I'm not all gone, I can still speak: the experiences of younger people with dementia: an action research study
Journal article
Pipon-Young, F., Lee, K., Jones, F. and Guss, R. 2012. I'm not all gone, I can still speak: the experiences of younger people with dementia: an action research study. Dementia: The International Journal for Social Research and Practice. 11 (5), pp. 597-616. https://doi.org/10.1177/1471301211421087
Authors | Pipon-Young, F., Lee, K., Jones, F. and Guss, R. |
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Abstract | In this study we explored the experiences of younger people with dementia (age 60–67 years) using an action research methodology across three phases. Phase One involved interviews with participants (n = 8). Phases Two (n = 5) and Three (n = 4) consisted of two action research groups. Thematic analysis highlighted few difficulties commonly associated with younger people with dementia (e.g. loss of employment). Participants highlighted a need for social support from a variety of sources as well as the opportunity to develop a shared social identity and a focus on remaining strengths. The ‘action’ (Phase Three) comprised a leaflet written by participants for other people with dementia. The findings suggest there is a need for people with dementia to receive information from people who have experienced dementia and for that information to foster a sense of hope and resilience. Furthermore, the findings support the use of action research methodologies with people with dementia. |
Year | 2012 |
Journal | Dementia: The International Journal for Social Research and Practice |
Journal citation | 11 (5), pp. 597-616 |
Publisher | SAGE |
ISSN | 1471-3012 |
Digital Object Identifier (DOI) | https://doi.org/10.1177/1471301211421087 |
Publication dates | |
10 Nov 2012 | |
Publication process dates | |
Deposited | 07 Mar 2012 |
Output status | Published |
https://repository.canterbury.ac.uk/item/86888/i-m-not-all-gone-i-can-still-speak-the-experiences-of-younger-people-with-dementia-an-action-research-study
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