting students through a rapidly changing landscape
Wells, G. and Harvey, S. 2020. Supporting students through a rapidly changing landscape. 28 (8), pp. 29-31.POSTED -therapist-led postural care workshop for parents and teaching staff
Hotham, S., Hutton, E. and Hamilton-West, K. 2012. POSTED -therapist-led postural care workshop for parents and teaching staff.POSTED train the trainer workshop
Hotham, S., Hutton, E. and Hamilton-West, K. 2016. POSTED train the trainer workshop.POSTED - general questionnaire
Hotham, S., Hutton, E. and Hamilton-West, K. 2014. POSTED - general questionnaire.POSTED training manual
Hutton, E. and Hamilton-West, K. 2016. POSTED training manual.Childfree women as occupational beings
Wells, G. 2019. Childfree women as occupational beings.SPARKLE report - supporting pre-school groups in Mid Kent
Hutton, E. 2008. SPARKLE report - supporting pre-school groups in Mid Kent.Divided and United Kingdom: parents in education and the common issue of inequality across the diversity of four nations
Christie, S. and Apps, J. 2019. Divided and United Kingdom: parents in education and the common issue of inequality across the diversity of four nations. in: Byrne, D. and Paseka, A. (ed.) Parental Involvement Across European Education Systems : Critical Perspectives Abingdon, Oxon. Routledge.The experiences of women as occupational beings
Wells, G. 2018. The experiences of women as occupational beings.Greater choice and control ? parent carer views on personal health budgets for disabled children who use rehabilitation therapy services.
Hutton, E. and King, A. 2018. Greater choice and control ? parent carer views on personal health budgets for disabled children who use rehabilitation therapy services.Running a research consultation group with parents and carers of children with complex health needs who use children’s rehabilitation therapy services: practical considerations and insights
Hutton, E., Apps, J., Wells, G. and Cowie, C. 2017. Running a research consultation group with parents and carers of children with complex health needs who use children’s rehabilitation therapy services: practical considerations and insights.5 school newsletter mistakes you're probably making
Apps, J. 2017. 5 school newsletter mistakes you're probably making. Teach Primary. 11 (3), pp. 62-63.Supporting parents and carers of children with physical disabilities
Hutton, E. 2017. Supporting parents and carers of children with physical disabilities.Greater choice and control? parent carers views on personal health budgets for children who use rehabilitation therapy services
Hutton, E. and King, A. 2017. Greater choice and control? parent carers views on personal health budgets for children who use rehabilitation therapy services.POSTED postural care in education - evaluation report
Hutton, E. 2017. POSTED postural care in education - evaluation report.First in family to attend University: understanding and enabling the parent-child support relationship
Apps, J. and Christie, S. 2018. First in family to attend University: understanding and enabling the parent-child support relationship. International Journal About Parents in Education. 10 (1), pp. 59-69.Parent/carer views on personal health budgets for disabled children who use rehabilitation therapy services
Hutton, E. and King, A. 2017. Parent/carer views on personal health budgets for disabled children who use rehabilitation therapy services. Disability & Society. 33 (2), pp. 254-271. https://doi.org/10.1080/09687599.2017.1398636Exploring the participation of children with Down Syndrome in Handwriting Without Tears®
Patton, S. and Hutton, E. 2017. Exploring the participation of children with Down Syndrome in Handwriting Without Tears®. Journal of Occupational Therapy, Schools, & Early Intervention. 10 (2), pp. 171-184. https://doi.org/10.1080/19411243.2017.1292485A study in to the effectiveness of a postural care training programme aimed at improving knowledge, understanding, and confidence in parents and school staff
Hotham, S., Hamilton-West, K., Hutton, E., King, A. and Abbott, N. 2017. A study in to the effectiveness of a postural care training programme aimed at improving knowledge, understanding, and confidence in parents and school staff. Child: Care, Health and Development. https://doi.org/10.1111/cch.12444Parents' perspectives on a collaborative approach to the application of the Handwriting Without Tears programme with children with Down Syndrome
Patton, S. and Hutton, E. 2016. Parents' perspectives on a collaborative approach to the application of the Handwriting Without Tears programme with children with Down Syndrome. Australian Occupational Therapy Journal. 63 (4), pp. 266-276. https://doi.org/10.1111/1440-1630.12301Understanding the support needs of disabled children and their families in East Kent
Hutton, E., King, A., Hamilton-West, K. and Hotham, S. 2016. Understanding the support needs of disabled children and their families in East Kent.Writing readiness and children with Down Syndrome in an Irish context
Patton, S. and Hutton, E. 2016. Writing readiness and children with Down Syndrome in an Irish context. Support for Learning. 31 (3). https://doi.org/10.1111/1467-9604.12132Researching together, inter-professional research in postural care for children with disabilities
Hutton, E. and Crombie, S. 2014. Researching together, inter-professional research in postural care for children with disabilities.
POSTED increasing confidence in postural care
Hutton, E. 2015. POSTED increasing confidence in postural care.A kaleidoscope of enquiry - showcasing examples of collaborative practice to promote inclusive learning environments
Soan, S., Hutton, E. and MacCobb, S. 2015. A kaleidoscope of enquiry - showcasing examples of collaborative practice to promote inclusive learning environments. BERA Conference 2015. Belfast 15 - 17 Sep 2015A study into the effectiveness of an education programme for parents and teachers
Hutton, E., Hotham, S. and Hamilton-West, K. 2013. A study into the effectiveness of an education programme for parents and teachers.