Disorders of sex development: mothers’ experiences of support
Chivers, C., Burns, J. and Deiros, M. 2017. Disorders of sex development: mothers’ experiences of support. Clinical Child Psychology and Psychiatry. https://doi.org/10.1177/1359104517719114
|Authors||Chivers, C., Burns, J. and Deiros, M.|
Methods: Interpretive Phenomenological Analysis was used to analyse semi-structured interviews with eight mothers of children with DSD about their experiences of support.
Results: Four master themes emerged which encapsulated (a) the stages in their child’s development when mothers most needed support, (b) the importance of developing an understanding of the child’s condition, (c) the lack of acknowledgement of the emotional needs of the parent and (d) the importance of having close and trusted networks for support. Continuity and availability of support were considered important and while all participants prioritised maintaining privacy about the condition, a minority felt that this impacted the level of support they received.
Conclusions: Key time points for support were identified and while some felt that they were well supported others felt that the support available did not meet their emotional needs. Clinical implications and directions for future research were considered.
|Journal||Clinical Child Psychology and Psychiatry|
|Digital Object Identifier (DOI)||https://doi.org/10.1177/1359104517719114|
|Online||28 Jul 2017|
|01 Oct 2017|
|Publication process dates|
|Deposited||01 Sep 2017|
|Accepted||15 Jun 2017|
|Accepted author manuscript|
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