Educating children with life-limiting conditions. A practical handbook for teachers and school-based staff

Book


Ekins, A., Robinson, S., Durrant, I. and Summers, K. 2017. Educating children with life-limiting conditions. A practical handbook for teachers and school-based staff. London Routledge.
AuthorsEkins, A., Robinson, S., Durrant, I. and Summers, K.
Abstract

Educating Children with Life-Limiting Conditions supports teachers who are working with children with life-limiting or life-threatening conditions in mainstream schools by providing them with the core knowledge and skills that underpin effective practice within a whole-school and cross-agency approach.

Mainstream schools now include increasing numbers of children with life-limiting or life-threatening conditions, and this accessible book is written by a team comprised of both education and health professionals, helping to bridge the gap between different services.

Recognising the complexity of individual cases, the authors communicate key principles relating to the importance of communication, multi-professional understanding and working and proactive planning for meeting the needs of any child with a life-limiting or life-threatening condition that can be applied to a range of situations.

Reflective activities and practical resources are provided and are also available to download. This bookwill be of interest to teachers in mainstream schools, as well as teachers, SENCOs and senior leaders in all school settings, school nurses, children’s nurses and allied health professionals.

Keywordsschools, children, medical conditions, teachers
Year2017
PublisherRoutledge
Output statusPublished
Publication dates
Print2017
Publication process dates
Deposited30 May 2017
Place of publicationLondon
ISBN9781138678095
Related URLhttps://www.routledge.com/Educating-Children-with-Life-Limiting-Conditions-A-Practical-Handbook/Ekins-Robinson-Durrant-Summers/p/book/9781138678095
References

Reviews

‘With the increasing number of pupils in both special and mainstream schools who have complex medical needs, this is a must have book for every staff-room. The easy to read format gives opportunity for reflection and very practical and informative advice and support for all school practitioners. Written by education and health professionals, you get a real sense of a multi-disciplinary approach to meeting the needs of our most vulnerable pupils. A very difficult subject dealt with in a caring, compassionate and very helpful way.’ - Lorraine Petersen OBE, Educational Consultant and Former CEO of NASEN.


‘This is a book on a vital but neglected, and for some teachers rather frightening, subject, that is reassuring, practical and inspirational. It sets out the key principles, knowledge and skills that are needed for implementing effective strategies for working with children with life limiting conditions in mainstream schools, outlining the elements of good practice, using a joined up, whole school multi-professional approach to which teachers will relate easily. It is grounded by the reflective activities which engage the reader from the outset and ensure that the valuable learning can be applied in real life school and classroom situations. I learned a good deal from reading this.’ - Katherine Weare, Emeritus Professor, Southampton Education School, University of Southampton.

Additional information

A book written by academics in education, children's nursing, play therapy, psychology, special educational needs and inclusion.

Permalink -

https://repository.canterbury.ac.uk/item/882q3/educating-children-with-life-limiting-conditions-a-practical-handbook-for-teachers-and-school-based-staff

  • 480
    total views
  • 0
    total downloads
  • 3
    views this month
  • 0
    downloads this month

Export as

Related outputs

Inequalities and health
Corvo, E., Lane-Martin, A and Robinson, S. 2022. Inequalities and health. in: Robinson, S. (ed.) Principles and Practice of Health Promotion and Public Health Routledge. pp. 59-90
Research methods and evidence-based practice
Dr Elisabetta Corvo, Dr Joanne Cairns and Dr Sally Robinson 2022. Research methods and evidence-based practice. in: Robinson, S. (ed.) Principles and Practice of Health Promotion and Public Health London Routledge. pp. 89-112
Poverty and health
Corvo, E. and Robinson, S. 2021. Poverty and health. in: Robinson, S. (ed.) Priorities for Health Promotion and Public Health London Routledge. pp. 91-117
Outdoor provision for babies and toddlers: Exploring the practice/policy/research nexus in English ECEC settings
Josephidou, Jo, Kemp, Nicola and Durrant, Ian 2021. Outdoor provision for babies and toddlers: Exploring the practice/policy/research nexus in English ECEC settings. European Early Childhood Education Research Journal. 29 (6). https://doi.org/10.1080/1350293x.2021.1985555
Making connections with their world: Outdoor provision for under-twos in early childhood settings in Kent
Kemp, N., Josephidou, J. and Durrant, I. 2020. Making connections with their world: Outdoor provision for under-twos in early childhood settings in Kent . Canterbury Canterbury Christ Church University.
An evaluation of community-based interventions used on the prevention of female genital mutilation in West African countries
Ekundayo, R. and Robinson, S. 2019. An evaluation of community-based interventions used on the prevention of female genital mutilation in West African countries. European Scientific Journal. 15 (30). https://doi.org/10.19044/esj.2019.v15n30p1
Educating public health champions
Robinson, S. and Brownett, T. 2018. Educating public health champions. Health Education Journal. https://doi.org/10.1177/0017896918786016
Educating children with life limiting and life threatening conditions
Robinson, S. and Durrant, I. 2018. Educating children with life limiting and life threatening conditions. Teaching Transforms Lives: How Can Teacher Education Help Address Social Inequality. Discovery Park, Sandwich, Kent 19 Jun 2018
Teachers communicating about life-limiting conditions, death and bereavement
Robinson, S., Ekins, A., Durrant, I. and Summers, K. 2018. Teachers communicating about life-limiting conditions, death and bereavement. Pastoral Care in Education. 36 (1), pp. 57-69. https://doi.org/10.1080/02643944.2017.1422007
Children's health and wellbeing
Robinson, S. 2017. Children's health and wellbeing. in: Powell, S. and Smith, K. (ed.) An Introduction to Early Childhood Studies London SAGE. pp. 175-185
Risk and teenage parenthood: an early sexual health intervention
Robinson, S. and Robinson, C. 2017. Risk and teenage parenthood: an early sexual health intervention. Health Education. 117 (4). https://doi.org/10.1108/HE-01-2017-0007
Have you been KIST? Sex, risk and young people
Robinson, S. and Robinson, S. 2014. Have you been KIST? Sex, risk and young people.
Inclusive educational provision for newly-arrived unaccompanied asylum-seeking and refugee children: a study in a single school in Kent
Peterson, A., Durrant, I., Meehan, C. and Ali, Z. 2017. Inclusive educational provision for newly-arrived unaccompanied asylum-seeking and refugee children: a study in a single school in Kent. Canterbury Canterbury Christ Church University.
What are the educational needs and experiences of asylum-seeking and refugee children, including those who are unaccompanied, with a particular focus on inclusion? - A literature review
Peterson, A., Meehan, C., Ali, Z. and Durrant, I. 2017. What are the educational needs and experiences of asylum-seeking and refugee children, including those who are unaccompanied, with a particular focus on inclusion? - A literature review. Canterbury Canterbury Christ Church University.
Why well-being? Why you? Why now?
Robinson, S. 2016. Why well-being? Why you? Why now?
Children's views of older people
Robinson, S. and Howatson-Jones, L. 2014. Children's views of older people. Journal of Research in Childhood Education. 28 (3), pp. 293-312. https://doi.org/10.1080/02567853.2014.912995
Evaluation of Mencap’s Inspired Educators project
Ellis, S., Durrant, I. and Lynne Graham-Matheson, L. 2015. Evaluation of Mencap’s Inspired Educators project.
Supporting children with life limiting or threatening conditions in mainstream education
Robinson, S. and Summers, K. 2014. Supporting children with life limiting or threatening conditions in mainstream education.
Why do children become overweight?
Robinson, S. 2013. Why do children become overweight? Pediatrics for Parents. 28 (09/10), pp. 18-19. https://doi.org/5516
Life limiting illness in the classroom
Robinson, S. and Summers, K. 2013. Life limiting illness in the classroom. Every Child Update. 29.
Children's health and wellbeing
Robinson, S. 2014. Children's health and wellbeing. in: Maynard, T. and Powell, S. (ed.) An Introduction to Early Childhood Studies London SAGE. pp. 197-210
Teaching for life
Robinson, S. and Summers, K. 2013. Teaching for life.
An evaluation of the educational support for teachers who teach children with life limiting illness in mainstream schools
Robinson, S. and Summers, K. 2012. An evaluation of the educational support for teachers who teach children with life limiting illness in mainstream schools.
An evaluation of the educational support for teachers who teach children with life limiting illness in mainstream schools
Robinson, S. and Summers, K. 2012. An evaluation of the educational support for teachers who teach children with life limiting illness in mainstream schools.
An examination of the educational support for teachers who teach children with life limiting illnesss in mainstream schools
Robinson, S. and Summers, K. 2012. An examination of the educational support for teachers who teach children with life limiting illnesss in mainstream schools.
Children's perceptions of eating and body image
Robinson, S. 1999. Children's perceptions of eating and body image. PhD Thesis University of Southampton Education
Teaching for Life
Durrant, I., Robinson, S., Ekins, A., Summers, K. and Jones, H. 2014. Teaching for Life. Canterbury Canterbury Christ Church University.
Teaching for life: teachers and life limiting conditions
Robinson, S. and Summers, K. 2014. Teaching for life: teachers and life limiting conditions.
Teaching for life
Robinson, S. and Durrant, I. 2014. Teaching for life.
The emerging butterfly: the health promoting hospital nurse
Robinson, S. 2000. The emerging butterfly: the health promoting hospital nurse.
A narrative literature review of the development of obesity in infancy and childhood
Robinson, S., Yardy, K. and Carter, V. 2012. A narrative literature review of the development of obesity in infancy and childhood. Journal of Child Health Care. 16 (4), pp. 339-354. https://doi.org/10.1177/1367493512443908
Management of whooping cough
Summers, K. 2011. Management of whooping cough. in: Glasper, A., McEwing, G. and Richardson, J. (ed.) Emergencies in Children's and Young People's Nursing Oxford University Press. pp. 164-165
Neurological problems: nursing care of meningitis
Summers, K. 2011. Neurological problems: nursing care of meningitis. in: Glasper, E., McEwing, G. and Richardson, J. (ed.) Emergencies in Children's and Young People's Nursing Oxford University Press. pp. 118-119
Earning its keep: a social return of investment study of CCCU Arts & Culture at the Old Lookout Gallery, Broadstairs
Durrant, I. and Shepherdson, S. 2013. Earning its keep: a social return of investment study of CCCU Arts & Culture at the Old Lookout Gallery, Broadstairs. Broadstairs Canterbury Christ Church University.
A preliminary report exploring the need for and development of a coherent Personal and Social Education curriculum
Maynard, T., Moss, J., Bowie, R. A., Christie, S., Bainbridge, A., Barnes, J., Blamires, M., Hassett, A., Powell, S., Robinson, S. and Canterbury Christ Church University 2013. A preliminary report exploring the need for and development of a coherent Personal and Social Education curriculum.
Busy bodies: an interactive event for pre-school children and their carers
Robinson, S. and Vella-Burrows, T. 2002. Busy bodies: an interactive event for pre-school children and their carers. Bodies at the Metropole. The Metropole Galleries, Folkestone, UK 26 Sep 2002
The involvement of service users in developing a children's nursing programme-extending the conversation of children and young people.
Summers, K. 2012. The involvement of service users in developing a children's nursing programme-extending the conversation of children and young people.
An action research project evaluating core health visiting service in South West Kent Primary Care NHS Trust
Smith, A., Crilley, L., Lungmuss, J., Robinson, S., Winstanley, A. and Bailey, D. 2004. An action research project evaluating core health visiting service in South West Kent Primary Care NHS Trust.
The impact of extended services in Kent
Durrant, I. 2012. The impact of extended services in Kent.
Schools and their communities: pupil and teacher perceptions of community action
Durrant, I., Peterson, A., Hoult, E. and Leith, L. 2011. Schools and their communities: pupil and teacher perceptions of community action.
An evaluation of the educational support for teachers who teach children with life-limiting illness in schools
Robinson, S. and Summers, K. 2012. An evaluation of the educational support for teachers who teach children with life-limiting illness in schools. Pastoral Care in Education. 30 (3), pp. 191-207. https://doi.org/10.1080/02643944.2012.671341
Pupil and teacher perceptions of community action: an English context
Durrant, I., Peterson, A., Leith, L. and Hoult, E. 2012. Pupil and teacher perceptions of community action: an English context. Educational Research. 54 (3), pp. 259-283. https://doi.org/10.1080/00131881.2012.710087
The impact of extended services in Kent
Durrant, I. and Peterson, A. 2012. The impact of extended services in Kent. Canterbury Canterbury Christ Church University.
The Canterbury experience of simulation in children’s nursing
Summers, K. and Kingsland, S. 2008. The Canterbury experience of simulation in children’s nursing.
Lost and found: the health promoting nurse
Robinson, S. 2000. Lost and found: the health promoting nurse.
Eating Abroad Together Project: Canterbury Christ Church University
Summers, K. 2009. Eating Abroad Together Project: Canterbury Christ Church University.
Working development and natural alliances
Summers, K. 2009. Working development and natural alliances.
Caring for children and families receiving palliative care: A phenomenological study
Summers, K. 2009. Caring for children and families receiving palliative care: A phenomenological study.
Caring for children and families receiving palliative care: A phenomenological study
Summers, K. 2009. Caring for children and families receiving palliative care: A phenomenological study.
Kent healthy early years pilot
Robinson, S., Meehan, C. and Powell, S. 2010. Kent healthy early years pilot.
Women, weight and health: self-help and empowerment
Robinson, S. 1996. Women, weight and health: self-help and empowerment. Community Practitioner and Health Visitor Journal. 69 (10), pp. 432-433.
Women, weight and health: the biomedical model
Robinson, S. 1996. Women, weight and health: the biomedical model. Community Practitioner and Health Visitor Journal. 69 (9), pp. 379-381.
Simulation and clinical skills child health forum at Canterbury Christ Church University: from the bedside to the classroom
Summers, K. 2010. Simulation and clinical skills child health forum at Canterbury Christ Church University: from the bedside to the classroom.
Eating Abroad Together (EAT): The impact of a European language and intercultural intervention on teachers' knowledge and attitudes
Robinson, S. 2010. Eating Abroad Together (EAT): The impact of a European language and intercultural intervention on teachers' knowledge and attitudes.
Children and young people's views of health professionals in England
Robinson, S. 2010. Children and young people's views of health professionals in England. Journal of Child Health Care. 14 (4), pp. 310-326. https://doi.org/10.1177/1367493510381772
Kent Healthy Early Years pilot: practitioners' and parents' views
Robinson, S., Meehan, C. and Powell, S. 2010. Kent Healthy Early Years pilot: practitioners' and parents' views. Kent County Council Extended Schools Service/East Kent Coastal and West Kent PCTs.
Healthy early years
Robinson, S., Meehan, C. and Powell, S. 2010. Healthy early years.
Listening to the student voice
Ekins, A. 2010. Listening to the student voice. in: Soan, S. (ed.) The SENCO Handbook London Optimus. pp. 343-362
Monitoring and evaluating provision: a strategic whole school approach
Ekins, A. 2010. Monitoring and evaluating provision: a strategic whole school approach. in: Soan, S. (ed.) The SENCO Handbook London Optimus. pp. 175-200
Developing a joined-up approach to strategic whole school processes
Ekins, A. 2010. Developing a joined-up approach to strategic whole school processes. in: Hallett, F. and Hallett, G. (ed.) Transforming the role of the SENCo: achieving the National Award for SEN Coordination Maidenhead Open University Press. pp. 111-117
Understanding and tackling underachievement: whole-school strategies to meet the needs of vulnerable children in primary schools
Ekins, A. 2010. Understanding and tackling underachievement: whole-school strategies to meet the needs of vulnerable children in primary schools. London Optimus.
Miracles take a little longer: project 2000 and the health-promoting nurse
Robinson, S. 1995. Miracles take a little longer: project 2000 and the health-promoting nurse. International Journal of Nursing Studies. 32 (6), pp. 568-579. https://doi.org/10.1016/0020-7489(95)00021-6
Nursing in Saudi Arabia
Robinson, S. 1995. Nursing in Saudi Arabia. Nursing Times.
Children's perceptions of who controls their food
Robinson, S. 2000. Children's perceptions of who controls their food. Journal of Human Nutrition and Dietetics. 13 (3), pp. 163-171. https://doi.org/10.1046/j.1365-277x.2000.00229.x
Our healthier hospital? The challenge for nursing
Robinson, S. and Hill, Y. 1999. Our healthier hospital? The challenge for nursing. Journal of Nursing Management. 7 (1), pp. 13-17. https://doi.org/10.1046/j.1365-2834.1999.00972.x
The health promoting nurse
Robinson, S. and Hill, Y. 1998. The health promoting nurse. Journal of Clinical Nursing. 7 (3), pp. 232-238. https://doi.org/10.1046/j.1365-2702.1998.00151.x
The new health visitor
Robinson, S., Arnott, J. and Greaves, J. 2007. The new health visitor. in: Nurse, A. (ed.) The New Early Years Professional: Dilemmas and Debates London Routledge. pp. 111-121
EAT: What the teachers said
Robinson, S. 2009. EAT: What the teachers said.
Arts and health care: the student nurse's journey
Robinson, S. 2006. Arts and health care: the student nurse's journey.
Arts in nurse education: learning to make us feel better
Robinson, S. 2006. Arts in nurse education: learning to make us feel better.
National diet and nutrition survey: young people aged 4 to 18 years
Robinson, S. 2001. National diet and nutrition survey: young people aged 4 to 18 years.
Introducing a breast health strategy into schools
Rogers, C., Thompson, K. and Robinson, S. 2002. Introducing a breast health strategy into schools. Health Education. 102 (3), pp. 106-112. https://doi.org/10.1108/09654280210425994
Outpatient nurses: from handmaiden to autonomous practioner
Robinson, S. and Brenchley, T. 2001. Outpatient nurses: from handmaiden to autonomous practioner. British Journal of Nursing. 10 (16), pp. 1067-1072.
Interprofessional working through the eating abroad together project
Summers, K. 2010. Interprofessional working through the eating abroad together project. Paediatric Nursing. 22 (5), pp. 14-18.
Children's views of their workforce
Graham-Matheson, L., Hryniewicz, L., Powell, S., Meehan, P. and Robinson, S. 2009. Children's views of their workforce. Leeds, UK Children's Workforce Network.
Pre-school overweight and obesity in England
Robinson, S. and Page, K. 2009. Pre-school overweight and obesity in England. Health Education. 109 (6), pp. 507-521. https://doi.org/10.1108/09654280911001176
What play therapists do within the therapeutic relationship of humanistic/non-directive play therapy
Robinson, S. 2011. What play therapists do within the therapeutic relationship of humanistic/non-directive play therapy. Pastoral Care in Education. 29 (3), pp. 207-220. https://doi.org/10.1080/02643944.2011.599858
An inter-professional approach to children's nursing education
Summers, K. and Thurgate, C. 2006. An inter-professional approach to children's nursing education. Paediatric Nursing. 18 (9), pp. 34-37.
Holistic health promotion: putting the art into nurse education
Robinson, S. 2007. Holistic health promotion: putting the art into nurse education. Nurse Education in Practice. 7 (3), pp. 173-180. https://doi.org/10.1016/j.nepr.2006.06.004
Simulation: issues and challenges
Summers, K. and Kingsland, S. 2009. Simulation: issues and challenges. Paediatric Nursing. 21 (3), p. 33.
Children's books: a resource for children's nursing care
Robinson, S. 2002. Children's books: a resource for children's nursing care. Paediatric Nursing. 14 (5), pp. 26-31.
Guides for measuring the impact of educational programmes
Durrant, I. and Schmit, A. 2009. Guides for measuring the impact of educational programmes. Canterbury Canterbury Christ Church University.
Local Authority Development Collaboratives 2008-09 report
Leith, L., Durrant, I., Moore, Joanne and Timothy, A. 2009. Local Authority Development Collaboratives 2008-09 report. Canterbury Canterbury Christ Church University.
Introducing the arts into nurse education
Robinson, S. 2007. Introducing the arts into nurse education. The Journal of the Royal Society for the Promotion of Health. 127 (1), pp. 11-12. https://doi.org/10.1177/1466424007073201
Evidence-based practice: non-invasive blood pressure measurement in children
Summers, K. 2007. Evidence-based practice: non-invasive blood pressure measurement in children. Journal of Children's and Young People's Nursing. 1 (2), pp. 58-63.
Using art in pre-registration nurse education
Robinson, S. 2007. Using art in pre-registration nurse education. Health Education. 107 (4), pp. 324-342. https://doi.org/10.1108/09654280710759241
Healthy eating in primary schools
Robinson, S. 2006. Healthy eating in primary schools. London SAGE Publications.
Books: a valuable resource for children's nursing care
Robinson, S., Hughes, K. and Manning, K. 2002. Books: a valuable resource for children's nursing care. Paediatric Nursing. 14 (5), pp. 26-31.